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Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.
With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.
Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that reside within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.
Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.
449 Episodes
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Send us a Text Message.Amy Milz opens her heart to us—quite literally—in a candid recount of her life as a congenital heart defect survivor. With grace and vulnerability, she takes us through the paces of her medical odyssey, from the relentless advocacy of her mother to her personal victories in the operating room. Each scar tells a story of resilience and the boundless possibilities of medical science, epitomized by a groundbreaking trial stent that reshaped her destiny. As Amy divulges the...
Send us a Text Message.When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep emotional landscapes of mothers like me. We'll traverse the highs of motherhood, the lows of fear, and the battles that come with CHD, all through the...
Send us a Text Message.When my daughter Hope graced the podcast with her presence, her story wasn't just a chronicle of living with a single ventricle heart at 29—it was a profound testament to her strength amid her gender transition. Our conversation unveils the seamless integration of her heart health with her journey of self-discovery, all while providing tangible advice for those who feel the pull of the pen and the thrill of authorship. Hope's insights on her upcoming book light the way ...
Send us a Text Message.Witnessing your child's bravery and resilience as they navigate a life-altering condition like hypoplastic left heart syndrome (HLHS) is both harrowing and inspiring. Hollie Stephenson joins Anna to share the profound story of her son Tom, who not only fought through the early challenges of HLHS but also the complex battle with protein-losing enteropathy (PLE) in his later years. Her vivid accounts from Tom's diagnosis in utero, through his surgeries, and onto his impre...
Send us a Text Message.When your child's heartbeat is a symphony laced with irregularities, every moment becomes a measure of uncertainty. This is the world heart moms like myself, Anna Jaworski, and my guest Kelsi Rogers live in every day. Join us as we peel back the curtain on the mental marathon of raising children with congenital heart defects (CHD). Our raw conversation plunges into the depths of hypervigilance, the delicate nature of our children's health, and the language that both des...
Send us a Text Message.This episode of "Heart to Heart with Anna" features a very special heart mom. Kelsi Rogers talks about the surprising circumstances around her son's heart condition. Born with an electrical problem in his heart, Jett has already faced life-and-death situations several times in his short life. Not even three years old yet, he has undergone an ablation and an open-heart surgery.Tune in to find out what kind of heart defect Jett has, why the ablation was so extensive, and ...
Send us a Text Message.As an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deanna's tale is a testament to how health education and storytelling can intertwine to provide solace and strength to those facing similar battles. Navigating ...
Send us a Text Message.When Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete with Down Syndrome to conquer an Ironman triathlon, to the everyday triumphs of individuals leading vibrant, fulfilling lives, our dialogue serves as...
Send us a Text Message.When Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellen's dedication to challenging limitations and advocating for CHD research is a beacon of hope that lights up our latest episode. As we celebrate World Down Syndrome Day, we inv...
Send us a Text Message.In this episode of Heart to Heart with Anna we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation.Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia for over 23 years. One of his favorite departments to work with is the EP lab. In this episode, Frank shares some tips to help those in the ...
Send us a Text Message.When Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with a CHD. From the intricate dance of home studies to the emotional synergy with a birth mother, we journey through Megan's path to motherhood. The adoption landscape can be arduous, yet it's traversed with hope and culminates...
Send us a Text Message.Navigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD. This episode goes beyond the clinical; it’s an intimate foray into the emotional and logistical preparations for life's greatest certainties, including power-of-attorney arrangements and will preparations, while also conside...
Send us a Text Message.Navigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing of our children's younger years to the complexities of supporting their maturity and independence. We delve into the potent mix of pride and concern, sharing stories that resonate with anyone who understands the pull of a p...
Send us a Text Message.This episode of Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has a special sale for Heart Month and how we’ll be conducting a Book Study of Volume One of The Heart of a Heart Warrior. You’ll also lea...
Send us a Text Message.Embark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our mission extends beyond conversation; it's a call to empower, educate, and enrich the lives entwined with CHD and bereavement. We're unveiling ex...
Send us a Text Message.Ever wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea to the jubilance of publication. Our conversation unwraps the passion and dedication needed to weave together stories that resonate with the spirit of heart warriors and their families, reflecting on the Kickstarter campaign...
Send us a Text Message.Have you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, I'm thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicine's transformative role in mental health care, especially for those touched by congenital heart defects. Together, we unpack the personalized care that functional medicine offers, emphasizing the power of lifestyle changes and stress reduction to ...
Send us a Text Message.As I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America to our move to Blog Talk Radio and beyond, we've weathered sponsorship storms and emerged stronger, bringing hope and vital information to those touched by CHD. Join me for an intimate retrospective on our top episodes of t...
Send us a Text Message.Imagine living in a family where sudden deaths were a tragic norm. That's the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent loss of her son and daughter have inspired her to become an advocate for early detection and treatment of this life-threatening condition. Journey with us as she shares her family's heart-wrenching story and opens up about ...
Send us a Text Message.How does a young child learn to fight, to survive, and even thrive when they're born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let their heart conditions define them. Emily, born with the rare ALCAPA--Anomalous Origin of the Left Coronary Artery arising from the Pulmonary Artery, takes us through her harrowing experiences with two open-heart surgeries, an...
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