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Invisible Not Broken - Chronic Illness Podcast Network
Invisible Not Broken - Chronic Illness Podcast NetworkSubscribed: 617Played: 12,699
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© Monica and Eva
Description
The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain.
"Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff
Be Kind. Be Gentle. Be A Bad Ass.
Hosted on Acast. See acast.com/privacy for more information.
214 Episodes
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Monica Michelle is joined by consultant and podcast host Tim Reitma.Tim lives with Crohn's Disease.In this episode, Monica and Tim discuss: Tim’s resiliency through managing his Crohn’sThe importance of self-advocacy, especially in the workplace Tim’s podcast why he shares stories of those with invisible illness TIMESTAMPS00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy15:41 - Why Tim started his podcast22:42 - Invisible condition etiquette31:00 - What HR can do better for employees with invisible illness39:31 - Tools Tim uses to care for his Crohn’s outside the homeThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by artist and disability advocate Sunny AmmermanSunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum".In this episode, Monica and Sunny discuss: Sunny’s complex disorders and how she copes with themEverything VR provides from accessible gaming, social platforms and the potential for better online education.Various VR/AR games and their gameplay Sunny’s VR support groupTIMESTAMPS00:45 - What VR/AR offers for chronically ill and disabled folks11:57 - Sunny’s conditions and how she copes with them17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences37:13 - The social aspects of virtual gaming51:32 - What opportunities VR has for the future1:04:49 - Sunny’s VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by Journalist Julia Metraux.Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID.In this episode, Monica and Julia discuss: Julia's diagnosis with vasculitis and how it influences her journalistic lensHow community impacts the mental health of those with chronic illnessHow Julia and Monica find positives and negatives in the internet spaces for chronically ill and disabled folksThe politics of how government, businesses, and celebrities influence the chronic illness community TIMESTAMPS00:32 - Julia's diagnostic journey07:02 - Julia’s work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyleThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author & physiotherapist Kevin Hunt.Kevin lives with chronic pain.In this episode, Monica and Kevin discuss: Kevin’s philosophy of pain management as a physiotherapist who experiences chronic pain. The Hexagon Model, a life-management tool for focusing on what’s important to you.Kevin’s idea behind his new book.Using pain as a guide.TIMESTAMPS00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life’s needs14:00 - Putting aside the idea of a “quick fix”19:45 - Kevin’s personal experience with pain and how he uses it with patients28:44 - Kevin’s book, “Pain: The Ultimate Mentor”The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author & personal trainer John K. Frazier.John lives with ankylosing spondylitis.In this episode, Monica and John discuss: John’s work as a physical trainer and authorChronic pain comparisonsPersonal triumphTIMESTAMPS00:50 - John’s business & diagnosis07:19 - Chronic pain olympics09:31 - Talking about & hiding a diagnosis15:09 - Personal triumph18:24 - Staying in the present23:29 - The superman complexThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by musician Laura Mustard.Laura lives with VATER syndrome.In this episode, Monica and Laura discuss: Laura’s inspiration for her upcoming musical EP.How Laura’s illness impacted her recent relationship & self-image.Laura’s creative process, new music, and social media pressure.TIMESTAMPS00:30 - Laura’s new EP / Monica’s recent COVID experience05:32 - Relationships with chronic illness11:20 - Image and self acceptance with disability15:32 - Laura’s creative process and current projects20:05 - Pursuing creativity despite social media attentionThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Amanda Chay.Amanda lives with Sjögren’s and Lupus.In this episode, Monica and Amanda discuss: Amanda’s book & diagnosisOutlooking on work & writingNavigating chronic illness with kids & familyTIMESTAMPS00:26 - Intro + The Girlfriend’s Guide to Lupus02:17 - Amanda’s diagnosis10:09 - Amanda’s outlook on writing17:11 - Navigating chronic illness with kids & family23:29 - Labels and roles26:24 - Flare reads & closing remarksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Alexis Kline.Alexis lives with Dysautonomia.In this episode, Monica and Alexis discuss: Being a sick teenagerHaving an isolated diagnosisProductivity workflowsTIMESTAMPS00:28 - Alexis’s diagnosis & dog07:18 - Sick teenager road map10:00 - Alexis’s book & workflow16:25 - Having an isolated diagnosis20:50 - Wildlife photography, purchases The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Emily Falcon.Emily lives with ALCAPA.In this episode, Monica and Emily discuss: Growing up sickPost-surgery supportHaving a public bodySelf-motivation and adventuringTIMESTAMPS00:28 - Being a sick kid & Emily’s book title07:28 - Mortality10:16 - Portrayal of disability in media12:21 - Post-surgery support19:23 - Having a public body23:43 - Self-motivation29:46 - Emily’s tips for adventuresThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by writer and entrepreneur Micaela Hoo.Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease.In this episode, Monica and Micaela discuss: Micaela's diagnosis storyHealthcare insuranceTIMESTAMPS00:24 - The start of Micaela’s diagnosis journey14:42 - Gastroparesis & Micaela’s research16:52 - Healthcare insurance, wait times, and bad docs21:52 - Micaela’s research pays off25:52 - Medical closure29:33 - Micaela’s businessesThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by physical therapist Rita White.Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS.In this episode, Monica and Rita discuss: Rita’s work as a physical therapistToxic productivity mentalityHappiness from self-understanding and patienceTIMESTAMPS00:38 - Rita’s diagnosis and job04:58 - “pushing through the pain”14:10 - handling bad days & Rita’s business19:28 - productivity and patience26:16 - favorite purchases under $100 & closing remarksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by author Sara Staggs.Sara lives with epilepsy.In this episode, Monica and Sara discuss: Being a full-time creative with a disabilityPregnancy & parentingDisability disclosureChronic illness in mediaTIMESTAMPS00:30 - Sara’s writing process06:03 - Sara’s diagnosis & college09:44 - Pregnancy & parenting13:37 - Disability disclosure in dating and parenting19:17 - Characters with chronic illness24:36 - Seizure first aid and life with epilepsy27:37 - Favorite purchases under $100The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com#epilepsy #epilepsyawareness #author #UncontrollableBook #SaraStaggs Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is once again joined by musician, chef, and activist Dione Bullard.Dione lives with End Stage Renal Disease.In this episode, Monica and Dione discuss: Favorite TV showsFavorite booksMoments of delightParentingTIMESTAMPS02:20 - Platonic11:42 - Somewhere Boy14:09 - More favorite shows21:38 - Favorite books26:17 - Appreciating moments of delight30:42 - Parenting through guided experienceSeries mentioned in this episodeAvailable on Apple TV+PlatonicSiloFoundationDickinsonAvailable on HuluSomewhere BoyThe Righteous GemstonesBewitchedAvailable on NetflixBridgertonGlamorousDAHMEROtherI Am a Virgo - Available on Prime VideoOur Flag Means Death - Available on (HBO) MaxThe Life and Times of Total Made GraceThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by activist Cosmo C.Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia.In this episode, Monica and Cosmo discuss: PetsLARPingDisability income and surviving on itPrivilege and PrejudiceTIMESTAMPS00:33 - Cats and LARPing12:05 - Adulting on disability income22:01 - Privilege and prejudice31:19 - Deadlines, speech, and steroidsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by musician, chef, and activist Dione Bullard.Dione lives with End Stage Renal Disease.In this episode, Monica and Dione discuss: End Stage Renal DiseaseSelf Advocacy as a PatientDion’s Music & CookingTIMESTAMPS06:17 - Dion’s diagnosis14:44 - Music career & food21:42 - Self advocacy26:05 - Disparities in care of dialysis centers31:27 - How to speak with healthcare professionals35:22 - Distilling down our purpose in life37:11 - Favorite apps and culinary toolsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by activist Kim Luke.Kim lives with multilevel spondylosis, POTS, and fibromyalgia.In this episode, Monica and Kim discuss: Kim’s storyPain clinic negligenceDisability tech & advocacyTIMESTAMPS00:51 - How Kim started10:54 - Kim’s work16:03 - Pain clinic negligence19:33 - Healthcare in politics27:08 - Recommendations for teaching and advocacy31:47 - Disability Tech Business Idea36:04 - The flat effect40:12 - Pillows!The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by lawyer, author, comedian, and activist Julia Irzyk.Julia lives with Lupus, Osteoarthritis, Degenerative Disk Disease, and Fibromyalgia.In this episode, Monica and Julia discuss: The state of COVID-19 in 2023Julia's new book, "Disabilities and the Law, 4th Edition"The entertainment industryAccess to pain medicationTIMESTAMPS00:56 - COVID-1909:10 - Masks in healthcare environments16:31 - Wheelchairs, flipping them, and HIPPA18:21 - Julia’s new book23:03 - COVID-19 in the entertainment industry24:57 - Access to pain medicine33:26 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by activist Lisa Weiner.Lisa lives with Charcot Marie Tooth Disease and Scoliosis.In this episode, Monica and Lisa discuss: Growing up with CMT and ScoliosisDealing with bracesLiving and moving around San Francisco with a chronic illnessFinding community resourcesDiscovering simple tools that can help with daily activitiesTIMESTAMPS0:37 - What is Charcot Marie Tooth Disease?4:42 - Lisa’s experience growing up with CMT19:07 - Braces are no fun24:47 - Center for Independence of Individuals with Disabilities20:30 - CMT Association Awareness Month31:55 - Final ThoughtsThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by award-winning author Alyssa Graybeal.Alyssa lives with Ehlers-Danlos Syndrome.In this episode, Monica and Alyssa discuss: Alyssa’s new bookMonica and Alyssa discuss being a sick kid with creativityPacing your work in a hustle-driven cultureEmergency rooms & technologyThe benefits of talking about your storyTIMESTAMPS1:10 - Floppy – Tales of a Genetic Freak of Nature at the End of the World4:40 - Alyssa talks about being a creative sick kid8:21 - Pacing, hustle culture, and self-gaslighting14:25 - Building the confidence to come back home to your body16:55 - Finding your career20:02 - Alyssa’s art space22:23 - Emergency rooms26:22 - Technology32:43 - The benefits of talking about your story36:55 - Alyssa’s cats40:25 - Favorite booksThe full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.
Monica Michelle is joined by Dale Critchley. They discuss his revolutionary Kickstarter campaign in making disabled D&D NPC Cards and Miniatures.Dale is hard of hearing and has ADHD.Limitless Champions Kickstarter CampaignTIMESTAMPS1:35 - Dale’s Story Behind the Project11:40 - Developing the Various Types of Miniatures14:15- Representing Your Own Experience15:55 - The Importance of Representation17:26- Understanding Someone’s World of Disability22:18 - Exposure and Lack Thereof25:50 - Connecting with People While Developing the Project29:52 - What’s Bad about Pity36:00 - The Disabled/Villan Trope39:00 - Final ThoughtsThe full transcript is located on the episode page at invisiblenotbroken.com. Happy listening! Hosted on Acast. See acast.com/privacy for more information.
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have you done a Vipassana retreat? interested as I noticed you like Tara brach
Invisible Not Broken is so tremendously needed! Thank you so much for bringing this about. Your warm, sometimes snarky, interview style, along with your great guests being real light to invisible illness. How it impacts not just those with them, but the families and loved ones of them as well. Thank you so much and keep it up!
Wonderful to hear these stories of women with such courage and determination.