Claim Ownership4D: Deep Dive into Degenerative Diseases - ANPT
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©2020 Academy of Neurologic Physical Therapy
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The Academy of Neurologic Physical Therapy Degenerative Disease Special Interest Group (DDSIG) is a component of the American Physical Therapy Association. The DDSIG is comprised of physical therapists, physical therapist assistants, and students in physical therapy programs that have an interest in neurodegenerative disorders including Parkinson’s disease, multiple sclerosis, amyotropic lateral sclerosis, Huntington’s disease, and others. The DDSIG provides a forum to discuss advances in practice and the challenges of providing care for individuals with neurodegenerative disease. They are a valuable networking tool to help researchers, educators, and clinicians in the area of neurodegenerative disorders connect, share ideas, and learn from leaders in the field.
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In this episode, Chris Burke interviews Kayla Chomko who, along with Jen Canbeck, Lauren Tabor Gray, and Rania Massad, won the DDSIG Best Poster Award at APTA’s Combined Sections Meeting in February 2024. Chris and Kayla discuss her team’s poster, “The Tinetti Performance Oriented Mobility Assessment Discriminates between Fallers and Non-Fallers in pALS: A Retrospective Study”. They delve into the impetus for and findings from their research, how Kayla utilizes data from outcome measures to facilitate patient discussions in clinic, and what direction future research may take.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Are you a PT who works with this population? Participate in a national survey on outcome measures for Physical Therapists and Physical Therapist Assistants working with pALS (Link active as of April 2024): https://redcap.nova.edu/redcap/surveys/?s=JKYLEC3KC9RFK7WF
In this episode of 4D, hosts Parm Padgett and 4D student intern Shannon Brown talk through the degenerative disease programming scheduled for CSM 2024. If you’re going to CSM this February, tune in while you travel, or even while you commute from your hotel in the morning to get some inspiration for what to see each day. We at 4D hope to see you there!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org
Learn more about CSM and the programming discussed by visiting the CSM website: https://www.apta.org/csm
This is for informational and educational purposes only. It should not be used as a substitute for clinical decision making. The Academy of Neurologic Physical Therapy and its collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication. The views or opinions expressed are those of the individual creators and do not necessarily represent the position of the Academy of Neurologic Physical Therapy
In this installment of our series on rare neurologic diseases, Christina Burke talks with Jeannie Stephenson and Staci Shearin about Friedreich’s Ataxia, a progressive, autosomal recessive hereditary multi-system neurodegenerative disease that impacts approximately 1 in 40,000 people in the U.S. Jeannie and Staci cover assessment, PT treatment and prognosis for people with this unique diagnosis that causes significant balance and gait challenges.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available here :
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-47-jeannie-stephenson-staci-shearin.pdf
In this installment of our series on rare neurologic diseases, Ken Vinacco talks with Carolyn DaSilva about post-polio syndrome (PPS), which can occur in polio survivors 15-20 years after the initial poliomyelitis infection. The constellation of symptoms include new or worsening weakness, pain, and fatigue. Ken and Carolyn also discuss bracing and exercise recommendations in this population. Listen in to learn more about this unique population!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available here:
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-46-carolyn-dasilva.pdf
In this second installment of our series on rare neurologic diseases, host Katy McGraw talks with Heather Cianci about Progressive Supranuclear Palsy (PSP), a neurologic disease that can mimic some features of Parkinson Disease (PD) like loss of balance and a tendency to fall backwards, but that also has unique features such as the loss of vertical gaze, and behavioral changes. Heather discusses clinical signs to look for to treat and/or refer out for. She also talks extensively about treating PSP clinically throughout the disease course, palliative care for patients with advanced PSP, working within interdisciplinary teams to support patients with PSP, and so much more.
Enjoying our new series on rare neurologic diseases? We want to hear from you! Give us feedback, share ideas for future podcasts, and connect us to expert clinicians treating patients with those diseases. Email us at: neuroddsig@gmail.com
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available: https://app.box.com/s/59dhwr9i0p29p4hrkxjnvbdyxl8kh94m
In this first installment of our series on rare neurologic diseases, host Jeff Schmidt talks with Kyle Reedy about Spinal Muscular Atrophy (SMA). Kyle discusses the etiology and clinical presentation of this disease, as well as best practices for treating patients living with this rare neuromuscular disease, in light of medical advances that have improved patient prognosis. From using SMA-specific outcome measures to advocate for patients to insurance companies, to designing comprehensive and tailored interventions to optimize function and mobility long term, Kyle delves into the research and interdisciplinary best practices for management of patients with SMA.The Degenerative Diseases Special Interest Group is part of the Academy ofNeurologic Physical Therapy – www.neuroPT.org
Show notes:
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-44-kyle-reedy_gdoc.pdf
In this episode, host Parm Padgett talks with Mike Lewek and CJ Duppen from the University of North Carolina at Chapel Hill about using implicit and explicit motor learning techniques with people with Parkinson Disease. CJ and Mike do a deep dive into their research on the integration of targeted rhythmic auditory cueing to improve step length and gait speed. Additionally, they discuss their current work looking at the effects of cueing on gait initiation, step length and step speed, and weight shifting for better anticipatory postural adjustments, all aimed at positively impacting PD symptom progression and mitigating fall risk. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available here: https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes_episode43.pdf
In this episode, we talk with Jake Sosnoff, Ph.D. about frailty in patients with multiple sclerosis (MS). We cover how frailty is defined in geriatrics and how that definition applies to frailty seen in MS, as well as how clinicians can use evidence-based tools to characterize frailty in their patients with MS. Host Herb Karpatkin also talks with Jake about whether frailty in MS is modifiable; how clinicians can approach treating patients with MS and frailty based on the available evidence; and why taking a multicomponent, interdisciplinary approach to treating frailty in patients with MS is important.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes:
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/ddsig-episode-42-show-notes-docx.pdf
In this episode, we talk with Mike Studer about intervention and treatment strategies related to fear-avoidance behaviors (as introduced in part 1/episode 40 with Ryan Duncan and Merrill Landers). Host Chris Burke talks with Mike about using autonomy-building strategies to reduce fear and exposure therapy strategies. They also delve into behavior change strategies including tips from the field of behavioral economics. Chris and Mike work through a case application together to help listeners start thinking about how to apply these principles in their own practice to reduce the impact of fear avoidance on physical activity and function.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available:
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/episode-41_show-notes.pdf
In this episode, we talk with Dr. Merrill Landers and Dr. Ryan Duncan about their presentation at APTA’s CSM 2023, entitled “Mind Over Movement: Fear-Avoidance Behaviors Impacting Movement and Participation in Parkinson’s Disease.” Host Chris Burke talks with Merrill and Ryan about different types of fears and fear-avoidance cycles that have been studied in individuals diagnosed with Parkinson Disease, but likely also extend to other neurologic and neurodegenerative conditions. Fear of falling, fear of pain, fear of stigma, fear of progression and fear of incontinence are all covered, as well as PTs’ unique roles in identifying fears, referring for treatment, and addressing behaviors when appropriate. Listen in to this lively duo to hear how we can be more aware of these factors and modify our care to allow patients to be as active as possible. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
In this episode, we talk with Dr. Alicia Flach, who was awarded the DD SIG 2023 Combined Sections Meeting (CSM) best poster award for her poster entitled “Education and Exercise Support for Individuals Newly Diagnosed with Parkinson Disease and Their Care Partners”. She and her team created educational modules and promoted self-driven exercise habits through local YMCA membership for both persons diagnosed with Parkinson’s Disease and their care partners. Host Chris Burke and Alicia discuss program outcomes, including participation at the gym, overall physical activity and perceived social support. Listen in to learn more about this innovative program targeting more inclusion of care partners in physical activity and education. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available: https://app.box.com/s/b80eld2lxj65brgrb8e7yd95vdgrk931
In this episode, host Jeffrey Schmidt talks with Dr. Mark Mañago, who won this year’s DD SIG CSM platform award year.. Dr. Mañago chats with us about his recent presentation at CSM entitled “Feasibility of Low-Load Resistance Training with Blood Flow Restriction for People with Severe Multiple Sclerosis”. While traditionally considered a musculoskeletal intervention, he discusses the benefits blood flow restriction (BFR) can bring to the world of neurologic diagnoses, especially for those with more severe weakness. We review the results of this pilot study, including the feasibility of this intervention in regards to adherence, patient outcomes, and patient satisfaction. Tune in to hear more about this emerging intervention. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
In this episode, Katy talks with Dr. Andrew Guccione and Dr. Andrew Pechstein about their article published in the April 2023 issue of JNPT entitled “Walking Endurance and Oxygen Uptake on Kinetics in Individuals with Parkinson Disease Following Overground Locomotor Training.” “Dr. G” and Dr. Pechstein discuss cardiorespiratory aspects of locomotor training and how bioenergetic factors play a role in walking endurance. Tune in to hear more, including how they designed their exercise protocol, selected outcomes, and clinical implications of considering cardiorespiratory endurance when evaluating patients.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic
Physical Therapy – www.neuroPT.org
In this bonus episode of 4D, we talk with Herb Karpatkin, a DD SIG officer who serves on the Nominating Committee, about one of the DD SIG’s newest features, the clinician locator map. Host and DD SIG chair Rebecca Martin talks with Dr. Karpatkin about his recent initiative to improve and simplify access to physical therapists who specialize in degenerative neurologic diseases. Learn more about how to access this resource and how to add your information to our map! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org
Clinician Locator Map Info Page: https://www.neuropt.org/special-interest-groups/degenerative-diseases/ddsig-clinician-locator-map
In this episode of 4D, hosts Parm Padgett and Ken Vinacco give us the inside scoop on the degenerative disease representation in the 2023 CSM line up. Hear clips/sneak peeks from several of the speakers about their upcoming presentations. With so many must-see talks, you’re going to want to listen in to get a head start on planning your time at CSM! The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org
Link to show notes: https://app.box.com/s/q985x9cqbqky4qai4ci5thw21lvghgrs
In this bonus episode, physical therapy students, Emily Buggeln and Colleen Noonan interview Daniel Corcos on resistance training for persons with Parkinson Disease. This interview was organized by the knowledge translation task force for the clinical practice guideline for the physical therapist management of people with Parkinson disease. For more resources, check out their webpage at https://www.neuropt.org/practice-resources/anpt-clinical-practice-guidelines/pt-management-of-parkinson-disease
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org.
In this episode of 4D, we talk with Dr. Colin Grove about his recent ANPT poster presentation from the International Conference for Vestibular Rehabilitation entitled “People Living with Advanced Multiple Sclerosis Demonstrate Unique Strategies to Compensate for Vestibular-Ocular Reflex Deficits”. Host Chris Burke talks with Colin about what constitutes gaze stability, and how the vestibular-ocular reflex can be altered in patients with MS with reports of imbalance and dizziness. Colin and Chris also discuss implications for treatment and future research directions related to vestibular impairment in people with MS. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org
Show notes available at: https://app.box.com/s/mys3qixxiuvl3gwoyc0m71a0mprysb9h
In this episode of 4D, Parm talks with Dr. Alexis Drutchas and Dr. Jaclyn Shameklis about creating open conversations with patients who have illnesses that can have drastic and lasting impacts on their lives. We discuss the Serious Illness Conversation Guide, and how it can be applied in a physical therapy setting, especially for patients with degenerative diseases. They build a case that having these conversations, early and often, allows health care providers to get to the root of what is important to patients and make the best recommendations in their area of expertise. We hope this podcast helps listeners think differently about and feel more confident when discussing prognosis and goals with patients with neurodegenerative conditions.
Show notes available here: https://neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/4d-episode-35-with-alexis-druchas-and-jaclyn-shameklis.pdf?Status=Temp&sfvrsn=46c15d43_2
Access the Serious Illness Conversation Guide here: https://mghcontinuumproject.org/app/uploads/2022/08/MGH_SIC-Guide.pdf
In this episode of 4D, we talk with Dr. Nora Fritz about her expansive research in the field of Multiple Sclerosis (MS) rehabilitation. Dr. Fritz talks with host Katy McGraw about her research on the relationship between backward walking velocity and falls, and the effects of cerebellar involvement on the motor and cognitive function in people with MS. Tune in to learn more about what PTs can be assessing and addressing to best serve the MS patient population. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes - https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-episode-34-with-nora-fritz.pdf
In this episode of 4D, we talk with Dr. Debbie Backus from the Shepherd Center in Atlanta, GA and Dr. Laura Rice from the University of Illinois Urbana-Champaign about their abundance of research in fall risk and fall prevention for wheelchair users with Multiple Sclerosis (MS). Host Chris Burke talks with our guests about what risk factors clinicians should be on the lookout for, what outcome measures to consider, and evidence based intervention strategies for this population. Tune in to learn more from the experts on how to reduce fall risk and optimize function in this unique population. The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org
Show notes: https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/ddsig-episode-33.pdf
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