Aunty M Brain Tumours Talk Show

Nicole McNamara shares her brain tumour journey. She went from a seemingly idyllic life to facing an Astrocytoma, a type of brain tumour. Nicole talks about her diagnosis, undergoing awake craniotomy, being a part of the Voracitinib trial and navigating the complexities of seizures and life decisions. Throughout her experience, she emphasizes the importance of support from loved ones and the role of therapy in coping with her challenges. The Charity Mentioned is Duke Cancer Institute Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube

Julie Liddle shares her experience when she was diagnosed with a brain tumour and how she became a Brain Tumour Support Worker.  Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Tariza Dauntseau tells us about  The National Brain Appeal. A charity dedicated to raising vital funds for The National Hospital for Neurology and Neurosurgery, and the UCL Queen Square Institute of Neurology.  Since the charity began in 1984 they have raised over £45m for state-of-the-art equipment, major building programmes and life-saving research.  Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

We are joined by Ellie's Fund – Brain Tumour Trust was set up after the death of 14 year old Ellie Othick-Bowmaker. During the 3 years that she fought her 2 brain tumours,  Ellie helped to raise over £25,000 for Brain Tumour Research (BTRS).  "We provide assistance to families who live in Yorkshire and across the Humber and who have a child going through treatment for a brain tumour. We also support families within the Borough of Scarborough (UK) who have a child with any form of cancer. We raise awareness about brain tumours and support established research projects".   Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

 Will Jones the Chief Executive of Brainstrust talks about what Brainstrust do and how they can help you.  "We’re here to help you live life with a brain tumour" - Brainstrust Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest You can also find out more about Dawn on the Aunty M Brain Tumours Blog -  Click Here 

Be inspired by Tyler Eillis. A young man who has been battling a brain tumour since he was 12. He talks about being diagnosed and how he really wants to support others children who are unwell.  Tyler and his mother Janice set up  Tyler’s Trust . A charity that give gift boxes to local children with life threatening illnesses, they also do boxes for siblings.  In addition to this they supply local hospitals with emergency overnight parental bags in Chichester and Worthing. Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

I had the pleasure of interviewing Brain Tumour Research's Campaign Manager Hugh Adams. Hugh talks about where the money goes for Wear A Hat Day.  "I'm passionate about improving the outcomes for those diagnosed with a brain tumour and this will only be achieved through increased funding into research". - Hugh Adams   Find out more of the work here: Brain Tumour Research    Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients. 

Sam Carson talks about when he was diagnosed with an Astrocytoma Cerebellar Tumour at the age of four. He talks about the effects that it has left him with including a rare neurological condition called ataxia which affects his balance and speech. Sam, does believe it was brought on by the brain tumour which he had removed when he was five. Don't forget to check out the Aunty M Brain Tumours Website.  Follow Aunty M Brain Tumours on: Twitter  Facebook  Instagram  YouTube  Pinterest (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

We talked to Headsmart.  The only dedicated campaign which works on raising awareness for the signs of a brain tumour. Especially the symptoms of brain tumour in children and teenagers. This is done by equipping parents, the public and healthcare professionals with the information they need.  Headsmart is part of The Brain Tumour Charity. Their goal is to reduce average diagnosis times of brain tumours to four weeks or less in line with NHS targets. Identifying tumours early reduces the chance of a child developing long term disabilities and can ultimately save their life.  Sadly 10 children and teenagers are diagnosed with a brain tumour every week in the UK, that's more than one a day.  This is why these symptoms cards about the signs of a brain tumour are life changing.  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Dr Borka Ceranic who is the Hearing Specialist at St George's Hospital. She talks about how brain tumour's or a brain injury can effect hearing.  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Danielle McGriskin was diagnosed with a brain tumour and hydrocephalus when she was just 13yrs old. Now at the age of 18 she talks to us at Croydon Radio about living with an illness and how she finds it helpful helping others. She has been raising funds for The Brain Tumour Charity for many years and is an ambassador for them.  She was also given The Diana Award for the Courageous Citizen Award in 2013.    Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016)   

I am joined by Bridget Kavanagh who works on the Eye Unit in Croydon University Hospital. She talked about how often she see's brain tumours and how important it is for people to have yearly eye checks.     Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016)   

Anthony Wright is an International Speaker, Trainer and Author.  Anthony is a brain tumour survivor. " I had nine operations, two radio-therapies, a week in a coma and a month in a wheelchair".  He has a unique understanding of how the brain functions and offers workshops on a Neuroplasticity – Training For Management.   He will also be talking about his book: You Can Self Heal: How to Use the Natural Healing Power of Your Mind & Body.   Find out more about Anthony at his website HERE  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Claire Snyman from Canada, talks about her personal experience when she was diagnosed with a rare benign brain tumour, a colloid cyst..  Claire went on to write the  book ‘Two Steps Forward – Embracing life with a brain tumor’.  She was inspired to start to write her book based off her journals. Two years later, and 70 000 words later, Two Steps Forward is now available in e-book and print copy! "It was in 2010, after a vertigo attack and the onset of migraines, that I was diagnosed with a rare benign brain tumour, a colloid cyst.  I was 34 at the time and the mother of a 4-year-old and I heard the words that no one ever wants to hear: “You have a brain tumor.” My first thoughts were of my husband and son. I felt numb. As part of my treatment, I became part of the group of ‘watch and wait’ brain tumor patients around the world who are monitored with yearly MRI scans"  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Jacky Fredrickson talks about her book 'JON'.  This is a book about her son who she lost to brain cancer. Jon was 16 when he started to complain of headaches and sickness. An eyesight test revealed the shocking news that he had developed a brain tumour. Over the months and years that followed Jon and his devoted family endured a roller-coaster ride of treatment and therapy, diagnosis and disappointment, until finally no more could be done for Jon, and he died at the age of only 26 with his devoted parents at his bedside. Jon’s illness did not prevent this brave young man from setting up home on his own, travelling around the country independently and embarking on a successful career. His mother Jacky kept a diary of her years of trial, and she has now developed it into this moving and inspiring book.  You can get a copy of the book HERE   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Sam also known as Laptop Philharmonic, tells the story when he was diagnosed with a brain tumour and his recovery.  He talks about being a music artist and putting together the album CRANIOTOMY because he wanted to share the insights he had with the world after his diagnosis and recovery. You can download his album for FREE HERE  Don't forget to check out the Aunty M Brain Tumours Website.  (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Karl Martin talked about having brain cancer and how he deals with the fact he is living on borrowed time now. It is a very heart warming and honest interview and shows the power of love and determination.   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Tina Boden is a leading voice in the UK for Micro Business. As a Strategist, Connector, Interim Director, Speaker, Writer.     In this interview Tina talks about her work with Ellie’s Fund and Brain Tumour Research and Support across Yorkshire and how it is so important for charities to collaborate with each other for the greater good of the brain tumour community in the UK.   Find More About Tina and her work and how she can help you HERE   Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Chris Lewis talks about his experience of living with stage 4 Mantle Cell Lymphoma for over 12 years.   Until July 2007 Chris was a self-employed Business Consultant.  It was then that Chris was diagnosed with a rare blood cancer and given only six months to live! After aggressive chemotherapy and a stem-cell transplant Chris was surviving the terrible disease.  "I saw how poor the cancer support sector really was, being so disjointed and not really addressing any practical issues, that I decided to talk out about it to see if I was the only one who felt that way. I wasn’t, and very quickly, friends of mine had started me a website dedicated to cancer patients to help spread the word.  This site is now the most popular cancer blog in the UK and I am frequently invited to speak around the world about my experiences. I can now use my influence to change things for everyone affected by cancer, and I have been able to start a unique charity SimPal that gives free phones and sim cards to anyone affected by cancer. The only charity of it’s kind in the world".  You can find out more about Chris's blog here:  Chris’s Cancer Community Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show,  Dates between 2013 and 2016) 

Linda Rickford Talks About When Her Son Was Diagnosed With A Ependymoma. After going through a nightmare of a time when her son was diagnosed with a brain tumour, she doesn’t want any other mother to struggle the way she did.  Linda recalls the whole experience and how now she has been supporting the Astro Brain Tumour Fund for many years.   Find out more about Aunty M Brain Tumours at auntymbraintumours.com/ Follow Aunty M Brain Tumours on: Twitter Facebook Instagram YouTube Pinterest Please Note: This show is not intended as a substitute for professional medical advice and does not provide advice on treatments or conditions for individual patients.