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Aunty M Brain Tumours Talk Show

Author: Claire Bullimore

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Aunty M Brain Tumours Talk Show - A podcast sharing inspiring stories of brain tumour survivors. Join our supportive community for heartfelt interviews, insights from medical experts, and empowering tales of resilience. Tune in, be inspired, and spread awareness on the path of brain tumour recovery.
76 Episodes
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In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM). Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he details how things took a severe turn when he could no longer comprehend text and experienced severe dizziness and vertigo, prompting an emergency room visit. This visit quickly escalated as medical tests revealed a mass on his brain, leading to urgent referrals and treatments that upended his life. Despite the shocking and rapid progression of his condition, Johnathan talks about the ongoing treatment, including surgery and the use of an Optune device, and how these have impacted his daily life. He also touches on the emotional and psychological effects of his diagnosis, both on himself and his family. Throughout the conversation, Johnathan shares insights into his coping mechanisms, including starting a blog to share his experiences and connect with others in similar situations. He emphasizes the importance of community support, positive thinking, and adapting to a "new normal." Visit Johnathan's blog and connect with him here www.johnvsgbm.com Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube
Welcome to Day 29 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. Today, Pamela shares her poignant journey from diagnosis to recovery and beyond. Pamela introduces us to Brain Tumour Ireland, the sole charity in Ireland dedicated to supporting individuals and families affected by brain tumours. Unfunded by the government, this small charity plays a big role in the community, from raising awareness to providing support and information. Pamela shares how the charity has been a pillar of support, offering resources, connections, and hope during her journey. Find out more: Brain Tumour Ireland Instagram X Facebook Find Pamela and Her Music on: TikTok Instagram Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠
Welcome to Day 28 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. In today’s heartfelt episode, we are joined by Laura. Laura shares her intense and emotional journey with a brain tumour, from the first symptoms during pregnancy to her current battles with the disease. Her story is a tale of personal struggle, a beacon of hope, and the importance of awareness. Find Laura: TikTok Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube
Hayley Conroy shares her granddaughter Lily's compelling story in this episode of Aunty M Brain Tumour's Talk Show. Lily's early life hinted at no challenges until her family started noticing unsettling signs a few weeks post-birth. Despite being a happy and active baby, Lily struggled with feeding issues and an unexplainable high-pitched scream, leading to a misdiagnosis of lactose intolerance. This episode delves into the trials and tribulations faced by Lily and her family, from initial feeding difficulties to a shocking diagnosis of an Optic Pathway Glioma, a type of Brain Tumour coupled with Diencephalic syndrome. Contact Hayley HERE Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠YouTube
In this episode of Aunty M Brain Tumour's Talk Show, Brenda shares her journey of being diagnosed with a brain tumour and undergoing surgery and radiation treatment. She talks about the strange symptoms leading up to the diagnosis, including memory lapses and severe headaches. Brenda's resilience shines as she discusses her recovery and a newfound appreciation for life. She also emphasizes the importance of seeking multiple medical opinions and cherishing the support of loved ones. Through her advocacy work with the National Brain Tumor Society, Brenda strives to raise awareness and provide hope for others facing similar challenges. Find Brenda on her website: HERE Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠
In this podcast episode of Aunty M Brain Tumours Talk Show, we speak to Matthew. Matthew recalls an ordinary Thursday in October 2023, playing football and feeling fit, only to experience what he describes as being struck by lightning 60 minutes into the game. This moment marked the beginning of a completely heart-wrenching journey for him, leading to the diagnosis of a brain tumour. Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠YouTube
In this podcast episode of Aunty M Brain Tumours Talk Show, Mel Kelly shares her journey from the initial misdiagnoses of persistent headaches and vision loss to her brain tumour diagnosis on December 19, 2022. Despite the shock and challenges, including a crucial surgery just before Christmas and the struggle to regain her driving license, Mel's story is one of encouragement for awareness. Post-recovery, Mel actively participates in fundraising and awareness campaigns, notably organizing a 12-mile walk and raising funds for The Brain Tumour Charities. She also supports "It's a No Brainer," advocating for a national brain tumour strategy. Mel's experience highlights the importance of support, awareness, and advocacy in battling brain tumours. Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠YouTube
In this podcast episode of Aunty M Brain Tumours Talk Show, Kimberley talks about her Astrocytoma diagnosis and the support she has found in brain tumour charities. Especially in The Brain Tumour Charity and Brain Tumour Support. Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠YouTube⁠
In this podcast episode of Aunty M Brain Tumours Talk Show, Stefania shares her meningioma story from the first symptoms to the diagnosis, treatment, and ongoing challenges she faces. She highlights the crucial role of support systems like the charity Brain Tumor Support. Join the urgent SOS Appeal. Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠YouTube
In this podcast episode of Aunty M Brain Tumours Talk Show, Yaron shares his extraordinary journey of facing a Glioblastoma Multiforme diagnosis at 29. Yaron's story is not just about survival; it's a testament to the power of medical intervention. Yaron recounts the subtle symptoms that initially appeared in 2003, including frequent headaches and a peculiar incident of temporary leg weakness. Despite these signs, Yaron was deeply engrossed in his work, notably contributing to the sequencing of the SARS genome. His life took a sharp turn when he experienced a grand mal seizure, leading to his diagnosis with a Glioblastoma Multiforme intertwined with oligodendroglioma elements. Website: Yaron's Follow Aunty M Brain Tumours on: ⁠⁠⁠⁠X⁠⁠⁠⁠ ⁠⁠⁠⁠Facebook⁠⁠⁠⁠ ⁠⁠⁠⁠Instagram⁠⁠⁠⁠ ⁠⁠⁠⁠YouTube
In this podcast episode of Aunty M Brain Tumours Talk Show, Paris Dancy shares his battle with a pituitary tumour. Starting in 2013, Paris began experiencing symptoms like weight gain and severe headaches, which he initially attributed to stress from his demanding job as an investigator. He was finally diagnosed with a pituitary tumour. The diagnosis led to surgeries, including gamma knife radiation. Post-surgery, he faced a new challenge with Cushing's syndrome, likely induced by the combination of the tumour and steroid treatments. Opting against hormone replacement therapy in 2018, Paris embraced a natural route to recovery, leveraging his personal experience to help others facing similar health challenges. Find Paris online: Website - GTP.COACH TikTok Follow Aunty M Brain Tumours on: ⁠⁠⁠X⁠⁠⁠ ⁠⁠⁠Facebook⁠⁠⁠ ⁠⁠⁠Instagram⁠⁠⁠ ⁠⁠⁠YouTube
In this podcast episode of Aunty M Brain Tumours Talk Show, Charlotte and her mother, Alison, share their deeply personal journey following the loss of John, Charlotte's father and Alison's husband, to a brain tumour. Their story is a tribute to John and an enlightening discussion on the importance of brain tumour awareness. Find John's Crew On Facebook Just Giving Page - Donate Here Follow Aunty M Brain Tumours on: ⁠⁠⁠X⁠⁠⁠ ⁠⁠⁠Facebook⁠⁠⁠ ⁠⁠⁠Instagram⁠⁠⁠ ⁠⁠⁠YouTube
In this podcast, Susan Hitchmough discusses her journey of being diagnosed with an Acoustic Neuroma in 2021. She talks about her initial symptoms, diagnosis challenges during COVID-19, treatment, and lingering side effects. Susan shares her recovery story and involvement in The Beyond Recovery Project, a non-profit community supporting brain tumour survivors. She encourages listeners to visit the project's website for support or involvement. Inspiring and Empowering Brain Tumour SurvivorsThe Beyond Recovery Project Follow Aunty M Brain Tumours on: ⁠⁠X⁠⁠ ⁠⁠Facebook⁠⁠ ⁠⁠Instagram⁠⁠ ⁠⁠YouTube⁠⁠
In today's Aunty M Brain Tumours Talk Show episode, we speak to Brain and his wife, Emma. Brian was diagnosed with Oligodendroglioma in 2017; they talk about the process of surgery, radiotherapy, and chemotherapy and the ensuing challenges, such as memory issues, fatigue, and migraines. They emphasize the couple's engagement with Brain Tumour Research communities and charity initiatives, showcasing the power of resilience, support networks, and the impact of living with a brain tumour. Find Emma's Fundraising Page: Fundraising Page Find out more about Walk of Hope Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠
In this Aunty M Brain Tumour’s Talk Show episode, we have guest Rudy Fischmann. He discusses his brain tumour journey. He was diagnosed with a Grade 2 Diffuse Astrocytoma in 2018, which led to a Grade 3 Astrocytoma. Despite facing numerous challenges, including surgeries, radiotherapy, chemotherapy and insurance hurdles, Rudy maintains a positive outlook. He emphasizes the importance of physical activity, adapting to new circumstances, and not letting the diagnosis define one’s identity. Rudy also shares his project, a Cancer-Themed Rock Opera aimed at raising funds for Teen Cancer America and the Teenage Cancer Trust. He invites others to join him in this creative endeavour. Through his story and projects, Rudy inspires others to remain proactive and hopeful, regardless of the hurdles they face. Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠
In this inspiring episode of the Aunty M Brain Tumours Talk Show, Grace shares her incredible journey of overcoming a Pilocytic Astrocytoma, shedding light on the importance of Brain Tumour Awareness Month. From unusual symptoms to diagnosis, treatment, and life after recovery, Grace's story is a testament to resilience, self-advocacy's importance, and community support's power. Find Grace here: Sponsor Grace - Twilight Walk BLOG Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠⁠
Henna shares her brain tumour story in this impactful episode of the Aunty M Brain Tumours Talk Show. She bravely shares her journey with a brain tumour. As part of Brain Tumour Awareness Month, Henna's story underscores the importance of symptom awareness, the complexities of diagnosis, and the challenges of navigating the healthcare system, especially during the COVID-19 pandemic. Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠
Today, we have the incredible Natalie Welch sharing her brain tumour story. Natalie was diagnosed with an acoustic neuroma in 2009. She shares her diagnosis, treatment, and recovery journey. Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠
In this episode, we listen to Rebecca's amazing journey through health challenges like Lyme disease, chronic fatigue, brain tumours, and recovering from a stroke. Her story starts with an illness in 2013 that led to misdiagnosis and a critical seizure that revealed a brain tumour. Despite severe setbacks, including speech and motor skill difficulties and dealing with vertigo, Rebecca's tale is filled with determination and hope. She talks about the immense support she received, her advocacy for better healthcare, and her part in the book "Birthing the Butterfly: A Woman of Wisdom," showing the strength found in hope and community support. Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠
Simona's Cavernoma Story

Simona's Cavernoma Story

2024-03-1001:08:39

In this Aunty M Brain Tumours Talk Show episode, we speak to Simona Stankovska about her fight against Cavanoma—a brain lesion—misdiagnosed due to seemingly ordinary symptoms. Her journey from misdiagnosis to undergoing critical brain surgery highlights the healthcare challenges and personal upheaval a Cavanoma diagnosis brings, including paralysis and the arduous path to recovery. Simona's experience, which led to the founding of 'The Cavanoma Society,' showcases her resilience and dedication to supporting others in similar situations. Find Aunty M Brain Tumours online: ⁠⁠⁠⁠⁠Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠X⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠
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