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© 2019 Neuroendocrine Tumor Research Foundation
Description
Being diagnosed with an uncommon cancer like a neuroendocrine tumor (NET) can feel isolating or overwhelming. Listen in as the NET Research Foundation (NETRF) speaks with experts and patients who will help us to understand NET diagnosis, treatment, and everything in between. NETWise is for everyone, from newly diagnosed patients to longtime survivors as well as caregivers and family members. This is your guide to learning, listening, knowing, and being NETWise.
36 Episodes
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In this episode of NETWise, we talk about the experiences of young people living with NETs. This is an update to an episode that was originally published in 2020. A special thank you to Dr. Aman Chauhan, a medical oncologist who leads the University of Miami Neuroendocrine Cancer Program and Dr. Jaydira Del Rivero, a […]
The post NETWise Episode 34: Young Adults Living with NETs: Updated Episode appeared first on NETRF.
When one is diagnosed with an illness, like NETs, mortality can come to the forefront. Even if your NET journey presents a trajectory of being chronic and is stable, it is not uncommon to have thoughts about disease progression and mortality. There is also a lot of stigma and discomfort in talking about end of […]
The post NETWise Episode 33: The Power of Knowing: Mortality & End of Life appeared first on NETRF.
Some of the rarest, most complex, and difficult NETs are known as pheochromocytomas and paragangliomas. This is an updated version of an episode that first aired in 2021. A special thank you to Dr. Erik Mittra Chief of Nuclear Medicine and Molecular Imaging at Oregon Health and Science University for his expert assistance with this […]
The post NETWise Episode 32: Pheos & Paras (updated episode) appeared first on NETRF.
Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we share some of the most important developments in NET research that happened in 2023, and look back on the progress made […]
The post NETWise Episode 31: 2023 Year in Review appeared first on NETRF.
If you’re dealing with NETs, you likely have encountered fatigue in various forms. The spectrum of fatigue spans from temporary and inconvenient to persistent and debilitating. It can be a source of frustration, stress, and, at times, a feeling of isolation, as it may not be readily apparent to others. Despite its prevalence, fatigue often […]
The post NETWise Episode 30: Understanding Fatigue & NETs appeared first on NETRF.
One of the things that sets neuroendocrine tumors apart from other kinds of cancer is that they can occur almost anywhere in the body. Those different locations — or primary sites — can mean the NET takes on different characteristics, and requires different kinds of treatment. In previous episodes of this show, we’ve talked about […]
The post NETWise Episode 29: Merkel Cell Carcinoma appeared first on NETRF.
In this episode, we’re talking in depth about one of the most exciting and widely discussed treatments for NETs: PRRT. This is a revised version of an episode that originally released in 2020. A lot has happened since then in the development of nuclear medicine treatments like PRRT, and we’re excited to bring you information […]
The post NETWise Episode 28: PRRT Revisited appeared first on NETRF.
We hear a lot about the need for diversity and inclusion in health care, and we know there is a need for more diversity in NET clinical trials. In looking at the issue of race and medicine there are four major factors that influence health outcomes and that deserve scientific investigation. First, is your genes […]
The post NETWise Episode 27: NETs & Race appeared first on NETRF.
This is an updated NETWise episode. A special thank you to Dr. Aman Chauhan for his expert knowledge and help with this special NETWise update. Did you know that about 1 in 4 NETs develop in the lungs? Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the […]
The post NETWise Episode 26: LungNETs – Updated Episode appeared first on NETRF.
This is a revised version of an episode that first aired in December of 2020, where we focused on diagnosis and treatment of NETs that start in the most common site: the small intestine. A special thank you to Dr. Mark Lewis for his expert knowledge and help with this special NETWise update. Did you […]
The post NETWise Episode 25: Small Bowel NETs appeared first on NETRF.
Today, we're going to pick up again with our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive organs.
The post Episode 24: Gynecologic NETs appeared first on NETRF.
As we end our mini-series about adjusting to the new normal of your life with NETs, we wanted to use an episode to highlight one of the most emotionally challenging situations that might confront a person who is newly diagnosed -- learning you have cancer while you are raising children.
The post Episode 23: Parenting with NETs appeared first on NETRF.
In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal.
The post Episode 22: Navigating The New Normal appeared first on NETRF.
This is something special for NETWise. This is the pilot episode of a new project we’ve begun, translating the NETWisew series into Spanish! We’ve started with the very first episode of the show, from back in August of 2019, which lays out the most basic and foundational information about what NETs are and how they work. If we’re able to do more of these, and we hope to, it will move to its own podcast feed to be a resource for a whole new segment of the NET community. For now, please share this with Spanish-language speakers who would find it valuable, and we’ll be back next month with a brand-new episode of the series in English.
The post NETs 101: En Español: Lo que necesitas saber appeared first on NETRF.
A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different. We have spent a lot of time in this series talking about the science of NETs, but a NET cancer journey is not just about biology. The NET journey can […]
The post Episode 21: Adjusting to the New Normal appeared first on NETRF.
Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s a crucial need. This episode of NETWise will take a closer look at how scientists do the research that we hope will yield the next generation of effective treatments for […]
The post Episode 20: NET Research—Part Two appeared first on NETRF.
Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it’s a crucial need, because NETs are extremely complicated cancers and there is still a lot the medical community needs to learn […]
The post Episode 19: NET Research—Part One appeared first on NETRF.
While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive. These high-grade NETs and NECs are treated very differently. In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis.
The post Episode 18: High-Grade NETs and NECs appeared first on NETRF.
Very often, the liver is the first and most significant site of NET metastasis, and for many people, managing the disease in their liver becomes the most challenging part of their NET journey. In this episode of NETWise, we’re going to focus on an organ that is almost never a NET primary site, but nevertheless is crucially important to many people with NETs: the liver.
The post Episode 17: Focus on Liver NETs appeared first on NETRF.
In this episode of NETWise, we’re going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body’s ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life.
The post Episode 16: NETs and Nutrition appeared first on NETRF.
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