Claim OwnershipLupus: The Expert Series
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Description
The Expert Series is an educational podcast series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Presented by the Lupus Foundation of America, we touch on the daily issues that affect those with lupus: flares, health, medical care, exercise, managing doctor's appointments, diagnosis, and much more.
45 Episodes
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In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.
Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded by the Lupus Foundation of America, the Rheumatology Research Foundation, the Childhood Arthritis and Rheumatology Research Alliance (CARRA)/ Arthritis Foundation, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH.
Resources:
Find out more about lupus and teens
School survival guide for teens with lupus
Helping teens learn to cope with lupus
SELF app, for people 18+ in the U.S.
Mentioned resources:
Take a pain check, a chronic disease podcast meant to support youth with rheumatic diseases
In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort.
Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the McGill University Health Centre. Her expertise lies in using ‘big data’ from health services, linked to additional clinical sources of information.
Read more about lupus facts and statistics
Learn how doctors diagnose lupus
FAQs about participating in clinical trials
Help expand lupus research through RAY (Research Accelerated by You)
Read the mentioned abstract: Updated analyses of cancer incidence and risk factors in a large international SLE cohort
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In this episode of the Expert Series, we speak with Dr. Christie Bartels about stress and stress management for people with lupus. Dr. Bartels covers how to manage stress, resources to manage stress and the difference between stress symptoms and lupus symptoms.
Dr. Bartels is Division Chief of Rheumatology at the University of Wisconsin School of Medicine and Public Health and Chair of the American College of Rheumatology (ACR) RISE Registry Health IT Committee. As a rheumatologist health services and implementation researcher, Bartels’ work aims to improve cardiovascular health and reduce disparities among patients with lupus and rheumatic diseases.
For more resources on stress and stress management:
Managing stress when you have lupus
Managing mental health with lupus
Find Support Near You
Other resources mentioned in the episode
SELF
Insight Timer
Arthritis Foundation’s Walk with Ease program
In this episode of The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years.
Read the article on April’s case and others on the Washington Post,
How autoimmune disease can attack the brain, cause psychiatric symptoms
Lupus resources:
Coping with the cognitive symptoms of lupus
What is inflammation?
How lupus affects the body
In this month’s episode, we learn more about visible symptoms of lupus with Dr. May Choi. Dr. Choi will discuss the difference between visible and invisible symptoms, treatment options, and ways to cope with visible manifestations of lupus.
Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary.
Resources
Check out our previous episode about invisible symptoms with Dr. Cynthia Aranow
Use this sheet to keep track of your lupus symptoms
Learn how lupus affects the body
Dr. Cynthia Aranow explains the impact of invisible symptoms in this episode of The Expert Series. Learn the difference between a sign and symptom and how to discuss this topic with your health care team and loved ones.
Review these resources to learn more about this topic:
https://www.lupus.org/resources/understanding-the-invisible-impact-of-lupus
https://www.lupus.org/resources/ten-things-to-tell-your-friends-about-lupus
https://www.lupus.org/resources/learn-ways-to-better-manage-your-lupus
https://www.lupus.org/resources/financial-assistance
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The Expert Series is happy to have Dr. Bonnie Bermas on our episode about fertility and reproductive health.
Dr. Bermas is an internal medicine professor at UT Southwestern Medical Center focusing on rheumatology disorders. She was the Clinical Director of the Lupus Center and co-director of the Program in pregnancy and rheumatic diseases at Brigham and Women’s and Harvard Medical School.
Her research interests include pregnancy and rheumatic diseases, systemic lupus erythematosus (SLE) and antiphospholipid syndrome (APS), and rheumatic immune checkpoint inhibitor adverse events.
Below are resources from the National Resource Center on Lupus related to this episode
Read about Lupus and women’s reproductive health
Read how six men are living with lupus
Learn more to understand the role of how sex and gender play in lupus
For more information on medication, read about Medications used to treat lupus.
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In this month’s episode, we speak with Dr. Jane Salmon about Antiphospholipid Syndrome, or APS. Dr. Salmon is a Collette Kean Research Professor and the director of the Lupus and APS Center of Excellence at the Hospital for Special Surgery.
Dr. Salmon shares her insight on APS how it can affect people with lupus, treatments, and more. Tune in to learn more.
For more information on APS, read here
Learn more about lupus and pregnancy
Learn more on how smoking can affect people with lupus
In this episode of The Expert Series, we welcome Dr. Murray Urowitz, a senior staff rheumatologist at the Toronto Western Hospital and Senior Scientist at the Krembil Research Institute and Schroeder Arthritis Institute. Dr. Urowitz helps us continue the conversation on lupus and heart health. We discuss the difference between coronary artery disease and cardiovascular disease for lupus patients, how these diseases present in both men and women, and more.
Find out more information on heart health and lupus on our National Resource Center on Lupus. | En Español
You may also find our referenced heart episode with Dr. Jim Oates, here
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In this episode of The Expert Series, we are focusing on medication management. LFA talks with Dr. Marcia Mueting, CEO of Nebraska Pharmacists Association, about the importance of connecting with your local pharmacists, what questions to ask, and what to do if you experience side effects from your lupus medications. Dr. Mueting also worked as staff pharmacist, pharmacy manager in a community practice, and helps support her husband, who is a lupus warrior.
For information on lupus medications, check out these resources:
Treating lupus: A guide
Understanding your lupus medications
Treatments being studied for lupus
To learn more on how lupus affects the body, visit: https://www.lupus.org/resources/how-lupus-affects-the-body
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In this episode of The Expert Series, we talk with Dr. Anca Askanase, founder and clinical director of Columbia University’s Lupus Center, about winter wellness. We discuss how to stay healthy during cold and flu season, the importance of getting a flu shot every year, and more.
To learn more about flu and vaccines for people with lupus, check out our resources on our Resource Center:
Get your annual flu shot
Lupus and Vaccines
Be sure to also check out our blog discussing how to stay safe and stress-free this holiday season.
In honor of National Caregivers Month, we speak with Grace Whiting, president and CEO of The National Alliance for Caregiving, on why we should give back to those who take care of us. In this episode we discuss the caregiver role, tips to stay healthy, resources, and more.
For more information on caregiving, check out our dedicated page for caregivers.
Esta discusión se lleva a cabo en español. En este episodio de la Serie de Expertos la Gerente de Educación para la Salud y Alcance Hispano, Leticia Ocaña, habla con la Dra. Cristina Drenkard, Profesora Asociada de Medicina de la Universidad Emory en Atlanta, Georgia, sobre los mitos y realidades comunes del lupus que rodean al lupus.
Si necesita más información y apoyo, consulte nuestro paquete informativo sobre el lupus aquí.
Información adicional está disponible en español. Visite: lupus.org/es/resources
This discussion is conducted in Spanish. In this episode of The Expert Series, Health Education Manager for Hispanic Outreach Leticia Ocaña speaks with Dr. Cristina Drenkard, Associated Professor of Medicine at the Emory University in Atlanta, Georgia about the common lupus myths and realities surrounding lupus.
If you need more information and support, please take a look at our lupus information packet here.
More resources are available in Spanish, visit: Lupus.org/es/resources
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In this episode of The Expert Series, Telehealth and Lupus, Dr. Donald Thomas shares information about telehealth and tips on how to prepare for a virtual visit with your doctor.
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About the Presenter
Dr. Donald Thomas teaches at the Walter Reed National Military Medical Center as an Associate Professor of Clinical Medicine of the Uniformed Services University of the Health Sciences, a practicing rheumatologist in Greenbelt, Maryland and author of the” Lupus Encyclopedia: A Comprehensive Guide for Patients and Families.”
Depression and anxiety has increased among Americans as the coronavirus pandemic continues to evolve.
In this episode of The Expert Series, Mental Health and Wellness During a Time of Uncertainty, Dr. Neda Gould shares information about stress and anxiety, coping strategies and will lead a brief guided meditation practice.
2In this episode of The Expert Series, Kathryn Wierenga, one of the 2019 recipients of the Lupus Foundation of America’s Gina M. Finzi Memorial Student Summer Fellowship Award, shares more information about the Importance of Fatty Acids and People with Lupus.
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About the Presenter
Kathryn Wierenga graduated with a bachelor’s in science from Michigan State University and is currently a doctorate student in their Department of Biochemistry and Molecular Biology with a dual major in Environmental and Integrative Toxicological Sciences. She is currently studying how Omega-3 fatty acids suppress lupus flaring.
In this episode of The Expert Series, Lauren Metelski, RN, Health Education Nurse Manager for the Lupus Foundation of America shares more information about how our health educators can help you navigate your lupus journey and resources that you can use to better manage the disease, including:
- Take Charge E-mail Series: a weekly education email series for people with lupus, including those recently diagnosed. Each week for 12 weeks, you'll get an email from our Health Educators with tips and resources that can empower you to take charge of your health.
- LupusConnect™: an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the daily challenges of lupus.
- Lupus Foundation of America Caregiver Toolkit: a downloadable toolkit designed to provide you with guidance, support, and advice, whether you have been a caregiver for just a few days, or for several years.
March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus.
In this episode, we talk with Dr. Jillian Rose-Smith, vice president and chief equity officer at the Hospital for the Special Surgery, about lupus in the LGBTQ+ communities. We discuss what it means to have gender affirming care, how to protect yourself from implicit bias in the healthcare space and how to get the support you need.
Review these resources to learn more:
What role do sex and gender play in lupus?
Lupus facts and statistics
What is self-advocacy
Speak with a health educator
Fenway Health - A health organization dedicated to helping LGBTQ+ communities
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There is no set definition or timeframe for what counts as lupus remission. It’s no wonder lupus remission is a confusing topic!
This month, Dr. Ronald van Vollenhoven, director of Amsterdam Rheumatology Center in the Netherlands, shares his expertise about lupus remission and inactive lupus and what it means for lupus warriors.
Learn more about lupus remission on our National Resource Center on Lupus
https://www.lupus.org/resources/lupus-remission
https://www.lupus.org/resources/patient-physician-dialogue-tool
https://www.lupus.org/resources/your-genes-and-lupus
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