Claim OwnershipThe Sound of Hope
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© Chronic Hope
Description
Hear stories first-hand of those living in the chronic illness community & the challenges they have faced along their journeys.
43 Episodes
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This week Jami and Sean, editor of the podcast, give an update on the podcast and what's been happening behind the scenes at Chronic Hope. We explain why we there hasn't been new episode of the podcast and give a teaser at some of our upcoming projects
It's all about mind over matter as Jami chats with Summer Moore on the benefits of meditation, having a positive mindset and how she used those tools to overcome Chronic Fatigue Syndrome. She shares tips on how to change negative and unhealthy thought patterns that hold you back and move into a positive mindset that serves you! Summer also touches on the dangers of unhealthy and toxic relationships, identifying them and setting boundaries.
Jami chats to Todd who has been living with Chronic Fatigue Syndrome for a number of years, He shares about his journey from gut issues, to social isolation, to the stigma around men with chronic conditions, this is a must listen episode!
This week Jami is chatting with Christine Gils who is an exercise physiologist in the Sydney area. Christine will be sharing some advice and guidance gleaned from 16+ years of working with people living with chronic conditions.
This week on the podcast, Steve talks about his 12 year journey with eosinophilic asthma and how he thinks he may have had COVID-19 earlier this year.
Jami gets to chat with Saskia about life with Fibro and how living with a chronic illness affects her life and how she finds hope when times get tough.
1This week Sean Reid joins Jami as he shares his life's journey living with Chronic Fatigue. He walks us through how he navigated the ups and downs of rest, recovery and living an active lifestyle. Sean talks about the value of human connection and relationships and how human interaction can spark hope. He also shares advice and wisdom for those living with chronic conditions
Dr Jo Thomas joins us to discuss the relationship between a General Practitioner and patient and all things in between - finding the perfect GP, building a strong working relationship and maintaining trust. Dr Thomas details the role that a GP holds in the journey of helping patients find the correct treatment. Jami and Dr Thomas also discuss what patients can do to advocate for themselves especially those who live with invisible chronic illnesses and feel that they are unheard and not properly understood by their GP.
Justine Flynn, co-founder of Thankyou, joins Jami as she talks about how she built a social enterprise while navigating burnout. She talks through the various chronic health obstacles that she faced along her journey in building her brand.
This week Jami speaks with Sean Dela Cruz, an intern at Chronic Hope as he shares his journey - from a brain tumor, to a brain surgery and a movement disorder. He talks about the challenges he faced being sick during his final year of high school. He speaks about the importance of support groups and gives advice to those who face similar challenges.
Katya joins us this week as she shares how she started her Instagram @positivelychronictravels - sharing resources to live and travel with chronic illness. She walks us through how she plans and organises her holidays: from choosing a location, managing crashes and dealing with food intolerances.
Jessica (@chronicallycss) joins Jami this week as they chat about life during lockdown and living with chronic illness. Jessica shares her journey with Central Sensitisation Syndrome and how life is in lockdown. She shares some of the coping mechanisms she's been using - particularly meditation and relaxation techniques - and other tips to stay positive during these times.
This week, we have David Watkins, a counselor in the Sydney area, to discuss the relationship between pain, mental health, emotions and navigating through negative core beliefs. He explains how pain and mental health can adversely affect the body. Dave also talks about the importance of self care and what we can do to get rid of negative core beliefs.
Jake Heilbrunn (@jakeheilbrunn) joins Jami as he shares his insightful journey with Lyme disease. He walks us through how he got diagnosed and how its impacted its entrepreneurial lifestyle. Jake talks about the stigma that surround men and chronic illness and speaks about his path to recovery.
This week Jami speaks with Dan Hunt, former rugby player for the Dragons, who founded the Mental Health Movement - an organisation that provides workplace training to organisations wanting to better support their staff and their mental health. He talks about how to start the conversation on mental health, the stigma around men’s mental health and the importance of building a strong support group.
This week Jami is joined by Erica (@ambitiously_a_crohnie) a Chronic Hope ambassador as they discuss working with a chronic illness. They go over the challenges faced by the chronic illness community in the workplace, when to tell your boss/employer about your condition and knowing your rights as an employee.
This week Yasmine (@yasmine.shakur) joins Jami on the podcast to discuss all things art, creativity and chronic illness. She shares how drawing helped her on her recovery journey. They talk about art as medium for conveying emotion and as a tool to raise awareness and understand for chronic illness. Yasmin also shares her insight on being creative and how to find your own creative outlet
Jes (@house_of_spoons)hops on the podcast as she shares her experience being a spoonie parent. She shares how she manages her spoons - spending time with the kids, dealing with flare ups, and the benefits of having a daily routine.
Jami becomes the guest of the podcast this week as she shares her story with Chronic Fatigue Syndrome. She touches upon the events that led to her diagnosis with CFS and her mindset when it came to her recovery. Jami shares the lifestyle changes she's made along the way and the importance of overcoming trauma through counselling. She also shares how a move to Sydney became the penultimate chapter in her road to recovery.
Matt (@chronicallymindfulmatt) joins the podcast to chat about mental health and masculinity. He speaks about his time in the navy and the hyper masculine environment found within. He discusses the stigma around men's mental health and the benefits of meditation and mindfulness.
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