Arthritis Life

They share words of wisdom for individuals newly diagnosed with rheumatoid arthritis, emphasizing kindness, self-compassion, and love. Helen also discusses the highlights of her experience in the Rheum to THRIVE program and how it helped her adjust to her new normal. Helen also shares how using the PERMA model from positive psychology (Positive emotions, Engagement, Relationships, Meaning & Accomplishment) helps keep her life and condition manageable. She encourages taking it day by day and continuously asking oneself how to love and support oneself through the journey. This episode is a great reminder for anyone with chronic illnesses to focus on self-love to navigate the challenges of the condition.Episode at a glance:Helen’s Journey with Arthritis: Helen describes diagnosis and treatment journey as gloriously imperfect.Self Compassion: Helen and Cheryl discuss how having self-compassion is a great coping mechanism for those with chronic illnesses.PERMA Model: Cheryl and Helen discuss what the PERMA model is and how it can be helpful in chronic illness management.Rheum to THRIVE: Cheryl and Helen discuss Helen’s experience with the Rheum to THRIVE support group.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

They discuss how they became Rheum Champions, their personal journeys with conditions like rheumatoid arthritis, lupus, PCOS, and more, and the importance of community and support. The episode also highlights significant takeaways from the meeting, including research updates, the passion of the researchers, and the heartwarming sense of community.  This podcast serves as a powerful reminder of how important it is to integrate the patient voice into rheumatology research.   *This episode was originally recorded for the My Spoonie Sisters podcast. Episode at a glance:00:00 Welcome to the Rheum Champions Tell All01:59 Introducing the Rheum Champions03:55 Sharing Our Stories: The Journey to Advocacy07:13 The Impact of Community and Support10:55 Becoming a Rheum Champion16:09 Highlights from the 2025 Investigators Meeting24:52 Final Thoughts and How to Get InvolvedMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Beyond her personal battle, Deb has established a global support group for those with osteonecrosis and actively participates in the Arthritis Foundation's Live Yes! Connect groups. Highlighting the power of community support and advocacy, Deb's story is an inspiring testament to resilience and the importance of helping others navigate similar health challenges.Episode at a glance:Deb’s Journey: Cheryl and Deb discuss Deb’s journey with osteoarthritis and osteonecrosis.The Power of Community: Deb shares how having a community is important for support and connection in the chronic illness world.Deb’s Support Groups: Cheryl and Deb discuss Deb’s global support groups and the Arthritis Foundation’s Live Yes! Connect groups. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Edens debunks common misconceptions, such as vaccines causing autoimmune diseases or always triggering flares. She explains that while mild immune responses are normal, serious complications are extremely rare and the benefits far outweigh the risks. Dr Edens emphasizes that vaccines not only prevent infections but also certain cancers, making them an essential part of care for immunosuppressed patients. The discussion also explores vaccine timing with medications, the dangers of misinformation, and how to talk about vaccine hesitancy with empathy and evidence.Episode at a glance:Guest Expert: Dr. Cuoghi Edens, dual-trained adult and pediatric rheumatologist at the University of Chicago.Myth #1: “Natural is better than vaccines” — Debunked; vaccines dramatically reduce child and adult mortality from infectious diseases.Myth #2: “Vaccines cause autoimmune diseases” — Overwhelming evidence shows they do not.Myth #3: “Vaccines always cause flare-ups” — Possible but uncommon; most patients tolerate vaccines well, and disease prevention outweighs brief discomfort.Risk–Benefit Balance: Vaccines protect against infections and cancers (HPV, hepatitis B) that can worsen or complicate autoimmune diseases.Timing & Medications: ACR guidelines suggest coordination with treatments like rituximab and high-dose steroids, but partial protection is better than none.Health Literacy Tip: “Doing research” means reviewing credible scientific evidence—not social-media opinions or cherry-picked studies.Social Stigma: Addresses misinformation, polarization, and “anti-vax” rhetoric, highlighting the need for compassion and critical thinking.Trusted Resources: Children’s Hospital of Philadelphia vaccine education site and American College of Rheumatology guidelines.Key Takeaway: Vaccines are safe, vital, and empowering tools for people with autoimmune diseases.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Full Episode Show Notes:Go to the episode page on the Arthritis Life website for full details including a transcript and video!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Together, they unpack common myths surrounding food and autoimmune conditions and share practical, real-life strategies for self-management. It’s a conversation packed with practical advice and empowering insights for anyone looking to make nutrition more manageable while living with an autoimmune condition.Episode at a glance:Common misconceptions about diet and autoimmune diseases: Cheryl and Dr. Singla discuss common myths about diet and nutrition for autoimmune diseases.How Dr. Singla adapts her kitchen for comfort and efficiency: Organizing items to avoid reaching or bending, using pre-chopped ingredients to reduce strain, utilizing assistive kitchen tools (many available on Amazon)Creative, real-life kitchen strategies: Wearing weightlifting gloves for cutting tough vegetables, prepping water ahead of time to avoid lifting heavy potsMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

They share examples of how misinformation can lead to physical harm, wasted money, and delayed treatment, and emphasize the importance of critical thinking and media literacy. The hosts introduce practical tools such as the “CRAAP test” for evaluating sources and encourage listeners to seek balanced, evidence-based hope rather than false promises of cures.Episode at a Glance — Main Themes🌐 Why misinformation spreads: Emotional vulnerability after diagnosis, grief, and the appeal of “quick fixes.” ⚠️ Common myths: “Natural is better,” “medications are worse than the disease,” “vaccines cause autoimmune issues,” and “dietary cures can reverse disease.” 💊 Real risks: Financial loss, physical harm (e.g., liver damage from supplements), and worsening disease due to delayed or stopped treatment. 🧠 Critical thinking tools: Using the CRAAP test, recognizing cherry-picking and predatory journals, and assessing conflicts of interest. 💬 Empowered decision-making: Encouragement to “go to the source,” value science-based hope, and stay informed through credible experts and patient advocates.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Dani dig into the diagnosis saga, evolving RA treatments, the role of acceptance, and why movement is essential to living well with rheumatic disease. For Dani, “movement” isn’t only physical; it’s emotional, spiritual, and educational. If you’re newly diagnosed, this conversation is a powerful reminder to make every day count.Episode at a glance:Dani’s Diagnosis Journey: Cheryl and Dani discuss Dani’s journey to being diagnosed with rheumatoid arthritis.How Dani Rebuilt her Life: Dani recounts how she rebuilt her life after her diagnosis by slowly reintroducing weights and working through mental health challenges. The Importance of Movement: Cheryl and Dani discuss the importance of movement for those with arthritis, beyond physical movement.Make it Count for Dani: Dani and Cheryl delve into Dani’s non-profit organization which provides support and hope for those living with RA.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

On this special episode* of 'Rheumer has It', hosts Eileen and Cheryl are joined by renowned rheumatologist Dr. Loreto Carmona from Spain. The discussion centers around the concept of remission in rheumatoid arthritis (RA), highlighting the differences between medical and patient perspectives on what constitutes remission. Dr. Carmona emphasizes the importance of communication between patients and doctors, the role of medications and lifestyle factors, and the myths surrounding RA remission.This insightful conversation is part of the Canadian Talk Over RA campaign, aimed at providing hope and clear knowledge to those living with RA. See the full show notes on the Arthritis Life website for more details.Episode at a glance:00:31 Meet Dr. Loreto Carmona01:31 Defining Remission in Rheumatoid Arthritis04:26 Misconceptions About Remission07:38 Factors Influencing Remission11:30 The Importance of Communication14:48 Historical Perspectives on RA Treatment16:12 Final Thoughts and ResourcesMedical disclaimer:All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!**Special Episode Sponsor: Talk Over RA CampaignAD - Talk Over RA is more than a campaign — it’s a call to action. This podcast episode is part of the Talk Over RA 2025 campaign and is sponsored by AbbVie Canada. All content and opinions are Eileen Davidson, Cheryl Crow and Dr. Loreto’s own and are not intended to promote any specific pharmaceutical products.Rheumatoid arthritis doesn’t just speak through pain and fatigue — it interrupts plans, drains energy, and creates uncertainty even when symptoms are quiet. The Talk Over RA initiative encourages people living with RA to take back control by speaking up, sharing their experiences, and working with healthcare providers to set meaningful treatment goals.Eileen’s role in this campaign is to provide tools that help you prepare for appointments, explore what remission could look like, and connect with others who truly understand.Don’t let RA speak louder than you. Explore the campaign and download the guide here.For full episode show notesGo to the episode page on the Arthritis Life Website here. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

On this episode, Emily and Cheryl discuss how they've come to terms with the fluctuating, non-linear, dynamic nature of rheumatoid arthritis. After being a fierce athlete and playing Division 1 water polo, Emily was diagnosed with rheumatoid arthritis at age 22.  She shares lessons learned while working as a night shift nurse for 12 years and having three children.  Emily opens up about using cannabis as part of her care, the importance of mental health support, and why community has been so vital, especially through Cheryl’s Rheum to THRIVE program. Together, Cheryl and Emily reflect on coping with uncertainty, redefining identity, and what it means to live a good life with RA. This is an encore presentation of episode 85, which first appeared in December, 2022.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes:Go to the episode page on the Arthritis Life Website. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Diagnosed at just 15, Zac opens up about the difficult shift from being an active athlete to facing disability caused by arthritis and its complications. He shares how strength training became a turning point and helped him regain mobility, lose weight, and rebuild a fulfilling life. He also explores how his background in strength training helped him survive a near death experience with macrophage activation syndrome.Together, Cheryl and Zac explore the role of exercise in managing arthritis, offering practical tips, tools, and encouragement for others navigating similar challenges. Zac highlights the importance of pairing medical treatment with disciplined strength training to enhance both health and quality of life.Episode at a glance:Zac’s Diagnosis Journey: Zac Spinosa, 28-year-old personal trainer living with Juvenile Idiopathic Arthritis (JIA), shares the challenges of shifting from active athlete to living with disability. Turning Point: How strength training helped Zac regain mobility, lose weight, and rebuild his lifePractical Takeaways: Tips, tools, and advice for using exercise to manage arthritis effectivelyHolistic Approach: The importance of combining medical treatment with disciplined strength trainingInspiration for Listeners: Finding resilience, strength, and quality of life while navigating chronic illnessMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl shares her powerful journey of being diagnosed with rheumatoid arthritis (RA) at just 21 years old and reflects on what it was like to go from being a healthy, athletic college student to suddenly navigating pain, fatigue, and disbelief from doctors. She opens up about the emotional toll of feeling dismissed, the relief of finally getting a diagnosis, and the lessons she’s learned about acceptance, self-compassion, and living fully despite chronic illness. She also shares how her experiences led her to create the Rheum to THRIVE educational program and support group, so that no one has to navigate life with RA alone. Cheryl and Dr. Hassett explore the realities of RA that often go misunderstood, from unpredictable flare-ups, invisible symptoms, and the mental health challenges of chronic illness. Cheryl also shares the strategies that help her thrive today: pacing her energy, building community, protecting sleep, and seeking out moments of joy.  If you’re feeling lost or overwhelmed after your own diagnosis, this conversation will remind you that you’re not alone, and that it is possible to find purpose, hope, and connection while living with RA.This conversation originally occurred in 2024 and first appeared on the "Chronic Pain Reset” podcast, hosted by pain psychologist Dr. Afton Hassett. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode detailsGo to the show notes page on the Arthritis Life Website.  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Gittel explore the importance of being mindful with our social media use. While they highlight the risks of falling into negative patterns that can lead to isolation, they also emphasize social media’s powerful potential for connection and support among those living with chronic illness.Gittel shares how participating in online support communities like Rheum to THRIVE has strengthened her self-management and coping strategies. Together, Cheryl and Gittel stress the importance of setting intentional goals for social media use, fostering connection, protecting mental health, and ultimately avoiding the trap of isolation.Episode at a glance:Milestone guest return: Gittel joins the podcast for her fifth appearance and reflections on her journey with Crohn’s disease and ankylosing spondylitis.Rheum To Thrive: Gittel reflects on how her relationship with the Rheum to Thrive program has grown over time.Mindful social media use: Comparing patterns of use, misuse, and abuse to drug use.The double-edged sword of social media: Exploring both its risks (isolation, negative cycles) and benefits (connection, support).Personal impact: Gittel’s story of how online support communities improved her coping and self-management.Practical takeaways: Setting intentional goals for social media to foster connection, protect mental health, and avoid isolation.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Dr. Liew  shares her personal journey to becoming a rheumatologist inspired by a friend's diagnosis. She then discusses the condition in detail, addressing common misconceptions such as it being exclusive to white men and always showing up on imaging. Listeners will gain invaluable insights into the challenges of diagnosing this condition, social determinants affecting diagnosis, and reliable resources for further information. This episode is a must-listen for anyone navigating the labyrinth of rheumatic diseases, providing hope and knowledge to help you thrive.Episode at a glance:00:00 Introduction to Rheumer Has It Podcast00:26 Meet Dr. Jean Liew: Expert on Axial Spondyloarthritis00:40 Understanding Axial Spondyloarthritis01:41 Dr. Liew's Journey into Rheumatology04:16 Busting Myths: Axial Spondyloarthritis and Demographics (it’s not just men!)06:50 Challenges in Diagnosing Axial Spondyloarthritis10:27 The Role of HLAB 27 in Axial Spondyloarthritis12:26 Imaging and Axial Spondyloarthritis14:38 Final Thoughts and ResourcesMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Cheryl and Melissa discuss her experiences in the healthcare system, driven by frustration to become a self-advocate. This led Melissa to write the book Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease, aiming to provide validation and resources for others facing similar struggles. Cheryl and Melissa also touch on the challenges of advocating for oneself, misconceptions in the medical field, the impact of invisible illnesses, and the importance of finding purpose and joy while living with chronic conditions.Episode at a glance:Melissa’s Journey: Cheryl and Melissa discuss Melissa’s long diagnosis journey.Navigating the Healthcare System: Melissa shares what it was like to navigate the healthcare system as a nurse turned patient.Self-Advocacy: Cheryl and Melissa discuss the importance of self advocacy. Melissa’s Book: Melissa shares her journey of writing her new book, Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Drawing from personal experiences and expert insights, they dispel common myths such as the notion that diet alone can treat RA, and also highlight the evidence for some nutrition approaches like the Mediterranean diet as a reliable starting point. The episode underscores the importance of integrating diet and other lifestyle approaches alongside medications for optimal well-being. Whether you're newly diagnosed or navigating your journey, this episode offers clarity on an often confusing topic.Episode at a glance:Myth #1: Diet is all you need to treat / cure RAMyth #2: Dietary interventions are more effective and safe than medicationsMyth #3: It’s an either or - -you have to do diet OR medicationsMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

In this honest and inspiring episode, Cheryl and Chelsea talk about the emotional toll of chronic illness, the power of having a solid support system, and how Chelsea went from feeling isolated to becoming a voice for others. Chelsea opens up about how sharing her story online, especially as a Hispanic woman, helped her find connection, purpose, and strength.If you’re newly diagnosed and feeling overwhelmed, Chelsea’s story is the reminder you need: you’re not alone, and your voice matters. Tune in for talk on therapy, faith, coping tools, and how advocacy can become part of your healing.Episode at a glance:Chelsea’s Diagnosis Journey: Chelsea shares her experience being diagnosed with rheumatoid arthritis, scleritis, and PCOS all in her early 20s.Emotional Rollercoaster: The mental toll of chronic illness and how it impacted Chelsea’s daily life.The Power of Support: Why having a strong support system made all the difference in Chelsea’s chronic illness journey.From Isolation to Advocacy: How sharing her journey online helped Chelsea find connection and purpose—especially as a Hispanic woman navigating the healthcare system.Your Voice Matters: Encouragement for those newly diagnosed—you are not alone, and your story is powerful.Coping Tools: Therapy, faith, and mindset shifts that helped Chelsea regain control.Advocacy as Healing: How turning her pain into purpose became part of Chelsea’s recovery.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

On this episode, Cheryl & Eileen talk with sleep expert and researcher D. Deborah Da Costa about evidence based interventions to improve sleep in people with rheumatic conditions. Dr. Da Costa explores how sleep challenges are deeply entangled with social and emotional wellbeing as well as pain, fatigue and cognition for those living with rheumatoid arthritis and related conditions. She also overviews Cognitive Behavioral Therapy for Insomnia (CBTI), which is the the gold standard for treating sleep disturbances. Whether it’s resisting social pressure to stay up late or coping with fatigue while caregiving, this episode explores sleep-related struggles and provides specific tips for improving sleep.Episode at a glance:Sleep Is a Critical Yet Underrecognized Component of Arthritis Care: Despite its profound impact, sleep is often neglected in both patient and provider conversations. Poor sleep can worsen arthritis symptoms such as pain, fatigue, depression, anxiety, and cognitive dysfunction—even when the disease is otherwise well-managed.Cognitive Behavioral Therapy for Insomnia (CBTI) Is a Promising Non-Pharmacological Treatment: CBTI is considered the gold standard for treating insomnia without medication. It helps patients reframe negative beliefs about sleep and adopt healthier sleep behaviors, such as limiting screen time in bed and creating a relaxing pre-sleep routine. Internet-based CBTI programs tailored for arthritis patients are currently being piloted.Sleep Challenges Are Deeply Intertwined with Social and Emotional Wellbeing: The podcast highlights how sleep difficulties affect social life, relationships, and self-advocacy. From navigating social pressure to stay up late to managing fatigue while caregiving, the conversation emphasizes the need for greater awareness and support around sleep in the context of chronic illness.Medical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

She and Cheryl also discuss the complexities of symptom tracking and diagnosis, challenges of treatment, and the importance of self-advocacy and support groups. Estela also highlights her nonprofit organization, Looms for Lupus, which she co-founded with her sisters to provide advocacy, support, and educational resources for those affected by lupus and overlapping conditions. The conversation covers personal coping strategies, the significance of community, and the multifaceted nature of living with chronic illness.Episode at a glance:Estela's Advocacy Journey: Estela's extensive experience in the healthcare industry, working as a medical assistant from a young age, and how her sister’s lupus diagnosis in 2009 propelled her into the world of autoimmune advocacy.Estela’s Diagnosis Journey: Estela shares her long road to a rheumatoid arthritis diagnosis, touching on the difficulties of being seronegative and the importance of tracking and communicating symptoms effectively to healthcare providers.Treatment Challenges: The conversation covers Estela's experience with various treatments, including her struggles with medications, weight gain, hair loss, and how she found resilience through these challenges.Importance of Self-Advocacy: Advice and tips on the necessity of advocating for oneself within the medical system, and the impact it can have on receiving timely and accurate diagnoses.Looms for Lupus: An in-depth look at the foundation Estela co-founded with her sister. They discuss the support groups, educational symposiums, and bilingual resources offered by Looms for Lupus, dedicated to supporting those with lupus, fibromyalgia, mental health challenges, and their caregivers.Personal Coping Strategies: Estela highlights the strategies she employs to manage her health, such as mindfulness, spending time with family, painting, and journaling. She also emphasizes the importance of asking for help and giving oneself grace.Inspirational Advice: Estela's key message to listeners: never give in, never give up, never let go, and just keep fighting. She also underscores the necessity of knitting a community of hope and the importance of laughter and friendship.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Eileen and Cheryl break down six types of unsolicited advice, including lifestyle interventions, toxic positivity, unqualified medical advice, predatory marketing, wild suggestions, and even well-meaning but unsolicited solid advice. They share their personal experiences and offer practical strategies for responding to these unsolicited suggestions, emphasizing the importance of evidence-based treatments and individualized care. The episode aims to empower listeners to assert their boundaries and make informed decisions about their health.Episode at a glance:Introduction to Rheumer Has ItThe Impact of Unsolicited AdviceTypes of Unsolicited AdviceResponding to Unsolicited AdviceConclusion and TakeawaysMedical disclaimer: All content found on Arthritis Life public channels (including Rheumer Has It) was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

From navigating a complicated healthcare system to managing symptoms in a remote location, Dawn opens up about the real challenges she’s faced, and the tools that help her cope.Together, Dawn and Cheryl explore what it takes to live well with arthritis, from finding the right medications and building an exercise routine, to advocating for yourself and embracing self-care. Dawn also reflects on the power of mindset, gratitude, and simplifying life to focus on what truly matters.If you’re feeling overwhelmed by your diagnosis or unsure where to start, this conversation is full of down-to-earth wisdom, encouragement, and hope.Episode at a glance:Dawn’s Journey: Dawn shares her psoriatic arthritis diagnosis story. Life in Alaska: Dawn and Cheryl discuss the unique challenges of managing healthcare in Alaska. The Power of Exercise and Movement: Dawn shares how movement plays an important role in managing her symptoms. Mental Strength and Resilience: Dawn and Cheryl discuss tools and strategies for mental strength and resilience. Working in the Medical Field with Chronic Illness: Dawn shares her background in the medical field and how it shaped her approach to chronic illness.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.