Arthritis Life

 On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain.  Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness.  Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details plus a full transcript and video:See the episode page on the Arthritis Life website. 

Dr Dave & Dr Campbell answer Cheryl’s burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy.Dr. Campbell encourages participation in research studies to better understand these complex issues. Dr. Dave emphasizes the need for precision medicine approaches in treating autoimmune diseases like RA, where individualized treatment plans can be tailored to each patient's unique needs. Despite the challenges posed by autoimmune diseases and COVID-19, they express optimism about the future of treatment options and the ongoing medical advancements.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & videoGo to the episode post on the Arthritis Life Website (page coming soon)! 

Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process. Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging societal norms around what constitutes a "normal" life. They also challenge the idea that disability is necessarily a “bad” word.  They emphasize the importance of self-care and finding joy in everyday activities, even if they require accommodation. For Catherine, participating in activities like surfing, albeit in an accommodated manner, brings fulfillment and contributes to her definition of living a good life with chronic illness. Throughout the conversation, Cheryl and Catherine underscore the values of self-advocacy, self-acceptance, and finding happiness on one's own terms.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode detailsFor full episode details including hyperlinks to things discussed on this episode, go to the episode page on the Arthritis Life website. 

Trigger warning: orthorexia / eating disorders; fear of foodsIn Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family. Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs.Episode at a glance:Diagnosis Story: Ray describes his diagnoses and experience living with rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA).Navigating Multiple Conditions: Ray explains the complexities of living with multiple chronic illnesses, including challenges related to symptom management, accessing healthcare, and adjusting to lifestyle changes.Social Support and Connection: Cheryl and Ray discuss the significance of social support networks, in providing connection and understanding for individuals living with rheumatic diseases.Self-Advocacy and Empowerment: Ray emphasizes the importance of self-advocacy and seeking out reliable information and resources to empower oneself in managing chronic illnessesAcceptance and Resilience: Ray shares insights into his journey from feelings of denial to acceptance and living a fulfilling life despite health challenges.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & video:Go to the episode page (coming soon) on the Arthritis Life website. 

Christine highlights the importance of lifestyle methods to manage chronic conditions including sleep hygiene, stress management, anti inflammatory nutrition, exercise and more. They discuss the importance of focusing on what brings joy and meaning to one's life while managing chronic illness.Overall, the conversation underscores the importance of a comprehensive approach to chronic pain management that addresses both the physical and emotional aspects of the patient's well-being.Episode at a glance:Chronic pain explained: Christine explains the 3 types of pain: nociceptive (as seen in active inflammation / tissue damage in RA), nociplastic (central sensitization, as in fibromyalgia) and neuropathic pain (nerve pain)Lifestyle: The best lifestyle adjustments to manage rheumatic disease, fibromyalgia and long covid: sleep, stress management, exercise, nutrition and moreMental health: The significance of addressing both the physical and emotional aspects of a patient's well-being in chronic pain management.Acceptance: Utilizing Acceptance and Commitment Therapy (ACT) as a valuable tool for managing chronic pain and navigating uncertainty.Joy: Focusing on finding joy and meaning in life while accepting the changes that come with chronic illness.Patient-provider relationship: Tips for building a trusting relationship with your health providerLong Covid and Fibromyalgia tips: Christine shares her best tips from her long covid and fibromyalgia clinicMedical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now.For full details including a video and transcript:Go to the episode page on the Arthritis Life Website (episode page coming soon).

Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the condition.Episode at a glance:Advocacy and Awareness: Cheryl and Rebecca emphasize the importance of advocating for individuals with juvenile idiopathic arthritis (JIA) and raising awareness about the condition to combat misconceptions and promote understanding in various settings.What happens when kids with JIA become adults? Rebecca clarifies common misconceptions such as that kids “outgrow” JIA. As an adult living with JIA, she explains how the diagnosis follows you to adulthood because it’s a different disease than adult rheumatoid arthritis.Education and Work Accommodations: Cheryl & Rebecca discuss the need for accommodations, highlighting the importance of communication with employers, teachers, and peers.Thriving with JIA: The conversation delves into the idea of living a fulfilling life despite the challenges of rheumatic diseases, emphasizing the importance of reframing limitations, embracing flexibility, and celebrating achievements and everyday joys.Coping tools: Cheryl and Rebecca discuss the challenges faced by individuals and families dealing with JIA, as well as strategies for navigating life with chronic illness, including seeking support, staying informed, and fostering a positive mindset.Favorite mantras: “It’s never too late to be who you might have been”, and it “always seems impossible until it’s done”.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a video & transcriptComing soon on the Arthritis Life Website.

Episode Summary****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis.  She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her experiences navigating different treatments to manage her RA over the past 32 years. Christine shares stories of her travels through South Korea and Indonesia, and her passion for dancing. She shares how she developed resilience during challenging situations, from insurance barriers and navigating healthcare disparities between countries, to adversity in relationships. Christine explains how dance became a transformative force in her life, where she found a space for self-expression and physical release. Christine and Cheryl emphasize the importance of self-advocacy in managing chronic illness, building a supportive community, and finding joy through the challenges.*Trigger warning for this episode*: Between minute 29:00-34:00 there is a discussion of emotional abuse, sexual assault, rape, and abortion.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected.  See all the details and join the program or waitlist now!For full episode details including a video & transcript:See the episode page on the Arthritis Life Website.

Rosemary also shares her experience with a mystery skin rash that ended up being a rare psoriatic arthritis medication side effect: leukocytoclastic vasculitis triggered by drug-induced lupus, and an eventual diagnosis of Palisaded Neutrophilic and Granulomatous Dermatitis. Throughout the episode, Rosemary and Cheryl discuss the importance of coping skills for difficult medical experiences. They also emphasize the importance of finding the right medications, lifestyle strategies, and the role of psychosocial support. Uncertainty and setbacks can be overwhelming, but self-compassion, support systems, acceptance, and perseverance can help you pursue a fulfilling life despite health challenges.Episode at a glance:Chronic Illness Journey: The interview delves into Emily's journey of living with chronic illnesses, from psoriatic arthritis, to developing drug-induced lupus which triggered leukocytoclastic vasculitis, and eventually being diagnosed with Palisaded Neutrophilic and Granulomatous Dermatitis (PNGD).Medication Management: Rosemary shares her experiences with various medications, including Enbrel, Humira, and Plaquenil, discussing their effectiveness in managing her symptoms and the decision-making process involved in discontinuing certain medications. They discuss the importance in recognizing adverse effects, while balancing this understanding with the benefits that medications do provide.Lifestyle strategies: Rosemary emphasizes the importance of physical activity and wellness in her life, despite her health challenges.Emotional Resilience: Navigating the emotional highs and lows with chronic illness can be overwhelming, from the initial relief of finding treatments to the grief and uncertainty of adjusting plans. Cheryl and Rosemary discuss self-advocacy, and pursuing fulfilling lives despite obstacles .Adapting to Change: Rosemary and Cheryl discuss how to adapt to change, both in terms of treatment plans and mindset towards living with chronic illness, including exploring alternative treatments and embracing new perspectives.Support: Rosemary reflects on the role of support from healthcare providers, online support groups, and in personal relationships - underscoring the importance of having a strong network when facing chronic illness.Advice to Newly Diagnosed Patients: “You don't have control of the fact that that happened to you, and you didn't do anything wrong. All you can do now is choose how to react to it. Do the next right thing. Little by little by little, it'll start coming together. And you're going to be okay.”Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcriptGo to the episode page on the Arthritis Life Website (transcript coming soon!).

Cheryl and Dr. Kimberly discuss the importance of pain science education to help patients better understand and manage their pain perception. The also explore the importance of building a network of health professionals and support groups to empower patients to advocate for themselves and navigate their treatment journey effectively. They conclude by discussing how to accept limitations while finding joy and adapting to new activities.Episode at a glance:Building Support Networks: Cheryl and Dr. Kimberly discuss the significance of building support networks, including health professionals, support groups, and reliable online resources to empower patients to advocate for themselves and navigate their treatment journey effectively.Pain Perception: They explore the complexities of interpreting pain signals, and discuss strategies for managing pain perception through education and awareness.Practical tips for Exercise for rheumatic disease: They share exercise tips,  including to start slow, give yourself time to adjust, consider the pillars of physical activity, and try to be consistent. Some types of exercise to consider are aquatic exercise, hand exercise, or individually prescribed exercise from a physical therapist who understands your specific needs.Which lifestyle interventions have the most scientific evidence: They discuss the 2022 ACR Integrative Guidelines for RA and how lifestyle interventions such as physical activity, nutrition, sleep, and stress management can help reduce arthritis pain and fatigue.Acceptance and Adaptation: They address the importance of accepting limitations while finding joy and fulfillment in adapting to new activities and experiences, encouraging patients to focus on what is still possible despite challenges.Individual needs: They highlight the need for patients to understand their own bodies' rhythms and balancing interventions based on their unique needs.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a transcript:Go to the episode page on the Arthritis Life Website. 

In episode 116 of the Arthritis Life Podcast, Lauren Huffman shares her journey with Ankylosing Spondylitis, and how her passion for occupational therapy and dogs has brought her meaning even through challenges.She and Cheryl give insight into the “behind the scenes” of Arthritis Life, and what resources are available. They discuss the importance of support in navigating rheumatic disease, and how the comprehensive approach of Rheum to THRIVE fills gaps in the healthcare system. Episode at a glance:Diagnosis Story: Lauren recounts her journey with ankylosing spondylitis, and how the diagnosis was both a relief and overwhelming. She and Cheryl discuss tools and strategies for managing symptoms, including medication management and communication with healthcare providers.Occupational Therapy: Lauren, OT student and Cheryl, OT talk about what occupational therapy is, and how it’s holistic approach relates to management of rheumatic diseaseArthritis Life: Lauren and Cheryl discuss the “behind the scenes” of Arthritis Life and Rheum to THRIVE,Dogs: Lauren reflects on her background in dog training, and how this passion has brought her joy despite challenges. She shares her experience with dog sports and raising service dogs in training, and how this has given her insight into adapting to make life with a furry friend possible and meaningful.Mental Health and Identity: Sometimes the unpredictability and dynamic nature of chronic illness can rob your enthusiasm, but it’s possible to thrive through acceptance, adaptations, and management strategies. Lauren shares words of wisdom to show up for yourself on good days and bad days, and to take care of yourself in a way that helps you to be resilient.Advice for Newly Diagnosed Patients: Lauren shares her perspective on Rheum to THRIVE, expressing the value of the comprehensive approach, connection to resources, and support from people who “get it”.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details plus a transcriptGo to the show page on the Arthritis Life Website.

In this episode, Kate shares her journey getting diagnosed with psoriatic arthritis while working as a chef in London. She opens up about her post-diagnosis emotional roller coaster and shares how joining Cheryl’s Rheum to THRIVE online support and education program helped her feel more confident, empowered and supported. She also details other programs that helped her including a mindfulness course and CBT therapy.  The episode ends with Kate sharing what it means to her to live a “good life” with rheumatic disease.This conversation was first recorded and released as episode 79 in 2022. Episode at a glance:Kate’s psoriatic arthritis Diagnosis journey: being unable to hold a fork; MRI of her hands showed erosions and inflammatory arthritisEmotional Aftermath of Kate’s diagnosisFinding community & support: after feeling isolated and not being able to find good answers on her own, Kate joined Rheum to THRIVE and felt more comforted, empowered and supported Two other things that helped kate: Mindfulness course and CBT therapyHow Kate learned to advocate for her needs with her rheumatologistsKate’s favorite life hacks for being a chef with arthritis, including a discussion about what dietary interventions have helped her Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a transcript:Go to the episode page on the Arthritis Life website. 

Episode at a glance:For full episode show notes go to the episode page here.Diagnosis story: Julia went from having a very active lifestyle, to becoming waking up with pain, fatigue, fever, and other symptoms. After initially thinking her symptoms were from a virus or pushing herself too hard in dance, she received a diagnosis of rheumatoid arthritis.Creative Pursuits: Julia expresses joy in dancing, theater, and writing - She shares coping strategies such as planning ahead, giving herself permission to rest and take breaks, social support, and finding positivity through her passions. In addition to her published writing, she is currently working on a novel.Resilience and Adaptability: The conversation delves into Julia's experiences as an actress, emphasizing the resilience and the ability to adapt to challenges in artistic pursuits.Self-Awareness: Julia encourages listeners to take some time to know themselves and advocate for their feelings. She shares “don’t be afraid to say no”, and honor what you’re feeling each day.Living in the Moment: Thriving with rheumatic disease includes being mindful of the present moment, honoring oneself, and finding joy despite the challenges.Advice to newly diagnosed patients: Be patient with yourself. Understand how your condition works in your body, and be kind to yourself.Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For Full Episode Show Notes + TranscriptGo to the episode page here.

In this episode, Cheryl discusses the major themes in Taylor Swift’s music that relate to the chronic illness experience, from the “Haunting” experience of a medication not working anymore to my own “Anti Heroic” immune system to the constant question of “Are We Out of the Woods yet?” when in a flare up.  After weaving in and out her own experience with rheumatoid arthritis and anxiety with listener contributions, Cheryl concludes by exploring the the “State of Grace” we experience when we connect with the chronic illness community. Throughout, she shares how she’s learned to accept what’s out of her control and the empowerment of acknowledging that while my journey might have been rocky, “Long Story Short: I Survived.”  Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video:Go to the episode page on the Arthritis Life Website! 

Cheryl and Dr. Hosey delve into the importance of accepting the unpredictability of life with chronic illness and redefining what constitutes a "normal" life. This includes a discussion about resilience, mindfulness, and the potential for personal growth in the face of chronic health struggles.Dr. Hosey's shares how she turned her pain into purpose, referencing her upcoming book, 'Girl on a Gurney: Trading my White Coat for a Hospital Gown’. She also provides tangible solutions for medical gaslighting, including medical student education in this phenomenon.** Medical disclaimer:All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode Sponsors** Episode SponsorRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!*For full episode show notes, go to the show page on the Arthritis Life website at: https://arthritis.theenthusiasticlife.com/2024/01/05/from-medical-gaslighting-to-a-sjogrens-diagnosis-dr-rebecca-hoseys-story/

After discovering that episode 14 is the most downloaded of all my Arthritis Life Podcast episodes, I decided to release it with some additional insights from my perspective now. I also provide some updates after facilitating support groups for over 250 people in the last three years.This episode includes a deep dive into how rheumatoid arthritis affects more than just joints – it affects people’s whole bodies, and whole lives.  I reflect on the five things I wish I had known when I was first diagnosed, way back in 2003. I hope that these reflections help you feel less alone and more grounded as you try to manage the best life possible with inflammatory arthritis!Episode at a glance:#1 – Rheumatoid Arthritis affects more than just joints.#2 – RA affects your social life in difficult ways (such as misconceptions) and positive ways (such as connections with a chronic illness community)Tips for using websites and social in productive ways#3 – Gray areas are the norm for autoimmune disease#4 – Living with chronic illness will affect your mental health.Cheryl’s experience with allowing herself to grieve her healthMedical gaslighting.#5 –  Managing RA is a job but you can learn how to do it!Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript:Go to the episode page on the Arthritis Life website. 

This is a follow up to episode 45: “What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?”  Paulina, Jenny, Ali, and Ananthi share what’s changed and what has stayed the same with their medications, including whether they’re still on methotrexate. They also  reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of  finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences.Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video:Go to the episode page on the Arthritis Life website. 

Cheryl and Dr. Amigues touch upon the significance of accurately diagnosing RA and the potential for misdiagnosis, especially as this influences the ability to receive appropriate care. They give valuable insight into the journey of living with RA, and bring a positive perspective that thriving can be possible through effective medical interventions and lifestyle modifications. For full episode details including a transcript and video, go to the episode page on the Arthritis Life Website. Episode at a glance:Being a rheumatologist: Dr. Amigues finds joy in her medical practice, especially in encouraging patients to live life to the fullest despite challenges. She emphasizes understanding the patient's perspective and asking thorough questions.Importance of Accurate Diagnosis: The complexity of rheumatological conditions is acknowledged, with Dr. Amigues mentioning the importance of differentiating between various disorders for accurate diagnosis, while considering factors like comorbidities to create effective treatment plans.Individualized Patient Care: Dr. Amigues emphasizes the importance for patients to find a rheumatologist they trust, fostering personalized, comprehensive care. Advocating for accurate information and addressing medication concerns are also important while navigating healthcare for rheumatic conditions.Rheumatoid Arthritis (RA) Remission: Dr. Amigues shares the possibility of medicated remission in rheumatoid arthritis, highlighting advancements in treatment options and balancing these with lifestyle adjustments.Management through lifestyle adaptations: The integration of lifestyle changes alongside medical treatments for managing RA is discussed, with a focus on using exercise and movement as beneficial strategies.Mental Health and Self-Worth: The conversation explores psychological aspects of living with chronic diseases, addressing the concept of accepting and coping while acknowledging that life may present ongoing challenges that impact adaptability.Language Matters: Being mindful of the language used with chronic illness makes a difference. For example, patients don't fail medications, rather, certain medications may not achieve the desired result. Terms like "difficult to treat" should not be applied to the patient but rather to the disease itself. The importance of using sensitive language when discussing rheumatoid arthritis and similar conditions is also expressed.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!For full episode details including a transcript and video:For full episode details including a transcript, go to the episode page on the Arthritis Life Website. 

Emily explains what post-exertional malaise is, and highlights the challenges associated with diagnosing and managing ME/CFS. Emily emphasizes the need for personalized care and the critical role of patients in advocating for their own health. This conversation underscores the significance of creating strong support networks for people living with ME/CFS, as well as the broader chronic illness community. They also highlight the value of sharing personal stories to raise awareness and bring about policy changes. Episode at a glance:Advocacy and awareness: Cheryl and Emily discuss the power of patient stories in driving advocacy efforts, and the importance of raising awareness of the complexities of living with chronic illness.Symptom management: Post-exertional malaise, fatigue, pain, and cognitive issues often require a dynamic approach to management. This conversation delves into the importance of tailoring treatment to the specific condition/individual needs, and strategies such as pacing activity.Coping strategies and mental health: Having self-compassion is a key part of coping with chronic illness. Additionally, emotional support aids well-being and therapy can be a useful resource.Importance of having a support network: Cheryl and Emily emphasize the value of connecting with others who have similar conditions to create a sense of community, as well as accepting support from friends, family, and healthcare professionals.Patient/healthcare provider relationship: Emily shares the challenges of obtaining accurate diagnoses and appropriate medical care for chronic illnesses, especially for lesser-known conditions like ME/CFS. Building collaborative, patient-centered relationships with healthcare providers who are willing to listen, learn, and explore treatment options can make a big difference in managing complex chronic illnesses.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Speaker Bios:Emily Taylor Vice President of Advocacy and Engagement at Solve ME, Emily brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies. She is also a veteran of several successful electoral campaigns, where she trained others in effective social media and online organization. She received a B.A. with honors in politics and international relations from Scripps College in Claremont and earned her M.A. in American politics from Claremont Graduate University. Emily draws inspiration from her mother who has battled ME/CFS as well as chronic autoimmune and thyroid conditions since 1999.Cheryl CrowCheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.For full episode details including a detailed transcript and video:Coming soon on the Arthritis Life Website. 

Cheryl and Brianna discuss the challenges and the benefits of sharing your chronic illness story publicly on social media, including how they deal with both positive and negative feedback from a growing audience. They also discuss the positive impact of finding support and inspiration online. Brianna shares her involvement with the Arthritis Foundation and the Lupus Foundation, highlighting the importance of giving back and helping others in the community. The role of support groups, camps, and patient advocacy organizations in providing a sense of community and connection for individuals living with chronic diseases is highlighted.  Cheryl and Brianna also discuss the value of adapting and accepting one's condition to live a fulfilling life. Finally, they emphasize the importance of acceptance and adaptation in thriving with rheumatic diseases.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcriptGo to the episode page  on the Arthritis Life website for full details! 

Summary:Cheryl and Tyra delve into Tyra's unique journey as a Black woman living with rheumatoid arthritis (RA) and her inspiring efforts to create a documentary about her experiences. Tyra, an actress and filmmaker, shared how her struggle with RA led her to embark on the documentary project. She discussed the challenges of living with chronic pain, the lack of representation for people of color with RA in media, and the need to make creative spaces more accessible.Tyra emphasizes the importance of re-parenting oneself and adopting a compassionate attitude toward one's body when dealing with chronic illness. She also touches on the significance of finding joy in love, laughter, and supportive communities despite the pain. Cheryl and Tyra discussed the complexities of living with RA, including the physical and emotional challenges, and the importance of representation and empathy in media. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For Full Episode Show Notes:Go to the episode page on the Arthritis Life Website for detailed show notes including a full transcript and video of this conversation.