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© Talking Palliative Care
Description
This channel started as a collection of episodes discussing aspects of health care and palliative care during COVID-19 from a community perspective hosted by Dr Fiona Rawlinson, Dr Elise Lang, Dr Rachel Lee. Following on from the pandemic it is developing into a platform for many conversations about aspects of palliative and end of life care. The podcasts are intended mainly for a health/social care professional audience and may include signposts to other resources.
The podcasts are shared under a Creative Commons License BY NC SA
The podcasts are shared under a Creative Commons License BY NC SA
18 Episodes
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Fiona Rawlinson discusses further and future aspects of Dr Joshi's work on financial Toxicity
Fiona Rawlinson talks with Dr Saurabh Joshi about his work developing a strategy to manage the financial burdens of cancer treatment in India . The information is relevant across the world in different settings. This is part 1 of a 2 part discussion, recorded in February 2025
Liz Booyse, CEO of City Hospice Cardiff and current Chair of Hospices Cymru discusses the role with Fiona Rawlinson. Recorded 24 Feb 2025
Fiona Rawlinson and Catriona Seed [CNS] share experiences about some of the usual questions about end of life from patients, families and carers.
Profs Fiona Rawlinson and Mark Taubert discuss a whistle stop tour of nausea and vomiting . Recorded Feb 2025
as the discussions about the Terminally Ill Adults ( End of Life) Bill for England and Wales are underway and evidence is being presented which will shape the final Bill, Professors Fiona Rawlinson and Mark Taubert discuss some of the current issues
Dr Sian Gallard and Dr Fiona Rawlinson discuss the practical impact of changes in communication style that have been needed as a result of the COVID-19 pandemic .
Useful links:
Dr Clea Atkinson - you tube video on Communication skills in PPE - https://youtu.be/tZ8DGZx7x20
Communication skills - Cardiff 6 point toolkit and adaptations - DOCUMENT in Media https://wordpress.com/media/sharingpalliativecare.org
Professor Mark Taubert - delivering bad news by phone or video link - https://www.bevancommission.org/post/dr-mark-taubert-bevan-exemplar-delivering-bad-news-by-phone-or-video-link
some of the research work and evaluation that has been done around the Cardiff 6 point toolkit ( Nikki Pease) - https://www.researchgate.net/publication/337301287_Paramedics_and_serious_illness_communication_training
a follow up discussion between Professors Mark Taubert and Fiona Rawlinson about the progress and current situation of the Terminally Ill Adults [End of Life Bill]
this was a wide ranging discussion about terminology and language and its meaning for palliative care patients.
Dr Sian Gallard discusses the changes that were necessary for face to face education to move to online during 2020 with Dr Fiona Rawlinson
the website Mark mentions during the conversation is talkcpr - http://talkcpr.wales/
discussion with Dr Ricky Fraser from Velindre Hospital , Cardiff about the changes and impact of covid19 on oncology services
we talk with Mrs Becci Roberts about the experiences of covid19 in a nursing home
Here is some information that was discussed during the podcast
http://TalkCPR.wales ..
Shared Understanding (versus Shared Decisions) , this essay by Zoe Fritz is quite useful: https://medium.com/death-dying-and-digital/dnacpr-and-shared-understanding-46a5a8a82d4f
Our Wales DNACPR policy:
http://www.wales.nhs.uk/researchandresources/publications/sharingandinvolvingaclinicalpolicyfordonotattemptcardiopulmonaryresuscitationdnacprforadultsinwales
The ‘treatment ladder’ concept: https://www.youtube.com/watch?v=Y52YwLcVQQs
For better preparation, there are new NHS Wales resources for Advance and Future Care Planning, can be found here:
http://www.wales.nhs.uk/researchandresources/publications/nhswalesadvancefuturecareplans
Discussion with Dr Mark Smithies - a critical care anaesthetist from Cardiff about perspectives from intensive care units during the covid 19 pandemic .
Some links were discussed during the podcast for support for patients and relatives:
http://cardiffcriticalcare.co.uk/patients-and-relatives/information-booklets/
https://icusteps.org/
https://www.yourcovidrecovery.nhs.uk/
Support for NHS staff was discussed - here is a link to an additional resource
https://ics.ac.uk/ICS/Wellbeing/ICS/Wellbeing_resources/Wellbeing_Hub.aspx?hkey=4f549260-379b-4b0e-9600-49d8a8d58d9a&_zs=dr4UD1&_zl=r23t5
Dr Elise Lang and Dr Rachel Lee are GP's working in Cardiff. They are joined by Dr Fiona Rawlinson to discuss palliative care issues in the community in Cardiff in spring 2020
Dr Elise Lang and Dr Rachel Lee discuss some of the preparations that GP's have been involved with in terms of accessing medication in Wales for community deaths during the coronavirus pandemic . They are joined by Dr Fiona Rawlinson
Dr Elise Lang and Dr Rachel Lee discuss aspects of grief and bereavement in the community during covid19 with Dr Fiona Rawlinson - Consultant in Palliative Medicine
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