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Our guest this week is Matt Might of Birmingham, AL who is the director of the Hugh Kaul Precision Medicine Institute at the University of Alabama at Birmingham, a researcher, author, TEDx presenter and perhaps most importantly, father of three, including a son with NGLY1 Deficiency.Matt and his x-wife, Cristina, are the proud parents of three children: Winston (10), Victoria (14) and Bertrand who was born in 2007 and very sadly passed away in in 2020 at age 12. Bertrand was born with an ultra-rare genetic disorder known as NGLY1 Deficiency, which prohibits the creation of the enzyme N-Glycanase 1. At the time of diagnosis, NGLY1 Deficiency was so rare, Bertrand was considered an N of 1, the only person known to have this particular condition. Matt was a tenured computer science professor. Motivated to find a cure for his son he pivoted into the world of precision medicine. Through a brilliant blog post entitled: 'Hunting Down My Killer' they were able to find seven more children with NGLY1. Matt also gave a gave a highly informative and well delivered TEDx Talk. We also learn about NORD (National Organization for Rare Disease), the Great Science Foundation and NCATS (National Center for Advancing Translational Sciences) within the National Health Institute. All on this epsiode of the SFN Dad to Dad Podcast.Show Notes - Phone – (404) 376-3204Email – matt@might.netWebsite – matt.might.netLinkedIn – https://www.linkedin.com/in/matthewmight/TEDx Talk https://www.ted.com/talks/matt_might_being_an_accidental_pioneer_in_precision_medicine Blog – blog.might.netOrder your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network as well as give away copies of our new book. Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/
Our guest this week is Justin DeVault of Algonquin, IL a data analyst and father of three including one with Autism and the loss of their oldest at 15 years of age two years ago. This is a follow up interview to the interview Justin did in June of 2022. Justin and his wife, Margaret, have been married for 21 years and are the proud parents of three; Hazel (7), Alice (9) and Henry, who would be 17, but very sadly passed away two years ago. Hazel has Autism and Henry had a brain stroke shortly after birth, that lead to the loss of his sight and impaired his neurological development.Justin reflects on the loss of Henry, the value of therapy and the ongoing challenges of raising a daughter with autim, that lead to the difficult decision of a residential placement, for a pre-teen, at the Genesee Lake School in Oconomowoc, WI. Justin, thank you for sharing the update and sincere condolences to your family on the loss of Henry. All on this episode of the SFN Dad To Dad Podcast.Show Notes - Email – pasteboardmask@gmail.com LinkedIn – https://www.linkedin.com/in/justin-devault-373043b9/ Therapeutic Residential School - https://www.geneseelakeschool.com/Dream Riders TLC - https://www.dreamriderstlc.com Clearbrook Arlington Heights - https://www.clearbrook.org Thumbuddy Special - https://www.thumbuddyspecial.orgJune 2022 SFN Dad To Dad Podcast - https://21stcenturydads.org/205-justin-devault-of-algonquin-il-the-father-of-three-including-a-daughter-with-autism-son-who-suffered-a-brain-stroke/ Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network as well as give away copies of our new book. Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/
Our guest this week is Dan Roth of San Diego, CA who is a seasoned human resource consultant, professional speaker and perhaps most importantly, father of twin girls, who are both autistic. Dan and his wife, Jennifer, have been married for 8 years and are the proud parents of 6 ½ year old twin daughters Haley & Brooklyn, who are autistic.In addition to being the parent to young autistic twins daughters, Dan has become somewhat of an expert in the area of body dysmorphia, which he experienced as a child and young adult. On January 30, 2026, Dan was privileged to make a TEDx Talk at the Houston Dream To Dare event. The topic of his talk was: How We Can Shape our Children through Transparency.It's an authentic and upligting story that deserves more attention all on this episode of the SFN Dad to Dad Podcast.Show Notes - Phone – (619) 455-7484Email – dan.roth4@gmail.comLinkedIn – https://www.linkedin.com/in/danrothstrategy/TEDx Talk How We Can Shape our Children through Transparency - https://www.tedxthirdward.com/Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network as well as give away copies of our new book. Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/
Our guest this week is Rob Floyd of Franklin, TN a master mixologist, TV host, author and father of five including a daughter who has Moyamoya.Rob and his wife, Megan, have married for 20 years and are the proud parents of five children: Joseph (29), Robbie (28), Ella (14), Indego (11) and Anges (5). Indego is the one with Moyamoya, a rare progressive brain disease. The older two are from Rob's first marriage, which resulted in him becoming a single custodial father. Professionally, Rob is a mixologist (yes he makes drinks for a living). He does this on TV as part of the Bar Rescue franchise and aboard dozens of Princess Cruises on an annual basis. Rob is also author of the book, Sip At Sea: A Princess Cruises Cocktail Collection From Celebrity Mixologist Rob Floyd. Rob also shares some terrific stories, including how he became good freinds with people like Brad Pitt when they were both very early in their careers doing commercials for Mountain Dew. It's a very uplifting story and one that should be enjoyed with a cocktail or mocktail, all on this episode of the SFN Dad to Dad Podcast.Show Notes - Email – robfloyd@robfloydent.comLinkedIn – https://www.linkedin.com/in/drinkwithrob/Instagram – @drinkwithrobBook – Sip At Sea - https://tinyurl.com/2pw8eunxMoyamoya World Alliance - https://www.moyamoya.org/living-with-moyamoyaMountain Dew Commercial - https://www.youtube.com/watch?v=A9miyq8nutMOrder your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network as well as give away copies of our new book. Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Matt Shepherd of Emporia, KS who is President and CEO of Midwest Evaluation & Research and father of two adopted children including one with developmental delays. Matt and his wife, Brenda, have been married for 35 years and are the proud parents of two adopted children; Jeremy (26) and Bonnie (25) who has high emotional intelligence as well as development delays.Professionally, Matt is owner of Midwest Evaluations and Research, a consulting firm that helps community-based organizations, foundations, schools, and governments evaluate and improve their programs. Along the way he has developed a high level of experience and expertise doing research for and evaluation of fatherhood programs. Matt is also to the founder and former board chair of Social Innovation Labratory, a non-profit that drives community-led change through partnerships and research to build equitable, innovative, and sustainable systems.Matt also founded Caerus Place for Woman, based in Souix Falls, SD to provide safe housing, compassionate support, and pathways to stability and independence for women in crisis.We’ll hear all about Matt’s work and family on this episode of the SFN Dad to Dad Podcast.Show Notes - Phone – (620) 757-9101Email – Matt.Shepherd@Midwestevaluation.comLinkedIn – https://www.linkedin.com/in/matthew-shepherd-86594056/Company – https://midwestevaluation.com/Social Innovation Labs – https://www.socialinnovationlab.org/Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvSpecial Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvOur guest this week is Mike Griffiths of San Francisco, CA an Executive Vice-President at CBRE, a real estate management firm and father of two children including one with KCNB1, a very rare genetic disorder.Mike and his wife, Julia, have been married for 17 years and are the proud parents of two children, daughter Rowe (9) and son, Hall (14) who has KCNB1, a very rare genetic disorder associated with severe developmental delays, intellectual disability, and various types of seizures.Hall and the family have benefited from a number of organizations including; the KCNB1 Foundation, Support for Families with Disabilities, and Best Buddies to name a few. Mike has also participated in some endurance cycling events to raise funds for charity. Mike is very authentic about parenting a child with a wide range of physical, intellectual and emotional challenges. We’ll hear about that and more on this episode of the SFN Dad To Dad Podcast.Show Notes - Phone – (415) 407-7782Email – michael.w.griffiths@gmail.comLinkedIn – https://www.linkedin.com/in/michael-griffiths-63a87/KCNB1 Foundation – http://www.kcnb1.org/Best Buddies - https://www.bestbuddies.org/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvOur guest this week is Patton Dodd, of San Antonio,TX who is the Executive Director of the H.E. Butt Foundation, author and father of three. Patton and his wife, Michaela, have married for 26 years and are the proud parents of three children: Isabell (22), Henry (18) and Luisa (15).Occupationally, Patton is the executive director of the H.E. Butt Foundation. Since the 1930s, the foundation has served people in Texas and beyond in various ways according to the needs of the time, including improving literacy and mental health care, funding recreation and camps, hosting ecumenical Christian retreats at Laity Lodge, at Laity Lodge, and partnering with other organizations that serve families and children.Patton a longtime journalist and essayist is also author of the book: The Father You Get And The Ones You Make, Believe In And Become, a reflective and deeply personal exploration of how men inherit, reinterpret, and ultimately choose the models of fatherhood that shape their own identity as dads.It's an enlightening and houghtful conversation about fathering all on this episode of the SFN Dad to Dad Podcast.Show Notes - Phone – (719) 325-6965Email – pattondodd@gmail.comLinkedIn – https://www.linkedin.com/in/pattondodd/Substack – https://pattondodd.substack.com/H.E. Butt Foundation - https://hebfdn.org/The Father You Get And The Ones You Make, Believe In And Become - https://tinyurl.com/293wx6urSpecial Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvCheck out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Christian Pache of Thousand Oaks, CA who is a seasoned financial service IT manager, Angelman Syndrome Foundation board member and father of two including one with Angelman Syndrome & Autism.Christian and his wife, Anna, have been married for 24 years and are the proud parents of twenty-year old twins: Chloe and Aidan, who has Angelman Syndrome and Autism.Born, raised and educated in Germany, Christian immigrated to the U.S. for work in NYC. A number of years later he met Anna, married and they started their family. Work opportuinteis took them across the country. Informed about Angelman Syndrome as the result of Aidan's diagnosis and with a deep passion for helping others and wanting to give back, the couple has been active within the Angelman Syndrome Foundation, where Christian now serves as a board member. It's an uplifting story about family and service to others, all on this episode of the SFN Dad To Dad Podcast. Show LinksPhone – (917) 882-0562Email – cpache@gmail.comLinkedIn – https://www.linkedin.com/in/christian-pache/Angelman Syndrome Foundation - https://angelman.org/ Foundation for Angelman Syndrome Therapeutics - https://cureangelman.org/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Brad Meshell, a wealth advisor, executive director of Jacob's Audible and father of three, including an autistic son. Brad and his wife, Jaime, have been married for seven years and are the proud parents of three children: Jailyn (18), Jackson (4) and Jacob (7) who is Autistic. Brad is also the founder and executive director of Jabob's Audible, a non-profit founded in 2022, whose mission is: Supporting Autistic Kids, Empowering Parents and Building Community. Some of their events include: Pictures With Santa, Ammo For Autism Clay Shoot and the 444 Mile Walk, Bike, Run.Some of Brad's gifts include his authenticity and his reslience. It’s a frank discussion where Brad tells of his journey of having a child with special needs all on this episode of the SFN Dad to Dad Podcast.Show Links Phone – (615) 589-9898Email – brad@jacobsaudible.orgLinkedIn – https://www.linkedin.com/in/brad-meshell-a956b21b6/Jacob’s Audible - https://www.jacobsaudible.org/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Hugh Hempel, a technology industry veteran turned health care entrepreneur and father of identical twin daughters with Niemann Pick Type C.Hugh and his wife Chris, have been married for 25 years and are the proud parents of identical twin daughters Addison & Cassidy. The girls were born in January 2004 and were both diagnosed with Niemann Pick Type C, a type of childhood ALS, a very rare neurogenerative disease. Despite heroic efforts to find a cure and treatments, very sadly the twins passed away in 2019 at age 15.After a successful tech career that included working at: IBM, Apple and Netscape, to name a few, and as a result of the twins' diagnosis, Hugh & Chris became outspoken advocates for rare disease research. They also created the Addi & Cassidy Fund, a resource for families impacted by Niemann Pick, Cyclodextrin, and a myriad of stories, and resources for families impacted by a wide range of rare diseases. Hugh has also served in a wide range of leadership positions, including Solutions Therapuetics, Sparkpr, Parent Advocist, N=1 Collaboration and Strainz. In January 2015 Hugh gave a TEDx Talk presentation entitled: Why I Changed My Mind About Medical Cannabis, coincidentally on Addi & Cassidy's 11th birthday. We’ll hear about the Hempel family and about Hugh and Chris’ quest to find a cure and treatments for rare and ultra rare diseases, all on this episode of the SFN Dad To Dad Podcast. This is the final sintallment of this two part interview. Show Links Phone - (775) 338-4844Email – Hugh@Hempelfamily.com LinkedIn – https://www.linkedin.com/in/hughhempel/?skipRedirect=true Website – N=1 Collaboration – https://www.n1collaborative.org/Website – Addi & Cassie Fund - https://addiandcassi.com/TEDx Talk – Why I Changed My Mind About Medical Cannabis (January2015) - https://www.youtube.com/watch?v=3N8QMeIsX2c&t=1sDr. Sanjay Gupta CNN story (11.22.14) -https://vimeo.com/420572177?fl=pl&fe=vlMayo Clinic NPT1 - https://www.mayoclinic.org/diseases-conditions/niemann-pick/symptoms-causes/syc-20355887MIPLYFFA Website - https://miplyffa.com/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week Hugh Hempel of Denver, CO, a technology industry veteran turned health care entrepreneur and father of identical twin daughters with Niemann Pick Type C.Hugh and his wife Chris, have been married for 25 years and are the proud parents of identical twin daughters Addison & Cassidy. The girls were born in January 2004 and were both diagnosed with Niemann Pick Type C, a type of childhood ALS, a very rare neurogenerative disease. Despite heroic efforts to find a cure and treatments, very sadly the twins passed away in 2019 at age 15.After a successful tech career that included working at: IBM, Apple and Netscape to name a few, and as a result of the twins' diagnosis, Hugh & Chris became outspoken advocates for rare disease research. They also created the Addi & Cassidy Fund, a resource for families impacted by Niemann Pick, Cyclodextrin, and a myriad of stories, and resources for families impacted by a wide range of rare diseases. Hugh has also served in a wide range of leadership positions, including Solutions Therapuetics, Sparkpr, Parent Advocist, N=1 Collaboration and Strainz. In January 2015 Hugh gave a TEDx Talk presentation entitled: Why I Changed My Mind About Medical Cannabis, coincidentally on Addi & Cassidy's 11th birthday. We’ll hear about the Hempel family and about Hugh and Chris’ quest to find a cure and treatments for rare and ultra rare diseases, all on this episode of the SFN Dad To Dad Podcast. This is Part 1 of a two part interview. Show Links Phone - (775) 338-4844Email – Hugh@Hempelfamily.com LinkedIn – https://www.linkedin.com/in/hughhempel/?skipRedirect=true Website – N=1 Collaboration – https://www.n1collaborative.org/Website – Addi & Cassie Fund - https://addiandcassi.com/TEDx Talk – Why I Changed My Mind About Medical Cannabis (January2015) - https://www.youtube.com/watch?v=3N8QMeIsX2c&t=1sDr. Sanjay Gupta CNN story (11.22.14) -https://vimeo.com/420572177?fl=pl&fe=vlMayo Clinic NPT1 - https://www.mayoclinic.org/diseases-conditions/niemann-pick/symptoms-causes/syc-20355887MIPLYFFA Website - https://miplyffa.com/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Mike Kinner of Colorado Springs, CO who is the founder of Air-O-Sport and father of three including a son with microcephaly.Mike and his wife, Stephanie, have been married for 12 years and are the proud parents of three children: daughters; Elieyanah (1) and McKenzie (9) as well as son, Samuel (6) who has microcephaly, which is linked to several disorders, including; epilepsy, cerebral palsy, being deaf, visually impaired and non-verbal.Mike is the founder of Air-O-Sport, a unique fast-paced, non-contact team game where players pass and throw a lightweight ring through the air to score points by hitting targets or completing passes in a defined zone. It blends elements of basketball, ultimate frisbee, and handball, emphasizing agility, teamwork, and quick decision-making.We learn about the Kinner family, their love for Samuel and the energy they bring to life, all on this episode of the SFN Dad to Dad Podcast.Show Notes - Phone – (719) 243-9111Email – mike@playairosport.comLinkedIn – https://www.linkedin.com/in/mikekinner/Website - https://playairosport.com/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is John O’Leary of St. Louis MO who is a motivational speaker, bestselling author, host of the Live Inspired Podcast, the subject of the recently released major motion picture SOUL ON FIRE and perhaps most importantly, the father of four children.John and his wife, Beth, have married for 22 years and are the proud parents of four children ages 14 to 20.At age nine, John was badly burned in a horrific gasoline fire, leaving him with third-degree burns on more than 80% of his body. Given less than 1/2 of 1% chance of survival, he somehow beat the odds. Central to John’s story is the role Jack Buck, the iconic St. Louis Cardinals sportcaster, played in John’s life. After graduating from St. Louis University and a 15 year career in real estate, John became a motvational speaker and two-time best selling author of the books: · On Fire: The 7 Choices to Ignite a Radically Inspired Life· In Awe: Rediscover Your Childlike Wonder to Unleash Inspiration, Meaning, and JoyThe theatrical release of the movie Soul On Fire took place in October 2025, which is an inspiring true story about John, who survives a devastating childhood burn accident and transforms unimaginable suffering into a life of gratitude, resilience, and purpose—showing how hope, faith, and human connection can triumph over tragedy. The movie is now streaming on: Prime Video, Apple TV, YouTube and elsewhere. This is Part 2 of the interview with John O’Leary, a story about faith, family and perseverance, on this episode of the SFN Dad to Dad Podcast.Show Notes – Email – jo@johnolearyinspires.comLinkedIn – https://www.linkedin.com/in/john-o-leary-08b2805/Website – https://johnolearyinspires.com/Book – On Fire: The Seven Chocies To Ignite A Radically Ispired Life – https://tinyurl.com/vn5d733u Book – In Awe: Rediscover Your Childlike Wonder to Unleash Inspiration, Meaning, and Joy – https://tinyurl.com/4h4duvjtMovie – Soul On Fire Trailer – https://www.youtube.com/watch?v=CslVGLETWpsSpecial Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is John O’Leary of St. Louis MO who is a motivational speaker, bestselling author, host of the Live Inspired Podcast, the subject of the recently released major motion picture SOUL ON FIRE and perhaps most importantly, the father of four children.John and his wife, Beth, have married for 22 years and are the proud parents of four children ages 14 to 20.At age nine, John was badly burned in a horrific gasoline fire, leaving him with third-degree burns on more than 80% of his body. Given less than 1/2 of 1% chance of survival, he somehow beat the odds. Central to John’s story is the role Jack Buck, the iconic St. Louis Cardinals sportcaster, played in John’s life. After graduating from St. Louis University and a 15 year career in real estate, John became a motvational speaker and two-time best selling author of the books: · On Fire: The 7 Choices to Ignite a Radically Inspired Life· In Awe: Rediscover Your Childlike Wonder to Unleash Inspiration, Meaning, and JoyThe theatrical release of the movie Soul On Fire took place in October 2025, which is an inspiring true story about John, who survives a devastating childhood burn accident and transforms unimaginable suffering into a life of gratitude, resilience, and purpose—showing how hope, faith, and human connection can triumph over tragedy. The movie is now streaming on: Prime Video, Apple TV, YouTube and elsewhere. This is Part 1 of the interview with John O’Leary, a story about faith, family and perseverance, on this episode of the SFN Dad to Dad Podcast.Show Notes – Email – jo@johnolearyinspires.comLinkedIn – https://www.linkedin.com/in/john-o-leary-08b2805/Website – https://johnolearyinspires.com/Book – On Fire: The Seven Chocies To Ignite A Radically Ispired Life – https://tinyurl.com/vn5d733u Book – In Awe: Rediscover Your Childlike Wonder to Unleash Inspiration, Meaning, and Joy – https://tinyurl.com/4h4duvjtMovie – Soul On Fire Trailer – https://www.youtube.com/watch?v=CslVGLETWpsSpecial Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child’s diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Nick Massie of Los Angeles, CA, a film industry veteran and father of an adult son who is an actor with Cerebral Palsy. Nick and his wife, Michelle, have been married for 29 years and are the proud parents of Cole (28), an actor and member of the Screen Actors Guild, who also has cerebral palsy. Cole was featured in the highly acclaimed movie The Paper Bag Plan, which debuted in 2024. It's a well told story and Cole gave a heartfelt performance as Billy, a young man with Cerebral Palsy. The screen play was written and the film was directed by Anthony Lucero. We also learn about the impact that various organization's have had on Cole's development, including: Canine Companions, Shane's Inspiration, United CP and Ronald McDonald House. It's an uplifting father-son interview with a cameo appearance from Michelle, all on this episode of the SFN Dad To Dad Podcast. Show Notes - Phone – (323) 620-3903Email – nickmassie04@gmail.comPaper Bag Plan YouTube - https://www.youtube.com/watch?v=GFRKK3wIQ3ECole Massie's Web Page: http://www.colemassie.comSpecial Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Eric Freund of San Diego, CA who is a high school teacher, coach, co-founder of Hope On The Hard Road and father of two children who are both Autistic.Eric and his wife, Christen, have married for 27 years and are the proud parents of two: Abby (21) and Caleb (23), both who are on the Autism spectrum. Christen & Eric are co-founders of Hope On The Hard Road, a non-profit organization whose mission is: helping connect and encourage families with children with special needs through programs designed to support the unique needs of the individual, the family, and the community.Eric also hosts the bi-weekly Hope on the Hard Road Special Needs Podcast, now with more than 90 episodes.The Freund family story is one of; faith, hope and a commitment to serving others, all on this eipsode of the SFN Dad to Dad Podcast.Show Notes - Phone – (760) 201-5207Email – eric@hopeonthehardroad.orgLinkedIn – https://www.linkedin.com/in/eric-freund-5438416b/Website - https://hopeonthehardroad.orgSpecial Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Jeff Wallis, of Valparaiso, IN who is a veterinarian and father of who had a son with Hypotonia, Ataxia, Developmental Delay, and Tooth-Enamel Defects Syndrome (HADDTS) an extremely rare but serious genetic condition caused by a mutation in the CTBP1 gene.Jeff and his wife, Mindy, have married for 22 years and are the proud parents of Charles 18, who very sadly past away in May, who had Hypotonia, Ataxia, Developmental Delay, and Tooth-Enamel Defects Syndrome (HADDTS) an extremely rare but serious genetic condition caused by a mutation in the CTBP1 gene.We learn about a host of organizations that played a key role in the Wallis family and on behalf of Charles including; the HADDTS Foundation, University of Chicago Genetics, Kids Work and Jacob's Ladder. We also learn about an epic cross country RV trip the family took with Charles during COVID to provide him with some extraordinary memories. While Charles lived a relatively short life, the Wallis family story one is about making the most of the situation and celebrating life.Show Notes -Phone – (219) 771-6129Email – wallisje1@yahoo.comHADDTS Foundation – https://www.haddtsfoundation.org/Jacob’s Ladder - https://www.jacobskids.org/Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guests this week are Dave Tolmie of Lake Forest IL and Tumsifu Munuo, of Kilimanjaro, Tanzania.In 1999, Dave Tomlie's parents, John and Joann, raised $250,000 and with the help of the Lutheran Church built Faraja School, a boarding school for one hundred K-7 youth with physical disabilities, where Tumsifu serves as director. In addiiton to the Faraja School, the Tolmie family created the Faraja Fund Foundation where Dave and his brothers have been instramentally involved for decades. John serves as vice-president, Paul is secretary/treasurer, and Dave is chairman of the board of directors.More recently the Faraja Fund Foundation created Faraja Forward a mobile outreach clinic and partnership with local health care providers as well as other specialists to serve families beyond those able to attend Faraja School. Faraja Forward is filling the unmet healthcare needs of hundreds of additional children in more remote locations, offering diagnosis, psychosocial support, physical and occupational therapy, and training to mothers and village health workers.It's an uplifting story about how a U.S. family has been able to transform the lives of thousands of families half way around the world through faith, education and building community around those touched by physical disabilities, all on this episode of the SFN Dad To Dad Podcast. Show Links - Phone – (312) 927-5010Email – dmtolmie@gmail.comWhatsApp - +255 757 594 204Email – munuotumsifu4@gmail.comLinkedIn – https://www.linkedin.com/in/david-tolmie-b3339889/ Website – https://www.farajaschool.org/Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is John Peter (JP) Klop of Alberta, Canada who is a draftsman with JPR Industries and father of two young children including a son with Schwachman Diamond Syndrome.JP and his wife, Lianna, have married for three years and are the proud parents of two young children: Anna (1) and Isaac (2), who has Schwachman Diamond Syndrome, which is characterized by: inability to digest food due to missing digestive enzymes, low muscle tone, anemia, skeletal findings and intellectual disability. JP is very open and authentic about the challenges related to SDS and his own brush with Autism that runs in his family. We’ll hear JP’s story, his commitment to family and service to others all on this episode of the SFN Dad to Dad Podcast.Show Notes -Phone – (226) 231-0933Email – jpklop@outlook.comLinkedIn – https://www.linkedin.com/in/johnpeterklop/Website – https://shwachman-diamond.org/Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Our guest this week is Tom Chibucos of Chicago, IL, who is a Related Service Provider Manager of Speech-Language Pathology & Audiology services at Chicago Public Schools and father of two including one who is on the Autism spectrum. Tom and his wife, Michelle, have been married for 20 years and are the proud parents of two children; Sylvie (10) and Vincent (9), who is non-verbal and on the Autism spectrum.Tom is also a co-founder of Pediatric Therapy Network Chicago, started in 2010 to deliver highly skilled therapeutic support to young children and families in their homes and communities so that all children can fully participate in the joys of childhood.We’ll hear Tom’s story, his commitment to family and service to others on this episode of the SFN Dad to Dad Podcast.Show Notes -Phone – (773) 818-3491Email – tomchibucos@gmail.comLinkedIn – https://www.linkedin.com/in/thomaschibucos/Website - https://www.ptnchicago.com/Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..






















