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A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and emotional well-being of people living with these diseases. This podcast speaks to the complexities that come with living with PI and intends to highlight strategies for cultivating a meaningful life. Each episode, join host Bryan as he sits with patients and experts alike to explore topics surrounding the lived experience of PI.
Season 3 of Slice of PI is supported, with thanks, by Pharming
92 Episodes
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In the final episode of Season 4, Rick wraps up by revisiting his story from episode 2 and reflecting and sharing what he has discovered along the way. Guest: Dr. Vera Caine Slice of PI season 4 is supported by Pharming
Rick wraps up the season 4 of Slice of PI by revisiting his story from episode 2 and reflecting and sharing what he has discovered along the way. Guest: Dr. Vera Caine Slice of PI is supported by Pharming
In this episode, Rick speaks with Dr Currie who shares how Narrative Health helped her and four other caregivers understand caring for their children who have Prader-Willi Syndrome, a complex and rare condition. Specifically, how can narrative help to re frame our understanding of complex, rare conditions. Guest: Dr. Genevieve Currie Slice of PI season 4 is supported by Pharming
Take a quick peek at what is coming in the penultimate episode of the season, when Rick is joined but Dr. Genevieve Currie as they look at how narrative can help to reframe our understanding of rare and complex health conditions. Slice of PI is supported by Pharming
This week Rick returns to northern Norway, by way of Zoom to explore a paper of Dr Blix’s that explores the story of Inga, a Sami woman who tells of her experience as a child being asked to move to the south by a teacher in her community. The reaction of her mother to this offer, and its impact in Inga’s life offer insight into the power of culture in creating the conditions for the best health outcomes. There were also resonances with Dr Bodil’s own journey with her Sami Culture. Better heal...
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