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© 2024 Spotlight on Care: Alzheimer's Caregiving
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Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at mwitbrac@uci.edu.
39 Episodes
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Virginia and Steve are joined by Nathaniel Chin, MD, a geriatrician, associate professor at the University of Wisconsin Department of Medicine, Medical Director of the Wisconsin Alzheimer's Disease Research Center, and host and creator of the popular Dementia Matters podcast. Dr. Chin recounts how his father's Alzheimer's diagnosis and dementia journey inspired his career choice. He discusses the importance of getting an early diagnosis, keeping records, and the critical role that caregivers play in the diagnosis and treatment of people with cognitive impairments. Dr. Chin also describes his involvement in dementia research at the Wisconsin Alzheimer’s Disease Research Center and the Wisconsin Registry for Alzheimer's Prevention. To learn more about the Wisconsin Alzheimer’s Disease Research Center and Dr. Chin’s podcast visit: https://www.adrc.wisc.edu/dementia-matters
Steve and Virginia sit down with Ahmad Sajjadi, MD, PhD, associate professor of Neurology at UC Irvine and research clinician at UCI MIND, to discuss some of the recent advances that have been made in Alzheimer’s disease research and care. He discusses the newly approved drugs, diagnostic tests and coverage of some of those tests, and care navigator programs.
Virginia and Steve speak with Dr. Galindo, who cared for her father with Alzheimer's disease and helps the listeners understand the importance of simplifying the holidays to maximize enjoyment for everyone. She gives tips on focusing on one or two traditions and recruiting help instead of trying to balance caregiving with all of the pressures of maintaining family traditions. For more caregiver resources at the holidays and throughout the year visit www.alzoc.org or call the helpline at 844-373-4400. Happy Holidays!
Steve and Virginia are joined by Dr. Michelle McDonnell, a neuropsychologist at UCI MIND, who discusses the importance of cognitive testing. She discusses the process involved in the testing, tips to encourage your loved one to participate, and the benefits of tracking Alzheimers as it progresses.
Susan Papiri, Community Relations Director for Dignity Memorial. She discusses involving loved ones earlier regarding their wishes, preferences and religious traditions. These conversations can give honor to their legacy and reduce family stress. If you are in the Orange County/San Diego area and wish to learn more about services offered, you can call their toll-free number at (949)-622-7171
Steve and Virginia are joined by Elizabeth Lonseth, an author and caregiver, who discusses the dangers of denial in Alzheimer’s caregiving. She touches on the many ways that both patients and caregivers can suffer when caregivers do not come to terms with the realities of the disease. Elizabeth also gives listeners a few tips to help improve the caregiver journey. To learn more about Elizabeth visit https://elizabethlonsethnovels.com/
Virginia is joined by Dr. Natali Edmonds, a board certified Geropsychologist and founder of Dementia Careblazers, an online resource for dementia caregivers. Dr. Edmonds talks about 4 mistakes caregivers make when dealing with their loved ones, and the steps we can take to avoid these behaviors. You can learn more about Dr. Edmonds and Dementia Careblazers at www.careblazers.com
Virginia and Steve are joined once again by Lisa Up de Graff, one of their first guests, who gives an update on her mother’s Alzheimer's disease journey. Lisa describes new challenges she has faced as the disease has progressed and recounts how she has dealt with transitioning her mother into hospice care.
Virginia is joined by Irene Olson, author of the book, “Requiem for the Status Quo'' and a state long-term care Ombudsman. Irene shares tips and challenges she faced with being a long distance caregiver for her father. She emphasizes the importance of building a strong relationship with the staff at the care facility, which in her case, allowed her to remain involved in her father’s care, even at a distance. Irene Olson is a member of AlzAuthors, a 501(c)(3) charitable organization that serves as a carefully curated resource for caregivers and family members of those living with dementia. Find them at: www.alzauthors.com To purchase her book, "Requiem for the Status Quo", visit: https://amzn.to/3rnPK8F
Dr. Joshua Grill, PhD, is a professor at UC Irvine in the departments of Psychiatry & Human Behavior and Neurobiology and Behavior, as well as the director of UCI MIND. Dr. Grill joins Steve to discuss risk factors for Alzheimer’s disease, steps people can take to lower their risk and the promising investigational therapies. He also cautions listeners about the prevalence of pseudomedicine for dementia.
Virginia and Steve are joined by Patti Davis, author of the book, Floating in The Deep End, and daughter of former United States President, Ronald Reagan. She recounts several different experiences she had while caring for her father who publicly lived with Alzheimer’s disease. She also provides the listeners with sage advice she learned from her caregiver journey and from her time with Beyond Alzheimer’s, a caregiver support group she started at UCLA. To learn more about Patti’s experience, purchase her book, Floating in the deep end: How caregivers can see beyond Alzheimer’s visit: https://www.amazon.com/Floating-Deep-End-Caregivers-Alzheimers/dp/1631497987
Dee Ransom joins Steve and Virginia to discuss some of the adjustments she has had to make being a caregiver for her husband, John, who lives with Alzheimer’s disease. Dee shares her experience learning to advocate for her husband, adapting to changes in their relationship and the difficulty and hidden blessings involved in placing him in a residential facility.
Erin Light, MA, is a gerontologist and a senior administrator at Silverado Senior Living, a memory care company based in Southern California. She joins Steve and Virginia to discuss how to manage wandering in a loved one with dementia. Erin begins by giving an overview of what wandering is and provides some early signs to look out for. She also discusses what precautions caregivers should take to help keep their loved ones who wander, safe.
Steve and Virginia are joined by Lindsay Hohsfield, PhD, a neuroscientist at UCI and co-founder of a non-profit organization called Youngtimers, to discuss the role that our genes play in Alzheimer’s disease. She helps the audience understand the difference between sporadic and familial Alzheimer’s, early- versus late-onset Alzheimer’s disease, and gives advice to those who are concerned about their genetic risk of developing the disease. To learn more about Lindsays organization, Youngtimers, please visit https://www.youngtimers.org
Steve and Virginia are joined by Heather Kruse, a licensed RN who specializes in dementia and hospice services. Heather was the hospice nurse for Steve’s wife, Patty at the time of her passing. She discusses the different services offered during hospice care and the things to keep in mind when deciding on hospice for a loved one.
Our hosts are joined today by LA Times writer Jeanette Marantos and Virginia's brother, lawyer Bob Simpson, to tell us how they knew it was time to stop their loved one with Alzheimer's Disease from driving. They share stories on the challenges they faced and the clever ways they were able to get around them.
Jeanette Marantos joins Virginia and Steve to discuss her experiences traveling with her husband, Steven, who had Alzheimer's disease, as well as sharing her tips on making travel manageable.
In this episode, Virginia and Steve are joined by Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies she used to stay connected and to manage her sadness.
Virginia and Steve are joined by Jim Russell, MBA, PhD, who shares his emotional story of being a caregiver to his mother with Alzheimers and then to his daughter, Lynne, who was diagnosed with early onset Alzheimer's disease at 48 years old. He describes the challenges in managing his daughter's finances and her family as the disease has progressed.
Virginia and Steve are joined by UCI Senior Health Center physician and UCI MIND researcher, Steven Tam, M.D., who describes some of the early symptoms of cognitive impairment, and the general approach he takes when assessing a patient. He answers questions about current treatments. He emphasizes the importance of gathering a complete history of the patient prior to making a diagnosis.
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