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Description
We share our experiences parenting young children with the pathological demand avoidance profile of autism.
9 Episodes
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Caitie and Casey talk about Pathological Demand Avoidance (PDA) in the context of school, the type of accommodations that are necessary for a PDA child to succeed, and what their children’s school journeys have been like for them and for the whole family.
Caitie and Casey talk about the language they use to discuss PDA in different contexts, for example, with friends, neighbors, professionals, and within their homes. At the end of the episode, Caitie and Casey also touch on how they have approached discussing PDA and brain-wiring differences with their PDA children in an age-appropriate way.
Caitie and Casey talk about creative accommodations we use inside of our homes to support our PDA children in meeting their basic needs – like eating, bathing, and teeth-brushing – as well as accessing activities such as art, drawing, competitive and pretend play. We end by discussing indirect and declarative language as an accommodation.
Caitie and Casey discuss working through a PDA lens outside of the home, including topics such as masking, social engagements, accessing medical care, and flexible therapy arrangements that work well for the PDA child.
Caitie and Casey talk about lowering demands in the home in order to accommodate the PDA child, as well as the impact of that strategy on all members of the family, including parents and siblings.
Caitie and Casey talk about how they came to realize their children have PDA, and what that experience was like as a mother.
Caitie and Casey talk about what Pathological Demand Avoidance (PDA) looked like in their homes after the birth of their second children. They also discuss the complex and sometimes confusing nature of PDA.
Caitie and Casey talk about their experiences caring for their first borns - as infants, babies, and toddlers - with the Pathological Demand Avoidance profile of Autism. They discuss the difficulties they faced, the signs of PDA they noticed or missed, and their perspective on those challenging first years as a family.
Caitie and Casey talk about how they met and why they're doing this podcast.
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What is the name of the book you read with Rose?
So many times I fought for the schools to let my daughters with autism/PDA call home when needed. "Having an 'out' is SO important," as you said in this episode. I could never get the school to allow that accomodation, like they thought I was nuts (and an over anxious mom)-- And my girls have never been able to access school because of it. My 14 yr old is so traumatized she can't even hear the word "school" without being triggered. It blows my mind that you got that accomodation for Rose. That could have been life changing for my girls at that age. Thank you for another great podcast:)
Thank you so much for doing this podcast!! I don't feel so alone when I hear you talking about a life that is SO similar to mine:) I have 3 daughters, all with sensory issues and anxiety. My oldest (18) has autism (Asperger's) and ADHD, my middle (14) has Autism PDA, and youngest (9) seems to be PDA as well, but only diagnosed generalized anxiety at this time. I feel like I've been traumatized, not so much by my kids, but by the way the rest of the world sees us. (Doctors, school system, special services, etc...) So much parent blaming....to the point of being traumatized over and over again. I am so triggered every time someone tells me I'm "the boss" of my children. I'm so envious that you've found each other!! (Strength in numbers!) I hope someday I find another PDA parent IRL to commiserate with! Thank you for bringing attention to PDA in the US... so glad I found this podcast!! We are in WA state.
Thanks so much for starting this podcast! I can't wait to hear more episodes. What you said about the early years rang so many bells for me. I'm in the UK and my son (8) has just been diagnosed as autistic. The consultant said that he has a PDA profile, but it's not an officially recognised diagnosis where I live....and there is so little information about it! I wish I had known about PDA years ago. It's great to hear from mothers who have had similar experiences.
Just found your podcast, my 10yo daughter is, I suspect, PDA! Unfortunately I can't remember a lot of her early experiences but the vigorous swaying to get her to soothe as a baby was definitely one! I'm looking forward to following episodes! :)