AlzAuthors: Untangling Alzheimer's & Dementia

In this special film festival episode celebrating the 10th anniversary of AlzAuthors, hosts Marianne Sciucco and Christy Byrne Yates welcome filmmaker Frank Silverstein for an intimate discussion about his documentary, “Lousy: Love in the Time of Dementia.” Frank shares his journey capturing the realities of caring for both parents with dementia, offering raw insight, practical wisdom, and hope for caregivers and families living with this disease. Featured Guest: Frank Silverstein – Veteran TV producer, author, and filmmaker. Creator of “Lousy: Love in the Time of Dementia”, a deeply personal iPhone-shot documentary chronicling his parents’ decline and the challenges of caregiving. Key Discussion Topics: Behind the Film: Frank reveals how his career in news documentaries shaped his approach to filming, and why he began documenting the “real” moments with his parents as their dementia progressed. Caregiving Realities: The episode explores the confusion, unpredictability, and emotional complexity of caring for loved ones with dementia—including dealing with repeated questions, behavioral changes, and sibling dynamics. Honoring the Person: Frank shares poignant memories of his parents’ lives before dementia, and discusses how core personality traits can persist even as the disease changes so much else. Sibling Care Teams: An honest look at family caregiving logistics, relationships, and the value of supporting one another—not just the person with dementia, but also fellow caregivers. Film Festival Details: For those registered for the AlzAuthors Film Festival, they can watch “Lousy: Love in the Time of Dementia” and other festival films through the end of the year. Memorable Quote: “It’s very isolating when you’re taking care of your parents. There’s nobody really that’s going to help you... you have to figure out your path out of there.” —Frank Silverstein Resources: Contact Frank Silverstein: www.franksilverstein.com AlzAuthors Podcast, “Caring for Two Parents with Dementia at the Same Time” Next Up: Join the next film festival discussion on Wine, Women, & Dementia by Kitty Norton — details and links on the AlzAuthors website Learn about the Moderators Marianne Sciucco  Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know    We've got merch! Shop our Store

In this episode, host Marianne Sciucco and acquisitions editor Sheila Luna sit down with Shari Ross, a senior healthcare professional and author of “Senior Living Made S.I.M.P.L.E.: A Real World Guide for Navigating Senior Care for Your Loved One.” Shari’s expertise spans her professional experience in senior living communities and her personal connection to dementia through family. This conversation explores the emotional, practical, and logistical challenges families face when transitioning loved ones to senior living, with a focus on memory care, language barriers, and advocacy. In this episode: Shari discusses her background as a senior healthcare specialist, working in senior living communities, and her personal caregiving experience with her grandmother.She provides an overview of her new guide, “Senior Living Made S.I.M.P.L.E.,” and how it can help make senior living transitions easier for all.The book’s conversational, relatable, and honest approach to guiding families through the overwhelming senior care landscape is discussedShari’s “S.I.M.P.L.E.” framework is explained: Support, Information, Matching, Preparation, Letting Go, Engagement.In addition, Shari reframes the “new” memory Care CommunitiesThe importance of language—using terms like “community” and “neighborhood” to foster warmth and reduce stigma.Shari provides pointers on transitioning to Community LivingWhy adult children and spouses often find themselves overwhelmed and unsure where to start, and how to approach those milestones.The need to tour and “feel the vibe,” prioritize care and community over aesthetics.The power of social engagement, good nutrition, and routine in enhancing quality of life. Aging in Place vs. Senior Living The hidden burdens and risks of managing aging at home—care coordination, safety concerns, and social isolation.Shari’s research: Most homes aren’t designed for aging adults; successful “aging in place” requires massive support.Community living can provide more safety, social interaction, and peace of mind for both loved ones and families. Buy Shari’s book here Learn more about Shari Ross and her resources and services at seniorlivingmadesimple.com. Key Quotes: “Memory care is not a punishment; it’s a lifeline.”“Independence without a support net is just a slow-motion disaster.”“Be observant, be vocal, and trust your gut.” Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube About the Moderator Marianne Sciucco About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.  Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know    We've got merch! Shop our Store

Celebrate a decade of AlzAuthors with this replay of a film discussion from our first film festival! Marianne Sciucco and the AlzAuthors community gathered to discuss Susie Singer Carter's documentary series No Country for Old People, inspired by her painful but illuminating journey alongside her mother in a five-star Los Angeles nursing facility. Key Topics Behind the Film: Susie shares what drove her to make No Country for Old People, highlighting the persistent systemic crises in long-term care and her struggle to advocate for her mom within a broken system. She discusses both personal and policy challenges—from underfunding and understaffing to navigating Medicaid and family caregiver roles.Caregiving Realities: Multiple audience members and guests brought their own lived experiences—from those who have placed loved ones in care homes to those doing the daily grind at their side. Honest input covers the isolation and exhaustion of caregiving, the guilt and judgments faced, and the varied trajectories and needs of those with dementia.Systemic and Cultural Barriers: The episode reveals the complexities behind facility care: understaffing, high turnover, the business model of elder care, and how profit-driven motives can lead to neglect, overmedication, and a lack of dignity for residents.Advocacy and Taking Action: Susie announced the ROAR initiative—Respect, Oversight, Advocacy, and Reform for Long Term Care. She stresses the urgent need for grassroots collective action and oversight to drive meaningful change for people living with dementia and their caregivers. Standout Quotes from Susie Singer Carter “Love is super powerful. I think it’s our greatest tool.”“Documentaries are not money makers. They are changemakers at best.”“We have a broken system... But it’s so important to know what’s out there and what’s really happening.” Takeaways Caregiver stories are unique—what works (or doesn’t) varies case by case.The importance of advocacy and family involvement doesn’t end with placement in a facility; sometimes, it increases.Systemic reforms are desperately needed, and community effort can move the needle.Connection, creativity, and compassion remain vital tools in the caregiving journey. Next Up Tune in to the upcoming episode with Frank Silverstein as he discusses his short film, Lousy: Love in the Time of Dementia, and continue engaging with films that capture the real, raw, and sometimes uplifting world of dementia caregiving. Join the film festival Resources Mentioned Listen & Watch: Find film festival films, replays, and podcast episodes on alzauthors.comListen to Susie's Love Conquers Alz PodcastWatch My Mom and the Girl (short film)Watch No Country for Old People (docu-series)Get Involved with ROARSubscribe to the AlzAuthors newsletter and follow us on social media (@alzauthors on Facebook, Twitter/X, Instagram, LinkedIn, Pinterest, Bluesky). Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Welcome to a special episode of the AlzAuthors podcast, part of our first-ever Film Festival! Celebrating our 10th anniversary, host Marianne Sciucco sits down with acclaimed arts educator, author, and filmmaker Mary Crescenzo to explore the transformative role of the arts in dementia care. In this heartfelt conversation, Mary shares her journey from early experiences in nursing homes to the creation of her poetic play-turned-film, "Planet A." We discuss her innovative, age-blind casting, the real-life stories inspiring her work, and practical strategies caregivers can use to bring arts engagement into dementia care—at home or in care facilities. Whether you’re navigating Alzheimer’s in your family, working in dementia care, or seeking creative approaches to foster dignity and connection, this episode is filled with inspiring insights and actionable tips. Key Topics Covered: Dementia Care & the Arts: Mary describes how music, visual art, dance, storytelling, and poetry can spark joy, communication, and connection for people living with dementia.How the Arts Can Reduce Isolation: Real examples showing that engaging in the arts can counteract boredom, boost mood, and foster community in care settings.Art Activities for Caregivers: Practical advice and encouragement for caregivers to use arts engagement at home—even if you don’t see yourself as an artist!Readings from the Film: Moving excerpts from Mary’s poetry, capturing the emotional landscape of people living with dementia and their caregivers. Quotes: “Everyone should be engaged in the arts to whatever level, because it’s so beneficial to heart and mind and life.” – Mary Crescenzo“Boredom is huge. People decline when they’re bored. But you give them something creative, they light up.” – Marianne Sciucco“You don’t have to be an artist to make a difference – just pick up a pencil, sing together, or sway to music.” - Mary Crescenzo Takeaways: Try simple creative activities—drawing, music, singing, storytelling—regularly, not just once.Don’t let fear or “not being an artist” stop you. The benefits are in doing, not perfection.Engaging in the arts brings meaning, dignity, and even joy to those living with dementia.The arts can transform not only the person with dementia but also relieve and uplift caregivers.Seek out support, community, and inspiration—you are not alone!   Resources and Links: Watch "Planet A" – available until year-end on YouTube. Register at AlzAuthors.com to receive linkBuy Mary Crescenzo’s Book: "The Planet Alzheimer’s Guide – 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own" on AmazonVisit AlzAuthors Website for a wealth of caregiver resourcesLearn about Creative Writing Workshops for Caregivers: Contact Mary CrescenzoSubscribe to our Podcast: Available on Apple, Spotify, Amazon Music, Pandora, iHeartRadio and more.Follow AlzAuthors on Social: Facebook, Instagram, LinkedIn, Pinterest, Twitter/X and Blue Sky for daily support, book recommendations, and community stories. Don’t miss our continuing film festival—visit our website for upcoming screenings, panel discussions, and more creative resources for the dementia journey. If you found this episode helpful, subscribe, share, and leave us a review! For more stories and support, visit alzauthors.com. Meet the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. Proud to be a Whole Care Network Featured Podcast Want to be on the podcast? Here’s what you need to know Shop our Store

In a conversation that challenges stereotypes and brings to light the unexpected realities of caregiving, this episode reveals the experiences of three men who stepped up to care for their mothers with dementia. It's a heartfelt exploration of grief, growth, and the bonds that are both tested and strengthened through caregiving. Shattering Stereotypes: Men as Caregivers We often associate caregiving with daughters, wives, and sisters, yet over 40% of caregivers are men. Many of them, like guests David Bredbenner, Alfredo Botello, and Vincent Zappacosta, find themselves in this role simply because "there really was no other option." Their stories reveal that caregiving isn’t just a woman’s job—it’s a human one. Vincent shares, “My mother and I were always close and I just didn’t trust anyone else to take care of her, because nobody knew her as well as I did.” David talks about “reacting, firefighting, and suddenly you’re just drawn in, and before you know it, it becomes part of your routine.” Alfredo, navigating life as an only child, speaks honestly about how necessity and love for his mother collided the moment his stepfather passed away. Lifestyle Overhauls and Personal Sacrifice For each son, caring for their mothers led to seismic shifts in their daily lives. Plans are always tentative, boundaries are tested, and a new form of “parenting” emerges. As Alfredo vividly describes: “Nobody told me growing up that I'd have another kid in my 50s—only she’d be in her 80s and have opinions!” From rearranging work schedules to leaving reassuring Post-its for an anxious parent, the logistics become second nature, though the emotional toll lingers. The men openly discuss balancing frustration, guilt, and even resentment with deep love. They offer comfort in recognizing that no one is “superhuman”: “It’s almost like we do expect ourselves to be perfect...and that never happened,” Christy reflects. While the stories in “Sons Caring for Mothers” circle around men, the lessons ring true for anyone on a caregiving journey. There are no perfect solutions, only the imperfect, beautiful bonds of love, memory, and forgiveness. After the Podcast Learn more about David, Vincent, and Alfredo and purchase their books here. Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

Join AlzAuthors Film Fest 2025 – Celebrating 10 Years of Dementia & Alzheimer’s Awareness Experience powerful films on dementia, Alzheimer’s, and caregiving—stories of hope, love, and resilience. Register now at AlzAuthors.com to receive streaming links and watch from the comfort of your home, anytime. Each month, meet a featured filmmaker in a live Q&A event at 2 PM ET, and explore their journey as storytellers and dementia care advocates. Don’t miss this unique opportunity to connect, learn, and be inspired in the fight against Alzheimer’s. Sept 8: Mary Crescenzo, “Planet A” Find out more about Mary Crescenzo https://alzauthors.com/alzheimers/mary-crescenzo-planet-alzheimers-guide/ Sept 22: Susie Singer Carter, “No Country For Old People” Find out more about Susie Singer Carter https://alzauthors.com/alzheimers/behind-the-scenes-of-nursing-homes-one-filmmakers-crusade-for-change-with-susie-singer-carter/ Oct. 6: Frank Silverstein, “Lousy: Love in the Time of Dementia” Find out more about Frank Silverstein https://alzauthors.com/dementia/frank-silverstein-lousy-love-in-the-time-of-dementia/ Nov 10: Kitty Norton., “Wine, Women and Dementia” Find out more about Kitty Norton https://alzauthors.com/alzheimers/please-join-us-next-month-at-the-2024-dementia-arts-festival-in-new-york-city/ Dec 8: C. Nathaniel Brown and his film, “The Present” Find out more about C. Nathan Brown  www.ExposeDementia.org Join the Newsletter:  https://sendfox.com/alzauthors Learn about the Moderators Marianne Sciucco https://alzauthors.com/alzheimers/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/ Christy Byrne Yates https://alzauthors.com/books-chit-chat/christy-byrne-yates-on-raising-kids-while-caring-for-parents-with-dementia/ About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.To sustain our efforts please donate here: https://alzauthors.com/donate Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network Want to be on the podcast? Here’s what you need to know:    We’ve got merch! Shop our Store 

Caregiving isn’t always a storybook journey, especially when family ties are already frayed. In this candid, emotionally charged episode, Jennifer Sullivan joins Christy Byrne Yates and Jean Lee, an acquisitions editor at AlzAuthors, to share her raw and inspiring account of caring for her mother with Alzheimer’s—through complicated family dynamics, financial crises, and the unique heartbreak of the COVID-19 pandemic. Discover how Jennifer turned deep childhood wounds and a rocky mother-daughter relationship into unexpected healing and clarity. Hear about her struggles with sibling responsibility, navigating Medicaid and memory care, and finally, the bittersweet reconnection with her mom just as the world—and their contact—shut down. Jennifer and the hosts dive deep into how dementia can shift family roles and reveal unspoken truths, the unexpected gifts that can emerge from even the most difficult relationships, and the importance of self-compassion on the caregiving journey. Top Takeaways: Navigating Dementia With a Difficult ParentJennifer’s memoir explores caring for a parent when love is complicated by past betrayals and painful memories.Unfiltered Look at Sibling DynamicsLearn how sibling estrangement and differing responsibilities can complicate caregiving, and how to cope when support isn't reciprocalCOVID’s Impact on Alzheimer’s FamiliesA gripping account of forced separation, window visits, and the heartache—and hope—of loving at a distance.Finding Redemption and Healing Through CareJennifer’s story proves that deep wounds can sometimes make way for unexpected healing, hope, and even joy.Actionable Advice for CaregiversInsights on navigating social services, setting boundaries, and the importance of storytelling and journaling for resilience. Memorable Quotes: “All the pressure I put on myself was taken away...not being afraid to just love has been one of the biggest gifts.” Where to Find Jennifer: Website: JENNSULL.comInstagramBook: When the Window Closes Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTubeSupport With a Donation Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.  To sustain our efforts please donate here: https://alzauthors.com/donate Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know:   We've got merch! Shop our Store

In this eye-opening episode, Christy and Marianne welcome back the formidable advocate, filmmaker, and podcast host Susie Singer Carter. Known for her poignant short film My Mom and the Girl —inspired by her experiences with her mother’s Alzheimer’s and starring the late beloved television actress Valerie Harper - and her award-winning podcast, “Love Conquers ALZ,” Susie shared details of her latest project, No Country for Old People, a stirring docuseries set to premiere on Amazon Prime August 1st. The conversation delves into the often-unseen challenges families face when loved ones require long-term or memory care. Despite finding what she believed was a 5-star facility for her mother, Susie encountered heartbreaking realities: inadequate care, chemical restraints, and a systemic unwillingness to change. As Susie recounted, “Most documentaries are labors of love. They’re not money makes. If you choose to do a documentary, it’s because you really care.” Her commitment shows not only in her work but in her partnership with retired federal prosecutor Rick Mountcastle (Dopesick), who spent decades investigating and prosecuting elder care fraud and neglect. Their collaboration—and the nearly 100 interviews with families, doctors, and whistleblowers—revealed this crisis is widespread, persistent, and demands urgent reform. Processing her own trauma, Susie found motivation in community and collective action. Inspired by the lack of real change through traditional advocacy, she and her partners founded ROAR—Respect, Oversight, Advocacy, and Reform for long-term care. “Any hard issue in our society has been overcome by the collective. That’s our power,” Susie urges. She invites everyone to join the movement, harnessing the “power of love” to demand oversight and expose the veiled corporate interests prioritizing profits over people. Join the movement nocountryforoldpeople.com and learn about ROAR. No Country for Old People will be featured in the AlzAuthors Fall Film Festival 2025 — sign up for our newsletter for details as they come out. Mentioned Resources No Country for Old People docuseries: NoCountryForOldPeople.comLearn about ROAR and get involved: Via the website aboveAlzAuthors Film Festival Info & Newsletter Signup: AlzAuthors.comSusie’s other works:My Mom and the Girl Love Conquers ALZ and wherever you listen to podcasts About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. Please help: donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Learn about the Moderators Marianne Sciucco Christy Byrne Yates Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

In this powerful episode, Marianne Sciucco welcomes back friend of the podcast Lance A. Slatton, owner/operator of Enriched Life Home Care Services in Livonia, Michigan and host of the award-winning podcast All Home Care Matters. Together, they dive into Lance’s recent experience attending the Elizabeth Dole Foundation’s National Convening in Washington, DC, a major advocacy event supporting family caregivers, especially those caring for veterans and individuals with dementia. Tune in to hear insights into the unique challenges facing dementia caregivers, the extraordinary resources offered for military families, and the critical intersection of policy and real-world caregiving support. Key Discussion Topics: Caregiver Resources & Advocacy: Learn about the work of the Elizabeth Dole Foundation, which addresses the needs of military and veteran caregivers, and their innovative programs like Hidden Heroes and Hidden Helpers—designed for caregiving children & youth. Dementia & Veteran Care: Hear firsthand stories and the reality of caregiving for those with Alzheimer’s, dementia, and traumatic brain injuries—many of whom are combat veterans. National Policies Affecting Caregivers: Discover how public policy, including the recent Dole Act, directly impacts the resources and benefits available to caregivers and veterans. Hear how bipartisan efforts can drive real, meaningful change. Personal Journeys & Real Stories: Hear inspiring and emotional examples of caregiving from Lance, Marianne, and other leaders in the field—including Medal of Honor recipients and Dole Fellows who advocate tirelessly for America’s caregivers. Work-Life Balance for Family Caregivers: Insightful discussion around the career challenges caregivers face, the importance of caregiver-friendly employers, and the impact caregiving can have on personal and professional lives. Resources Mentioned Elizabeth Dole Foundation – Programs for military, veteran, and dementia caregivers (Hidden Heroes, Hidden Helpers, Dole Fellows)VA Caregiver Support Program – Resources for those caring for veteransAll Home Care Matters Podcast – Winner of the Silver Creator Award and other accoladesAll Home Care Matters Official Family Caregiver Guide – A practical map for caregivers; available on the AlzAuthors.com website: Lance A. Slatton BookAlso available at Amazon, Target, Walmart, and allhomecarematters.com, Learn about the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know:    We’ve got merch! Shop our Store 

In this heartwarming episode, Jean Lee, AlzAuthors founder and author of Alzheimer’s Daughter, joins us to discuss her personal journey of caring for both of her parents after their simultaneous Alzheimer’s diagnosis. Jean shares how she journaled her family’s dementia journey, the emotional process of turning those notes into a memoir, and the discovery of her parents’ World War II love letters during the difficult process of moving them into memory care. The conversation covers crucial topics facing caregivers—navigating diagnoses, managing moves to different care facilities, supporting siblings at a distance, and confronting the emotions tied to sharing private family stories. Listeners will also hear about the importance of community, storytelling, and connecting with others who understand life on the dementia journey. Plus, don’t miss Jean’s poignant reading of her parents’ correspondence and practical tips for families facing similar challenges. What You’ll Hear In This Episode: Hear Jean’s personal story of caring for both parents, who were diagnosed with Alzheimer’s on the same day. Learn how her experience as a “hometown daughter” shaped her perspective on dementia and caregiving.Jean shares how a simple journal became an essential tool for tracking her parents’ symptoms, achieving an earlier diagnosis, and eventually forming the backbone of her memoir.Discover the emotional and logistical challenges of transitioning parents with dementia into assisted living and secure memory care, and hear practical advice on how to handle repeated moves.An honest discussion about the moment of diagnosis—how doctors communicate difficult news, and what families can do when left with more questions than answers.Jean recounts the touching discovery of her parents’ WWII love letters and how these preserved memories added richness and hope to her storytelling.Explore what keeps couples bonded through the trials of Alzheimer’s, and how caregivers can find strength in family history and shared memories.From note-taking systems to balancing a full-time career with caregiving, Jean offers actionable strategies for dementia caregivers. After the Podcast Purchase “Alzheimer’s Daughter” Read one of Jean’s many blog posts Listen to another podcast featuring Jean Lee Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

Poet Marjorie Maddox and acquisitions editor Sheila Luna join host Marianne Sciucco to discuss the healing power of poetry, the realities of long-distance caregiving, and finding hope through the complexities of Alzheimer’s and dementia. Maddox’s, recent collection, Seeing Things, explores the tangled emotional landscape of dementia caregiving. The discussion examines the ways poetry can illuminate and comfort those touched by memory loss. Marjorie reads several of the poems, a gift to all . The conversation moves beyond the personal to the universal. Marjorie shares that many poems in Seeing Things draw on her caregiving experiences for her mother, who lived with dementia, as well as her supportive role with her father-in-law—both journeys complicated by long distance and pandemic separation. As Marjorie admits, “You do feel so isolated when you’re going through it,” but the overlap in experience and shared vulnerabilities make poetry a communal space for catharsis. Poems in the collection touch not just on family memories but also larger societal losses—mass shootings and cave rescues—drawing lines between personal and collective grieving. Marianne and Marjorie bring up a topic rarely discussed: the fractured roles in family caregiving, particularly for long-distance caregivers. Marjorie, based in Pennsylvania, supported her mother by daily phone calls and periodic visits, while her sister managed in-person care in Phoenix. Meanwhile, her brother handled the finances. These divisions, while pragmatic, often go unrecognized, and both the emotional and practical burdens can be immense. The episode closes on the essential role of poetry—and storytelling—in chronicling caregiving journeys and connecting with others who walk a similar path. Whether it’s through a poem, a book, advocacy, or acts of compassionate service, these stories, hard-won and deeply personal, help others feel less alone. As Marjorie shares: “Being there for those little moments…even when you don’t feel like you’re doing anything, just holding someone’s hand… still does a lot.” And, perhaps, reading or writing poetry about those moments offers a light, a “slice of joy,” for a world too often shaped by loss. After the Podcast Purchase Seeing Things Learn about the Moderators Marianne Sciucco Sheila Luna About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We've got merch! Shop our Store

This podcast brought together two remarkable friends—Peter Berry and Deb Bunt—for a conversation that was as inspiring as it was deeply honest. Hosted by Marianne Sciucco and Christy Byrne Yates, the discussion explored not only the personal journeys and books of Peter and Deb, but also the profound insights they’ve gained into living well with dementia. Peter's journey began with a diagnosis of early-onset Alzheimer’s at the age of 50. As a successful business owner, he was shocked—and initially devastated—by the news. He shares openly about the dark period following his diagnosis, describing it as “a year of hell,” marked by depression and even suicide attempts. What’s remarkable, though, is how Peter transformed that despair into a renewed sense of purpose. Inspired by both his own experience and his father’s long journey with Alzheimer’s, Peter resolved to become a source of hope and understanding for others facing similar challenges. Enter Deb Bunt, Peter’s cycling buddy-turned-co-author and close friend. Their relationship is a beautiful demonstration of how support doesn’t just flow one way. As Deb and Peter describe it, they each bring unique strengths to the friendship: Deb provides companionship and boundless camaraderie, while Peter offers technical know-how and navigational skills. Together, they reinforce the idea that living well with dementia is as much about mutual support and meaning as it is about medical care. This mutuality spills into their advocacy efforts—travelling throughout the UK, speaking at events, and writing books together. Their creative journey produced two books so far: Slow Puncture, a memoir of Peter’s life post-diagnosis, and Walk With Me: Musings Through the Dementia Fog, a collection of Peter’s raw and poetic reflections. Deb explained how Peter’s poetic descriptions became the muse for her own long-harbored ambitions to write, and how collecting Peter’s texts and turning them into a book gave both of them a sense of validation and purpose. These works don’t just recount Peter’s experiences; they offer a window into his emotional landscape—with metaphors that make the inexplicable aspects of dementia relatable. For Peter, cycling is like “a balloon that takes me high into the sky”—a momentary escape from the limitations of his diagnosis. Read their books: Slow PunctureWalk With Me Watch “The Restaurant That Makes Mistakes”  About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

In this engaging episode, hosts Marianne Sciucco and Christy Byrne Yates are joined by fiction writer and caregiver,Alfredo Botello, and AlzAuthors’ acquisitions editor Ruth Stevens. Dive into a heartfelt and surprisingly humorous conversation as Alfredo discusses his novel, Spin Cycle, which explores the journey of a son caring for his mother with dementia. Alfredo, who transitioned from architect to screenwriter to novelist, and also runs a California dive bar, shares the inspiration behind his original story and opens up about balancing humor and heartbreak on the Alzheimer’s caregiving path. Key Highlights: Alfredo’s novel takes a rare spin, centering on a “pop-up school” for caregivers—the support group you wish you’d had—where ten diverse participants deal with overwhelming responsibilities, guilt, humor, and hope.Alfredo talks openly about his personal dementia journey, caregiving for his mother, facing challenging emotions, and the importance of self-forgiveness and embracing compassion, even in tough moments.From absentee siblings to laugh-or-cry moments, hear how Alfredo’s characters mirror real life and help break the silence around caregiving.Discover how fiction can be as supportive and insightful as caregiver guides, helping readers feel less alone and more validated in their struggles.Learn about upcoming AlzAuthors initiatives, including book giveaways and a first-of-its-kind Alzheimer’s and dementia film festival—unique ways to connect and educate through storytelling. Whether you’re a caregiver, a family member, or simply want to better understand Alzheimer’s and dementia, this episode offers vital insights, practical encouragement, and genuine laughter. Alfredo’s honest storytelling and the hosts’ empathetic questions highlight the challenges and unexpected gifts found on the dementia journey. Find Out More: Get Spin Cycle by Alfredo BotelloExplore his other works at https://alfredobotello.com/Join the AlzAuthors community and check out giveaways, event sign-ups, and caregiving resources at https://alzauthors.com/Read Alfredo’s exclusive essay for AlzAuthors https://alzauthors.com/blog Subscribe and Share: If you enjoyed this episode subscribe to the AlzAuthors podcast and share this story with someone who cares. About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Welcome to a powerful episode of the AlzAuthors Podcast featuring acclaimed author Marita Golden and her novel, The Wide Circumference of Love, as part of the Aging & Amazing Book Club series. This engaging discussion dives into the storytelling craft, the nuances of family caregiving, and the realities of Alzheimer’s and dementia, especially in African American communities. An award-winning author of 22 books, Marita Golden shares her journey as a writer, from being a story-loving child in Washington, D.C., to producing literary works that explore social issues and healing. She shares how she came to write a story centered on a caregiver after immersing herself in caregiving spaces, meticulous research, and witnessing a friend’s torturous battle caring for her husband. Ms. Golden shares insights into the connection between writing and healing, and how journaling and other forms of writing can be vital mental health tools that promote resilience. She also speaks to the higher rates of Alzheimer’s and other dementias in the African American community, citing the lack of representation in clinical trials as one contributing factor, and speaks to why awareness and advocacy are more important now than ever. For readers and writers, Ms. Golden shares insight into the craft of writing, her writing routine, and her creative evolution. Key Takeaways: Storytelling unites families and communities, easing the isolation of caregiving and dementia.Fictional works like The Wide Circumference of Love, along with memoirs and how-to guides, are crucial for raising awareness of Alzheimer’s and dementia.Journaling and creative writing document the caregiving journey and provide healing and hope for both writers and readers.The urgent need for advocacy and equity in dementia care for marginalized communities. About Marita Golden: Marita Golden is President Emeritus and co-founder of the Hurston/Wright Foundation. She is also an educator and author of fiction and nonfiction exploring Black life, identity, and resilience. Her recent memoir, How to Become a Black Writer, is available now. Find out more about Marita Golden on her website. Read Marita’s AlzAuthors Blog Follow Marita Golden: Facebook Instagram LinkedIn Buy Marita’s books: The Wide Circumference of LoveUs Against Alzheimer’s Anthology About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children’s book, Come Grandpa Meow, Let’s Fly, adds a much-needed resource for families navigating the challenges of Alzheimer’s and dementia. A Personal Story Sparked by Loss Carol’s journey began more than 25 years ago, during her own father’s struggle with Alzheimer’s. She originally wrote the book as part of her grieving process, but it wasn’t until she’d spent years working at both local and national Alzheimer’s organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol’s children’s book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don’t just take our word for it—Come Grandpa Meow, Let’s Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you’re a caregiver, educator, parent, or grandparent, Carol’s book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Do you want to gain a deeper understanding of the impact of dementia on marriages? If you’re seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support.Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed.Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships.Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one.Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra’s expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra’s AlzAuthors blog post Visit Debra’s website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

David Bredbenner, author of "Going Home: A Journey with Dementia," shares his profound experience caring for his mother through her journey with dementia. Before dementia, Betty Jane was a dynamo - a retired nurse turned successful artist who ran marathons well into her late 70s. The decline began subtly after a fall, but it was the passing of David's sister Terry that marked the stark transition into full-blown dementia  One of David's most powerful lessons was learning to "throw logic right out the window." Traditional reasoning and reality-checking only led to frustration. Instead, he discovered the transformative power of meeting his mother where she was, using humor and creative redirection rather than confrontation. Despite working in technology and traveling frequently, David and his sister made the conscious choice to keep their mother at home. While acknowledging it wasn't always possible for everyone, he describes it as both "pure hell" at times and "an absolute gift." The journey taught him profound patience and the importance of focusing on emotional connection rather than factual accuracy. Even in the most challenging moments - like when his mother became combative or refused care - David found that humor and gentle persistence could break through where logic failed. Perhaps most touching was David's reflection on love transcending understanding: "She knew she was loved...and she didn't have to know why." This simple but profound observation captures the essence of caring for someone with dementia - that connection and comfort matter more than comprehension. In this episode, you will: ·      Discover effective strategies for caring for a parent with dementia. ·      Understand the emotional journey of being a dementia caregiver and how to navigate it. ·      Explore the impact of Alzheimer's on family dynamics and relationships. ·      Uncover the process of writing a book about personal dementia experiences. ·      Learn practical and valuable strategies for managing dementia symptoms. After the Podcast Read David's AlzAuthors blog post Purchase “Going Home: A Journey with Dementia” Learn about the World Walks Against Dementia Learn about Norrms McNamara and Global Purple Angel  Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club  About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution. Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter’s Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics. As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode. Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement. In this episode, you will: ·      Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one. ·      Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection. ·      Find ways to navigate the challenges of estrangement while providing loving care for your family member. ·      Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories. ·      Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible. After the Podcast Buy “In Search of Rainbows” Read Susan’s AlzAuthors Post Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.  We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening.  We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

This episode is our contribution to Podcasthon, a global collaboration of podcasters to raise awareness of their favorite charities. Our favorite charity is us. We are a 501 (c) (3) organization. Please be generous. Donate at AlzAuthors.com. In this deeply personal and informative episode, hosts Marianne and Christy are joined by panelists Jean Lee, Ann Campanella, Loretta Woodward Veney, and David Iverson, all caregivers for ten or more years, as they explore the five pillars of caregiving – emotional toll, physical strain, financial difficulties, social isolation, and coping strategies. Key Themes & Takeaways: Emotional Toll: Caregivers shared moving personal stories of grief, guilt, and anger while navigating their loved ones’ dementia journeys. There is strength in allowing yourself to grieve, as highlighted by Ann Campanella, who stated, “Grieving clears the way to bring in joy and beauty.” Physical Strain: From exhaustion to disruption of sleep cycles, the taxing demands of caregiving impact physical health drastically. David emphasized practicing self-care through exercise and staying physically active as a necessary coping mechanism. Financial Difficulties: A significant challenge highlighted was the cost of care, with inputs from Jean, Loretta, and Dave emphasizing the overwhelming need for better elder care policies. Loretta noted how caregivers should proactively explore local programs like Medicaid waiver lists early on for financial support. Social Isolation: Many caregivers expressed feeling isolated, especially given the stigma surrounding dementia diagnoses. Loretta found joy in keeping her mother socially active, even organizing creative activities like Lego building to keep her mother engaged. Strategies for Coping: Incorporating joy into daily routines was a recurring theme, especially for Loretta, who promised her mom “a little bit of joy every day.” The authors shared reminders to stay connected with loved ones and leverage support groups for affirming connections and shared experiences. After the Podcast Learn more about the panelists Purchase their books Alzheimer’s DaughterBeing My Mom’s MomMotherhood: Lost and FoundWinter Stars: An elderly mother, an aging son, and life's final journey  Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors.  Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Have you been told to walk away from loved ones with Alzheimer's, assuming there's nothing left to connect with? The pain of feeling disconnected and hopeless in caregiving is all too real. But what if there was a way to find joy and connection in the midst of it all? Let's uncover the power of creativity and joy in dementia care together. In this episode, Marilyn Raichle, author of "Don't Walk Away: A Care Partner's Journey," provides valuable insights on the power of art therapy for Alzheimer's patients. Her personal experience caring for her mother showed her that her mother was still "in there," and they built the loving relationship theyb were unable to create in the past. Quote: People living with dementia have lives to live and gifts to give. Watch on YouTube Key lessons Art Reveals Hidden Abilities Discovering her mother's artistic talents showed that people with dementia still have gifts to share. Focus on What's Present Instead of dwelling on what's lost, concentrate on discovering and appreciating what remains in the person. Take Time to Just Be Spending quality time together, even just five minutes doing something enjoyable, can build meaningful connections. Listen More Than Talk Ask questions and truly listen to their answers, even if repeated, as they may reveal what's important to them. Find Joy in Small Moments Sharing laughter, songs, walks and simple pleasures can create happiness for both caregiver and care recipient. Accept Their Reality Meet them where they are rather than trying to correct or change their perspective. Love Can Still Grow Despite memory loss, the capacity for giving and receiving love remains intact. Resources mentioned in this episode: Participate in the Expose Dementia Conference, The Art of the Matter, happening March 28th to 30th at the Maritime Conference Center in Linthicum, Maryland. Learn more about the intersection of art and dementia care. Tune in to Podcasthon starting on March 15th and listen to the AlzAuthors episode featuring a discussion on the long-term impact of caregiving. After the Podcast Purchase Don’t Walk Away Learn more about the Moderators Marianne SciuccoChristy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.  Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store