The FND Podcast

What happens when your body stops functioning? And the neurologist simply says " Deal with it".. Suggesting its all in your head?In this powerful episode, Brad shares his personal journey from collapse and confusion to finding his voice in the FND community.  Diagnosed with functional Neurological disorder after a barrage of symptoms and no clear answers, Brad was left to navigate the system alone. But instead of staying silent he took action:We talk about*The moment it all started* The trauma of misdiagnosis and dismissal*Brads current petition to improve FND careThe emotional Toll of FND and how it reshapes identityThe importance of community support and speaking outFollow Brad:Youtube : @unshakenbradInstagram: @fndwarrior2024Tiktok: @unshakenbradClick here for Brads current petition: https://petition.parliament.uk/petitions/727063?utm_medium=social&utm_source=heylink.meOther current petitions that are on Change.orgALSO if you are in NZ or just wanting to find out more about FND FND AWARE NZMusic by soundstripe licensed to be used on this podcast: Nu Alkemist : At a glanceAlsever : Paper TreatsMatt Wigton: Thoughts are freeMap zoom in Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a lookThe FND SocietyThe FND Society is a welcoming and informative space created by people with FND for people with FND. It offers a growing range of resources — including guides, videos, interviews, real-life stories, and practical support — to help you understand your condition, connect with others, and feel empowered in your journey.It’s not just information — it’s community. It’s validation. And it’s a reminder that you’re not alone.they are also a great resource into learning more about FND.https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptomInformation on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfhttps://fndportal.org/ Health Professionals who want to learn about FND, and recommending to learn and follow or if you just want to learn more about FND:Haseel Bhatt Neuro Physiotherapy Instagram: Functionalneurologicaldisorder Website: Neurology Rehab ( Click to go to website) For training about FND especially if you are a health professional or allied health please check this website out for courses available Jason Kreuzman: Peadiatric Occupational Therapist FNDInstagram: FND_OTWebsite: RewireOT (click here to go to website)A great resource for carers, families and health professionals who want to learn about FND also register your interest in a course for FND Nada! A MUST FOLLOWInstagram: Fnd_revolutionPodcast: FEM AND STEM podcast (click here to listen)Youtube: FND REVOLUTION TVShe is a brilliant FND advocate and warrior. I cannot recommend her enough please follow her, subscribe and watch. The FND Podcast song of the week:Fix you by Coldplayhttps://open.spotify.com/track/7LVHVU3tWfcxj5aiPFEW4Q?si=c2eecb790ac24dfdIt's a song that has got me through a couple of times XOHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. This is a story of courage, advocacy and refusing to be invisible. If you live with FND or love someone who does this ones for you.  

In this insightful and compassionate episode of The FND Podcast, Detty is joined by Jason Kreuzman, a pediatric occupational therapist based in St. Louis, Missouri, who specialises in treating children with Functional Neurological Disorder (FND).Together, they explore what occupational therapy really is, how it differs from physiotherapy, and the powerful role it can play in helping children and teens with FND rebuild their lives — one meaningful activity at a time. Jason shares how he adapts therapy for young people, how to support kids returning to school, and why building confidence and safety is key to long-term recovery.Whether you’re a parent of a newly diagnosed child, a healthcare professional wanting to understand FND better, or someone looking for practical tools and real hope, this episode is full of heart, helpful insights, and supportive guidance. Topics covered:
– What occupational therapy looks like for FND
– Explaining FND to children in age-appropriate ways
– Supporting school transitions and daily life
– Creating personalised care plans for families
– Raising awareness in the healthcare system
– Free resources now available for pediatric FND careThis one’s a must-listen for families, carers, educators, and therapists — and a powerful reminder that support for kids with FND does exist.This Episodes notes:Follow Jason Kruzeman on instagram @fnd_ot also click here to have a good look at this amazing new FND resource www.rewireot.comAll resources mentioned in the podcast can be accessed through this new website. Also check out www.fndsociety.org they are also a great resource into learning more about FND. Music used in this Podcast is from Soundstripe : licensed for use Spring Cleaning by LunerahNobody by EllisanWe know by Aaron Sprinkle Just like me by Thruline Light the way by Ian Kelosky Map zoom out Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community. FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/ A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia. IF you would like to support FND Australia Services and would like to have a look at some merchandise click here FND ACTION : https://www.fndaction.org.uk FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK. FND GUIDE. :https://neurosymptoms.org/en/ A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation FND DIMENSIONS: http://fnddimensions.org/ FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look https://www.neurokid.co.uk/\ A website for young people and families living with NEAD and neurological symptom https://fndportal.org/ Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEAD https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf The FND Podcast song of the week: Stronger by Kelly Clarkson Just a really uplifting song Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles. The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The published research Paper on FND by Haseel Bhatt FND is not fake or Malingering Just a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

🎙️ The JJ Segment: Catching Up with Jess – Working, Writing, and Living with FNDIn this deeply honest and joyfully heartfelt episode of The FND Podcast, Detty sits down with the wonderful Jess for a long-overdue catch-up on the JJ Segment. From moving states, to getting married, to navigating life with FND while diving headfirst into a blue-collar job — Jess shares it all with her trademark humour, grit, and glowing resilience. Together, we unpack what it’s really like returning to work with Functional Neurological Disorder, from workplace seizures and flare-ups to pacing, planning, and the importance of telling your employer. Jess opens up about her journey from overdoing it to finding a more manageable balance — and how she's learned to adapt rather than fight her FND. But that’s not all — Jess is also a published author! We chat about her newest fantasy release "Woman of Wolves", her passion for storytelling, and how she balances creative life with chronic illness. You’ll laugh, nod, maybe even tear up — and definitely walk away feeling inspired. ✨ In this episode:– Jess’s journey with FND & employment– Coping with seizures at work– The emotional evolution of living with FND– Why communication with employers matters– Writing through chronic illness– Creating a fantasy world… and lifting 3 tonnes of flour a day?! 💪– The gift of self-acceptance and finding your pace 📚 Want to support a fellow FND warrior? Check out Jess’s books on Amazon and follow her on TikTok @jessmcfarlane A massive thank you to Jess for being so open and shining your light. And to our listeners: you’re not alone. Your journey with FND is your own, but we’re right here beside you. Stay safe, love hard, and peace — see you on the flip side 💛To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes.This Episodes notes:Job Access : the guide to disability employment : click here for more detailsDisability support services Australia in Victoria click here for more detailsEmployment programs: disability *Aus government. Returning back to work presentation on FND Australia Support Services Channel : Click here for more detailsTransitioning from school to work with a disability: click here for more detailsIf you feel like you would like to Volunteer in Australia : click here for more detailsCaitlins story with FND and work :If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more detailsNote: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :  For USA from what I could see : Job Training and programs for people with a disabilityAmericans with Disability Act : protecting people with disabilities from discriminationOffice for disability employment policy click hereFor Canada: Canadian Association for Supported Employment click hereCanada employment Strategy for Canadians with disabilities click hereFor England: Employment disability rights click here: Careers and work for disabled people from Disability rights UK click hereAbility Net : Information about Disability and Employment  Music used in this Podcast is from Soundstripe : licensed for useFlowstate by PalaThis and That by Nu Alkemi$tLife in Pastels by Matt WigtonMap zoom outThankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.IF you would like to support FND Australia Services and would like to have a look at some merchandise click hereFND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfThe FND Podcast song of the month:Rise above by Alberto Giurioli and Geoff LawsonClick here to listenHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portalThe Road to Functional Neurological Disorder by Gabriel BrownsteinThe published research Paper on FND by Haseel BhattFND is not fake or MalingeringJust a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

 In this heartfelt episode of The FND Podcast, Detty welcomes back the inspiring Tiarne, who bravely shares her personal journey of returning to work while living with Functional Neurological Disorder (FND). From the early days of navigating symptoms and mobility aids to finding the balance between part-time work and self-care, Tiarne opens up about the realities, challenges, and victories of employment with a chronic condition.Whether you’re considering re-entering the workforce, looking into volunteering, or simply curious about how others manage FND in the workplace — this conversation is filled with honesty, insight, and encouragement. Tiarne reminds us that pacing, self-awareness, and finding supportive environments can make all the difference.We also talked about– Flexible working arrangements– Managing symptoms on the job– Advocating for your needs– What really matters when you’re living with FND– The power of purpose and doing what you loveA huge thank you to Tiarne for being so open and sharing her lived experience working with FNDDon’t forget to check out the show notes for helpful resources and past episodes, including Tiarne’s My FND Reality and our insightful chat with Katherine Gill from FND Australia Support Services on returning to work.As always — stay safe, love hard, and peace. See you on the flip side To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes. click here to listen to this episode To listen to Tiarnes FND Journey and her FND REALITY episode CLICK HEREThis Episodes notes:Job Access : the guide to disability employment : click here for more detailsDisability support services Australia in Victoria click here for more detailsEmployment programs: disability *Aus government. Returning back to work presentation on FND Australia Support Services Channel : Click here for more detailsTransitioning from school to work with a disability: click here for more detailsIf you feel like you would like to Volunteer in Australia : click here for more detailsCaitlins story with FND and work :If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more detailsNote: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :  For USA from what I could see : Job Training and programs for people with a disabilityAmericans with Disability Act : protecting people with disabilities from discriminationOffice for disability employment policy click hereFor Canada: Canadian Association for Supported Employment click hereCanada employment Strategy for Canadians with disabilities click hereFor England: Employment disability rights click here: Careers and work for disabled people from Disability rights UK click hereAbility Net : Information about Disability and Employment Music used in this Podcast is from Soundstripe : licensed for useLets be three by Sam MarshJust like me by ThrulineLight the way by Ian KeloskyMap zoom outThankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.IF you would like to support FND Australia Services and would like to have a look at some merchandise click hereFND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look RewiredOT (click here to check it out)  is a compassionate, educational resource hub created by an Occupational Therapist Jason Kruzeman. It offers a unique blend of clinical knowledge and personal insight, focusing on nervous system regulation, sensory processing, and trauma-informed support for people living with FND and other complex conditions.The website provides accessible guides, tools, and reflections that help people better understand their body’s responses, build safety into daily life, and work with—not against—their nervous system.Rather than pushing through or "fixing" symptoms, RewiredOT encourages gentle curiosity, pacing, and self-kindness—a refreshing and validating approach for anyone navigating FND.Whether you're newly diagnosed or looking to deepen your understanding, RewiredOT is a safe, thoughtful space that meets you where you are.https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfThe FND Podcast song of the week:U & I by Kolidescopes click to listen hereJust a really uplifting songHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portalThe Road to Functional Neurological Disorder by Gabriel BrownsteinThe published research Paper on FND by Haseel BhattFND is not fake or MalingeringJust a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

To work or not to work with FND that is the real question. It's a hard one to gauge and safely decide and it's definitely not for everyone.  Here's a short conversation we have with Katherine Gill from Australia Support Services and also a sneak preview to the upcoming episodes.This Episodes notes:Job Access : the guide to disability employment : click here for more detailsDisability support services Australia in Victoria click here for more detailsEmployment programs: disability *Aus government. Returning back to work presentation on FND Australia Support Services Channel : Click here for more detailsTransitioning from school to work with a disability: click here for more detailsIf you feel like you would like to Volunteer in Australia : click here for more detailsCaitlins story with FND and work :If needing to more information and support on working with a disability here is the Fairwork Ombudsman information : click here for more detailsNote: the links are related to those in Australia however it is a good idea to look up your disability supports in your country. Here are a few that  I've found so far however there is more out there :  For USA from what I could see : Job Training and programs for people with a disabilityAmericans with Disability Act : protecting people with disabilities from discriminationOffice for disability employment policy click hereFor Canada: Canadian Association for Supported Employment click hereCanada employment Strategy for Canadians with disabilities click hereFor England: Employment disability rights click here: Careers and work for disabled people from Disability rights UK click hereAbility Net : Information about Disability and Employment  Music used in this Podcast is from Soundstripe : licensed for useDaybreak by GhostbeatzUndeniable by Johanna CranitchNew Start by Jenie VillaMap zoom outThankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.IF you would like to support FND Australia Services and would like to have a look at some merchandise click hereFND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another. They have an amazing FND Survival Kit  click here to have a look https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfThe FND Podcast song of the month:Rise above by Alberto Giurioli and Geoff LawsonClick here to listenHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portalThe Road to Functional Neurological Disorder by Gabriel BrownsteinThe published research Paper on FND by Haseel BhattFND is not fake or MalingeringJust a quick reminder that while we love sharing insights and stories here, this podcast is for informational and entertainment purposes only. It’s not meant to be medical advice tailored to your specific needs. We always encourage you to chat with your GP or a medical professional regarding any health concerns or questions you may have. 

On this episode we talk to Haseel Bhatt who is a specialist Neuro Physiotherapist specialising not only in FND but in other movement Disorders. Join us as we talk FND but also Neurophysiotherapy. Thankyou so very much for talk to us Haseel grateful and very much appreciated we hope you can join us again. Thankyou for all that you do .This Episodes notes:Haseel Bhatt is the founder of Neurology Rehab Clinic  What he offers for treatment with FND click here: and also he has a blog click here to viewHe has a research paper that has research paper that has been published click here to viewFor Haseel Bhatts instagram follow him @functionalneurologicaldisorder or click here to go to his pageHis FND Physiotherapy Course for health practitioners  will be held on 24th-25th May 2025 in Toronto Canada. For more information or to register go to the Neurology Rehab website or click hereMusic used in this Podcast is from Soundstripe : licensed for useLucky by LunarehJust like me by ThrulineJust to breath by NovvaThankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.IF you would like to support FND Australia Services and would like to have a look at some merchandise click hereFND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfThe FND Podcast song of the month:Rise above by Alberto Giurioli and Geoff LawsonClick here to listenHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portalThe Road to Functional Neurological Disorder by Gabriel BrownsteinThe published research Paper on FND by Haseel BhattFND is not fake or Malingering

Happy FND Awareness day. To celebrate, we are honored to be speaking to one of the biggest FND advocates in Australia. Dr. Katherine Gill has returned to speak about FND and FND Awareness. Thankyou for talking on the FND Podcast it’s always amazing to hear your perspective and insights about FND as well as what services FND Australia support services does.This Episodes notes:If you would like to know more or access the FND Australian Support Services App:Click here to to find out more about the APP:Advocacy:What is patient advocacy?At the present moment QLD and NSW are the only states that have these programs. Other states in Australia you would need to speak with a Patient Advocate in that hospital.In Queensland there is Ryans RuleIn NSW there is Reach which is proposed to be renamed recently Joes RuleMusic used in this Podcast is from Soundstripe : licensed for useLightspeed by PalaLeap of Faith by PalaThankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfThe FND Podcast song of the month:Never be alone by Shawn Mendeshttps://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylVHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein  

The FND podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Thankyou for listening to the FND PODCAST we are not sponsored by these organizations however they do tremendous work in the FND community.FND AUSTRALIAN SUPPORT SERVICES  :https://fndaus.org.au/fnd-symptoms/A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND ACTION : https://www.fndaction.org.ukFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.FND GUIDE. :https://neurosymptoms.org/en/A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, ScotlandDr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationFND DIMENSIONS: http://fnddimensions.org/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfThe FND Podcast song of the month:Never be alone by Shawn Mendeshttps://youtu.be/N7VCLNBNJQs?si=0SEAetWzyoNAqylVHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein MUSIC from Sounstripe: licensed and approved to use on this podcast.

Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book!  Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flameGoodreads:https://www.goodreads.com/en/book/show/63062237Booktopia:https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.htmlForeign Accent syndromehttps://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.https://youtu.be/x18AQT6yKGgNDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndisThe NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community. Is it still relevant the BMI index: it's questionablehttps://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMIFood pyramid relevant still?https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/Introducing the myplate:https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.A previous episode of medical cannibis:https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibisThe game:Marrying Mr Darcyhttps://boardgamegeek.com/boardgame/145308/marrying-mr-darcyThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://crippl

Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Winter at east darby by TAYMEEuropian Sunrise by Anthony CatacoliThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

Follow Jake on his podcast! Check it out!!!!!Itsmeitsmeitsfnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0LCheck out Jake on his youtube channel:  and as they say if you love what he does  : like follow and subscribe! @punkchef41https://youtube.com/shorts/JVoLO3Vtt8s?feature=shareForeign Accent Syndrome:https://pubmed.ncbi.nlm.nih.gov/30826739/Kelly Clarkson show : on youtube @thekellyclarksonshowhttps://www.youtube.com/watch?v=X20Spi7EOQYKelly Clarkson and Pink sing on this youtube video and they are crazy amazing The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Sam Barsh Yellow LetterSam Bars Hope Springs InternalThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website. https://www.fndaction.org.uk/fnd-awareness-day-uk/The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode we are proud to talk to Dr. Katherine Gill president and founder of FND Australia Support Services. For those newly diagnosed in Australia we describe what FND Australia Services does and provides and hearing about a new FND  wellbeing course that is going to be available. We thankyou Katherine Gill for giving us the opportunity to talk to you again. Check out the website and the app. FND Australia Support Serviceshttps://fndaus.org.au/The FND AUS APPApplehttps://apps.apple.com/au/app/fnd-aus-app/id1635024300Andriod:https://play.google.com/store/apps/details?id=com.fndaustralia&pli=1 Walk and Wheel  Awareness day tshirt/jumpers are available here: https://www.etsy.com/au/shop/KraftyDesignsByKateGo for a walk : raise awareness , raise funds and do it within their community. Expressions of interest for Kokoro Mollitia a 12 week FND wellbeing program link is below:https://www.surveymonkey.com/r/KokoroMollitiaThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/FND TOGETHER:https://fndtogether.com/en/This is a FND charity/ in Canada run by volunteers.  "Our goal is to support individuals diagnosed with Functional Neurological Disorder (FND). FND Together provides a platform for individuals affected by FND to join together in support of one another as peers. We exist to help people living with FND experience better recognition and support, improved health and social services, and we strive to provide a strong common voice on behalf of people affected by FND. Our focus is to help patients with FND and to create a network of services with other organizations and institutions in Canada and beyond our borders.A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to g

On this episode of the Deb and Detty Show we are joined by a special guest Jess (as Deb said the famous author) I ask questions in relation  FND 1. Why is it so important to raise awareness for FND 2.What difference would it have made if you received proper treatment from the very beginning? 3. What message would you give to those who are newly diagnosed? 4.how do you deal with new symptoms?Hypohydrosishttps://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

In this episode of the FND podcast we are talking to chucky who unfortunately had an accident with his ankle. Or he was attacked by a ninja step! His experience with the emergency and how it all played out and what to do in an emergency. It’s important to prepare for emergencies especially with FND.  here’s some tools for when you do go to emergency: printable https://www.fndaction.org.uk/fnd-toolkit/The fnd australia support services App is now available to download and use for free to utilise please check it out and use !https://apps.apple.com/au/app/fnd-aus-app/id1635024300There is now patient advocacy case managers https://www.patientadvocates.com.au/index.htmlsos medical function on phone:https://support.apple.com/en-au/HT208076Here are two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

On this episode of Maggies corner we talk to Maggie on how she’s been doing. We split this episode into two parts as there is so much to catch up on. Maggie has done amazing podcast episodes with @zoopnetwork @ the #9for9 real talk series.  Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative we congratulate her also on finishing the challenge #9for9 29 days in cold water and for you guys raising money towards youth mental health. The zoop network:https://www.thezoopnetwork.com/ Maggie is part of this amazing community, check it out !The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

On this episode Chrissie talks about two wonderful articles that she has found that leads to discussions on FND. They are amazing reads and are linked and will be included in the resources for future episodes of the podcast. Please check them out! Also a recent article on the MJA published this month on FND.  Follow Chrissie @chrissiejbutler.NotesHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveI particularly agree with the conclusion.The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

Trigger warning : this episode has sensitive topics that may trigger some. It is in relation to a post made in the past which had emphasised and claimed that covid vaccinations causes fnd. This is our opinions  we encourage you to speak to your own gp and specialists seek medical advice in regards to this topic in regards to your own fnd and health in regards to this topic. At present the fnd society has a media statement in regards to this matter. We also talk about the awkwardness of FND especially when flares present themselves.  Follow Jess on Instagram @functionallyjess , her Instagram for her creative writing @jessmcfarlaneauthor and link to her new book for pre order link below. Shoutout to Michael ! Hello!NOTES:To preview Jess’s new book release and pre order click here to check it out In regards to covid and fnd Professor Jon Stone has a great page outlining everything covid and fnd related especially in relation to FND and Covid vaccinations and explains it perfectly. Click the link below to read through.https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/From what we could understand the current stance from the FND Society still stands : here is their media release:https://www.fndsociety.org/UserFiles/file/FNDSSocietyPressReleaseCOVIDVaccines.pdf Helping the Public Understand Adverse Events associated with Covid 19 Vaccinations ; Lessons learned from functional neurological disorder article from the jama network: neurology https://jamanetwork.com/journals/jamaneurology/fullarticle/2778192The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/\A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/