Brain Talk | Being Patient for Alzheimer's Patients and Caregivers

Older adults often turn to prescription and over-the-counter sleep aids — but what do we really know about their long-term effects on brain health? A large, long-running UCSF study, published in the Journal of Alzheimer’s Disease, examined the association between sleep medication use and risk of dementia in older adults. Researchers found that frequent use of sleep medications was linked to a higher likelihood of developing dementia among white participants, while the same pattern was not seen among Black participants. Dr. Yue Leng, PhD, an epidemiologist at UC San Francisco whose work explores how sleep, circadian rhythms, and napping relate to neurodegeneration and cognitive decline in older adults, was one of the researchers on the study.If you loved listening this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/

This interview was brought to you in partnership with Eisai and is part of the Journey to Diagnosis series.Eisai: https://www.eisai.com/index.htmlJourney to Diagnosis: https://beingpatient.com/journey-to-diagnosis/Luke Davis spent four decades as a Dallas attorney — and an active husband, father, youth sports coach and school board member — before subtle memory changes raised concerns. In this Being Patient Perspectives interview, Luke and his wife, Paula Davis, share the early signs of Alzheimer’s they noticed first, how they pursued answers, and what helped them move forward.After a primary care visit, Luke underwent cognitive testing, an MRI and an amyloid PET scan that confirmed plaque. In April 2023, just before his 69th birthday, he was diagnosed with early-stage Alzheimer’s disease. Luke later learned he carries two copies of the APOE4 gene, a major genetic risk factor for Alzheimer’s.Luke and Paula also discuss treatment and support — including Luke’s experience with Leqembi (lecanemab) infusions — and how they’ve leaned on the Alzheimer’s Association, community, and practical day-to-day strategies. Their message for newly diagnosed individuals and couples: Alzheimer’s is a detour, not a dead end — and Luke is focused on “living with Alzheimer’s, not dying from it.”Topics covered: early Alzheimer’s symptoms, diagnosis journey, amyloid PET scan, APOE4, Leqembi/lecanemab, caregiving as a spouse, coping after diagnosis, living well with Alzheimer’s, advocacy and support.#Alzheimers #EarlyAlzheimers #Leqembi #Lecanemab #APOE4 #Dementia #BrainHealth #BeingPatient---- If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/

Can your brain’s “anti-reward” system sabotage motivation — and can you train it to work for you instead of against you?In this Live Talk, Being Patient founder Deborah Kan sits down with Dr. Kyra Bobinet, physician, public health leader, and behavior expert, to explain the science of the habenula — a tiny brain structure with an outsized role in motivation, habits, cravings, stress, and setbacks.Dr. Bobinet describes the habenula as an “anti-reward” hub that can overpower dopamine pathways when it flips on in response to perceived failure, fueling frustration, shame, and negative self-talk. She shares a practical framework for regaining momentum by learning to neutralize failure through an iterative mindset — treating slip-ups as feedback, making small adjustments, and trying again.You’ll also learn behavior strategies to help break bad habits by “putting the brakes” between you and a craving — and why chronic stress can make the habenula more reactive for people stuck in a deeper addiction loop, sometimes requiring layered support.Featuring: Dr. Kyra BobinetAuthor of Unstoppable Brain: The New Neuroscience That Frees Us From Failure, Eases Our Stress, and Creates Lasting Change---If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/

Before his Alzheimer’s diagnosis, Greg Nelson spent his career as a leadership developer helping others grow. About a year and a half ago, his wife Shasta began to notice changes in his memory and urged him to get evaluated. They went to UC Davis’s  Healthy Aging Clinic, where cognitive testing suggested mild cognitive impairment (MCI). A neurologist later ordered a PET scan and by mid-February, Greg had an official Alzheimer’s diagnosis.For Greg, who didn’t want to retire and loved his work, this set off a shift in identity. Part of adjusting has meant finding a new voice. He now writes candidly about his experience living with Alzheimer’s — keeping a blog and sharing posts for his kids, his community, and for others going through similar challenges. Greg says that writing about his experience and connecting with others online has been a game changer, helping him find community and purpose after his diagnosis.In this conversation with Being Patient’s Mark Niu, the couple breaks down early signs, from trouble with tracking TV plots to feeling overwhelmed by multi-step instructions. They also share what the diagnostic process can really look like: months-long waits, hours of neuropsychological testing and the importance of establishing a clear baseline. They explain why they chose to be public about Greg’s diagnosis — writing blog posts and having candid public conversations to reduce shame, invite support, and help others feel less alone as they navigate Alzheimer’s in real time.If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter:   / being_patient_  Instagram:   / beingpatientvoices  Facebook:   / beingpatientalzheimers  LinkedIn:   / being-patient  Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category...

Dr. Anna Chodos, MPH, is the executive director of Dementia Care Aware, an initiative that helps primary care providers across the country improve dementia detection and care. A professor of medicine at Zuckerberg San Francisco General Hospital and the University of California, San Francisco, her clinical work focuses on outpatient geriatrics and dementia care, and her research centers on the unmet needs of older adults, especially those living with dementia.In conversation with Being Patient’s Mark Niu, Chodos breaks down what “cognitive decline” really means, how to tell the difference between normal aging and concerning changes, and which early symptoms should prompt a closer look. She walks through what a basic cognitive assessment in primary care typically involves, offers concrete questions families can bring to appointments, and shares strategies for advocating when concerns are brushed off as “just getting older.”---If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Dr. Anna Chodos, MPH, is the executive director of Dementia Care Aware, an initiative that helps primary care providers across the country improve dementia detection and care. A professor of medicine at Zuckerberg San Francisco General Hospital and the University of California, San Francisco, her clinical work focuses on outpatient geriatrics and dementia care, and her research centers on the unmet needs of older adults, especially those living with dementia.In conversation with Being Patient’s Mark Niu, Chodos breaks down what “cognitive decline” really means, how to tell the difference between normal aging and concerning changes, and which early symptoms should prompt a closer look. She walks through what a basic cognitive assessment in primary care typically involves, offers concrete questions families can bring to appointments, and shares strategies for advocating when concerns are brushed off as “just getting older.”If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter:   / being_patient_  Instagram:   / beingpatientvoices  Facebook:   / beingpatientalzheimers  LinkedIn:   / being-patient  Being Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://beingpatient.com/live-talks/

Before his symptoms began, Anthony and Karen Sanone were always on the move, traveling, working and staying active. A former college athlete who played football and baseball, Anthony spent more than 35 years as a chemical sales manager. Karen, a director of human resources at an education agency, now balances her professional role with caregiving. The couple documents their experiences on Anthony’s Instagram account, @anthony_vs_alzheimers, and through their younger-onset caregiver community, Surviving the Now.In this conversation with Being Patient’s Mark Niu, Anthony and Karen talk about the early warning signs and the long, often confusing road to a younger-onset Alzheimer’s diagnosis. They discuss navigating work, pursuing treatment with Leqembi, managing seizures, and reshaping daily life around routines, travel strategies, and safety. Karen also shares candid advice on planning for the future, building a support system and finding ways to “live in the moment” and make meaningful memories, even as the disease progresses.-- If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Neuroscience has long focused on neurons, but researchers are turning their attention to another kind of brain cell: glial cells. These non-neuronal cells help shape information processing, support brain circuits and influence vulnerability to neurodegenerative diseases — and there are roughly as many glial cells in the human brain as neurons.Terrence Sejnowski, PhD, is a professor and laboratory head of the Computational Neurobiology Laboratory and Francis Crick Chair at the Salk Institute for Biological Studies. In a recent Salk study, he and his team compared glial cell organization across different brain regions and mammal species, finding striking patterns in how these cells are arranged. His work looks at how glial cells differ across brain regions and species, and what those patterns might mean for brain function and disease risk.In this interview, Sejnowski explains the three main types of glial cells and their roles: astrocytes that help feed neurons and support learning and memory, microglia that act like janitors clearing waste and damage, and oligodendrocytes that insulate nerve fibers so signals travel faster. He discusses how glial cells help clean the brain during sleep, how they may be involved early in conditions like Alzheimer’s and multiple sclerosis, and why some research suggests glia could be a better marker of brain health than neurons alone. His insights point to a future in which understanding and protecting glial cells could open new paths for prevention and treatment.—-If you loved watching this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Can improving hearing help preserve memory and thinking as we age? Hearing loss isn’t just an inconvenience of aging — it’s now considered one of the top modifiable risk factors for dementia.Kimberly Mueller, Ph.D., is an associate professor in the Department of Communication Sciences and Disorders at the University of Wisconsin–Madison and a researcher with the Wisconsin Alzheimer’s Disease Research Center. Her work focuses on how speech and language change in preclinical Alzheimer’s, mild cognitive impairment and dementia. She also leads a clinical trial testing whether over-the-counter hearing aids can benefit people who have mild cognitive impairment and are found to have age-related hearing loss.In this conversation with Being Patient’s Mark Niu, Mueller explains why hearing loss is both common and treatable — affecting about one in three adults over 65 — and why it is now considered one of the top modifiable risk factors for dementia. She breaks down how untreated hearing loss can strain the brain, contribute to social isolation and potentially accelerate cognitive decline, and she discusses how new hearing technologies and over-the-counter devices might expand access to care. Mueller also shares early insights from her hearing aid trial, communication strategies for families, and emerging research using everyday speech patterns as a sensitive tool to detect brain changes earlier than standard memory testing.—-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Could AI-driven retinal imaging flag Alzheimer’s decades before symptoms start? That question is central to RetiSpec’s mission. The health technology company is developing AI-powered retinal imaging to detect Alzheimer’s-related biomarkers, like amyloid — by looking at the back of the eye. Catherine Bornbaum, PhD, RetiSpec’s chief business officer, says the aim is to make biomarker testing simpler, more scalable, and easier for people to access.In this conversation with Being Patient’s founder Deborah Kan, Bornbaum explains how decades of research show that changes in the back of the eye can mirror the structural, functional and molecular changes of Alzheimer’s in the brain, making the retina a powerful, noninvasive window for early detection.Bornbaum also describes how AI-driven, real-time analysis of eye images using cameras already in optometrists’ offices could make eye exams a practical access point for noninvasive Alzheimer’s biomarker testing.—-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Parkinson’s cases are rising. Dr. Ray Dorsey says our environment is a big reason why. In “The Parkinson’s Plan,” Dorsey and co-author Dr. Michael Okun argue that modifiable environmental exposures are fueling the disease, and they outline practical steps to reduce risk and improve treatment.Dorsey is a professor of neurology at the University of Rochester and a public health advocate focused on eliminating toxic exposures linked to neurodegenerative disease. A co-author of “Ending Parkinson’s Disease,” he has testified before Congress, advised the World Health Organization and was recognized by the White House as a Champion for Change. He also serves as the founding director of the Center for the Brain & Environment at Atria Health and Research Institute.In this conversation with Being Patient founder Deborah Kan, Dorsey explains why most Parkinson’s cases appear to be driven more by environmental chemicals than by genes, and what that means for prevention. He outlines practical steps — from reducing pesticide and solvent exposure to filtering water and air — alongside evidence-backed habits like vigorous exercise and getting specialist care. —-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

In our latest “Ask Teepa Anything” Live Talk, dementia care expert Teepa Snow answers caregivers’ real-world questions — from safe ways to help a person up after a fall to medication trade-offs, late-stage planning, and day-to-day communication.Snow is an occupational therapist with more than 40 years of clinical and academic experience. She developed the GEMS States of Brain Change and the Positive Approach training strategies, founded Positive Approach to Care, and co-founded the Snow Approach Foundation in Hillsborough, North Carolina. —-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Dr. Laura Baker, PhD, is a professor of gerontology and geriatric medicine at Wake Forest University School of Medicine and the principal investigator of the U.S. POINTER study, a large, Alzheimer’s Association–backed trial inspired by Finland’s landmark FINGER study. Designed to test whether lifestyle can protect brain health in a diverse U.S. population, POINTER enrolled 2,111 adults ages 60 to 79 across five regions. Participants who were not already exercising or eating a Mediterranean-style diet engaged in lifestyle changes across four pillars: physical activity, nutrition, cognitive and social engagement, and tracking health numbers like blood pressure and blood sugar.In this interview with Being Patient’s Mark Niu, Baker traces how POINTER was designed, what a coach-supported lifestyle program looks like in practice, and why community partners matter. She also previews what’s ahead — from brain imaging to sleep and vascular findings — and offers practical guidance for caregivers and older adults.—-If you loved listening this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Originally from Argentina, educator and creative entrepreneur Laura Tobi, 58, moved to the U.S. 26 years ago. An educational designer by training, she has worked with labor unions, corporations, government, and public and private school systems, later founding a Miami-based business to cultivate creative thinking for learners of all ages. After years as a caregiver to her both husband and daughter through serious chronic illnesses, she and her husband relocated to North Carolina in 2024, where she noticed increased memory problems. A neurologist connected the dots: a lumbar puncture confirmed Alzheimer’s, and further evaluation found epilepsy, revealing silent seizures. In this interview with Being Patient’s Mark Niu, Tobi shares how she pairs Leqembi infusions with lifestyle changes inspired by the Ornish program — nutrition, exercise, stress management, and social support — while staying rooted in community through volunteering, teaching, improv, and clay sculpture in her home studio. Her takeaways: build community, stay mentally and physically active, advocate for yourself, and keep seeking joy — through teaching, volunteering, improv, and making art.—-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

Scientists are still searching for effective treatments for neurodegenerative disorders like Alzheimer's, ALS, and chronic traumatic encephalopathy (CTE). In his pioneering research, neurosurgeon Dr. Christopher Duma is testing whether stem cell therapy can effectively treat these diseases. Duma is medical director of Hoag Memorial Presbyterian Hospital’s Brain Tumor Program in Newport Beach, California and president and founder of Regeneration Biomedical, which develops stem cell therapies for neurological disorders. He recently completed Phase 1 of its clinical trial, a first-in-human approach that delivers a patient’s own fat-derived stem cells directly into the brain’s ventricles to target neurodegenerative diseases.In this interview with Being Patient’s Mark Niu, Duma discusses how the trial is progressing. He explains the approach, shares Phase 1 safety results with encouraging early signals in biomarkers and cognition, and outlines a Phase 2 trial that will test effectiveness in a larger group of participants with mild to moderate Alzheimer’s disease. Phase 2 of the study calls for injections every two months with regular scans and laboratory tests, aiming to show whether this therapy could expand care options for people living with neurodegenerative disease.—-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

U.S. Navy veteran Chris Tann, was diagnosed with behavioral variant frontotemporal dementia in 2019 after his wife, Debra, noticed behavioral changes and began documenting unusual incidents at home. They began learning and raising awareness about a condition that is often misunderstood. Today, he is an active member of the Black Dementia Minds support group and a participant in a long-term clinical trial at Vanderbilt University.In this conversation with Being Patient’s founder Deborah Kan, the couple discuss the early signs Chris exhibited prior to his diagnosis, the behavioral changes that come with behavioral variant frontotemporal dementia, caregiving strategies, and how faith plays a central role in how Chris copes with his diagnosis. Together, they emphasize the importance of awareness, advocacy, and research participation.—-If you loved listening to this Live Talk, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/

No Country for Old People, a documentary from filmmaker Susie Singer Carter and former federal prosecutor and US Attorney Rick Mountcastle, investigates widespread neglect and systemic failures in nursing facilities. Singer Carter tells a personal story about her mother, who lived with Alzheimer’s disease and received inadequate care in a five-star facility. Mountcastle, known for prosecuting Purdue Pharma for its role in the opioid crisis, connects his legal experience exposing corporate misconduct to troubling practices he uncovered in the long-term care industry. Together, they highlight how residents with dementia and other disabilities are often silenced, overlooked, or neglected by a system that profits from their vulnerability.In this Live Talk with Being Patient’s founder Deborah Kan, Carter and Mountcastle share the stories behind the film, including Singer Carter’s firsthand account of her mother’s decline in a care facility, and Mountcastle’s insights into how legal and corporate structures perpetuate exploitation. As advocates of the ROAR(Respect, Oversight, Advocacy, and Reform for Long-Term Care) movement, they said they intend their film to give voice to the voiceless and push for accountability. 

When Alice Bailey was diagnosed with early-onset Alzheimer’s at 56, some of the challenges were all too familiar. She had witnessed her mother’s experience with Alzheimer’s years earlier, and recognized some of the same gaps in care and communication with her diagnosis. Receiving no resources to help her process her diagnosis, she leaned on family, faith, and community to find support. Today, she’s a member of the Council of Black Dementia Minds, where she shares her story and helps build awareness about dementia in communities that are often underserved.In this Live Talk with Being Patient’s Mark Niu, Bailey reflects on the moment she knew something was wrong with her memory, the frustrations she faced in the healthcare system, and the steps she has taken to live well despite her diagnosis. From addressing the stigma of early-onset Alzheimer’s to advocating for greater awareness in the Black community, she continues to use her voice to inform others.

Growing evidence shows that Alzheimer’s risk is shaped not only by genetics but also by culture, environment, and lifestyle — and researchers say these differences may hold the key to better prevention and treatment.Dr. Sid O’Bryant, professor of pharmacology and neuroscience at the University of North Texas, is the principal investigator of the Health & Aging Brain Study – Health Disparities (HABS-HD), the most comprehensive Alzheimer’s study ever conducted across African American, Hispanic, and non-Hispanic white communities. His approach brings research into diverse communities often left out of large-scale studies, ensuring that findings reflect the populations most at risk.In this conversation with Being Patient’s Mark Niu, O’Bryant explained how factors like diabetes, hypertension, environment, and even social support networks shape brain health. He explained that these findings show why Alzheimer’s cannot be treated with a “one size fits all” model. Instead, precision medicine — tailoring prevention and treatment strategies to an individual’s genetic, cultural, and lifestyle background — could transform how we approach brain health and Alzheimer's treatments.

What does it feel like to take part in the largest lifestyle intervention trial in the United States?In this conversation, Patty Kelly and Phyllis Jones share personal stories about how Alzheimer’s disease has shaped their families — and why they chose to get involved in groundbreaking research aimed at preventing or slowing cognitive decline.If you loved this video, visit our website to find more of our Alzheimer’s coverage and subscribe to our newsletter: https://www.beingpatient.com/Follow Being Patient: Twitter: https://twitter.com/Being_Patient_Instagram: https://www.instagram.com/beingpatientvoices/Facebook: https://www.facebook.com/beingpatientalzheimersLinkedIn: https://www.linkedin.com/company/being-patientBeing Patient is an editorially independent journalism outlet for news and reporting about brain health, cognitive science, and neurodegenerative diseases. In our Live Talk series on Facebook, former Wall Street Journal Editor and founder of Being Patient, Deborah Kan, interviews brain health experts and people living with dementia. Check out our latest Live Talks: https://www.beingpatient.com/category/video/