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EPISODE TITLE: Winning the Fight Against ALS - Part 2
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb continue to talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago.
In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss:
Introduction and Purpose of the Podcast 0:01
Pete Levine's Absence and Podcast Continuation 1:46
Discussion on ALS Diagnosis and Neurofibrillary Tangles 3:01
Dr. Tedone explains that it takes at least two years for a definitive ALS diagnosis due to reluctance from the medical profession.
Neurofibrillary tangles are found in the cerebral spinal fluid, indicating cellular energy deficiencies.
Gene mutations are linked to abnormal protein formation, which can cause cancer.
Dr. Tedone argues that infections, not gene mutations, may be the root cause of cancer.
Borrelia Infection and Its Impact on Health 6:05
Dr. Tedone discusses the role of Borrelia infection in various diseases, including arthritis, rheumatoid arthritis, psoriatic arthritis, lupus, and cancer.
Cortisone suppresses inflammation but does not address the underlying infection, leading to disease progression.
Treatment for Borrelia includes opening cysts with metronidazole, using oregano oil or artemisinin to open biofilms, and administering antibiotics.
The treatment protocol involves alternating antibiotics every three months to prevent resistance.
Testing for Borrelia Infection and Case Studies 10:01
Dr. Tedone mentions the Accu Dart infectious disease test and the need for provocative tests before serology tests.
Dr. Tedone shares two case studies: one where a patient's worsening condition was linked to his wife's co-infections, and another where an emergency room doctor's wife's condition was attributed to Borrelia.
The discussion highlights the importance of consistent treatment and the challenges of finding accurate tests for Borrelia.
Deanna's Protocol and Its Benefits 18:54
Dr. Tedone and Deanna discuss the Deanna Protocol, which includes caprylic acid and coenzyme Q10, and its benefits in maintaining mental acuity and energy.
Dr. Tedone shares personal experiences of using the Deanna Protocol and its positive effects on his and his wife's health.
The protocol is designed to support nerve cell communication and improve cognitive function.
Dr. Tedone emphasizes the importance of consistency in following the protocol for effective results.
Advice for Newly Diagnosed Patients 20:31
Doro asks Deanna for advice for newly diagnosed patients.
Deanna advises maintaining a regimented medication regimen and surrounding oneself with supportive, informed individuals.
The importance of challenging oneself and maintaining a positive attitude is highlighted.
Dr. Tedone shares a quote from his book, emphasizing the importance of persistence and continuous learning.
Challenges and Research in ALS Treatment 33:15
Dr. Tedone discusses the challenges of conducting research and the need for clinical feedback to guide research efforts.
The Deanna Protocol has shown promising results in ALS patients, with an 80% approval rating in a study by USF.
The protocol is compared favorably to dorozolamide, which blocks glutamate, in terms of symptom management and disease progression.
The discussion includes the need for better tests and the importance of funding for research.
Funding and Support for Research 42:28
Deanna mentions the challenges of funding and the importance of donating to organizations that directly support research.
The Winning the Fight Foundation is highlighted as a reliable organization for donations, with 99% of funds going directly to research.
The foundation is a 501(c)(3) organization, making donations fully tax-deductible.
Doro encourages listeners to visit the foundation's website for more information and to support the research efforts.
Conclusion and Final Thoughts 48:33
Deb thanks the guests for sharing their stories and research, emphasizing the importance of spreading awareness.
Dr. Tedone and Deanna express their gratitude for the opportunity to share their experiences and research findings.
The episode concludes with a call to action for listeners to share the podcast with others who may benefit from the information.
Contact information for the podcast and the foundation is provided for further inquiries and support.
Resources and References:
ALS specific websites & show References
Als.org
I Am ALS
Winning The Fight
National Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS)
Deanna's Book
The Deanna Protocol _ Book
Dr. Tedone's Treatment
The Deanna Protocol Website
Maintaining Optimal Quality of Life
Support groups
Proper equipment & Knowledge of use
RESOURCES:
ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries
813-637-9000
infoFL@als.org
Community support groups & counseling
Transportation assistance
Equipment loan bank-people with ALS can borrow assistive equipment on long term basis
Assistance finding & obtaining community & government resources
Multidisciplinary medical care under one roof
FAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org
FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and assistance, as well as a financing program available state-wide. With a commitment to accessibility and innovation, FAAST is leading the way in assistive technology in the state of Florida.
CENTER FOR ASSISTIVE TECHNOLOGY-University of Buffalo
The Center for Assistive Technology (CAT) is a non-profit organization that conducts research and provides educational and service programs to increase consumer knowledge related to assistive technology for persons with disabilities.
CAT is also the Western New York Regional Center for the New York State TRAID Program, for which it coordinates information on technology-related expertise and resources for people with disabilities.
SHEPHERD CENTER-CENTER FOR ASSISTIVE TECHNOLOGIES Atlanta, GA
The Center for Assistive Technologies at Shepherd Center helps individuals regain independence after a neurological injury or condition. Challenges with mobility and cognitive function can impact daily activities like using devices, controlling home environments, and driving. Our team develops, tests, and customizes assistive technologies to support rehabilitation, empowering you to navigate life with greater ease and autonomy.
UPMC CENTER FOR ASSISTIVE TECHNOLOGY-Pittsburgh, PA
The CAT is an interdisciplinary center comprising multiple outpatient clinics that offer a variety of services to assist you.
University of North Carolina Wilmington Center for Assistive Technology
Miami University Center for Assistive Technology Oxford, OH
Assistive Technology Center New Jersey
Utah Center for Assistive Technology
University of South Carolina Assistive Technology Program
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
EPISODE TITLE: Winning the Fight Against ALS-Part 1 (with Deanna Tedone and Dr. Vincent Tedone)
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago.
In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss:
The development of the Deanna Protocol
Dr. Vincent Tedone describes his research and the development of the Deanna Protocol, which includes AKG and GABA.
Deanna experienced significant improvements in muscle symptoms and functional abilities after receiving the AKG and GABA combination.
The Deanna Protocol was tested on ALS mice, showing suppressed muscle symptoms, slowed disease progression, and increased energy production.The findings were documented in a paper and a book, "The Deanna Protocol: Winning the Fight for Neurodegenerative Diseases."
Discovery of Borrelia Infection
In 2015, Deanna was tested for a Borrelia infection, which was positive, despite previous negative results from commercial laboratories.
Deanna developed severe meningitis, and Dr. Vincent Tedone convinced the infectious disease doctor to treat her with IV antibiotics.
The IV antibiotics successfully treated Deanna's pain, and she continued the post-antibiotic regimen until 2018.
Dr. Vincent Tedone believes that all neurodegenerative diseases are caused by infections, primarily Borrelia.
Challenges and Resistance in Medical Research
Dr. Vincent Tedone discusses the challenges and resistance he faced when trying to get academic institutions to fund clinical trials for the Deanna Protocol.
He emphasizes the importance of treating the cause of the disease rather than just the symptoms.
Dr. Vincent Tedone shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other neurodegenerative diseases.
He highlights the need for further research and the potential for the Deanna Protocol to be effective in treating various neurodegenerative diseases.
Clinical Experience and Intensive Therapy
Doro, shares her clinical experience working with Deanna and the intensive therapy program they designed.
Deanna's progress and improvements were significant, and the traditional ALS progression did not occur.
Doro emphasizes the importance of not treating Deanna like she has ALS and the positive changes observed in Deanna's muscle building and overall function.
The discussion shifts to the role of glutamate, AKG, and GABA in the Deanna Protocol and their impact on nerve cell communication.
Impact of Borrelia Infection and Immune System
Dr. Vincent Tedone explains the impact of Borrelia infection on the immune system and the body's response to inflammation.
He describes the role of the gut microbiome in controlling the brain and the potential link between vaccines and autism.
The conversation touches on the importance of the immune system in maintaining health and the potential impact of mRNA vaccines on the immune system.
Dr. Vincent Tedone discusses the common denominator in neurodegenerative diseases and the potential for the Deanna Protocol to be effective in treating various conditions.
Conclusion and Future Research
Dr. Vincent Tedone expresses his frustration with the lack of focus on the cause of diseases and the need for further research.
He shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other conditions.
The discussion highlights the importance of treating the cause of diseases rather than just the symptoms.
The episode concludes with a call for further research and the potential for the Deanna Protocol to revolutionize the treatment of neurodegenerative diseases.
Resources and References:
ALS specific websites & show References
Als.org
I Am ALS
Winning The Fight
National Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS)
Deanna's Book
The Deanna Protocol _ Book
Dr. Tedone's Treatment
The Deanna Protocol Website
Maintaining Optimal Quality of Life
Support groups
Proper equipment & Knowledge of use
RESOURCES:
ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries
813-637-9000
infoFL@als.org
Community support groups & counseling
Transportation assistance
Equipment loan bank-people with ALS can borrow assistive equipment on long term basis
Assistance finding & obtaining community & government resources
Multidisciplinary medical care under one roof
FAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org
FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and assistance, as well as a financing program available state-wide. With a commitment to accessibility and innovation, FAAST is leading the way in assistive technology in the state of Florida.
CENTER FOR ASSISTIVE TECHNOLOGY-University of Buffalo
The Center for Assistive Technology (CAT) is a non-profit organization that conducts research and provides educational and service programs to increase consumer knowledge related to assistive technology for persons with disabilities.
CAT is also the Western New York Regional Center for the New York State TRAID Program, for which it coordinates information on technology-related expertise and resources for people with disabilities.
SHEPHERD CENTER-CENTER FOR ASSISTIVE TECHNOLOGIES Atlanta, GA
The Center for Assistive Technologies at Shepherd Center helps individuals regain independence after a neurological injury or condition. Challenges with mobility and cognitive function can impact daily activities like using devices, controlling home environments, and driving. Our team develops, tests, and customizes assistive technologies to support rehabilitation, empowering you to navigate life with greater ease and autonomy.
UPMC CENTER FOR ASSISTIVE TECHNOLOGY-Pittsburgh, PA
The CAT is an interdisciplinary center comprising multiple outpatient clinics that offer a variety of services to assist you.
University of North Carolina Wilmington Center for Assistive Technology
Miami University Center for Assistive Technology Oxford, OH
Assistive Technology Center New Jersey
Utah Center for Assistive Technology
University of South Carolina Assistive Technology Program
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
EPISODE TITLE: ALS: The Classic Medical Perspective
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease. We covered:
What is ALS?
Signs & symptoms of ALS including:
Affects voluntary muscles-hands, forearms, legs.
Early symptoms include:
Fasciculations- spontaneous, uncontrolled discharges of motor neurons; irregular twitchings: Muscle twitches in the arm, leg, shoulder, or tongue
Muscle cramps
Tight and stiff muscles (spasticity)
Muscle weakness affecting an arm, a leg, or the neck
Slurred and nasal speech
Difficulty chewing or swallowing
Difficulty walking, picking up objects, fine motor tasks
Ongoing/Later symptoms:
Chewing food and swallowing (dysphagia)
Drooling (sialorrhea)
Speaking or forming words (dysarthria)
Breathing (dyspnea)
Unintended crying, laughing, or other emotional displays (pseudobulbar symptoms)
Constipation
Maintaining weight and getting enough nutrients
Frontotemporal dementia
Dementia that affects the frontotemporal lobe.
Affects thinking, talking, walking, and socializing.
FTD and other frontotemporal disorders are a common cause of early-onset dementia, often appearing when people are in the prime of life.
Families often suffer, as they struggle to cope with the person's daily needs as well as changes in relationships and responsibilities.
Risk Factors (National Institute of Neurological Disorders & Stroke)-Having a risk factor does not mean a person will or will not get a disease
Age—Although the disease can strike at any age, symptoms most commonly develop between the ages of 55 and 75.
Biological sex—Men are slightly more likely to develop ALS than women. However, at older ages, men and women are equally likely to be diagnosed with ALS.
Race and ethnicity—Whites and non-Hispanics are most likely to develop the disease, but ALS affects people of all races and ethnic backgrounds.
National Institute of Neurological Disorders & Stroke/ALS.org
Some studies suggest military veterans are about one and a half to two times more likely to develop ALS, although the reason for this is unclear. Possible risk factors for veterans include exposure to lead, pesticides, and other environmental toxins. Some studies have also shown that head injury can be associated with higher risk for ALS, but more research is needed to understand this connection.
For about 90% of all cases, there’s no known family history of the disease or presence of a genetic mutation linked to ALS.
For 5-10% of all cases, there’s a known family history of the disease. This is often called familial ALS.
ALS.org
In families with familial ALS, there is a 50% chance each offspring will inherit the gene mutation and may develop the disease.
Medical treatment-involves medications
Common PT & OT interventions
Assistive technology & Communication devices
OBI – independence with feeding
Battery-operated salt & pepper shakers
Steady spoon if tremors are present
Built up handle utensils
Eazy Hold grip aids
Universal cuff
Divided Dish
GUS communication devices
ALS specific websites & show References
org
I Am ALS
Winning The Fight
National Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS)
Maintaining Optimal Quality of Life
Support groups
Proper equipment & Knowledge of use
RESOURCES:
ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries
813-637-9000
infoFL@als.org
Community support groups & counseling
Transportation assistance
Equipment loan bank-people with ALS can borrow assistive equipment on long term basis
Assistance finding & obtaining community & government resources
Multidisciplinary medical care under one roof
FAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org
FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and assistance, as well as a financing program available state-wide. With a commitment to accessibility and innovation, FAAST is leading the way in assistive technology in the state of Florida.
CENTER FOR ASSISTIVE TECHNOLOGY-University of Buffalo
The Center for Assistive Technology (CAT) is a non-profit organization that conducts research and provides educational and service programs to increase consumer knowledge related to assistive technology for persons with disabilities.
CAT is also the Western New York Regional Center for the New York State TRAID Program, for which it coordinates information on technology-related expertise and resources for people with disabilities.
SHEPHERD CENTER-CENTER FOR ASSISTIVE TECHNOLOGIES Atlanta, GA
The Center for Assistive Technologies at Shepherd Center helps individuals regain independence after a neurological injury or condition. Challenges with mobility and cognitive function can impact daily activities like using devices, controlling home environments, and driving. Our team develops, tests, and customizes assistive technologies to support rehabilitation, empowering you to navigate life with greater ease and autonomy.
UPMC CENTER FOR ASSISTIVE TECHNOLOGY-Pittsburgh, PA
The CAT is an interdisciplinary center comprising multiple outpatient clinics that offer a variety of services to assist you.
University of North Carolina Wilmington Center for Assistive Technology
Miami University Center for Assistive Technology Oxford, OH
Assistive Technology Center New Jersey
Utah Center for Assistive Technology
University of South Carolina Assistive Technology Program
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: A Battle In The Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb and Doro talk with D’Youville University students Christin Chan and Sophie Turner about the psychosocial impact of stroke and brain injury. We covered:
Mental health challenges post-stroke, ABI, and TBI
The role of occupational therapy in addressing mental health
Improving psychosocial support for survivors and caregivers
Best practices for supporting survivors
Post-injury affective symptoms and disorders
Non-pharmacological treatment for behavioral disturbances among TBI/ABI patients
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Faircloth, C. A., Boylstein, C., Rittman, M., & Gubrium, J. F. (2005). Constructing the stroke: Sudden-onset narratives of stroke survivors. Qualitative Health Research, 15(7), 928. doi:10.1177/1049732305277842
Goldfinger, J. Z., edmondson, D., kronish, I. M., fei, K., balakrishnan, R., tuhrim, S., & horowitz, C. R. (2014). Correlates of post-traumatic stress disorder in stroke survivors. The official journal of stroke and cerebrovascular diseases : The official journal of national stroke association, 23(5), 1099–1105. https://Doi.org/10.1016/j.jstrokecerebrovasdis.2013.09.019.
Howlett, J. R., Nelson, L. D., & Stein, M. B. (2022). Mental health consequences of traumatic brain injury. Biological Psychiatry, 91(5), 413–420. https://doi.org/10.1016/j.biopsych.2021.09.024
Kumar, R., Kumar, A., & Singh, A. (2019). Psychosocial impact of Brain Injury: A Review. Indian Journal of Neurosurgery, 08(01), 011–015. https://doi.org/10.1055/s-0039-1687713
Raya-Ruiz, M. A., Rodríguez-Bailón, M., Castaño-Monsalve, B., Vidaña-Moya, L., Fernández-Solano, A. J., & Merchán-Baeza, J. A. (2022). Study protocol for a non-randomised controlled trial: Community-based occupational therapy intervention on mental health for people with acquired brain injury (COT-MHABI). Plos One, 17(10) doi:10.1371/journal.pone.0274193
Ritter, J., Dawson, J., & Singh, R. K. (2021). Functional recovery after brain injury: Independent predictors of psychosocial outcome one year after TBI. Clinical Neurology and Neurosurgery, 203, 106561. https://doi.org/10.1016/j.clineuro.2021.106561
Simpson, E. K., Ramirez, N. M., Branstetter, B., Reed, A., & Lines, E. (2018). Occupational therapy practitioners’ perspectives of mental health practices with clients in stroke rehabilitation. OTJR: Occupational Therapy Journal of Research, 38(3), 181. doi:10.1177/1539449218759627
Terrill, A. L., Schwartz, J. K., & Belagaje, S. R. (2018). Best practices for the interdisciplinary rehabilitation team: A review of mental health issues in mild stroke survivors. Stroke Research and Treatment, 2018, 1. doi:10.1155/2018/6187328
Tjokrowijoto, P., Kneebone, I., Baker, C., Andrew, N. E., Stolwyk, R. J., & Stolwyk, J. (2023). Supplemental material for mental health support after stroke: A qualitative exploration of lived experience. Rehabilitation Psychology, doi:10.1037/rep0000527.supp
Wenzel, R. A., Zgoda, E. A., St. Clair, M. C., & Knecht-Sabres, L. J. (2021). A qualitative study investigating stroke survivors’ perceptions of their psychosocial needs being met during rehabilitation. The Open Journal of Occupational Therapy, 9(2), 1. doi:10.15453/2168-6408.1691
Wiart, L., Luauté, J., Stefan, A., Plantier, D., & Hamonet, J. (2016). Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Annals of Physical and Rehabilitation Medicine, 59(1), 31–41. https://doi.org/10.1016/j.rehab.2015.12.001
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Website: Creative Concepts In Occupational Therapy
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins & Neurons Podcasts In Education-ready-made lesson plans for educators
Noggins And Neurons Podcast Creative Learning & Discussion Guide
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: A Battle on the Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb and Doro talk with D’Youville University students Christin Chan and Sophie Turner about the psychosocial impact of stroke and brain injury. We covered:
Mental health challenges post-stroke, ABI, and TBI
The role of occupational therapy in addressing mental health
Improving psychosocial support for survivors and caregivers
Best practices for supporting survivors
Post-injury affective symptoms and disorders
Non-pharmacological treatment for behavioral disturbances among TBI/ABI patients
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Faircloth, C. A., Boylstein, C., Rittman, M., & Gubrium, J. F. (2005). Constructing the stroke: Sudden-onset narratives of stroke survivors. Qualitative Health Research, 15(7), 928. doi:10.1177/1049732305277842
Goldfinger, J. Z., edmondson, D., kronish, I. M., fei, K., balakrishnan, R., tuhrim, S., & horowitz, C. R. (2014). Correlates of post-traumatic stress disorder in stroke survivors. The official journal of stroke and cerebrovascular diseases : The official journal of national stroke association, 23(5), 1099–1105. https://Doi.org/10.1016/j.jstrokecerebrovasdis.2013.09.019.
Howlett, J. R., Nelson, L. D., & Stein, M. B. (2022). Mental health consequences of traumatic brain injury. Biological Psychiatry, 91(5), 413–420. https://doi.org/10.1016/j.biopsych.2021.09.024
Kumar, R., Kumar, A., & Singh, A. (2019). Psychosocial impact of Brain Injury: A Review. Indian Journal of Neurosurgery, 08(01), 011–015. https://doi.org/10.1055/s-0039-1687713
Raya-Ruiz, M. A., Rodríguez-Bailón, M., Castaño-Monsalve, B., Vidaña-Moya, L., Fernández-Solano, A. J., & Merchán-Baeza, J. A. (2022). Study protocol for a non-randomised controlled trial: Community-based occupational therapy intervention on mental health for people with acquired brain injury (COT-MHABI). Plos One, 17(10) doi:10.1371/journal.pone.0274193
Ritter, J., Dawson, J., & Singh, R. K. (2021). Functional recovery after brain injury: Independent predictors of psychosocial outcome one year after TBI. Clinical Neurology and Neurosurgery, 203, 106561. https://doi.org/10.1016/j.clineuro.2021.106561
Simpson, E. K., Ramirez, N. M., Branstetter, B., Reed, A., & Lines, E. (2018). Occupational therapy practitioners’ perspectives of mental health practices with clients in stroke rehabilitation. OTJR: Occupational Therapy Journal of Research, 38(3), 181. doi:10.1177/1539449218759627
Terrill, A. L., Schwartz, J. K., & Belagaje, S. R. (2018). Best practices for the interdisciplinary rehabilitation team: A review of mental health issues in mild stroke survivors. Stroke Research and Treatment, 2018, 1. doi:10.1155/2018/6187328
Tjokrowijoto, P., Kneebone, I., Baker, C., Andrew, N. E., Stolwyk, R. J., & Stolwyk, J. (2023). Supplemental material for mental health support after stroke: A qualitative exploration of lived experience. Rehabilitation Psychology, doi:10.1037/rep0000527.supp
Wenzel, R. A., Zgoda, E. A., St. Clair, M. C., & Knecht-Sabres, L. J. (2021). A qualitative study investigating stroke survivors’ perceptions of their psychosocial needs being met during rehabilitation. The Open Journal of Occupational Therapy, 9(2), 1. doi:10.15453/2168-6408.1691
Wiart, L., Luauté, J., Stefan, A., Plantier, D., & Hamonet, J. (2016). Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Annals of Physical and Rehabilitation Medicine, 59(1), 31–41. https://doi.org/10.1016/j.rehab.2015.12.001
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Website: Creative Concepts In Occupational Therapy
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins & Neurons Podcasts In Education-ready-made lesson plans for educators
Noggins And Neurons Podcast Creative Learning & Discussion Guide
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Harnessing Motivation: Unleashing Recovery Potential
What really drives someone to keep going after a stroke — even when it’s hard?
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb dive deep into the heart of recovery: motivation. Whether you're a survivor, clinician, or care partner, this conversation is packed with insights to help you light (and maintain) that motivational fire. We explore:
🔑 What motivation is and why it matters more than you think
🔁 The proven process Doro’s team uses to help clients stay focused and forward-moving
💪 How self-efficacy impacts momentum and long-term success
🧠 A reminder that stroke recovery is a marathon (not a sprint)
😴 Working with post-stroke fatigue for optimal success
🧰 Tools that assess motivation and reveal strengths worth building on
🤝 Why strong care partner training is a game-changer
🧭 The power of adaptive planning — and why flexibility = success
If you’ve ever felt stuck, unmotivated, or unsure how to keep yourself or someone you love moving forward, this episode will give you a fresh perspective and real-world strategies.
🎙️ Tune in and let’s turn the recovery spark into a flame.
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Research Articles
Argent, R., Daly, A., & Caulfield, B. (2018). Patient Involvement With Home-Based Exercise Programs: Can Connected Health Interventions Influence Adherence?. JMIR mHealth and uHealth, 6(3), e47. https://doi.org/10.2196/mhealth.8518
Driscoll, R., Fitzpatrick, L., Karsten, J., Scott, S., & Winters, E. (2021). Care Partner Carryover Day: A Formalized Training Program to Improve Care Partner Preparedness for Pt’s. with ABI Prior to D/C home. Archives of Physical Medicine and Rehabilitation, 102(10), e52
Ghorbani, S. (2019). Motivational effects of enhancing expectancies and autonomy for motor learning: An examination of the OPTIMAL theory. The Journal of General Psychology, 146(1), 79-92.
Rolls, E.T. (2023). Emotion, motivation, decision-making, the orbitofrontal cortex, anterior cingulate cortex, and the amygdala. Brain Structure and Function, 228, 1201-1257. https://doi.org/10.1007/s00429-023-02644-9
Siegle, F. (2024). The role of synaptic plasticity in learning and memory: A neurophysiological perspective. The Cognitive Neuroscience Journal, (7)4.
Yoshida, T., Otaka, Y., Osu, R., Kumagai, M, Kitamura, S., & Yaeda, J. (2021). Motivation for rehabilitation in patients with subacute stroke: A qualitative study. Frontiers in Rehabilitation, 2:664758. doi: 10.3389/fresc.2021.664758
Assessments:
Eppworth Sleepiness Scale
Fatigue Severity Scale
Canadian Occupation Performance Measure (COPM)
Motor Activity Log
Heart Rate Variability YouTube Videos:
Scientific Explanation
The Science of Heart Rate Variability (HRV): Health, Wellness & Performance by Dr Cailbhe Doherty
Guided HRV Breathing Exercise
Heart Coherence Breathing Exercise | HRV Resonant Cardiac Breathwork by Take A Deep Breath
Previous Episodes Referenced
Super Survivor Kathy Spencer on Successful Recovery
Empowering Recovery with Survivor Angela Wingfield, PTA
Resources Mentioned in This Episode
The Aligned Professional Mini Course
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
The Aligned Professional Mini Course
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Tackling Spasticity Part 2
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about spasticity. We covered:
Strategies for addressing spasticity, how to descriptions and rationale for use
Difference between spasticity management and spasticity treatment
Specific techniques discussed
Stretching
Weight Bearing
Splinting
Intentional muscle fatigue
Proprioceptive Neuromuscular Facilitation (PNF) Principles
Neuromodulators
Surgery
Cryoneurolysis
Enzyme treatment-clinical trials ongoing
Visualization & Mirror Therapy
Extra corporeal shock wave therapy
Focused waves-sends waves into small area
Radial waves-delivers shock waves into broader areas
Contraindications to use
Adverse effects-transient discomfort, swelling, bruising
Works well in conjunction with neuromodulator use
Importance of interdisciplinary communication & using clinical communication notes
Spasticity & contracture predictors using traffic light system
We hope you enjoyed this episode of Noggins And Neurons and found the information shared helpful. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Almufarah, Kausar, Humayun, & Tehsin (2023). Leveraging motor imagery rehabilitation for individuals with disabilities: A review. Healthcare, 11, 1-17. https://doi.org/10.3390/healthcare11192653. https://www.mdpi.com/journal/healthcare
Bavikatte, Subramanian, Ashford, Allison & Hicklan (2021). Early identification and management of post-stroke spasticity: Expert consensus recommendations. Journal of Central Nervous System Disease, 13, 1-8.
Brusola*, Garcia, Albosta, Daly, Kafes & Furtado (2023). Effectiveness of physical therapy interventions on post-stroke spasticity: An umbrella review.
Guo, Hai & Ma (2022). Application of extracorporeal shockwave therapy in nervous system diseases: A review. Frontiers in Neurology DOI 10.3389/fneur.2022.963849
Guo, Gao, Zhao, Sun, Wang & Li (2017). Positive effects of extracorporeal shock wave therapy on spasticity in post stroke patients: A meta-analysis. Journal of Stroke and Cerebrovascular Diseases, Vol. 26, No. 11 (November), 2017: pp 2470–2476
Li (2017). Spasticity, motor recovery, and neural plasticity after stroke. Frontiers in Neurology, 8, 120; 1-7. doi: 10.3389/fneur.2017.00120.
Martinez, Sempere-Rubio, Navarro & Faubel (2021). Effectiveness of shock wave therapy as a treatment for spasticity: A systematic review. Brain Sciences, 11, 15-18. https://dx.doi.org/10.3390/brainsci11010015.
Poveda-Garcia, Moret-Tatay & Gomez-Martinez (2021). The association between mental motor imagery and real movement in stroke. Healthcare, 9, 1568; 1-11. https://doi.org/10.3390/healthcare9111568
Spasticity: Can Anything Be Done. Blog article by Peter G. Levine
Suputtitada, Chatromyen, Chen & Simpson (2024). Best practice guidelines for the management of patients with post-stroke spasticity: A modified scoping review. Toxins, 16, 98. https://doi.org/10.3390/toxins16020098
THERAPY PRACTICE RESOURCES:
NEW RESOURCES
Secondary Stoke Prevention Info Graphic
Homonymous Hemianopia Flyer
For academic use: N & N Podcast Instructor Guides:
Impact of Psychosocial Factors on Stroke Recovery
Factors Affecting Stroke Recovery
Stroke Recovery Along the Continuum of Care
Sensory Recovery
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Tackling Spasticity Part 1
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about spasticity. We covered:
Definition of spasticity and spastic paresis
Underlying mechanisms of motor recovery and spasticity-they aren’t the same
Keys to promoting recovery
How to know if someone has spasticity
Creating an occupational profile as a treatment plan foundation
Measuring spasticity
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Crow, J. L. & Harmeling-van der Wel, B. C. (2008). Hierarchical properties of the motor function sections of the Fugl-Meyer Assessment Scale for people after stroke: A retrospective study. Physical Therapy, 88(12): 1554-67. DOI:10.2522/ptj.20070186 Source-PubMed https://www.researchgate.net/publication/23389179
Li, S. (2017). Spasticity, Motor Recovery, and Neural Plasticity after Stroke. Frontiers in Neurology; April 3:8:120. DOI: 10.3389/fneur.2017.00120
THERAPY PRACTICE RESOURCES:
NEW RESOURCES
Secondary Stoke Prevention Info Graphic
Homonymous Hemianopia Flyer
N & N Podcast Instructor Guides:
Impact of Psychosocial Factors on Stroke Recovery
Factors Affecting Stroke Recovery
Stroke Recovery Along the Continuum of Care
Sensory Recovery
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Tri-Fold Mirror (US addresses only)
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
NogginsAndNeurons: The Website
EPISODE TITLE: Seeing Clearly Again: Occupational Therapy’s Impact After Mild TBI-Part 2
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk with returning guest, Suzanne Briggs about vision rehab for individuals who’ve experienced mild TBI. We covered a lot of ground in the second half of our conversation. We discussed:
Impact of mood on self-report questionnaires
Example of remedial vision treatment session
The effects of the autonomic nervous system on participation and recovery
Strategies for regulating the nervous system
Understanding top down vs. bottom-up treatment approaches
Differences between low vision therapy and remedial vision therapy
Standardizing care and Hospital Based Interest Group (HBIG)
Using the Senaptec Sensory Station in vision rehab
Connect with Suzanne. Her email address is outhere1999@gmail.com
Learn more about vision rehab at VisCon 2025 March 7th through 9th. Attend live in Pensacola, FL or virtually. LEARN MORE HERE.
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Occupational Therapist-Led Remedial Vision Program after Mild Traumatic Brain Injury: Pre/Post Pilot Study by Suzanne Briggs, OTD, OTR/L, Mitchell Scheiman, OD, PhD, FAAO, Yuki Asakura, PhD, APRN, ACNS-BC, ACHPN, OCN
The Senaptec Sensory Station
VisCon 2025
Connect with Suzanne: outhere1999@gmail.com
THERAPY PRACTICE RESOURCES
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Tri-Fold Mirror (US addresses only)
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Seeing Clearly Again: Occupational Therapy’s Impact After Mild TBI-Part 1
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk with returning guest, Suzanne Briggs, OTD, OTR/L, Remedial Vision Certified, about vision rehab for individuals who’ve experienced mild TBI. We covered a lot of ground in this informative episode. We discussed:
Suzanne’s doctoral experience and some lessons she learned along the way
Why she’s chosen not to be called “doctor”
Symptoms experienced by mTBI survivors and the effect on occupational performance
Common symptoms of vision dysfunction
Assessments Suzanne uses to determine deficit areas and her reasons for using these assessments
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Occupational Therapist-Led Remedial Vision Program after Mild Traumatic Brain Injury: Pre/Post Pilot Study by Suzanne Briggs, OTD, OTR/L, Mitchell Scheiman, OD, PhD, FAAO, Yuki Asakura, PhD, APRN, ACNS-BC, ACHPN, OCN
THERAPY PRACTICE RESOURCES
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Tri-Fold Mirror (US addresses only)
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Stroke Survivor Rachel Groves
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk with Rachel Groves about her experience of having a stroke as a young wife, mother and professional. Thank you for sharing your story, Rachel.
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Rachel’s Story-In One Stroke by Rachel Groves
NEW FREE RESOURCE: Stroke Recovery Home Program Checklist
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
NEW RESOURCES
Secondary Stoke Prevention Info Graphic
Homonymous Hemianopia Flyer
N & N Podcast Instructor Guides:
Impact of Psychosocial Factors on Stroke Recovery
Factors Affecting Stroke Recovery
Stroke Recovery Along the Continuum of Care
Sensory Recovery
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Supporting Care Partners with Julie Wall
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk with Julie Wall, occupational therapist about care partner support. We covered:
The need for community and support for care partners
The importance of care partner self-care for everyone’s health and well-being
How movement helps with emotional processing, strength, and connection
The importance of listening to our bodies and ways the body tries to get our attention
Using dance as a self-care technique; it moves and releases stuck energies, thereby creating the space for caregiving energy with generosity and love.
Research supporting the use of dance as a whole person, evidence-based intervention
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
LaBlast Promo Video Short 2023:
https://www.youtube.com/watch?v=Y4dm-S8KAXM
LaBlast Promo Video Long 2018:
https://www.youtube.com/watch?v=hjfRuYvM7yw
Caregiving Through a Therapeutic Lens Introductory Webinar:
https://us06web.zoom.us/rec/share/sGHToGZaRIg0GmT1Jncjb1cgXVhupfZGD7OFXZDg-vMpszMmKJkz-zl-GMc_oroT.M9lvBhO5ckv5lU_i?startTime=1713647685000
“When the Body Says No: EXPLORING THE STRESS-DISEASE CONNECTION” by Gabor Mate, MD
Connect with Julie on FB
Julie OT Living
Group for care givers: Caregiving Through A Therapeutic Lens
Email Julie: julieOTliving@gmail.com
Research Articles:
Vielvoye, M.; Nanninga, C.S.; Achterberg, W.P.; Caljouw, M.A.A. Informal Caregiver Stroke Program in Geriatric Rehabilitation of Stroke Patients: A Qualitative Study. J. Clin. Med. 2023, 12, 3085. https://doi.org/10.3390/ jcm12093085
Kumar, A., Yadav, A. J., Singh, V. K., Pathak, A., Chaurasia, R., N., Mishra, V., N., & Joshi, D. (2022). Caregiver burden in caregivers of stroke survivors: A hospital-based study. Annals of Indian Academy of Neurology, 25(6); 1092-1098.
Bartoli, D., Brugnera, A., Grego, A., Alvaro, R., Vellone, E., & Pucciarelli, G. (2024). Stroke disease-specific quality of life trajectories and their associations with caregivers’ anxiety, depression, and burden in stroke population: a longitudinal, multicentre study. European Journal of Cardiovascular Nursing, 23, 160-168; https://doi.org/10.1093/eurjcn/zvad054
Teixeira-Machado, L., Arida, R. M., de Jesus Mari, J. (2019). Dance for neuroplasticity: A descriptive systematic review. Neuroscience & Behavioral Reviews, 96, 232-240.
The Effectiveness of Dance Interventions on Psychological and Cognitive Health Outcomes Compared with Other Forms of Physical Activity: A Systematic Review with Meta‑analysis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11127814/pdf/40279_2023_Article_1990.pdf
The Effectiveness of Dance Interventions to Improve Older Adults' Health: A Systematic Literature Review
https://pubmed.ncbi.nlm.nih.gov/26393993/
Dance after stroke improves motor recovery in the subacute phase: A randomized controlled trial
https://pubmed.ncbi.nlm.nih.gov/38053900/
Dance in mental health nursing: A hybrid concept analysis
https://www.researchgate.net/publication/7293290_Dance_in_mental_health_nursing_A_hybrid_concept_analysis
Dance training is superior to repetitive physical exercise in inducing brain plasticity in the elderly
Caregiver Resilience and Dance/Movement Therapy: A Theoretical Review and Conceptual Model
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Tri-Fold Mirror (US addresses only)
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
NogginsAndNeurons: The Website
EPISODE TITLE: Sensory Recovery Following Stroke & Brain Injury
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb talks with Alice Chen & Kelly Tan from D’Youville University about sensory recovery. We covered:
Bodily sensations and impact of impaired sensation on the recovery process
We touch briefly on disorders of consciousness
Impact of pain on recovery
Interventions for sensory recovery
Empowering family members and care partners as part of the survivor’s team
Training and education as support strategies
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
SHOW REFERENCES:
Aderinto, N., AbdulBasit, M. O., Olatunji, G., & Adejumo, T. (2023). Exploring the transformative influence of neuroplasticity on stroke rehabilitation: A narrative review of current evidence. Annals of Medicine & Surgery, 85; 4425-4432. http://dx.doi.org/10.1097/MS9.0000000000001137
Carlsson, H., Gard, G., & Brogardh, C. (2018). Upper limb sensory impairments after stroke: Self-reported experiences of Daily Life and Rehabilitation. Journal of Rehabilitation Medicine, 50; 45-51. doi: 10.2340/16501977-2282.
Crema, A., Bassolino, M., Guanziroli, E., Colombo, M., Blanke, O., Serino, A., Micera, S., & Molteni, F. (2022). Neuromuscular electrical stimulation restores upper limb sensory-motor functions and body representations in chronic stroke survivors. Med 3, 58-74. https://doi.org/10.1016/j.medj.2021.12.001
Doyle, S., Bennett, S., Fasoli, S. E., & McKenna, K. T. (2010). Interventions for sensory impairment in the upper limb after stroke (Review). Cochrane Database of Systematic Reviews; (6), Art. No. CD006331. DOI: 10.1002/14651858.CD006331.pub2.
Ghandi, D. B. C., Sebastian, I. A., & Bhanot, K. (2021). Rehabilitation of post stroke sensory dysfunction-A scoping review. Journal of Stroke Medicine, 4(1), 25-33. DOI: 10.1177/2516608520984296
Lim, C. (2019). Multi-sensorimotor training improves proprioception and balance in subacute stroke patients: A randomized controlled pilot trial. frontiers in Neurology 10:157; 1-8. doi: 10.3389/fneur.2019.00157
SENSORY REMEDIATION LESSON PLAN
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
EPISODE TITLE: Secondary Stroke Prevention
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb talks with D’Youville University students, Giovanni Feliciano and Fatima Ijaz about preventing secondary stroke. People who have a stroke are at increased risk of having another stroke. In this conversation we:
Discuss the difference between primary and secondary prevention
Highlight the increased risk faced by individuals who have already experienced a stroke
Discover the effects of antiplatelet therapies for stroke prevention
Address clot formation and subsequent strokes
Learn about the importance of client follow-through and monitoring in long-term prevention
Hear about research findings regarding hypertension management and its role in prevention
Learn about the multifaceted approach to reducing stroke risk: diet, exercise and alcohol consumption
Investigate the correlation between exercise and heart health
Explore the effect of smoking cessation on stroke recurrence
Consider the role of lifestyle choices in stroke prevention and the role of occupational therapy in supporting choices that are right for clients
Talk about the importance of being informed and proactive in managing risk factors
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Brass, L. M. (2006). Strategies for primary and secondary stroke prevention. Clinical Cardiology, 29(S2), 21-27.
Chen, J., Li, S., Zheng, K., Wang, H., Xie, Y., Xu, P., ... & Xu, G. (2019). Impact of smoking status on stroke recurrence. Journal of the American Heart Association, 8(8), e011696.
Deiner, H-C. & Hankey, G.H. (2020). Primary and secondary prevention of ischemic stroke and cerebral hemorrhage. Journal of the American College of Cardiology Focus Seminar, 75(15); 1804-1818.
Gladstone, D.J., et al. (2021). Canadian stroke best practice recommendations: Secondary prevention of stroke update 2020. The Canadian Journal of Neurological Sciences, 315-337
Grassi, G., Arenare, F., Trevano, F. Q., Dell’Oro, R., & Mancia, G. (2007). Primary and secondary prevention of stroke by antihypertensive treatment in clinical trials. Current hypertension reports, 9, 299-304.
Hankey, G. J. (2005). Secondary prevention of recurrent stroke. Stroke, 36(2), 218-221.
Ringelstein, E. B., & Nabavi, D. (2000). Long-term prevention of ischaemic stroke and stroke recurrence. Thrombosis research, 98(3), 83-96.
Shah, J., Liu, S., & Yu, W. (2022). Contemporary antiplatelet therapy for secondary stroke prevention: a narrative review of current literature and guidelines. Stroke and vascular neurology, 7(5).
FREE INFOGRAPHIC:
Giovanni & Fatima created a helpful infographic you can use as part of your client education tools.
Get the Secondary Stroke Prevention Infographic here
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
The Aligned OT Mini Courses ***NEW COURSE AUGUST 13, 2024***
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
NogginsAndNeurons: The Website
EPISODE TITLE: All About Homonymous Hemianopsia
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb talks with Bridget Smith & Nabila Bhuiyan from D’Youville University about homonymous hemianopsia. We covered:
What homonymous hemianopsia is & how it occurs
Signs & symptoms experienced by a person who has homonymous hemianopsia
Impact on daily life
Treatment interventions for homonymous hemianopsia
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References:
Chung, A., & Slowman, L.S. (2020). Visual dysfunction: Occupational therapy. Cinahl Information Systems
Giorgi, R.G., Woods, R.L., & Peli, E. (2009). Clinical and laboratory evaluation of peripheral prism glasses for hemianopia. Optometry and Vision Science, 86(5): 492-502. doi:10.1097/OPX.0b013e31819f9e4d
Goodwin, D. (2014). Homonymous hemianopia: Challenges and solutions. Clinical Opthalmology, 1919-1927. DOI: 10.2147/OPTH.S59452
Mascaro, P.F., Junyent, Q., & Casanova, A. (2017). Effective visual rehabilitation in homonymous hemianopia by attaching binocular prisms to lenses. American Research Journal of Opthalmology and Optometry; 1(1): 1-11.
Perea, J.D. & Anise, M.C. (2019). Beyond cueing to the left and a red line: Treatment methods for homonymous hemianopia. SIS Quarterly Practice Connections, 4(2), 28–30.
Perez, C. & Chokron, S. (2014). Rehabilitation of homonymous hemianopia: Insight into blindsight. Frontiers in Integrative Neuroscience; 8(82); 1-12.
Platz, T. (Ed) (2021). Clinical pathways in stroke rehabilitation: Evidence-based clinical practice recommendations. Springer. https://doi.org/10.1007/978-3-030-58505-1.
Rowe, F. (2016). Visual effects and rehabilitation after stroke. Community Eye Health Journal; 19(96): 75-76.
Zihl, J., Kentridge, R.W., Pargent, F., & Heywood, C.A. (2021). Aging and the rehabilitation of homonymous hemianopia: The efficacy of compensatory eye-movement training techniques and a five year follow up. Aging Brain 1: 1-17. https://doi.org/10.1016/j.nbas.2021.100012.
Resources
Neuro-Optometric Rehabilitation Association: http://noravisionrehab.com/
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify ✨ Website
Like you, we are fascinated with the brain and can't stop talking about it! We hope you find the information in this episode helpful for understanding recovery. Enjoy!
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
NogginsAndNeurons: The Website
EPISODE TITLE: Driving Rehab with Terri Cassidy
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk with Terri Cassidy, OTD, OTR/L, CDRS about driving after stroke. We covered a lot of ground in this interesting conversation. Highlights include:
Terri’s journey into private practice
Meeting clients where they are
Community connections and client rapport
Importance of early and often conversations around driving safety and retirement.
FREE RESOURCE FOR PROVIDERS: Generalist Resource to Integrate Driving (GRID) contains assessments and scoring information; Not everyone needs to see a specialist (moderate to severe dementia) grid for decision making
Value of a driving risk assessment
Progression of driving evaluation: start to finish.
OT-Drive Model: Integrating the Instrumental Activity of Daily Living (I-ADL) of driving and community mobility into routine practice
Clinical Assessment Tools that Terri & Doro use as part of the driving evaluation
The importance of potential - leave room for recovery that hasn’t happened yet. This can be more clinical rehab as well as training within the vehicle
Terri’s business has a readiness to drive program – for people with history of CVA, brain injury as children. Helping people make decisions around driving appropriateness.
Terri’s wisdom for practitioners, survivors, care partners – keep asking questions!
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
OT-Drive Model: Integrating the Instrumental Activity of Daily Living (I-ADL) of driving and community mobility into routine practice
Generalist Resource to Integrate Driving (GRID)
Health Promotion Partners/Fitness to Drive
THERAPY PRACTICE RESOURCES
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
All Resources
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify
Thanks for still being here! We love you 😍
NogginsAndNeurons: The Website
Join the Noggins And Neurons Facebook Group
EPISODE TITLE: Sex & Intimacy with Sujata Martin, MS, OTR/L
EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb talks with Sujata Martin about sex & intimacy. We covered:
Sex, Sexuality, and Intimacy
The impact of a neurological diagnosis on the pelvic floor, function and one’s identity
Where sex and sexuality are addressed in the OT Practice Framework, 4th edition
How fine motor deficits impact bowel & bladder management, including catheter management
Sexual expression, psychological & physical aspects of intimacy
Finding the right practitioner-why properly trained OT practitioners may be able to help & finding a good provider/client fit
The role of occupational therapy practitioners in addressing sexual needs of clients, including clinician responsibility in receiving client responses; the importance of withholding judgment to avoid damage to the client
Additional training required to treat pelvic dysfunction & to provide sex counseling
The importance of client questioning and, sometimes, persistence, when advocating to getting one’s needs met
Being open to considering other possibilities such as adaptations to enhance connection and intimacy
Being mindful not to adapt to the caregiver & sick role only - remembering who you are to maintain relationship
Sexuality as a means of strengthening relationships with one’s partner(s) and oneself
We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com
Show References
Mellor, R.M. et. al, (2013). Healthcare professionals’ views on discussing sexual wellbeing with patients who have had a stroke: A qualitative study. PLOS | ONE, 8(10).
Naphtali, K., MacHattie, E., Elliott, S.L. & Krassioukov, A. (2009). Pleasure ABLE: Sexual device manual for persons with disabilities. Disabilities Health Research Network.
O’Shea, A., Frawley, P., Leahy, J. W., & Nguyen, H.D. (2020). A critical appraisal of sexuality and relationships programs for people with acquired brain injury. Sexuality and Disability, 38:57-83. https://doi.org/10.1007/s11195-020-09616-5
Prior, S., Reeves, N., Peterson, G., Jaffray, L., & Campbell, S. (2019). Addressing the gaps in post-stroke sexual activity Rehabilitation: Patient Perspectives. Healthcare 7, 25; doi:10.3390/healthcare7010025
Occupational Performance Inventory of Sexuality & Intimacy
University of Indianapolis-https://uindy.edu/health-sciences/ot/opisi
Development of the Occupational Performance Inventory of Sexuality and Intimacy (OPISI): Phase One-https://scholarworks.wmich.edu/ojot/vol8/iss2/7/
Find a pelvic therapist: Pelvicrehab.com
Sujata’s website: pelvicsoul.com
Sujata’s book: “Not Just Kegels – The Exhausted Mama’s Guide to Pregnancy & Postnatal Wellness” that ranked #1 on Amazon’s Pregnancy & Childbirth list.
THERAPY PRACTICE RESOURCES:
DEB’S RESOURCES
Beyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)
The OT's Guide to Mirror Therapy
Tri-Fold Mirror (US addresses only)
Occupational Therapy Intervention: Scavenger Hunt Visual Scanning for Adults
Occupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for Adults
Noggins And Neurons Podcast Creative Learning & Discussion Guide (Free for podcast members)
PETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition:
Blog: blogspot.com
Book: Stronger After Stroke, 3rd edition
DORO’S OT PRACTICE – The Neuro Hub
REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit!
Guest Request Form
MUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com
✨Google Podcasts ✨iTunes ✨Spotify



