Claim OwnershipPulmonary Fibrosis Podcast
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What is Idiopathic Pulmonary Fibrosis? Tune in to the new Pulmonary Fibrosis Podcast, ‘live’ march 4th wherever you tune in! Join Dr. Gerard Criner of Temple Lung Center and Senator Browne to learn what IPF is; and what the PA Pulmonary Fibrosis support network is doing to help! Visit: paipfsupportnetwork.org for more information!
50 Episodes
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What a year it has been for the PULMONARY FIBROSIS PODCAST!! Jen Wescoe, of the Wescoe Foundation for Pulmonary Fibrosis, joins Crockett and reflects on the year that was, the AMAZING steps the PAIPF Community has taken in recent years, and what we can look forward to in 2023! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!! Find the 'PULMONARY FIBROSIS' podcast on Google, Spotify, Apple podcasts - wherever you get your podcasts - or at PAIPFSupportNetwork.org!!See omnystudio.com/listener for privacy information.
How do support groups complement medical care for conditions like Pulmonary Fibrosis? How does connecting with others living with Pulmonary Fibrosis help reduce anxiety, depression, or fear? How can support groups help patients prepare for conversations with their healthcare team? Jen Wescoe joins Kevin Crockett to discuss the great work her team is doing behind the scenes to help improve the communication between support groups and individuals living with ILD -- and YOU can help!! Take the survey here! It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- get more info at Wescoe.org!See omnystudio.com/listener for privacy information.
What happens in the body when we experience stress? Why is it especially important to talk about stress and mindfulness in the context of living with Pulmonary Fibrosis? Kim Hopkins, the Executive Director of the Shanthi Project, and Sarah Dennehy - Senior Director of Programs at the Shanthi Project, join the show to discuss the importance of mindfulness! It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- get more info at Wescoe.org!See omnystudio.com/listener for privacy information.
There was some learning to be done this year, there was some traveling to be done this year -- and there was some celebrating to do this year as well! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss all the wonderful events of 2025, and some of the exciting and revolutionary things she learned about on the road of battling IPF and ILD! It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- visit Wescoe.org for more!See omnystudio.com/listener for privacy information.
An organization out there to help meet the changing needs of patients & families?! We are all about that! Katherine Lacouture of Help. Hope. Live. (HelpHopeLive.org) discusses the mission of her team -- medical fundraising for the expenses insurance doesn't cover! We discuss how HHL has a different fundraising model from typical crowdfunding, what community building look like both online & offline -- and how you can get more information for you and your loved ones! It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
Why is palliative care so important in ILD, especially in early diagnosis? How would you define palliative care, especially in the context of ILD? Dr. Gillian Love of the Division of Palliative Care with Jefferson Health joins Crockett to discuss these questions and more in the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
How does ILD typically present in women vs. men? Any noticeable difference in symptoms? Are there types of ILD that are more common in women than in men? These are the questions we discuss in this episode of the 'Pulmonary Fibrosis' podcast! Jen Wescoe and Dr. Rachel Criner of Temple Lung Center discuss women and ILD, the mental health of women battling ILD, and great resources you can use to join clinical trials to help beat this disease! The 'Pulmonary Fibrosis' podcast is brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers. Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.
What is the difference between Palliative Care & Hospice, and why important to discern the difference?! Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey. It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.
Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF. This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you can participate in the studies! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.
How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD? Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD! It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease? Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there! It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease? How does the family dynamic help in managing this part of one diagnosis? Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What is Pulmonary rehab? How has rehab changed thanks to the virtual world? This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What defines a "rural" area? What step has to been taken to assess rural healthcare & ILD needs? Find out in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! This episode, we're joined by Dr. Teja Kulkarni of UAB and Dr. Jessica Shore of the Pulmonary Fibrosis Foundation to discuss the impact on patients living in rural areas! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey? Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What is Patient Engaged Research? What is PCORI? Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF. It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
Delightful. That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen! Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What are ILD guidelines? How are they developed, and what major role do patients play in the process? Dr. Sindhu Johnson of the University of Toronto joins Crockett to discuss the ins-and-outs of ILD guidelines in this episode of the Pulmonary Fibrosis podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.
What a year it was! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss the wonderful and enlightening moments of 2023, and what exciting things are in store for 2024 in the Pulmonary Fibrosis podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit paipfsupportnetwork.org!See omnystudio.com/listener for privacy information.
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