The Skies We’re Under

CONTENT Warning - in this episode we talk about bereavement, grief and scattering ashes. It’s been a looooong summer! You’re all invited to a wee celebration of surviving the summer, celebrating the wins, navigating the tricky parts, and transitioning back to a new term. Rachel, Sarah and Lucy get right back into it, from Rachel’s erroneous winking, Sarah’s paddle boarding with her Dad’s ashes and Lucy’s big pat on the back for some epic milestones and summer achievements. We have it all, including what we have learned about starting a new term well.  To help us get back to podcasting and planning for season 5 we’d LOVE it if you could support the podcast, like, subscribe, review and share. The more listeners we get, the more we’ll be able to provide things to listen to - and we’re chock full of ideas! We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

CONTENT WARNING DNACPR, death and dying Missing us already!? Then listen to our best bits! As we said before, Season Four has been EPIC - let's relive some of our favourite moments from this momentous season. We’ve got: Our first ever LIVE Episode with Lee Ridley/Lost Voice Guy (Episode 29) Jess Thom - AKA Tourettes Hero (Episode 12) Dr Ana Aiello - (Episode 20) Knickers and Seagulls - Trauma Tap Out; Hospice and Palliative Care - Episode (Episode 33) Jan and Liz - Grandparents - (Episode 6) Siblings (Episode 2) Rachel, Sarah and Lucy (Episode 8) Listener Views (Episode 34) We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

It’s the end of Season Four — and true to form, we’re going out with laughter, chaos, honesty, and a few tears (obviously). In this unfiltered finale, Rachel is joined by the ever-brilliant Sarah Clayton and Lucy Parr for a raw and riotous debrief on what’s been a monumental season. We chat about Brecon’s last-minute bungalow miracle, navigating adult social care (DIY included), and that never-ending sense of "it'll be easier once…" — spoiler: it never is. From half-finished makeup and eye puffiness to trauma tap-outs and euphemisms for death, no subject is off-limits. We reflect on the highs, heartbreaks, and hilarity of the past 44 episodes — covering everything from trauma and mental health to communication, connection, and end-of-life planning. We’ve got advice for the summer holidays (it involves not looking at instagram) and just genuinely reflecting on how being together is basically free therapy. Pull up a chair, breathe through the madness, and join us in celebrating everything we’ve shared this season under these endlessly complicated skies. *To help us get back to podcasting and planning for season 5 we’d LOVE it if you could support the podcast, like, subscribe, review and share. The more listeners we get, the more we’ll be able to provide things to listen to - and we’re chock full of ideas! We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’ve got a not to be missed interview with super Stephen Unwin, he’s on a mission to make people rethink how we view people with Learning Disabilities, as well as shining a light on the world's families like ours navigate. In his book ‘Beautiful Lives - How we got Learning Disabilities So Wrong’ Stephen uses his knowledge, experience and research to provide insight and challenge, and today’s episode provides a wonderful snapshot of his brilliance, as well as his wicked sense of humour. You can find more about Stephen on his website at: https://www.stephenunwin.uk/ His book is available, in all formats, here. Thanks to Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

The world has been turned upside down, hopes and dreams feel far away, and we’re grateful for the people who stepped in, stepped up, sat with us, supported us and celebrated our families. Listen to today’s episode, as we look back at the Early Years, and reflect on the experiences of learning to navigate a world we never planned for. Join Rachel and Lucy consider Early Years experiences from a professional and parent perspective. We also hear from experienced Portage Worker Janet Rickman. She shares her experience and wisdom, and all she’s learned from working with families like ours. In addition, Rachel and Sarah share theme park stories, (including the fantastic Give Kids The World) and Lucy is under ‘Techf*ckingnightmare’ Skies. To find the resources discussed by Janet and Lucy on the pod, please following the links below: Help for early years providers : SEND assessment guidance and resources Help for early years providers : Using the assessment tools National Portage Association Thanks to Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

What if all the things we doggedly pursue to help our children are inherently toxic to their relationship with their own body and disability? After Episode 40's genuinely core-shaking discussion with Amy Hogan, Rachel, Sarah and Lucy discuss where their perspectives align and deviate both parents and professionals. Thanks to Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

Join us for the brilliance of Professional Geek Amy Hogan, she’ll make you rethink and reframe disability, and help bridge that gap between the experiences of a parent of a disabled child and the experience of the disabled person themselves. After the usual catch up with Sarah and Lucy, Rachel talks to Amy about the limitations of interventions like physiotherapy and the need for mental health support for parents and children processing a life they hadn’t imagined. She discusses the outcomes we really should be focusing on with our children, as well as challenging concepts around disability and helping us to confront our own (and other people’s) Ableism. There is SO much we cover, that we’ve had to split this episode in two. Join us on Friday for our bonus episode where Rachel, Sarah and Lucy reflect on the magnificent wisdom of Amy. You can find more about Amy and research and writing here. and the wonderful Maori terms for Cerebral Palsy here. Thanks to Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here… 

Puberty, sexual consent, sexuality and gender are some of the topics making Rachel blush in her conversation with Michael Fullerton in another must-listen episode of The Skies We’re Under Podcast. 🙌 These are conversations we need to have with our young people and Michael supports us to better understand how we support our children with profound disabilities - especially when our emotions aren’t keeping pace with their bodies. 💫 Invaluable resources to help Parent/Caregivers: 🔗 Supported Loving 🔗 Achieve Together 🔗 PMLD Link Journal 🔗 CHF RSE Training   Thanks to Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using SpeakPipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

To celebrate Learning Disability Week Rachel is joined by the dynamic duo Olly and Natty. A perfect pairing, who were introduced by parents Sally Philips  and Hayley Newman. They talk through how they met, describe their perfect day and have a sing-a-long not to be missed.  Rachel, Sarah and Lucy  also reflect on the joy of knowing and loving someone with Learning Disabilities - and quite what it’s like to be a parent of somebody with a Black Belt in Mindfulness. For more information on Learning Disability Week, including Easy Read Guides please see the Mencap webpage. Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

Grief comes in all shapes and sizes, be that anticipatory, or following the death of a child. In Rachel’s authentic and resonant conversation with Gabriella Walker, she reflects on how grief can be made more complex, and more difficult when the services she worked for failed to support her daughter and family in a way she needed. In one of our broadest episodes to date, we cover how it feels to work within a system you thought would be there to catch you but doesn’t, and how hard it is when you realise you’ve been failed by something you believe in. You can find out about the fantastic work Gabriella is doing to support families on her website https://irisfamilysupport.org We also talk about; bereavement and complex grief systems generated trauma how a universal health care system struggles even more when faced with complex disability the importance of self compassion Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…     Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re delighted to be joined by Rhiannon Gogh, SEND finance expert, mum to a boy with complex autism, trainer, presenter and award winning Financial Advisor. Rhiannon talks us through all the things we need to think about (even if it's difficult!) and helps explain terms like trustees, with informed, positive and helpful advice. You can find more about Rhiannon and her work at  Carers Academy and SENDA. Rhiannon’s Book is available for order Planning With Love: A Guide to Wills and Trusts for Parents of Children With Special Needs Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

To finish our mini series of 'world changers' we’ve tried to squeeze in as many as we can manage into a mix tape, to celebrate the people who’ve genuinely changed the world for us and our listeners! We start the podcast with a tribute to Sarah’s Parents John and Liz Goldsmith, two people who have transformed the lives of disabled people, the families who love them and the professionals who support them. Simple Stuff Works - Our History We also hear from: Ali Glover - Camp Jo Jo Volunteer Gwyneth McCormack - Positive Eye Kaddy Thomas - Carers Collective We also hear from our listeners, who share their world changers, from teachers, to schools to Nina Tame. Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…     Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re thinking about the times of transition, from starting to use equipment or bringing carers into your home for the first time. Who and what helped us in the times where we need to think with both our heads and our hearts. The trio share the things that have made those transitions easier*, and the impact that changes have on us both emotionally and practically. We also cover consistent naming conventions for genitalia, how on earth you could ever predict when someone’s birthday might be (?!) and the general challenges and joys that life throws at us. You can find Lucy’s Go Fund Me page for Brecon here. *Rachel's tip - Uribags (available on prescription) *Sarah’s video - Not Friends, Not Family - By Dave Hingsburger Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…     Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

As a bonus episode, to coincide with Dying Matters Week we bring you an insightful conversation with Dr Tim Wright (GP), and Lucy (Paediatric Sister), members of Rachel’s family who both work in the local children’s hospice. This beautiful, tender and raw conversation has the reality of both sides of the bed. Providing care for families of children who have life-limiting conditions and at end of life, as well as loving someone with a life-limiting condition. Dying Matters is a campaign run by the charity, Hospice UK. Hospice UK work with organisations, decision makers and the public to make things better for people who are dying or grieving. The hardest conversations are often the most important and here we talk about some of the jargon you might come across, having a take-away at a hospice and the ‘brutiful’ (beautiful and brutal) reality of fighting for a good death. The tech wasn’t to the standard we would typically aim for but the conversation was real and raw. CONTENT WARNING We realise that these will be tricky topics for some, so please be aware this episode will contain discussions around Death, Dying, End of Life Care and DNACPR.   You can find further support and help at: Hospice UK; and Together for Short Lives   Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re going back to school - and thinking about those people who demonstrated innate humanity and kindness, and really ‘got’ our children. Rachel and Sarah reflect on their experiences with school days, from those scary first days of school to college days. The need to trust, and build relationships with the many people who are involved in supporting disabled children in education settings. In addition, Sarah is trying to exercise some self compassion, and Rachel has been creating waterfalls (quite literally) in her home… Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

CONTENT WARNING - CONTAINS DISCUSSIONS RE: DIAGNOSIS/DIAGNOSES, CHILDHOOD CANCER AND TRAUMATIC BIRTHS. Today we’re remembering diagnosis, and the people who made a difference, the people that genuinely changed our world when it got flipped upside down. We reflect on the people who have helped us hear the news we don’t want to, as we continue to receive diagnoses, which never get easier to hear, no matter how ‘used to it’ we are. Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

Join Rachel, Sarah and Lucy as we celebrate those people who change the world, be it campaigning for the right to medical treatment, supporting other parents, breaking down barriers, or just making a nuisance of themselves to get the voices of disabled people heard. On this week’s episode we open up by reflecting on some of the world changers we know*, and reflect on why and how this is different for the disability community. Rachel is then joined by Hannah Deacon, whose dedication to campaigning for patients' rights succeeded when the law changed on 1 November 2018, which led to cannabis becoming legal as a medical treatment. Her successful campaign on behalf of son Alfie Dingley, who lives with a rare and severe form of epilepsy, led to his doctors receiving the first schedule one license to prescribe whole-plant cannabis in the UK. You can find more about Hannah and her work at her website. *As promised - Sarah’s World Changers: Lynne Elwell who  works with Julie Stanfield who is the CEO at In Control and developed Partners In Policy Making Jayne Leeson - CEO at  Changing Our Lives Lynne James Jenkinson - CEO at North West Training and Development Team  (NWTDT)  also a parent to many including an amazing young woman with Downs Syndrome. Robert Punton - poet and disability rights campaigner, who Sarah Met through  The Alliance for Inclusive Education Joe Whittaker - Joe died a couple of years ago but was a passionate campaigner and all round incredible human. He was a lecturer at Bolton uni and included MANY people who would not have had access to higher education without him. Martin Routledge - convener at  Social Care Future and an EXCELLENT Elvis impersonator Janet Cobb - started the learning disability email network many many years ago. Was at NWTDT and worked with Lynne Elwell for a long time Dave Hingsburger- one of the most influential people I have ever heard speak -Friends Not Family Samantha Clarke - Learning Disability England Debra Moore  - first met when she was the health lead for Valuing People. Now provides consultancy. She is bloody brilliant and well worth connecting with Helen Laverty - started  Positive Choices many years ago.  The Trio also discuss Single Case Experimental Design which you can find more about here or by watching this video. Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

We’re in it for the parking! We are so happy to share our Live Episode with our listeners! Join Rachel, Sarah and Lucy AND Lost Voice Guy for this super special episode of The Skies We’re Under. Lost Voice Guy talks about the funny and not so funny experiences he’s had, from his relationship with Kit, ski trips with his family and whether there ever will be a cure for being a Geordie.  We also hear the usual updates from Rachel, Sarah and Lucy. Lucy doesn’t swear once (she’s super proud of herself!) You can find out more about Lost Voice Guy's work, and his writing here. Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.

The ability to connect with others is a joy. Rachel reflects on the things that support and prevent connection (technical and human!) with the brilliant Dr. Beth Moulam, Paralympian, researcher, advocate and award winning all round super human. Beth shares her thoughts on the communication tools we all use, and the tools she uses. The challenges she faces (spoiler alert - it’s normally other people), and the joy she finds in creating new connections, and creating community around her, in the breathtaking number of fields she’s involved in. Rachel, Sarah and Lucy bring updates and reflections, there's news from the Moths, and Lucy broke a TSWU record, by swearing right from the outset - having to bring “all your BLEEPING podcast BEEP to work is not the best way to start the day! You can find more about Beth on her website and you tube page. Thanks to the lovely folk at Liberator for sponsoring this week's episode. You can find more about them and their work here. If you'd be interested in sponsoring an episode of The Skies We're Under, please contact us at TSWUpodcast@gmail.com. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…   Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.  

We get by with a little help from our friends…This week’s episode of The Skies We’re Under we’ve gone right back to the 1980s and made our very own mixtape!  In our series on community and  connection we turn focusing on our friendships. The people who are a shoulder to cry on, a partner on the dance floor or just the unexpected person who shows up.  We hear from some of our wonderful listeners who left speakpipes recognising and thanking their own friends as well as Lucy Parr chatting to her “shit life off” friend Sarah - (not podcast Sarah). And Jo, who works behind the scenes on the podcast, chats with her friend and neighbour Lyndsey.  It’s all about the love stories of friendship. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU  (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen.  We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here…     Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.