The Transplant Strong Podcast

Transplant Strong - Episode 44: Overcoming Chronic Illness with Clodagh Roberts. In this powerful episode of Transplant Strong, join us as we delve into Clodagh's remarkable journey of living with a chronic bowel disease that necessitated her consuming all her meals through tubes for many years. Despite the challenges, Clodagh and her family refused to let the illness define their lives, embracing adventures and travel along the way. However, as her condition progressed, Clodagh found hope in the form of a bowel transplant, a turning point that transformed her life. Tune in to discover how Clodagh not only survived but thrived post-transplant, savoring the simple joys of life, including the pleasure of enjoying food once again. Don't miss this inspiring tale of resilience, hope, and the strength of the human spirit on The Transplant Strong Podcast. Follow Clodagh on Instagram -   / clodagh.roberts   Follow Transplant Strong on Instagram -   / transplant_strong 

Hello, in this episode I chat with Lisa and we discuss the hospital bag essentials. This list will vary from person to person but this covers most items that you will find helpful and comforting. List includes Eye Mask Mini Fan Hair Brush Underwear of varying sizes Ear Plugs Phone Extra long charging cable and pegs or clip Ipad (Tablet) Lip Balm PJ's / Dressing Gown / Nightie Socks Slippers Face/Body Wipes Nail File Wash Bag Razor or Beard Trimmer Tweezers Sudocream Moisturising Cream Travel Mug Towel Loose Clothing V Shaped Pillow Notebook/Pens/Activity Book Light Activity Squash Ear Plugs Headphones Travel Hairdryer Hand Sanitiser Kindle or Books If you would like to know more about Lisa's transplant story then you can check out our full video here,    • Danny Chats Ep39 Liver Tranpslant; Sp...   Thank you for watching, if you found this helpful then please leave a comment below and don't forget to subscribe to my YouTube channel for more videos like this.

When the interviewer becomes the interviewee! This was a little chat Clodagh and I had before we got into the nitty gritty details of her very own transplant experience. I briefly discuss my experience of being diagnosed with Wilsons Disease. If you would like to hear more about my life with Wilsons Disease and life after a transplant then you can check out this video,    • My journey with Wilson’s Disease   Or have a read of my blog here - https://organtransplant.home.blog/aut...

Episode 43: Inspiring Journey of a Liver Transplant Survivor In this captivating episode of Danny Chats, join host Danny as he sits down with Robyn, an extraordinary liver transplant survivor from the U.K. Robyn's life took an unexpected turn when she experienced liver failure, necessitating an urgent transplant. Despite facing numerous challenges and complications during her journey, Robyn's determination and resilience shine through. Discover the remarkable story of Robyn's road to recovery, witnessing her incredible transformation from a patient in need to a beacon of hope. Tune in as she shares her personal experiences, recounting the hurdles she overcame, and the unwavering support she received from medical professionals, family, and friends. But Robyn's inspiring journey doesn't end there. Now thriving and filled with gratitude, she has taken it upon herself to make a difference in the lives of others. Hear about her pursuit of becoming a mental health coach, where she aims to provide guidance and support to fellow transplant patients, helping them navigate the emotional and psychological challenges that come with such a life-altering experience. Don't miss this heartwarming episode that showcases the strength of the human spirit and the power of resilience. Join Danny in celebrating Robyn's triumph and be inspired to embrace life's challenges with courage and optimism. Remember to show your support by liking this video and subscribing to the Danny Chats YouTube channel. Together, let's spread awareness and create a community of encouragement and empowerment.

Episode 42 features special guest Victoria Yocum from America. Victoria is a fellow Wilsons Disease patient who also had a life saving liver transplant and in this episode Victoria talks me through how living with Wilsons Disease affected her life and how she became so ill she needed a liver transplant to keep her alive. At the time of recording this podcast, Victoria is still very fresh out of transplant but you can see how it has completely changed her standard of living and how she view life no is so positive. Its very inspiring and I sure you will agree. If you would like to connect with Victoria then here is here Instagram link   / vyocummmm   Thank you for listening, if you liked this podcast please don't forget to like and subscribe to my channel and please check out my other episodes on this channel. You can find me at - Instagram   / danny_hiles86   - Facebook   / danny.hiles  

Danny Chats episode 41 features special guest Lewis Evans.    Lewis is a kidney transplant patient who will be competing for England and NI in the transplant games 2023 after finishing first in the 100meters at the UK games with an incredible time of 10.99 seconds.    In this episode Lewis tells me about his transplant and how that has inspired him to compete in the transplant games, Lewis also tells me about his training process for the 100m and how he achieved his new PB time.    It was very interesting to hear about his training and how he prepares himself mentally for races.   As Lewis mentioned it is expensive to get to Australia (where the next world games are being held and pay to compete) so if you would like to support Lewis and can donate to his gofund me page here is the link -   https://www.gofundme.com/f/getting-to...  Here is Lewis's Instagram page so you can follow his journey to a Gold Medal (hopefully) - https://www.instagram.com/lewissdavid/  Thank you for watching, if you found this podcast interesting, please hit the like button and remember to subscribe for more videos.    Find me Danny Hiles @ https://www.instagram.com/danny_hiles86/ https://www.facebook.com/danny.hiles/

In this episode I talk to Luke about the short film he has made called 'The Other Side' which you can watch on YouTube - https://youtu.be/qBWLfXlRxO4  This film is based around three families that have all been through the transplant process. The film focuses on how the parents felt during that time and what they did as family to get through.   It also gives an in site into what life can be like after a transplant for young people and how their life can dramatically improve.  Luke has done an absolutely amazing job of producing and filming The Other Side and I highly recommend people go and watch it and possibly share it with friends.    Find it here on YouTube - https://youtu.be/qBWLfXlRxO4 Luke has also had a transplant himself, so we talk a bit about his journey and how we meet at the transplant games in Leeds 2022.    Luke is a great guy and if anyone would like to connect with him, his Instagram link is here - https://www.instagram.com/lukeisthele...

Danny Chats Episode 39 features special guest Lisa Woodcock.   Lisa had a liver transplant in 2021 due to having a liver disease called Primary Biliary Cholangitis (PBC) which her family has a history of although it is not fully classified as being a hereditary disease.    Although there is medication to control the illness Lisa's body was unresponsive to it which meant her only option was to have a liver transplant.     Lisa talks about the ups and downs of life post transplant including taking out her own nasal biliary drain out which made me pull a funny face.   It's great to share the real life experiences of other transplant patients and hopefully this reaches people who are going through a similar experience.    You can connect with Lisa via Instagram -   https://www.instagram.com/lisa_liver....  If you found this interesting please hit the like button and remember to subscribe for more videos.    If you have any questions you can find me here -  Instagram - https://www.instagram.com/danny_hiles86/  Facebook - https://www.facebook.com/danny.hiles/

Danny Chats Episode 38 features special guest Grey Brett.    Grey is a liver transplant patient from Canada and in this chat we talk about Grey's transplant journey and how that led him to work with the Transplant Games and Move For Life Foundation.    Grey has such positive energy and since his transplant he has been doing a lot to support the transplant community, raise awareness and vital funds to help further the progress of transplants and transplant patients in Canada and around the world.     If you would like to connect with Grey you can find him on Instagram - https://www.instagram.com/chasing_gre...  He also has a website - https://www.goalembassy.com/coming-so...  Also check out the great work Grey is doing with the team at Move For Life Foundation - https://www.moveforlifefoundation.com/  If you found this chat interesting please hit the like button and remember to subscribe.    For anyone that has any questions or would like to join me for a chat on the podcast then please find me here -    Instagram - https://www.instagram.com/danny_hiles86/ Facebook - https://www.facebook.com/danny.hiles/

Danny Chats Episode 37 features special guest Vicki Lee.   In this Episode Vicki talks us through her transplant process. Vicki explains the reasons she needed the transplants and tells me what she is up to a year after having the life saving operation.    Its been a real joy to follow Vicki through her transplant journey on Instagram, if you want to give her a follow the link to her Instagram is below.   https://www.instagram.com/vicki_survi...  Thank you for watching, if you found this podcast interesting then please hit the like button and subscribe for more videos.    Follow me - Danny Hiles  https://www.instagram.com/danny_hiles...

Danny Chats Episode 36 features special guest Eliza.   In this episode Eliza talks to me about her heart transplant and how she came to find out that she would need one.   We talk about life in hospital and moving from the children's ward to adult care and how that differs.   Eliza talks about how her life is after transplant  compared to before and we chat about the projects she is working on.   Some of you may know Eliza from her Podcast, Transplant Chats With Eliza and she also runs one to one coaching sessions for transplant patients.   Eliza's Instagram is full of informative information and she also has a Facebook Group for young female transplant patients.    https://www.instagram.com/transplantchatswitheliza/ Bellow is a link to Eliza's website where you can find her podcast, book coaching sessions and read more about her story.   https://transplantchats.com/ You can find also find me on Facebook and Instagram I'm always happy to connect with new people.   https://www.facebook.com/danny.hiles https://www.instagram.com/danny_hiles86/

Danny Chats Ep33 features special guest Margaret Elizabeth.    In this episode, Margaret tells us how in her early twenties, Wilson's Disease left her fighting for her life.  Over a very short period, Margaret became so ill she could barely walk, write or feed herself. As you can imagine, this was a hugely worrying time for her and her family.   Once the doctors had diagnosed Margaret with Wilson's Disease, she recalls how she had to dig deep and find her inner strength and determination to get her life back.    With the proper medication, lots of support from her family and medical team, plus a huge effort both physically and mentally on her part, Margate is now living a quality of life some of her doctors said she might never achieve.    Margaret is a very proud Mum to a beautiful baby boy, and in this chat, she talks me through her pregnancy and how her doctors managed her medication throughout the whole process.    Wilson's Disease really can be a complex disease to deal with, and even now, Margate still has some bad days, although she says the good days definitely out way the bad.    If you would like to say hello to Margaret or you have any questions, you can find her on Facebook or Instagram.   Facebook - https://www.facebook.com/margaret.e.h... Instagram - @wick3d.mag   Also, if you would like to join me on an episode of Danny Chats or you have any questions for me, you can find me on Facebook or Instagram too.    Facebook - https://www.facebook.com/danny.hiles/ Instagram - https://www.instagram.com/danny_hiles86/

Danny Chats Ep32 Wilson's Disease; Special Guest Emilia Quezgo.   My guest Emilia is from Mexico and she talks to me about her experience of being diagnosed with Wilson's Disease and how she has struggled to get the correct medication.    The main Wilson's Disease medications are not available in Mexico so Emilia has had to apply for a special permit and gets them from Canada or America.     As many of you will know, being without medication can be deadly to a Wilson's Disease patient so not having medication available can be a big problem.    Emilia is now using her knowledge to try and help other Wilson's Disease patients from Mexico get access to the correct mediation too.  You can find Emilia on Instagram @wilsondisease_mx   Thank you for listening to this podcast, if you found it interesting please hit the like button and remember to subscribe to my channel for more videos.    If you have any  questions or you would like to join me for a chat then please give me a message on either Facebook or Instagram.   Facebook - https://www.facebook.com/danny.hiles/ Instagram -  https://www.instagram.com/danny_hiles86/

Danny Chats Episode 31 features special guest Caroline Tancredy.   In this episode Caroline tells me how Wilson's Disease affected her and her twin sister Marry, who sadly lost her life before being diagnosed.   Caroline was asymptomatic but when tested for Wilson's Disease she still had very high copper levels and was put on medication immediately. Some of this medication Caroline took had side effects and she tells me more about this.       This is the first Wilson's Disease chat I have done where we go into more detail about how Wilson's Disease and the medication may affect pregnancy. Caroline is very open and honest about how her pregnancy and we talked about things I had not previously thought about.     As always I really enjoyed this chat, I am privileged to get to talk to so many amazing people.     If you found this interesting please give it a like and subscribe to the channel for more videos.    If you have any questions or would like to join me for a chat you can find me on Facebook or Instagram.   Facebook - https://www.facebook.com/danny.hiles/ Instagram - https://www.instagram.com/danny_hiles86/    Blog - https://organtransplant.home.blog/201...

Danny Chats Episode 30 features special guest Jaskaran Singh.   Jaskaran was diagnosed with Wilson's Disease in March 2017 but before that his Doctors had miss diagnosed him with Bipolar.  Its very common for WD patients to be miss diagnosed at first as the symptoms also match up with many other diseases and illnesses.     Once on the medication, Jakarans copper levels started to drop but he still has many of the neurological effects.    Jakaran is a hugely positive and inspirational person who has been making videos on his Youtube, giving other people tips on how he manages the neurological effects of his WD.    I also have a little chat to Jakarans parents who have been doing there best to support him, they also have some tips on keeping track of medication and how a change in dose may affect a person.    1Big thank you to Jakaran for taking some time out of his day to chat with me.

Danny Chats Episode 29 features special guest Elisha Emerald.   Elisha was diagnosed with Glycogen Storage Disease when she was 4 months old and this meant having lots of treatment and constantly having to worry about her health.    When Elisha reached her 20's the Doctors told her she would not live for much longer without having a liver transplant.    Elisha's brother became a living liver donor to her but unfortunately after 4 days Elisha needed another transplant.    I'm pleased to say Elisha is stable now and she is currently working for Lyfebulb who work around raising awareness and connecting transplant patients together.    You can find Alisha on Instagram - https://www.instagram.com/alisha.emer...  Also Lyfebulb - https://www.instagram.com/lyfebulb/  Thank you for listening, if you found this video interesting please subscribe and hit the like button.  If you have any questions or you would like to join me on an episode you can find me on;   Facebook - https://www.facebook.com/danny.hiles  Instagram - https://www.instagram.com/danny_hiles86/

Danny Chats Episode 28 features special guest Denise Redeker.   Denise had a heart transplant in 2018 and is very open about her journey through recovery.    Denise faced a few obstacles along the way but is now doing really well and is often out running, hiking or holding charity events for Heartfelt Help Foundation.    Denise is the founder of Heartfelt Help Foundation and she tells me about why she set it up and what the the goals are for the future.  It really is a great charity and I have added a link to their website here so you can check it out.      https://www.heartfelthelpfoundation.com/  If you wish to find Denise she is on Instagram  Search - @DeniseRedeker    It was great fun talking with Denise and I really hope you find this video interesting.   Don't forget to hit the like button and leave a comment.   If you wish to see more videos please use the subscribe button, its FREE.    Thank you for watching, if you have any questions you can find me on Facebook or Instagram.   Facebook - https://www.facebook.com/danny.hiles Instagram - https://www.instagram.com/danny_hiles86/

Danny Chats episode 27 features special guests Jeff and Ryan aka The Kidney Boyz    In this episode Jeff and Ryan tell me about their transplant experience and how that has lad them to join in at the Transplant Games and at Lyrics For Life.    After meeting each other at hospital and then learning that they both lived in the same area Jeff and Ryan began making music together and this where  The Kidney Boyz was born.   The Kidney Boyz wrote original songs based around being transplant patients and performed these songs at Lyrics For Life and also at The Transplant Games in America.   Its the first time I had heard about Lyrics For Life so the guys explained more about that too me.  It's such a cool idea that loads of transplant patients get together and perform songs of their choice in an X Factor style competition.   You can find The Kidney Boyz music on most streaming platforms or by clicking this link.  https://linktr.ee/TheKidneyBoyz    They also have a Youtube channel - https://www.youtube.com/channel/UCdO-g1JJu4O2gPzUJxFUIcQ   Thank you for watching, I hope you found this podcast interesting.    Please hit the like button and subscribe for more videos.    If you have any questions or would like to join me on an episode of Danny Chats please message me on Facebook or Instagram.   Facebook - https://www.facebook.com/danny.hiles Instagram - https://www.instagram.com/danny_hiles86/

Danny Chats Episode 26 features special guest Brooke Gurrad.    After joining Brooke on her podcast The Bonus Years to talk about my transplant journey it was a pleasure to have her join me on Danny Chats.    Brookes need for a transplant was a huge surprise to her as she had had very good health up until her 20's.    Over a very short time Brookes liver started to fail and although she didn't realise it she would soon in need of a new liver in order to live.    Brooke is very open and honest about her journey and I think lots of transplant patients will relate to the feeling and emotions she felt along the way.    I highly recommend checking out her blog and podcast The Bonus Years https://www.thebonusyearsblog.com/  Big thanks again to Brooke for taking some time out to chat with me.   If you found this podcast interesting please give it a like and leave a comment.   If you would like to join me on an episode you can find me @   Facebook - https://www.facebook.com/danny.hiles Instagram - https://www.instagram.com/danny_hiles86/

Danny Chats Episode 25 features special guest Jareb Gutierrez.    In this episode Jareb tells me about his experience with Wilson's Disease, like me Jareb was diagnosed in his early teens.    Like most Wilson's Disease patients the diagnosis took some time but one Jareb was diagnosed he was soon put onto medication.     Jareb has been able to live a happy stable life since being on the medication and over the years he has developed a passion for photography.   Jareb Instagram - @jnggtzphotography    Check out his webpage here - https://vsco.co/gtzphotography/galler...  If you have any questions or would like to join me on an episode of the podcast you can find me @   Facebook - Danny Hiles   Instagram - @danny_hiles86