Conversations About Advance Care Planning

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Ayre, we focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources. In our final episode of this season we talk about words used when someone may be approaching the last days of life. This episode closes the current season. I'll be back on 4th April with more fabulous guests and Conversations About Advance Care Planning.  Resource mentioned in this episode David Oliver: What to say when patients are "sick enough to die"  David Oliver: Public misunderstanding, myths, and misinformation can hamper good end-of-life care  Better End of Life Report 2024  Hope for the Best Plan for the Rest  Death of an Ordinary Man by Sarah Perry The Safari Concept   For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Ayre, we focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources. In our penultimate episode, episode nine we talk about the word "pathway". Listen in and share the conversations. Resource mentioned in this episode Review of Liverpool Care Pathway for dying patients   Priorities for care part of new approach to care for dying people  Debunking Myths About Dying with Dani & Clare  For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.   If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode eight we talk about what CPR is, and when it might be considered an inappropriate treatment. Listen in and share the conversations. For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY  

In episode seven we talk about medication and syringe pumps in the last days of life. Listen in and share the conversations. Resource mentioned in this episode Listen to  Anticipatory Prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers Read: The Gosport Report  Watch: 'Dying is not as bad as you think' | BBC Ideas  By Dr Kathryn Mannix   For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources.. In episode six we talk about nutrition and hydration in the last days of life, listen in and share the conversations. Resource mentioned in this episode NICE Guidance available at: Care of Dying Adults in the Last Days of Life QS 144 Dr Kathryn Mannix videos can be found at: Dying is not as bad as you think  What happens as we die? Kathryn Mannix. TEDxNewcastle Dying for beginners, Dr Kathryn Mannix   For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode five we talk about choice and autonomy. Listen in and share the conversation.. Resource mentioned in this episode Blog: Assisted Dying – an open letter to Esther Rantzen  Read Hope for the Best Plan for the Rest Access the Waiting Room Revolution  podcast  For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode four we talk about  what we mean by treatment, withdrawal and care.  Listen in and share the conversations. Resource mentioned in this episode GMC Guide:Treatment and care towards the end of life: good practice in decision making Podcast: When doing nothing is doing everything with Dr Erica Borgstrom  Podcast: Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John  Video: Not intervening as a form of care     For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In episode three we talk about Care in the last days of life, we explore terminology, recognise the challenges of identifying this phase of life and share resource and information about Ordinary Dying. Listen in and share the conversations. Resource mentioned in this episode NICE Care of dying adults in the last days of life  Quality standard Reference number: QS144 Published: 02 March 2017 One Chance to Get it Right CHELsea II: Cluster randomised trial of clinically assisted hydration in patients in the last days of life.  Dr Kathryn Mannix Dying is not as bad as you think' | BBC Ideas   For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resource. In episode two we talk about Palliative Care, what it is, societal and professional taboos and the positive impact of early access to palliative care. Listen in and share the conversations.   Resource mentioned in this episode Access the Clair Fisher legacy work hosted on Speak For Me Listen to the first podcast featuring Clair Fisher in which Clair explains the benefits of early intervention palliative care and Advance Care Planning: How to ensure your plans are heard with Clair Fisher  Read Hope For The Best Plan For the Rest  Listen to the Waiting Room Revolution podcast  Podcast: Terminology and language around discontinuing dialysis with Dr Barny Hole & Dr Emma Murphy.  Listen and see show notes and resource. Podcast: Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy.Listen and see show notes and resource.   For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website.   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Welcome to a new season of podcasts. I am delighted to welcome back Dani Ayre, explore words and bust myths associated with palliative and end of life care. Over the course of this season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words. In episode one we talk about End-of-Life Care, what it is, societal and professional taboos and offer useful tools for identification. Listen in and share the conversations. Resource mentioned in this episode NICE Guidance:  End of life care for adults QS13 NHS resource: End of life care at home  NHS information: What to expect from end-of-life-care   The General Medical Council: Treatment and care towards the end of life: good practice in decision making  Dr Jared Rubenstein video: Palliative Care PSA - We're the fire department, not the fire.  Identification Tools Proactive Identification Guidance (PIG)​  The Supportive and Palliative Care Indicators Tool  Comparing the ECOG Performance Status and the Karnofsky Performance Status Scales    For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website.   Find out more about how I can work with youIf you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.  If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Hi, Clare here on the other side of the mic for once! I was honoured recently to be asked to talk with Ruth Germain for her brilliant podcast - so who cares anyway. Listen in to hear our discussion…. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode, released during National Grief Awareness Week, I catch up with James Norris about Communication Technology & Bereavement. Listen in to learn about valuable new resource and the different ways this can support people who are bereaved. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Have you ever wondered about the complexity of Advance Care Planning in a critical situation? This episode expands the theme of "decision to treat at home", with paramedic Tom Pullen. It's a case study in which Tom shares the nuance of decision making. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

"Decision to treat at home", five small words but a huge impact. Listen in to hear how a shift in language can shape person centred care with paramedic Tom Pullen.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Mary Miller, consultant in palliative medicine and Clinical Lead for the National Audit of Care at the End of Life. It's a super discussion and we hone in on key findings and recommendations. Listen to hear what we must do better. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode, it is my pleasure to talk with Dr Suzy Lishman, a consultant histopathologist and medical examiner. Listen in to hear about the new medical examiner role, why it was introduced and how it is improving care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY  

In this episode it is my pleasure to talk with Professor Katherine Sleeman about the new Impact Centre for Palliative and End of Life Care. Listen in to  learn about the centre's aims and hear how you can be involved. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY  

In this episode it is my real pleasure talking to my ex colleague and very dear friend Nicky Bonthron.  Our careers have crossed paths over the years and we have worked together in different palliative care teams in hospices and acute hospitals.  Nicky generously shares her experiences of caring for four people at the end of life and there are so many powerful messages in the stories. Nicky talks about the importance of planning, the difference that the ReSPECT process made and why we need to talk more about Ordinary Dying. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk to Deborah Meller, founder of the NOTA:BENE System. The  NOTA:BENE System is manual filing and worksheet solutions to help individuals and families organise essential life information before it's needed. Recognising that estate planning often overlooks the admin element, Deborah created a structured system to make life easier for those planning and those left behind. Through her 'Today's Story' series on social media, she highlights real-life examples of why sorting the admin is an act of love, not just an administrative task. In this episode, Deborah discusses the importance of a person's day to day admin in Advance Care planning and simple ways to get started. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Jared Rubenstein, a paediatric palliative care doctor and creator of  videos to help talk about difficult things. Listen in to hear the stories behind the videos and how Jared challenges many misconceptions about palliative care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY