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Glioblastoma aka GBM

Author: Amber Barbach

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Glioblastoma aka GBM is a podcast by the Glioblastoma Research Organization that highlights the stories of our community, from Glioblastoma Warriors, to caregivers, medical advisors, and more. Glioblastoma aka GBM is hosted by Amber Barbach, who founded the Glioblastoma Research Organization in 2018, after her father was diagnosed with and passed away from Glioblastoma.

This podcast is an exploration of stories and personal experiences, and is not meant to be taken as medical advice of any kind. If you have questions, always consult with your own medical providers and healthcare team. You are warmly invited to connect with the team at the Glioblastoma Research Organization, and share your own stories and experiences. For more information, please visit gbmresearch.org

42 Episodes
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In this insightful episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Marc Hedrick, President and CEO of Plus Therapeutics. Dr. Hedrick brings his extensive background in surgery and regenerative medicine to discuss the forefront of cancer treatment—targeted radiotherapeutics. He delves into the exciting developments of the ReSPECT GBM clinical trial, addressing the challenges and innovative approaches to treating recurrent glioblastoma, a notoriously difficult condition to manage. Listen in as Dr. Hedrick shares his unique insights on the potential of new therapies and the future of glioblastoma treatment. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and clinical trials. For more information and support resources, visit GBMResearch.org. Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/for-patients/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.
In this inspiring episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Sheri Dewan, a trailblazer among the elite group of female neurosurgeons. With a career that spans across continents and cultures, Dr. Dewan brings her unique perspective to some of the most complex neurosurgical challenges. She discusses her groundbreaking new book, "Cutting a Path," her dedication to global healthcare, and her experiences with charity surgery in Southern India. Additionally, Dr. Dewan delves into medical intricacies and advanced surgical techniques that have never before been discussed on our show. Join us as we explore the intersection of gender, innovation, and compassion in the field of neurosurgery with one of its most dynamic practitioners. Trigger Warning: This episode includes discussions on surgical procedures and medical conditions. For more information and support resources, visit GBMResearch.org. To purchase Cutting a Path: The Power of Purpose, Discipline, and Determination, visit: https://www.amazon.com/Cutting-Path-Purpose-Discipline-Determination/dp/161254620X. Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.
Join us for an enlightening episode of The Glioblastoma AKA GBM Podcast with Dr. Netanel (Nati) Ben-Shalom, a trailblazer in neuroplastic and reconstructive surgery. Dr. Ben-Shalom, the world’s first neurosurgeon to complete the prestigious Johns Hopkins Neuroplastic and Reconstructive Surgery fellowship, discusses his innovative approaches in neurosurgery that not only enhance surgical outcomes but also significantly improve the quality of life for patients with brain tumors. In this episode, learn about the revolutionary techniques and implantable biomaterials that are transforming patient care, how 3D printing and third-generation cranial implants are used to minimize physical deformities and enhance recovery, and why a holistic approach is crucial for successful treatment outcomes. Trigger Warning: This episode includes discussions on medical conditions, surgical procedures, and cancer treatments. For more information and support resources, visit GBMResearch.org. Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/for-patients/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.
In this compelling episode of The Glioblastoma AKA GBM Podcast, we welcome Jordy Glassner, a dedicated therapist who brings a unique dual perspective as both a caregiver and a current patient battling glioblastoma. Jordy opens up about her diagnosis, and how her professional background in therapy has shaped her approach to treatment and self-care. Join us as we explore the emotional and psychological impacts of glioblastoma through Jordy's eyes, offering insights into resilience, therapy, and maintaining hope in the face of adversity. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and emotional health challenges. For more information and support resources, visit GBMResearch.org. Episode sponsor: Imvax *Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.
Join us for the Season 3 premiere of The Glioblastoma AKA GBM Podcast, where we delve into the heart and mind of multi-platinum singer-songwriter Mike Posner. In this deeply personal episode, Mike shares his journey through the harrowing landscape of glioblastoma as he witnessed his father’s battle with this aggressive form of brain cancer. As we explore the layers of grief and healing, Mike opens up about how this experience has reshaped his creative process and his outlook on life. In this conversation, we cover: The profound impact of his father’s glioblastoma diagnosis and the family’s journey through treatment and loss. How grief has influenced Mike’s music and artistic expression. Cherished advice from his dad that continues to guide him. Mike's vision for living a meaningful life in the wake of personal tragedy. Mike Posner, known for his hit songs and remarkable resilience, brings a unique perspective on dealing with loss, channeling creativity, and finding purpose amidst pain. This episode is a touching reflection on love, loss, and legacy. Trigger Warnings: This episode contains discussions on medical conditions, cancer diagnosis, and end-of-life themes. For more insights and to support the Glioblastoma Research Organization, please visit GBMResearch.org. Disclaimer: The content shared on The Glioblastoma AKA GBM Podcast represents personal stories and is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider with any questions regarding a medical condition.
Queen Mother

Queen Mother

2023-08-2451:49

The finale of Season 2 of Glioblastoma aka GBM is here, and to wrap up the season we'd like to welcome Elissa Barbach to the show. Elissa was a caregiver and lost her husband to glioblastoma in 2018, and has learned to rebuild her life after losing her best friend - while still being incredibly gracious, kind, loving, caring, positive - and overall, a great mom. On this episode, you'll hear us chat about: The early stages of finding out her husband had a brain tumor Being a caregiver on her own The end of life progression Her grief and how she's worked through it Her emotional support puppy -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer, end of life, end of life progression, death, terminal illness, grief, loss of spouse, and being so unbelievably proud of your mom for sharing her story. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
David M. Ashley, PhD, FRACP, MBBS (Hons), Director of the Preston Robert Tisch Brain Tumor Center at Duke joins us on this episode to discuss his history in neuro-oncology, innovations happening at the Brain Tumor Center, clinical trial advancements, and his past-life as a surfer. On this episode, you'll hear us chat about: - What led him to Duke - The world-renown Duke Polio clinical trial & it's comeback - His work in discovering how scientists can learn to prevent brain tumors - The brain & it's own lymphatic system - How research is translated from in-vitro to in-vivo -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer, cancer treatment, clinical trials, scientific terminology, and realizing that this episode may have taught you more in 39 minutes than any of your high school science classes did. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Vidya Gopalakrishnan, Ph.D is a researcher at MD Anderson Cancer Center, an esteemed member of the Glioblastoma Research Organization Medical Advisory Board, and has a laboratory focused on research for DIPG (Diffuse Intrinsic Pontine Glioma). On this episode, you'll hear us chat about: - What sparked Vidya's interest in working on brain tumor research - Immunotherapy at MD Anderson Cancer Center - The science behind brain tumors - The difference between tumor types and tumor locations - Her hopes for advances in the field -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer, cancer treatment, and significant medical terminology. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Kate Snedeker started Gray for Glioblastoma Society at just 19 years old in an effort to create a hopeful space for all those impacted by GBM, and to help raise funding for research through community events. Kate joins us on this episode of Glioblastoma aka GBM to discuss the inspiration behind GFG, and how she's utilizing social media to make an impact. On this episode, you'll hear us chat about: - Kate's dads journey with GBM - Starting a nonprofit while still full-time in college - The inspiration behind GFG's original merchandise (Fun Fact: Kate and her dad always told each other "I love you to the moon and back", which is what the title of this episode refers to) - How Kate is processing her grief - Amber's future aspirations for the Glioblastoma Research Organization -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer diagnosis, grief, loss of a parent, traveling to avoid grief, death, and working 12+ hour days. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Sadaf Chaudry lost her husband Rehan Aslam back in 2022 to glioblastoma. Sadaf joins us on this episode of Glioblastoma aka GBM to share her story, advocate for caregiver support, and share raw and honest truths about the effect glioblastoma has on families. On this episode, you'll hear us chat about: - How Sadaf and Rehan met - How it is to continue parenting after the loss of your partner - Grief in children - The legacy she wants to leave behind - The journey of learning to take over responsibilities after the loss of your partner -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer diagnosis, grief, grief in children, loss of a partner, death, xanax, and realizing that although it is called glioblastoma, diabloblastoma is just as fitting. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
A Parents' Love

A Parents' Love

2023-07-0601:06:11

Amani Liaquat was just 22 years old when she was diagnosed with a glioblastoma, and passed away in 2022 from the disease. Amani spent a majority of her diagnosis focused on advocacy efforts, and raising awareness for GBM. Her parents, Yasmin and Khuram, join us on this episode to discuss Amani's journey and how her legacy lives on. On this episode, you'll hear us chat about: - Amani's story - The grief of losing a child as a parent - The difference in grief between men and women - How Amani's legacy lives on - & so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer diagnosis, grief, loss of child, medical terminology, anxiety, death, and coming to the realization that women do in fact speak 50% more than men. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Piecing the Puzzle

Piecing the Puzzle

2023-06-2952:33

Dr. David Langer is the chair of neurosurgery at Lenox Hill Hospital and vice president of neurosurgery for Northwell Health's Western Region. His love for neurosurgery and mentorship is infectious. On this episode, you'll hear us chat about: - His love for neurosurgery - What it's like being the chair for a major institution and running the department - How Lenox Hill on Netflix & Emergency NYC came to be - His thoughts on stoicism and philosophy - & so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: medical terminology, surgery, end of life, cancer diagnosis, and stoic ways of thinking. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Greg Link is an 8+ year glioblastoma survivor and thriver. He's an advocate for talk therapy, and an advocate for multiple professional opinions. Now, he spends his time focused on his communications company and being a support system for others living with a brain tumor. On this episode, you'll hear us chat about: - His business, and what inspired him to kickstart his career - His thoughts on talk therapy - His advocacy work in helping others with a GBM diagnosis - His current day-to-day, 8+ years post-initial diagnosis - & so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: medical terminology, cancer diagnosis, surgery, talk therapy, and understanding that it's ok to live life on your own terms. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Starting with Zer0

Starting with Zer0

2023-06-1542:57

Catherine Ivy is on a mission to find a cure for brain cancer, with Dr. Nader Sanai and the rest of the incredible team at the Ivy Brain Tumor Center. On this episode, you'll hear the three of us chat about: - Catherine's passion for finding a cure - What inspired Dr. Sanai to dedicate his life to research - Phase 0 clinical trials & how they work - Recharging and finding creativity in your day-to-day - What to do when you/a loved one is diagnosed - & so much more Trigger warnings may include: grief, medical terminology, cancer diagnosis, and thinking great-white-shark-diving may or may not be a good idea. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Sit down with us this week on Glioblastoma aka GBM as we're joined by Diane Pathieu - an American television anchor who works for WLS-TV in Chicago, and her husband Nick Adamski - a glioblastoma thriver. On this episode, you'll hear us chat about: How Diane and Nick met PMA: Positive Mental Attitude Methylation profiling How hope has such a significant impact on one's life The importance of keeping a normal routine when dealing with a brain cancer diagnosis & so much more Trigger warnings may include: medical terminology, caregiving support, cancer, death, morality, and being the first one to make a move to ask someone on a date. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Saved by Broadway

Saved by Broadway

2023-06-0146:09

Dr. Henry Friedman is world renowned for his work in Neuro-oncology at Preston Robert Tisch Brain Tumor Center at Duke University. He is also a karaoke star, a massive Broadway fan, a mentor, a die-hard basketball supporter, a husband, a grandfather, and a fantastic podcast guest. On this episode, you'll hear us chat about: How Henry got involved at Duke Upcoming research advancements and clinical trials for glioblastoma The famous Polio vaccine trial at Duke making its comeback UCONN vs. DUKE How "HOPE" is the most important factor when dealing with glioblastoma & so much more Trigger warnings may include: medical terminology, grief/caregiving support, and UCONN being a stronger basketball team than Duke - sorry Henry. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Barbie Blank Coba (aka Kelly Kelly) is best known for her WWE performances, modeling, influencing, and acting - however did you know she co-founded a nonprofit for Brain Cancer Research after losing her dad to glioblastoma? On this episode, you'll hear us chat about: How Barbie got her start in WWE The love Barbie and her dad shared, especially for wrestling The process of getting married and starting a family - without her dad by her side Her nonprofit: Cure Glioblastoma Advice she'd give to someone just starting their GBM journey & so much more Trigger warnings may include: caregiving, end of life, life/milestones/reality without a loved one, grief, and realizing how much in common everyone going through glioblastoma has with each other. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Dave Bolton remains in the top 2% of the world's survivors after given 3 months life expectancy in 2015. He is an 8+ year cancer survivor, helped heal himself with fitness and meditation, has started a charity to help others around the globe, and is an advocate for all those living with brain tumors. On this episode, you'll hear us chat about: Dave's eclectic career background How he found healing with fitness and meditation His nonprofit: Ahead of the Game How his family/home life changed before and after cancer How he continues to advocate for people with cancer & so much more Trigger warnings may include: depression, anxiety, caregiving, end of life, car accidents, traumatic injuries, and losing the "what dog should we get?" debate with your spouse. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
Dr. Randy D'Amico, Director of the Brain and Spine Metastasis Program at Lenox Hill Hospital joins us on Episode 2 of Glioblastoma aka GBM to discuss: The ins and outs of glioblastoma Upcoming developments in neurosurgery His life as a neurosurgeon, and his past-life as a punk band member The future of brain tumors The importance of passion in the medical field & so much more Trigger warnings may include: medical procedures, surgery, and tattoos looking different as you age. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
A Spoonful of Paolo

A Spoonful of Paolo

2023-05-0458:03

To kick off the SECOND season of Glioblastoma aka GBM, we're joined by Paolo Presta as he shines a light on his experience as a caregiver when his mother was living with a glioblastoma diagnosis. On this episode, you'll hear us chat about: Paolo's experience as a caregiver Different stages of the grieving process Paolo's relationship with his mom, and the special relationship they shared Our thoughts/experiences on staying connected to those that have passed away Which our favorite Broadway musical is & so much more Trigger warnings may include: grief, death, caregiving, end of life, and Hamilton not being the favorite musical of choice. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.
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