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The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.
102 Episodes
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We don’t always remember how our first symptom felt, but when new symptoms occur, we are reminded…again, and again, and again. We might look like we are put together, but each of us, optimistic or not, will have our bad days. In this episode, I share mine with Melissa.
Are you bringing all the right things to your PD appointment to make the most out of the time you have? Jessica and her Neurologist, Dr. Andrea Malone, MDS at OhioHealth, discuss how patients and caregivers/family members can prepare for these important appointments.
I had no idea that over 75% of us (people with PD) will develop speech or voice problems at some point along our PD journey. We learned about voice exercises from our previous episode, #45 with Gina a Speech Pathologist, but in this episode, Dr. Loochtan from Ohio ENT will talk about procedures patients can undergo.
We welcome Dr. Patel, MDS from OhioHealth, back to our podcast. In this episode, we discuss why there is a lack of standardization when it comes to medication and treatment for Parkinson's.
The Secret Life of PD: What a great year! While many people don’t think of Parkinson’s as a blessing, we do. 2022 brought us connections with people across the world that otherwise would not have happened. We want to thank you for your support, positive comments, and questions. Keep them coming. We have a lot more in store for 2023!!! Stay tuned!
Ever wonder what your vocal cords look like? Check out this episode as we talk to Steve, our podcast Producer and person with Parkinson's, along with his speech therapist, Gina. Learn the different exercises and therapies available for people that experience voice changes due to Parkinson's.
Did you know people living with Parkinson's can receive botulinum toxin (aka Botox) injections to help relieve rigidity and in some cases tremors and even drooling? Learn more from Dr. Patel, MDS at OhioHealth.
The Secret Life of PD: This holiday season, if you are living with PD, give yourself a pass. Be a little selfish. Stick to your routines. The holidays can be a stressful time for anyone. Stress + Parkinson's = increase in symptoms. So do yourself this holiday season, especially if you have a very big, loud extended family like mine (I mean that in the most loving way possible - and my family would agree), take a break. Allow yourself some time to do what's best for you. Happy Holidays!
The Secret Life of Parkinson's: Freezing of Gait (FOG) is just another potential symptom that people living with Parkinson's may experience. In this episode, we talk to Ginger, a fellow PDNextSteps gym member, who was diagnosed in 2020 and has been dealing with Freezing of Gait for the past year. She shares what it feels like and a few tips that work for her.
The Secret Life of Parkinson's welcomes Jimmy Choi! If you have Parkinson's and don't know Jimmy yet, you have to check this out. He has been living with Parkinson's for over 20 years and is a huge advocate for people living with Parkinson's. During the pandemic, he and his wife started the #MOVEmber4PD - a month-long virtual event to mobilize people to MOVE and spread awareness on how moving helps people with Parkinson's.
The Secret Life of Parkinson's: Over the top. I used to think running a marathon was over the top. Joe Drake has now given over the top a new meaning. In his new book "Run With It" we learn that it's not just the fact someone with Parkinson's is running a marathon that's over the top. Tune in to this episode to learn more.
The Secret Life of Parkinson's: What do you wish you knew when you were diagnosed with Parkinson's? Listen to what some people with Parkinson's wish they knew when they were diagnosed.
The Secret Life of Parkinson's: People are scared when they hear they are diagnosed with Parkinson's. What scares us the most are stories we hear from others or our own memories of family or friends living with Parkinson's that did not have a good life because they gave in to the disease, they didn't exercise (or know to exercise), or it was so long ago that the medications and therapies we now have were not available. So how can we look at Parkinson's as a detour and not a roadblock in life?
The Secret Life of Parkinson's: Check out the last phase of Brian's DBS process - getting the program turned on! His journey with DBS continues, but how it's all about tweaking the program to provide him with the best outcomes for his Parkinson's. Thanks for bringing us along, Brian!
The Secret Life of Parkinson's: In 2020, Carrie Boorse was caring for her 14-year-old daughter who was diagnosed with cancer. During the 6 months of her daughter's chemo treatment, Carrie noticed something was off. Now that her daughter is cancer-free, Carrie started to focus on the pain and issues she noticed months earlier. Her doctor assured her that whatever she was feeling was probably due to the traumatic experience she just endured. But Carrie wasn't sold. That's when she met with a Neurologist...or three.
The Secret Life of Parkinson's: Another great episode with Melissa Carlson, fitness instructor, and Owner of PDNextSteps. In this episode, Melissa explains that it's never too late to start strength training - so start today if you haven't already!
The Secret Life of Parkinson's: Did you ever wonder what the Parkinson's Foundation has to offer people living with Parkinson's and caregivers? Well, tune in and find out the resources that are right at our fingertips to live a better life today.
The Secret Life of Parkinson's: Ever feel like life is just too hard with Parkinson's? While she may have hard days like the rest of us, Karen Downing shares her experience with not just Parkinson's, but heart disease and breast cancer (2x survivor)! At the age of 72 after her PD diagnosis, Karen started exercising for the first time. She makes no excuses for bettering herself. Do you?
The Secret Life of PD: We would like to welcome Dr. Wayne Markman, CEO of Symbyx Biome in Australia. Wayne shares his knowledge of the history of light laser therapy. Is this a new tool to help slow the progression of Parkinson's?This is not a paid promotion. Brian and I were simply interested in the device and wanted to learn more in this area.
The Secret Life of Parkinson's: In this episode, we check in with Brian who has gone through deep brain stimulation surgery: the right side in June, the left side in July, and the battery implant in August. We get a chance to talk to him about the ups and downs, right before his DBS equipment get's "turned on".
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