Claim OwnershipNICU Alumni Podcast
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Welcome to the NICU Alumni Podcast. Your baby has graduated from the NICU (Neonatal Intensive Care Unit), and you're finally home! Now what? We know that the end of the NICU journey is the start of a whole new experience. So, we're dedicated to supporting families as they navigate life after the NICU. We're so glad you're here!
51 Episodes
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In this episode of the NICU Alumni Podcast, host Andrea Hickson is joined by co-authors Emily Souder and Mahaley Patel to talk about the lasting impact of NICU experiences on families. Together, they reflect on grief, healing, and how storywork can help parents process these experiences and emotions. The conversation highlights the duality of grief and gratitude, the importance of community support, and the creation of Your NICU Story Book, a meaningful resource for families navigating life a...
This is the first episode in a two-part podcast series, From Discharge to Home: Insights for Providers and Families, brought to you in collaboration with AngelEye Health. This series was created to provide insights for both healthcare providers and families navigating the NICU discharge process. Our goal is for the series to be educational, informative, and empowering; emphasizing how technology, like AngelEye’s NICU2Home, along with NICU Alumni’s support, can help families and care teams dur...
This is the first episode in a two-part podcast series, From Discharge to Home: Insights for Providers and Families, brought to you in collaboration with AngelEye Health. This series was created to provide insights for both healthcare providers and families navigating the NICU discharge process. Our goal is for the series to be educational, informative, and empowering; emphasizing how technology, like AngelEye’s NICU2Home, along with NICU Alumni’s support, can help families and care teams dur...
In this episode of the NICU Alumni Podcast, we speak with Susan Reynolds, author of While I Breathe, about her journey as a NICU mom to her son Ryan, who was born prematurely and diagnosed with Down syndrome. Susan reflects on the lasting impact of their NICU experience and how Ryan’s life and his passing continue to shape her purpose and advocacy. Drawing from her background in pediatric medicine and bioethics, she shares meaningful insights on family-centered care, the power of advocacy, an...
In this episode of the NICU Alumni Podcast, we welcome Jennifer Bernardo, author of Week 26. Jennifer shares her story of having twins born at just 26 weeks and their four-month NICU stay. We explore the emotional toll of life in the NICU, the transition home, and the critical role of community support. Jennifer opens up about writing her memoir and including multiple perspectives to capture the complexity of the NICU journey. She offers heartfelt advice for families facing similar paths, rem...
In this episode of the NICU Alumni Podcast, Andrea is joined by Dr. Jessica Allen, a gerontologist, and proud adoptive mama. Jessica shares her family’s NICU experience after her daughter was born prematurely with short bowel syndrome. She speaks about advocating for her daughter’s care, navigating life as a working parent, and learning to manage complex medical needs. This conversation is filled with empathy, encouragement, and practical tips for all families preparing for life after the NIC...
In this episode of the NICU Alumni Podcast, host Andrea Hickson speaks with Jen Mansfield, a licensed professional counselor and mother, who shares her profound journey through the NICU and the loss of her son, Adam, born at 24 weeks. Jen reflects on the overwhelming experience of the NICU, the meaningful connections with the staff, and the support from her community. She discusses the challenges of transitioning home after Adam's passing and the healing practices that helped her navigate gri...
In this heartfelt episode of the NICU Alumni Podcast, Misti Staley shares her profound journey as a mother who faced unimaginable challenges with her son Freeman, who spent significant time in the NICU and PICU. After losing Freeman, Misti transformed her grief into advocacy, creating the Freeman Foundation and developing innovative solutions for families facing similar struggles. Our conversation explores the emotional rollercoaster of NICU life, the importance of community support, ...
In this episode of the NICU Alumni Podcast, host Andrea Hickson speaks with Ashli Daly, a registered nurse and baby coach, about her journey from working in the NICU to supporting families as they transition home. Ashli shares her experience working in various NICUs, the importance of seeking help, and how her background informs her current practice as Ashli The Mama Coach. The discussion also covers practical advice for new parents, including the importance of giving oneself grace and persev...
In this episode of the NICU Alumni Podcast, host Andrea Hickson sits down with Chelsea Sams, MSN, RN, CPST, perinatal nurse educator, and founder of I Know Newborns. With over eight years of NICU experience, Chelsea shares her journey from bedside care to empowering NICU families through education and advocacy. Together, they discuss the unique challenges NICU graduates face after discharge, including health risks, navigating pediatric care, and finding essential community resources. C...
In this episode of the NICU Alumni Podcast, Andrea Hickson speaks with Vanessa de la Llama, a licensed mental health counselor, about the complexities of navigating insurance and healthcare for families with NICU graduates. They discuss the importance of being proactive in seeking appointments, understanding insurance coverage, and the necessity of mental health support for parents. Vanessa emphasizes the need for self-care and especially for planning for post-NICU care. Their conversa...
Nicole Nyberg is the proud mother of a former 23-weeker and a Neonatal Nurse Practitioner. With her unique perspective as both a clinical expert and a micropreemie mom, she’s dedicated to sharing her knowledge and experience. Nicole is the Founder and CEO of Empowering NICU Parents, providing education, support, and empowerment for parents and clinicians, focusing on how parental involvement in the NICU positively impacts an infant's long-term development. She's also a podcast host and author...
Cristal Grogan shares her experience of her son's NICU stay overseas in Spain and the challenges they faced. She discusses the language barriers, socialized medicine, and lack of family-centered care in the NICU. Cristal emphasizes the importance of parent advocacy and education, as well as long-term neurodevelopmental outcomes. She also highlights the need for support and resources for families, especially those with children with complex medical and mental health needs. Cristal's jou...
Dr. Danielle A. Cierak and Flor Tena discuss their work in the NICU and the challenges families face after leaving the hospital. They developed the Baby Steps transition of care model to support NICU patients and families during the difficult period after discharge. The Baby Steps program provides support to families after their NICU stay, helping them transition to home and navigate the challenges of caring for their baby. The program starts when a dedicated telehealth NICU nurse meets with ...
In this conversation, Andrea and Rita discuss their experiences with the NICU and the challenges they faced. They talk about the emotional impact of the NICU stay, the difficulties of bonding and providing care in the NICU, and the feeding challenges they encountered. They also discuss the importance of celebrating milestones and how their children have connected with their NICU experiences as they've grown older. Rita shares her involvement in supporting NICU families through the NICU Family...
Darla Vazquez shares her journey as a NICU parent and the challenges she faced raising her son, who was born prematurely and spent 203 days in the NICU. She discusses the importance of advocacy and the need for support in navigating the medical system. Darla also talks about her work in helping families transition their children from G-tube feeding to oral eating, providing resources and guidance for parents in similar situations. In this conversation, Andrea speaks with Darla about life afte...
We had the best conversation with Ashley and Martha of Dear NICU Mama! Vilma shares how she became connected to DNM and then later went on to become a founding board member of NICU Alumni. Quick Takeaways from the Episode: Dear NICU Mama is rooted in the desire to connect with others who are also going through the NICU journey so that they know they are not alone and are part of the shared sisterhood.Listen to Ashley’s NICU StoryListen to Martha’s NICU Story Part 1 and Part 2Listen to Vilma’...
Bricen Urquidi is a stay at home mom of 3 kids. She has been involved with ICU baby (a local nonprofit in Miami that is very near and dear to us at NICU Alumni) for over 8 years and is a volunteer at her children's school and other organizations in Miami. Her NICU journey began with her first born Ila and that experience lead to helping others in need. Ila is a 9th grader at a local school in Miami and is a Youth Ambassador with ICU baby. Ila started a club at school called Faith4NICU w...
After giving birth to triplets at just 25 weeks 5 days gestation and losing one of her daughters at 14 months old, Keira Sorrells was propelled into maternal-infant health out of a deep-seated desire to ensure no parent experiences the trauma of preterm birth or loss alone. Together, with a dedicated team of NICU Parent Leaders, Keira has grown the @NICUParentNetwork to be a sought-after resource and collaborative partner for providers, researchers, industry, and other stakeholders in this n...
Dr. Marta Grisel Galarza is a Board Certified Lactation Specialist as well as a Neonatologist at the University of Miami Miller School of Medicine and she has worked at Holtz Children’s hospital since 1997. She is the Medical Director of the Intermediate Care NICU, a 70-bed unit. More recently she developed a Neonatal/Antenatal specific Palliative Care Program for the Division of Neonatology. She has worked endlessly and passionately on these projects because they promote and protect m...
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