Imperfect Heart

This may be one of those episodes that could be considered controversial and I hope it does prompt questions. Dr. Christopher Kwon is a highly experienced cardiac surgeon whose practice in Lake Havasu, Arizona has brought him face-to-face with a growing number of patients living with symptomatic Myocardial Bridges.What made this conversation so compelling is Dr. Kwon’s dual approach—he doesn’t just perform the standard unroofing procedure. He also chooses to bypass the artery in the same operation, giving his patients the greatest chance for long-term relief, in his expert opinion. As he says, it’s a “belts and suspenders” approach.We talk about everything related to the bridge unroofing procedure.The fear patients have around sternotomy,The diagnostic process including provocative testing,The reality of competitive flow in grafts,The insurance coding challenges that can delay care,And, perhaps most importantly, how critical it is to advocate for yourself.Whether you're a patient, a caregiver, or a provider trying to better understand this often-dismissed condition, I believe this episode can give you clarity, confidence, and hope.In This Episode, We Cover:Dr. Kwon’s path from aspiring engineer to heart surgeonWhy sternotomy isn’t as scary as it soundsHis unique method: unroofing + bypass for added protectionWhen provocative testing is useful—but not always requiredWhat to know about LIMA grafts and long-term outcomesWhy some cardiologists still dismiss this condition—and what he tells themThe importance of second opinions and listening to your gutHow insurance coding can make or break your surgery approvalPlus... Dr. Kwon’s life outside the OR, including his two standard poodles ????Guest Info:Dr. Christopher KwonCardiac Surgeon – Havasu Regional Medical Center, ArizonaPhone: 928-453-0890Contact info: https://www.havasuregional.com/find-a-doctor/provider/1225074867Resources:Website: www.myimperfectheart.comBook: Imperfect Heart: Stories of Myocardial Bridges – Now available on Amazon or any digital platform where you find your books/ebooks/audio books.Chapter Summaries(00:00) Cardiac Surgeon Discusses Myocardial BridgesDr. Kwon's journey to becoming a cardiac surgeon, his 21-year career, advancements in cardiac surgery, and treating myocardial bridges.(11:34) Bypass Graft and Competitive Flow DiscussionNature's intricacies of bypass grafts, specifically LEMA and its interaction with competitive flow, surgical strategies, and decision-making processes in complex cardiac surgeries.(20:14) Discussion on Myocardial Bridge TreatmentMyocardial bridging treatment, stenting and surgery, sudden cardiac death, patient self-advocacy, and maintaining well-being through family, pets, and nature.(34:52) Bypass and Unroofing Procedure DiscussionDr. Kwon shares insights on unroofing bypass surgery, making complex medical information accessible and concludes with a light-hearted exchange about his dogs.

Recovering from a heart surgery or cardiac event is never simple—the questions, fears, and “what-ifs” can feel overwhelming. That’s where cardiac rehab steps in, providing a safe, structured, and supportive bridge between the hospital and a confident return to life.In this episode, I'm speaking with Kimberly Lynch, a clinical exercise physiologist at Sutter Roseville Medical Center Cardiac Rehab. Kim is also a Leader of Impact with the American Heart Association which you'll hear a little more about in the episode. Kimberly explains what really happens inside cardiac rehab: monitored exercise, personalized treatment plans, nutrition guidance, and emotional support that helps patients rebuild both body and spirit.Together, we explore the fears patients face, the life-changing impact of rehab, and why this whole-person approach is so essential for recovery. Kimberly also shares her personal passion for advocacy and fundraising, and how community support powers lifesaving research and education.If you or someone you love is navigating recovery after a heart event, this conversation offers clarity, encouragement, and hope on your journey to your "new" normal post surgery. Build confidence and regain the life you choose by learning and understanding what to expect from cardia rehab.Learn more or support Kimberly’s American Heart Association campaign by checking the link HERETo learn more about cardiac rehab at Sutter Roseville Medical Center visit their website HERE.To reach kimberly via email: kimberly.lynch@sutterhealth.orgChapter Summaries:00:00 Introduction to Cardiac Rehab00:40 Welcome to Imperfect Heart02:04 Guest Introduction: Kimberly Lynch02:57 American Heart Association Fundraising06:36 Understanding Cardiac Rehab Programs08:55 Personal Experiences and Challenges15:34 Monitoring and Safety in Cardiac Rehab25:42 Holistic Approach: Nutrition and Mental Health28:25 The Emotional Impact of Heart Procedures28:52 Starting a Support Group for Heart Patients30:15 The Power of Shared Experiences33:08 Graduation and Moving Forward35:11 Virtual Cardiac Rehab Options36:52 Insurance Coverage for Cardiac Rehab39:23 Personal Stories of Recovery45:41 The Importance of Cardiac Rehab48:13 Conclusion and Final Thoughts

This episode I sit down with Vesta Hurlbutt, a cardiac cath lab x-ray tech, functional nutritionist, and host of the Open Heart Healing podcast. This conversation becomes a unique blend of medical insight and personal storytelling, centered around Myocardial Bridges and the power of advocacy—both in the hospital and in life.Vesta offers behind-the-scenes perspective on what happens inside the cath lab, what patients should expect, and why self-advocacy is critical in a system that often overlooks certain heart conditions—especially in women. She also shares how her own healing journey led her to launch Open Heart Healing, a podcast about emotional transformation, self-love, and reclaiming personal power.We'll also explore how their chance connection at a podcast convention turned into a powerful reminder that there are no coincidences—just timely, even serendipitous conversations waiting to happen.IN THIS EPISODE:-What really happens in the cardiac cath lab-How myocardial bridges are identified ( and often dismissed)-The importance of IVUS and other imaging tools-Tips for patients prepping for a heart cath-Vesta's journey from healthcare worker to holistic healing advocateYou can learn more about Vesta:-Host: Open Heart Healing Podcast-Email: vesta@vitalitywithvesta.com-Instagram: @openhearthealingChapter Timestamps(00:00) Myocardial Bridge and Heart Health(13:42) Cardiologists Discuss Heart Bridges(18:39) Advocating for Heart Health Awareness(22:32) Healing Through Holistic Health Perspectives(31:01) Journey to Heart HealthOrder Imperfect Heart: Stories of Myocardial Bridges - Available on Amazon

This is an encore episode as I believe we cannot stress the significance enough for this type of testing to confirm the effects of a myocardial bridge on the patient. The more that's known, the more likely it is that the proper course of treatment can be taken. If you missed it the first time, don't miss it this time. This is a must listen episode.Unlock the secrets of properly understanding and diagnosing myocardial bridges with insight from Dr. Jeffrey Fowler, a leading interventional cardiologist at University of Pittsburgh Medical Center. Our conversation promises to illuminate the often perplexing process of diagnosing these cardiac anomalies and their impact on heart function. Through the lens of minimally invasive procedures and advanced imaging techniques like coronary CT angiograms, Dr. Fowler demystifies why myocardial bridges are not always the main culprits behind chest pain and the definitive testing now being done to ascertain the significance of the myocardial bridge.We're going to explore the intricate world of invasive testing, as we detail the provocative testing process used to evaluate myocardial bridges, their severity and their contribution to angina, or chest pain. Dr. Fowler explains how starting with an empiric trial of medications can lead to more invasive procedures like heart catheterization if necessary. Learn about the steps of the provocative test and the role of acetylcholine in testing for endothelial dysfunction and vasospasm, with reassurances about the safety and reversibility of these tests. This episode is our first on the detail and best practice for diagnosis of the bridge through the provocative test we've heard so much about. It's meant for the education and knowledge for both patients and professionals, enhancing understanding of the nuanced approaches in relatively rare process of diagnosis.Celebrate the spirit of collaboration among cardiology experts as Dr. Fowler shares the necessity of communication and advice. He's consulted with many others along the way including Dr. Shaw at Yale and Dr. Tremmell at Stanford, highlighting real-world case studies like that of patient David Vollmer. Join me in this compelling narrative of breakthroughs and dedication in the realm of cardiac care, and discover how ongoing advancements promise a brighter future for patients everywhere.You can email Dr. Fowler directly at: fowlerja@upmc.eduTo reach Dr. Fowler call 412-647-6000 and ask for him specifically. Or you can visit the hospital website HEREYou can learn more about the Microvascular Network in the link HEREChapter Summaries:(00:00) Understanding Myocardial Bridge Diagnosis ProcessInterventional cardiologist explains use of coronary CT angiogram to detect and manage myocardial bridges in chest pain cases.(10:04) Invasive Testing for Heart ConditionsDiagnosing and treating myocardial bridges through coronary CTA and provocative testing, including an empiric trial of medications and invasive procedures.(22:05) Collaboration in Myocardial Bridge DiagnosisLeading cardiologists collaborate to refine best practices for treating myocardial bridges, using personalized approaches and expert insights.(27:47) Imaging and Diagnosis of Myocardial BridgeAcetylcholine, dobutamine, cold saline, and adenosine are used to assess endothelial and microvascular function in chest pain and exertional symptoms.(37:07) Complex Testing and Treatment OptionsEvaluating myocardial bridges using diagnostic tests to guide surgical interventions, while balancing personal wellness in a high-stakes medical career.(49:16) Cardiac Surgeon Discusses Myocardial BridgesDr. Bonnati's unroofing procedure for David at UPMC, with insights from Dr. Fowler and upcoming perspectives from Dr. Bonatti, enriched by David's journey.

What if facing a serious heart condition could be your turning point towards a more empowered life? Join us as we uncover the extraordinary journey of Teresa Raisanen, a woman who transformed challenges into triumphs. From the mysterious chest pain in 2012 to the life-changing diagnosis of a myocardial bridge in 2024, Teresa's story is one of courage, persistence, and the relentless pursuit of clarity in the face of daunting medical challenges. Discover how her determination and self-advocacy paved the way to finding the right specialists who would ultimately guide her to recovery.Embark on Teresa's incredible path as she navigates the labyrinth of healthcare systems, insurance hurdles, and the pressing urgency of her condition. With the compassionate expertise of Dr. Blair and the logistical support from her husband's airline benefits, Teresa's journey to Houston to meet with Dr. Danny Ramzy for specialized care, is a testament to the power of informed decision-making and resilience. The episode paints a vivid picture of the emotional and physical trials faced by patients seeking timely and effective treatment, spotlighting the critical importance of proactive advocacy in healthcare.As Teresa emerges from surgery, her journey doesn't end—it evolves. This episode highlights the profound impact of support systems, from family and friends to fellow patients like Gabby, illustrating the healing power of community. Teresa's recovery underscores the unique challenges and triumphs post-surgery, emphasizing the necessity of effective pain management and enduring patience. Her story is a beacon of hope, inspiring listeners to prioritize their health and embrace the possibility of recovery, no matter how formidable the journey may appear.If you would like to purchase the book, Imperfect Heart, click HEREChapter Summaries(00:00) Heart Condition Diagnosis and AdvocacyTeresa Raisanen's journey with a complex heart condition, diagnosis of myocardial bridge, self-advocacy, and finding a suitable doctor for treatment.(09:21) Medical Journey With Life-Changing DiagnosisDr. Blair's expertise aids in identifying severe cardiac issues, while logistical challenges arise in scheduling consultations and tests.(22:21) Recovery and Support After SurgerySelf-advocacy and caregiver support are crucial during medical procedures and recovery, along with effective pain management and shared experiences with fellow patients.(36:29) Navigating Cardiology Referrals and TreatmentProactive advocacy and knowledge are crucial in navigating cardiac care, including seeking out specialists and understanding conditions like endothelial dysfunction and myocardial bridging.(41:43) Road to Recovery and InspirationRecovery from endothelial dysfunction takes patience and medication, as shown by Teresa's inspiring journey of healing and prioritizing quality of life.

This episode needs little description. Thanks to Kelly and Tank Sears for their candid and sometimes raw emotion in this conversation as they share the reality of the strain a myocardial bridge can put on a relationship, a marriage, a family. Yes, we'll cover the health portion of the surgery and Kelly's amazing recovery after a less than vacation like visit to Greece to see Dr. Kofidis, but it's the perseverance and trust that both she and her husband demonstrated in getting not only the appropriate health care but how they held it together as spouses in a truly challenging time. And that's not to mention the kids in the mix too. The strength of their love was challenged and the good news... there's a happy ending. Chapter Summaries(00:00) Uncovering a Myocardial Bridge and MoreKelly shares her heart health journey during COVID-19, navigating medical uncertainties and challenges with her husband Tank.(08:22) The Battle for a DiagnosisA patient's struggle with persistent symptoms dismissed by medical professionals, leading to independent research and emotional toll.(21:23) Navigating Medical Challenges With FamilyFamily's challenges with loved one's health, frustrations with American healthcare, seeking treatment abroad, and finding hope in a doctor's potential solution.(28:20) Family Support Through Medical ChallengesFamily decisions during a health crisis, logistics of overseas medical trip, emotional toll, importance of new experiences, involving children, and realization of decisive action.(41:24) Navigating Medical Challenges and MarriagePerseverance and communication are crucial in maintaining a strong relationship through medical challenges, as shown by a couple's experience with treatment abroad.(48:55) Shared Stories Finding ValidationShared experiences and storytelling on the podcast validate and connect listeners, bridging understanding and offering support.

This intro requires few words. We have a friend with a huge podcast and radio audience. 170 stations strong and he gave us the courtesy of interviewing me to help us get our stories told and raise the awareness for the MB condition. Dr. Ronald Hoffman, the longest running physician hosted radio show in syndication on 170 radio stations had no idea what a Myocardial Bridge was. He wanted to know and he wanted his audience to know once he took a look at the book. He gets it and he understood it well enough that he wanted to help us share it to his audience. He saw the value to both his listeners as well as the doctors that listen to his Intelligent Medicine radio show and podcast. With the deepest gratitude, I cannot thank him enough. We're making noise, we're getting traction and we're saving lives in our collective effort to continue to keep getting the word out. Thank you Dr. Hoffman for your interest to host me on "Intelligent Medicine Podcast"!The interview on his podcast is in this link: https://drhoffman.com/rethinking-heart-health-uncovering-myocardial-bridges/You can find out more about Dr. Ronald Hoffman by visiting his website https://drhoffman.com/

Navigating the intricate journey of living with a myocardial bridge is no small feat. This episode, I open up about the emotional rollercoaster of coping with myocardial bridges and stress the undeniable importance of patience, understanding, and self-advocacy. Heart procedures are anything but predictable, and while some, like the recently unroofed, find hope in successful outcomes, each person's path is uniquely challenging.Let's continue to build a supportive network for those affected by myocardial bridges, underscoring the power of shared stories and experiences. No one should feel isolated on this path, and I encourage you to join the community of those who have shared their stories on the podcast. If you're aware of doctors that might make a great guest, please share their contact information with me as well. I'll connect with them. Strengthening our collective resolve through awareness, positivity, and gratitude we'll continue to push the pace of getting this disease recognized as symptomatic and life threatening. Together we can foster hope and understanding in our community.You can email me directly at jeff@hearmenowstudio.comYou can find the interview with Dr. Ronald Hoffman on the "Intelligent Medicine" website HERE

Could you be one of the tens of thousands of people unknowingly living with a myocardial bridge? Or worse yet, knowingly living with the condition and not having it recognized as a potentially symptomatic, even life threatening, condition? My guest today is another local acquaintance. A friend of a friend. An unbelievably close association to yet another myocardial bridge patient. Janie Desmond Ison and I are going to unpack the startling statistic that while a quarter of the population may have myocardial bridges, only a small fraction are diagnosed as symptomatic. This episode challenges prevalent misconceptions, shares the journey of symptoms often dismissed, and highlights the power of awareness in seeking proper medical attention. Through her story, we aim to connect with those who might feel alone in their struggle and encourage them to pursue the support they need, knowing this is yet another example of the condition that may be similar to what you're facing.Join us as we follow an individual's incredible journey from experiencing mild symptoms like shortness of breath and palpitations to receiving a life-changing diagnosis of a myocardial bridge and an uncommon solution. We discuss managing this condition amidst complications like low blood pressure and fatigue due to treatments from beta blockers. The narrative sheds light on navigating unexpected health issues and the emotional and physical challenges of making complex medical decisions. We emphasize the vital importance of trust in healthcare professionals and explore the paths available for effective management and recovery.Our conversation also offers a hopeful glimpse into life after heart surgery, focusing on recovery's emotional and physical hurdles. The critical role of cardiac rehabilitation, peer support, and the need to reassess life priorities post-surgery are discussed. We celebrate advancements in surgical techniques and the necessity of advocating for one's heart health by staying vigilant about symptoms. By sharing these stories of resilience and recovery, we hope to inspire and reassure listeners facing similar challenges, highlighting the strength found in community and support networks.For more information and details visit the website HERETo purchase the book, "My Imperfect Heart: Stories of Myocardial Bridges" find it at Amazon.com or in this link. Chapter Summaries(00:00) Myocardial Bridge Awareness and DiscussionMyocardial bridges are often undiagnosed, causing frustration and symptoms like shortness of breath and heart attack-like sensations.(04:57) Journey With Myocardial Bridge DiagnosisPersonal journey of health challenges, diagnosis of myocardial bridge, managing condition with low blood pressure and fatigue.(19:58) Navigating Post-Surgery Complications and RecoveryA heart surgery journey highlights the importance of clear communication, informed decision-making, and navigating post-operative challenges.(35:02) Navigating Life After Heart SurgeryEmotional and physical challenges of heart surgery, importance of support and rehabilitation, and need for proactive health management.(42:10) Advocating for Your Heart HealthExploring heart surgery complexities, including myocardial bridges and evolving treatment options, and the importance of awareness and research.(50:47) Sharing Stories of Heart HealthAcknowledging and addressing heart health issues, sharing personal experiences, and emphasizing the importance of being proactive.

Can myocardial bridges be more than just incidental findings in cardiac diagnostics? Join us as we unravel this complex topic with Dr. Khaled Ziada from the Cleveland Clinic. You'll gain a deep understanding of how myocardial bridges, often dismissed as non-significant, can impact blood flow, especially when factors like endothelial dysfunction and coronary spasms are involved. Listen in to discover the pivotal role of provocative testing in determining when surgical intervention is truly necessary.We discuss the complex techniques utilized in identifying and evaluating myocardial bridges. From CT scans to angiograms and intravascular ultrasounds, Dr. Ziada walks us through the tools that help pinpoint these bridges with a degree of precision. He also elaborates on the use of dobutamine provocation to assess arterial compression and simulate stress conditions, which can reveal underlying ischemic issues. This comprehensive diagnostic approach is crucial for tailoring surgical and medical treatment strategies to the unique needs of each patient.Finally, we explore the often-underestimated challenges of treating endothelial dysfunction and microvascular disease post-surgery. Dr. Ziada emphasizes the importance of personalized medical therapies and lifestyle interventions in managing these conditions effectively. We also get a glimpse of the exceptional care model at Cleveland Clinic, where patients receive tailored support, whether through virtual or in-person consultations. Collaboration is vital between patients and physicians to enhance quality of life and stability in managing these intricate cardiac conditions and I found Dr. Ziada to have wonderful sense of concern for the well-being of those he works with.You can learn more about the Cleveland clinic HERE.You can email Dr. Ziada directly at ziadaK@ccf.orgChapters(00:00) Myocardial Bridges and Surgery Considerations(06:36) Identification and Evaluation of Myocardial Bridges(16:35) Endothelial Dysfunction and Medical Treatment(28:33) Microvascular Dysfunction and Treatment Options(35:02) Microvascular Dysfunction and Patient Care

What if the symptoms of heart disease are present, but the usual suspects aren't to blame? This intriguing question sets the stage for my conversation with Dr. Samit Shah, as we dive into the complex world of ischemia with non-obstructive coronary arteries (INOCA). Dr. Shah shares his groundbreaking work on invasive coronary function testing, a crucial development in the past decade that helps us understand symptoms like chest pain and shortness of breath without coronary blockages. DISCOVER ANOCA program is creating standardized protocols for provocative testing, ensuring that patients receive precise diagnoses and effective care.Our discussion takes a closer look at the nuanced challenges of diagnosing and treating myocardial bridging, vasospasm, and microvascular dysfunction. With a compelling case study, we illustrate how provocative testing can identify the root causes of symptoms, leading to non-surgical treatment paths. Dr. Shah introduces the Discover Inoka study, which standardizes the use of intravascular imaging for myocardial bridges. By establishing these testing protocols, the medical community is better equipped to treat such conditions with newfound enthusiasm.As we wrap the conversation, we confront the ongoing challenges and future opportunities in making provocative testing widely accessible. The importance of understanding conditions before major interventions and the role of the Microvascular Network in connecting patients to specialized care are emphasized. We also spotlight advancements in studying myocardial bridging, where surgical unroofing is now tracked in clinical trials, offering unprecedented insights into patient outcomes and enhancing cardiac care. Dr. Shah's insights are driving forward a crucial conversation on improving diagnoses and offering hope to patients with challenging cardiac conditions.CHAPTER TIMESTAMPS(00:00) Discover ANOCA Clinical Trial Overview(08:41) Advance in Diagnosis and Treatment(14:07) Improving Access to Provocative Testing(27:24) Myocardial Bridging Clinical Trial OutcomesDiscover INOCA clinical trials application and information is available HERE.For more information about myocardial bridging and microvascular testing, visit the microvascular network, HEREWhite paper on chest pain. American Heart Assochttps://www.ahajournals.org/doi/10.1161/CIR.0000000000001029https://www.microvascularnetwork.com/https://www.jscai.org/article/S2772-9303(24)01512-6/fulltexthttps://www.jscai.org/article/S2772-9303(25)01048-8/fulltext

What happens when a fit and active lifestyle is interrupted by an unexpected health condition? Join me as I explore the profound journey of Mark Davis, one of my most dear friends, as he discovers something he, nor I, would have ever expected or suspected he might have — a myocardial bridge. Clearly MB’s can affect anyone, regardless of their health, race gender or ethnicity. Experience the emotional highs and lows Mark encounters while seeking a diagnosis. Together, we’ll unpack the frustrating reality of navigating a medical maze, where clear answers feel elusive and symptoms persist despite being told his heart was healthy. Many of you are familiar with this journey. This crazy narrative underscores the importance of resilience and determination in the face of medical uncertainty.Here’s a chance to learn about the critical role of community and support systems in overcoming health challenges. Mark shares his personal story, highlighting the comfort and strength he found in close friendships and online communities. Discover the power of connecting with others who understand and share similar experiences, especially when facing a condition that’s often under-recognized in the medical world. This episode brings hope and inspiration, as Mark expresses gratitude for the unwavering support he’s received and offers insights into how persistence and self-advocacy can pave the way for better health outcomes. We’ll continue Mark’s journey as he progresses to his provocative testing and eventual choice of what his medical decision will be.

IMPERFECT HEART: STORIES OF MYOCARDIAL BRIDGES… THE BOOK!  You can now find it on amazon by clicking on the link  HERE.  Share it with your doctor, your cardiologist or anyone interested in learning a little more about our condition. I hope you can use it to your advantage to get the story told that Myocardial Bridges are real and they do cause symptoms. Let’s use the book as a tool to educate, inform and provide hope. Thanks! This is an encore episode released previously in February of last year. Due to its popularity and the incredible journey of my guest, Kelly Portillo, not to mention the value of faith in many of the conversations had with patients, it seemed appropriate to post again. Certainty removes any semblance of doubt and without doubt, there is no reason for faith. Our condition is anything but certain, we and everyone supporting us are filled with doubt and fear and that means there’s a great big opening for faith. Discover how Kelly Portillo practiced her faith successfully. Discover the power of perseverance and the importance of advocating for your own health as we share Kelly’s captivating story, an individual who transformed her struggle with undiagnosed heart issues into a journey of self-discovery and medical triumph. At the young age of 13, Kelly’s life took a dramatic turn in a karate class when she first experienced symptoms that would lead her on a path filled with challenges, misdiagnoses, and a relentless pursuit for answers. Her experiences shed light on the complexities of navigating the healthcare system and the courage it takes to stand up for oneself when faced with skepticism from professionals who should be allies. Feel the frustration and eventual elation as Kelly, undeterred by failed multiple ablasions, discovers and then connects with the expertise at Stanford to tackle her condition head-on. Her story is not just about the physical ailment of supraventricular tachycardia and a myocardial bridge but also about the emotional battle with it all, including the insurance companies, the exhausting appeals, and the sweet success of validation. Kelly’s journey highlights the critical role of patient advocacy and the difference it can make in receiving proper care, offering hope and guidance for those who may find themselves in similar, overwhelming situations. Her constant and consistent belief in her faith and her fortitude, would yield incredible transformation from living with decades of pain to now embracing an active lifestyle post-unroofing surgery. Her narrative not only provides solace but also inspires; there is hope if you’re suffering from a myocardial bridge and with the right support and determination, a quality life after years of furstration, is more than just possible—it’s within reach. Please give us a positive review, leave a comment and subscribe. For more information, visit www.myimperfectheart.com. If you would like to participate and share your story on the program, you can email me at jeff@hearmenowstudio.com.  If you would like to ask a question and have it played or answered on the program, you can leave me an audio message via DM on the facebook group page. Thank you.

Enduring the tumultuous journey of heart condition diagnosis and treatment led me, Jeff Holden, to realize the profound need for a supportive community and reliable information. Reflecting on my own experiences, from the initial confusion and misdiagnosis to the breakthrough testing and subsequent surgery at Stanford, I’ve been driven to share insights that can empower others in similar situations. This episode marks a significant milestone with the release of my new book, Imperfect Heart: Stories of Myocardial Bridges, a tangible resource aimed at providing solace and understanding to those who prefer something beyond digital content. Through patient stories and expert interviews, I’ve assembled a wealth of knowledge that addresses the myriad challenges faced by patients, families, and healthcare professionals alike. Together with the relentless dedication of our Facebook group participants, the administrators, Rob and Stephanie, and the rest of the team, our community has flourished, expanding from 1,200 to over 2,600 members in just two years. This growth underscores our collective mission to raise awareness and foster understanding of heart conditions. It also emphasizes the need for a book as well. My hope is that this book will serve as an invaluable tool not only for individuals grappling with their diagnosis but also for medical professionals who need a deeper grasp of patient experiences. By sharing these narratives and insights, I aim to reach those who aren’t digitally inclined and provide a cornerstone of support that bridges gaps in communication and knowledge across all fronts. Now we finally have… a book, the book, my book. Get your copy of Imperfect Heart:Stories of Myocardial Bridges HERE.

Jennifer Shetler never imagined that a routine run would lead her from the role of a healthcare professional to that of a heart patient. Yet, an unexpected bout of chest pain during her daily jog turned her world upside down, prompting her to reassess her perceptions of health. Join us as Jennifer shares her deeply personal journey through the complexities of cardiac care, from initial missteps in diagnosis to the eventual discovery of a myocardial bridge. Her story emphasizes the unpredictable nature of heart conditions, particularly for athletes, and sheds light on the unique ways these issues present in women. As we navigate Jen’s experiences, we highlight the critical steps in diagnosing and managing cardiac conditions, emphasizing the importance of comprehensive testing. Her narrative underscores the challenges faced when outward appearances of health mask underlying problems, and how persistence in seeking advanced imaging can be life-saving. She candidly shares her decision-making process surrounding surgical options, the role of community support, and her reliance on a network of friends and run club members in overcoming her health crisis. The episode also explores the emotional and physical journey of recovery following cardiac surgery. Jennifer offers insights into building a strong support system and the power of patient advocacy in securing necessary care. Through her story, listeners are reminded of the importance of listening to their bodies and advocating for themselves within the healthcare system. Jennifer’s transformation from heart nurse to heart patient serves as a poignant reminder of the value of resilience, knowledge, and community in navigating life’s unexpected trials. Her trust in care is clearly demonstrated knowing the track record of a cardio thoracic surgeon known for his skill in bypasses, not unroofing procedures. This should be a valuable understanding as it opens the door for so many more opportunities to be “unroofed” knowing the necessary content  is available to teach and support a qualified surgeon to perform the sugery he or she has likely already experienced.

Embarking on a quest for answers, Steve Millington faced a world of mystery when his heart first sent distress signals at just 22. Misdiagnosed and misunderstood, Steve’s journey through unrelenting chest pain took him from Australia to Sweden, and eventually across Europe, in search of clarity and care. With the steadfast support of his partner Kim, Steve’s path was fraught with skepticism from the medical community and financial burdens that threatened to overshadow his fight for health. This episode chronicles not just a physical journey, but a testament to resilience and the power of unyielding self-advocacy. Across continents and healthcare systems, Steve’s search for a solution to his symptomatic heart bridge was anything but conventional. Failing to find resolution within European borders, Steve’s story led him to Pakistan, where Dr. Takir Akbar recognized the urgency of his condition. This wasn’t just a leap of faith but a critical pivot in a long-fought battle against medical uncertainty. Discover how Steve navigated the complexities of international healthcare and challenged preconceived notions about medical treatment abroad, ultimately finding hope and healing in unexpected places. The cost of pursuing heart health extended beyond financial struggles to emotional and mental challenges, as Steve navigated a landscape that often felt isolating. With courage, he faced the obstacles of delayed diagnoses and skeptical professionals, advocating for himself in a world that didn’t always provide clear answers. Through his experiences, we are reminded of the crucial role of perseverance and the pursuit of all possible options, regardless of geographic or financial boundaries. Join us as we unravel Steve’s inspiring tale of navigating the intricacies of global healthcare and the undying spirit of someone who refuses to give up. Chapter Summaries (00:00) Steve Millington’s Heart Journey Steve’s journey with persistent health symptoms, misdiagnosis, and support from his partner, leading to seeking medical attention. (11:46) Desperate Search for Heart Surgery Desperate search for treatment of rare heart condition spans multiple countries, facing skepticism and insurance complications. (21:20) Heart Surgery Journey in Pakistan Transformative journey to Pakistan for medical procedure, highlighting excellent care and cost-effectiveness, with unexpected post-surgery complications. (31:16) Financial Challenges in Seeking Medical Care Becoming a health advocate, researching reliable information, and seeking affordable treatment for COVID vaccine-related conditions. (36:22) Navigating Heart Health Treatment Options Proactive health management, securing loans for surgeries, self-advocacy, and risks of untreated cardiac issues. (49:16) Journey to Affordable Heart Surgery Steve’s journey of undergoing open heart surgery in Pakistan due to cost constraints and lack of proper diagnosis, highlighting the importance of perseverance and exploring all possible avenues for better health outcomes.  

Facing unexpected health challenges can be a monumental experience, as lifelong athlete John Chan discovered when he encountered severe chest pains during an ultra marathon. Join us as he recounts his compelling journey from initial denial to acceptance of his heart condition, navigating a complex medical landscape as the youngest patient in his cardiologist’s office. John’s story is one of resilience, determination, and the profound realization that health challenges can change one’s perspective on life. The recognition his gift of recovery, created a reflective and appreciative mindset at first, only to fall back into his lifestyle prior to the presentation of symptoms and subsequent surgery.  John takes us through the emotional and mental preparation for his heart surgery, painting a vivid picture of the virtual orientation with Dr. Balkhy that eased his fears and brought clarity. This pivotal moment highlights the importance of trusting medical expertise while balancing it with personal goals and emotional wellbeing. Discover how John’s journey underscores the necessity of a comprehensive approach to major health decisions, where spiritual and gratitude aspects coexist with medical concerns. As John celebrates his remarkable recovery journey, he emphasizes the power of openness and shared experiences in fostering hope. Whether it’s the poignant moment of enjoying a Chicago deep-dish pizza before surgery or advocating for regular health check-ups, John’s narrative encourages proactive health management. His heartfelt gratitude for the support from his medical team and the community underlines the  impact of sharing personal health stories and building a network of hope for those facing similar challenges. It’s the realization of the need to return the favor of support and gratitude for the gift of recovery that makes this story so unique, and John the man of character he is, in his return to appreciation for all that has happened for him. Chapter Summaries: (00:00) Journey to Heart Health John Chan’s journey from athlete to confronting heart issues, including disbelief, medical tests, and navigating the healthcare system as a young patient. (14:45) Surgical Decision Making Process Dr. Balkhy’s virtual orientation session for a medical procedure focused on understanding the patient’s journey, goals, and trust in the medical team’s expertise. (18:58) Life-Changing Heart Surgery Recovery Preparing for surgery, meeting Dr. Balkhy, and reflecting on life’s legacy and gratitude during recovery. (32:59) Sharing Hope and Gratitude Sharing personal health experiences to inspire and provide hope, emphasizing proactive management and advocating for men’s health. (41:46) Gratitude and Shared Hope Gratitude and hope in recovery journeys, support from medical professionals, and sharing personal experiences to inspire others.  

I was doing some work with AI for a project and I wondered what I would find if I began a conversation about myocardial bridges. To my amazement, the responses to my questions were quite contemporary, on point for the most part and very much aware of the condition without doubt. I found the answers to be as technical as I wanted to get or as general given what I asked. The overall takeaway for me, was that there was little downside or disinformation. The entire conversation was pro myocardial bridges as we know them. If we could only get the majority of our medical community to be as receptive to the condition as our AI is, there would be far fewer people suffering from the condition and, in my opinion, far fewer deaths from cardiac arrest. We’re making progress and the more our digital/virtual resources endorse the corrective procedures for a condition that is more common than other diseases like cancer and stroke, the better off we’re going to be. There’s a lot in the episode as we cover a lot of ground. It’s one worth taking notes on if you find areas of interest. I hope the episode gives you some additional support to share with whomever you’re trying to convince that what you’re experiencing is real. It should also enlighten you to the capability of what AI can provide us with regard to information about myocardial bridges. It gives me tremendous encouragement to see that AI is initially very receptive to the techniques for correction of a bridge.  Here’s to a future of acute awareness of MB’s and to procedures and techniques to remedy them. I know one place we can go to get comfort in knowledge! Enjoy the episode.

In this episode I take a moment to reflect and celebrate a year of content novelty and camaraderie in our Imperfect Heart community. From hosting 11 awesome patients who shared their personal journeys to featuring insights from 10 esteemed doctors, this episode is a testament to the strength and resilience of our community. We explored the world of unroofing surgery with top robotic surgeons and experience the detailed moments from inside the OR through exclusive videos on our YouTube channel. Each story and professional insight is a stepping stone toward understanding and advocacy for myocardial bridges and for that, I’m grateful. Our first-ever Myocardial Bridge meetup united patients from across the nation, sparking a network of support and hope. We even broke new ground with a three-part series chronicling a patient’s journey from diagnosis to surgery, offering a rare, in-depth look at the procedure. An interventional cardiologist joined us to clarify the provocative test, an essential but often misunderstood evaluation for our condition. What a wonderful year it’s been. I invite anyone with their own story or a recommendation for a medical professional to join our mission of raising awareness and support. Together, let’s continue to shine a light on myocardial bridges and inspire each other.  Have a wonderful Christmas holiday and here’s to a happy and healthy new year in 2025. If you would like to connect with me directly, my email is: jeff@hearmenowstudio.com.  I hope to hear from you.  

This episode includes graphic video and a detailed explanation of the “unroofing procedure” from the operating room and is best when viewed on the “Imperfect Heart” YouTube Channel. In this, the third in a series on the “Vollmer Journey”, we uncover the transformative potential of robotic myocardial bridge unroofing surgery as we bring you an insightful conversation with Dr. Johannes Bonatti, a pioneer in the field now practicing at University of Pittsburgh Medical Center, and David Vollmer, the patient who experienced its benefits firsthand. Hear how robotic techniques are redefining unroofing surgery, offering significant advantages over traditional methods, including quicker recovery times. David shares his remarkable journey back to full physical activity in just three months, shedding light on the decision-making process and the crucial role of provocative testing in determining the necessity of surgery. Step into the state-of-the-art hybrid operating room where technology meets surgical expertise. Dr. Bonatti reveals how the DaVinci robot enhances the precision of procedures like robotic unroofing of myocardial bridges. Gain an understanding of the importance of work on a resting heart and the process to make that happen. Additionally, explore the vital function, in detail, of the heart-lung machine in maintaining circulation during surgery, providing insights into the meticulous care involved in these advanced procedures. We’ll discuss the complexities and risks of robotic heart surgery, with Dr. Bonatti as he details the nuance and novelty when compared to thorocotomy or sternotomy. We discuss the subject of myocardial bridges and their potential links to sudden cardiac events, highlighting the growing recognition of these conditions in the medical community. As we close this third episode of the series, it truly is a celebration of patient recovery and the dedication of Dr. Bonatti and his team, inspiring confidence in the future of myocardial bridge repair both robotically and traditionally. We continue to provide evidence of successful outcomes of this somewhat controversial procedure to provide hope for those with the condition and looking for solutions. To learn more about UPMC and their innovative robotic cardiac care, you can find more by cliking on this LINK You can also call the department at 412-648-6200, option 7 when prompted. CHAPTER SUMMARIES (00:00) Robotic Heart Surgery Dr. Bonatti and David Vollmer discuss the decision-making process and benefits of robotic cardiac surgery, including quicker recovery times. (15:37) Robotic Heart Surgery Robotic totally endoscopic unroofing of LAD myocardial bridge using DaVinci robot in hybrid OR with CO2 insufflation and heart-lung machine support. (35:20) Managing Risks in Robotic Heart Surgery Cardioplegia and hemostatic agents are used in robotic heart surgery, with a focus on patient safety and positive experiences at UPMC. (40:28) Myocardial Bridges and Robotic Surgery Nature’s risks in cardiac surgeries, including pericarditis and atrial fibrillation, and the role of myocardial bridges and advancements in robotic technology. (52:04) Robotic Heart Surgery Success Story Successful recovery from surgery, addressing mineral deficiency and absence of AFib, with innovative approach by Dr. Bonatti at UPMC.