AWOL Zebra : Fascia and living with hEDS

Learning how to breathe with 360 degree support. Nobody ever mentioned opening up the upper rib cage. Pain in my shoulder, knee, toe and pelvic floor all eased up once I changed my breathing and figured out what to do with my toes.

Another day of focusing on using my intercostal muscles to work on my deep core and keeping my middle toes on the floor. I am noticing a major decrease in pain and our brand new shirts are here! Get yours now!!!

The position of these three toes makes all the difference in the world. Mindful movements. AWOL is a way of life. My third day and it’s the breakthrough I needed.

Desperately trying to earn money. Can’t believe my body is working by focusing on the middle toes that nobody seemed to care about. My big toe my baby toe were important, but nobody cared about those middle toes. Whilst thinking about them makes a big difference!

Battling an invisible illness. Becomes almost impossible when your toes become invisible as well. Nobody tells you what to do with piggies two, three and four. How rare is this illness? I think it’s rarely diagnosed. This illness can’t be cured, but it can be managed. This is definitely a game changer. Join me. We need all the followers we can get on Spotify and Facebook and if you can promote us and we find out. You can get your choice of a shirt or window decal. Etc. I sincerely appreciate the follow and the shares. Thanks for helping me raise awareness. With your help we can only get better. And we can help manage and get better together by changing the way our body functions.

Warning: I scream loudly I think. Nothing is scripted. I don’t edit. I don’t listen after I record. I think it’s the first 4 minutes in. One small step for EDS. A giant leap for me! I had a play date. Business meeting. Drove. I am eating and breathing!

Join me for today! In real time. I have been up for 6 hours. In the truck. Working on my fascia. What are you doing? Every hour I want you to Go AWOL for 10 minutes. Please follow us on Spotify!!!

I feel like a failure. And then. I realized you’re standing up straight, not in that much pain and YOU FEEL your body getting out of proper alignment. You have an appetite. Your ability to comprehend is coming back. Wow!!! Are you supposed to poop every day? Who would’ve thought absorbing nutrients was that important? Is that what a diaphragmatic breath is supposed to feel like?

I am trying something new. Will it work? My body is functioning. I am not always prepared.

I got up at 6am. I was a multitasking beast before this illness won temporarily;) Times have changed. It’s 9:30pm and I need to take a shower and do a podcast. I cleaned my mother in laws place. I ate. Twice! Now let’s shower and work on our fascia! Join me???

Every day is a challenge. How do you keep going? Join me. Follow us on Spotify. AWOL Zebra is A Way Of Life or A Wacky Old Lady. You decide.

Now that I understand what’s happening to my body. I am exercise intolerant at the moment and that’s okay. My PT is every day activities. Laundry. Dishes. Standing.

Not sure what I expected. My pain is manageable? Will I improve more?

I am up! Just living is constant movement therapy for us. I am always in training. Movement therapy. Dishes. Ball therapy etc.Please follow us on Spotify.

It’s not pretty. But I am functioning. So cool! And they wanted me in a wheelchair. Please follow us on Spotify and tell your friends😉

I did it. Now what? Can I do it again? My body is improving in ways that I couldn’t imagine but I also don’t know how to react.

Another day. Another dollar? More pain? The unexpected is so much harder when you can’t control your body.

Trying to manage life with a new to me body. Ready to give up or keep going?

It’s been a long time. My body is finally coming together and staying that way.

You always have those moments where you think it’s time to give up. Then something reminds you of why you’re doing what you do.Follow us on Spotify!!!