The Heart of Hospice Podcast

David Mulqueen has seen first hand the challenges of being an executor of an estate. He’s got some great insight and advice about managing the heavy lift of handling administrative tasks after a death. His company AnnCare was built to solve that problem, making the role of an executor so much easier and easing the grief burden of survivors. So many people avoid conversations about death. Often there’s no end of life or estate planning. It creates a mountain of to-do’s while the executor is grieving and still trying to manage life.   The components that are part of an estate can be fairly simple, but the volume of the tasks can be time-consuming. David describes some of the financial, personal, and business situations that executors deal with. Just finding the one item to do first is a daunting task. Grief is often the biggest roadblock, slowly down thought processes. Being organized is key. Connect with AnnCare: AnnCare provides support services for clients needing help completing those administrative tasks. You can check out AnnCare services at anncare.io. Read how AnnCare supports their clients here. Download your copy of AnnCare’s free post-loss checklist to get yourself here.   Connect with Lasting Remembrance to purchase a memorial blanket at lastingremembrance.com. A personalized blanket is a great way to ease grief, bringing warmth, peace and connection after a loss. Using the code heartofhospice gives you a 10% discount on your blanket purchase.  Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. It’s easy to connect by phone or video. You can book a 30-Minute Navigation Session for just $45 if you’re starting to talk about end of life care. A 60-Minute Navigation Session for $95 provides for an in-depth discussion, and allows for up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Instagram LinkedIn YouTube Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

As a caregiver for his wife, David Walsh found purpose and meaning. As a business owner he’s carrying that purpose forward supporting seniors to live safely in their own homes. David’s wife Beatrice faced the end of her life with courage, and asked David to do the same as her caregiver. They had been partners for 30 years when Beatrice was told she had only four weeks to live during the Covid pandemic. While he acknowledged how difficult the caregiving was , David viewed his caregiving experience as an honor.   Recalling this grievous experience, David remembers what a joy it was to spend the last year of Beatrice’s life in her own home. It was one of Beatrice’s end of life wishes, and they were able to honor that. David understands how much support people need as they age. He also knows how valuable it is for older adults to age in their own space. His work reflects what he learned during his wife’s illness. Halo Care provides a safety net for older adults living alone. They believe that everyone deserves the opportunity to live independently at home but when that time is getting more difficult, HaloCare provides additional help. Supported by innovative technology and passionate, caring people, HaloCare utilizes remote monitoring to empower people to live quality, independent lives in their own homes. Always respectful of dignity and privacy, there are no video cameras used in Halo Care’s systems and the technology is backed up by compassionate, real humans.  Connect with Halo Care at halocaregroup.com Learn about the support Halo Care offers to senior adults, those living with disabilities, and people who have just been discharged from the hospital here. Check out HaloCare on social media: Facebook LinkedIn X (Twitter) Instagram Connect with Lasting Remembrance to purchase a memorial blanket at lastingremembrance.com. A personalized blanket is a great way to ease grief, bringing warmth, peace and connection after a loss.  Using the code heartofhospice gives you a 10% discount on your blanket purchase. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. It’s easy to connect by phone or video. You can book a 30-Minute Navigation Session for just $45 if you’re starting to talk about end of life care. A 60-Minute Navigation Session for $95 provides for an in-depth discussion, and allows for up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Instagram LinkedIn YouTube Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

We're getting back to the basics of hospice care, taking a deep dive into hospice General Inpatient Care. Patients (and providers!) need to know the what/when/where of the GIP level of care inside hospice care. Here are some highlights of this episode: • General Inpatient Care is used for crisis symptom management that can't be done in the patient's home. • GIP is provided in a Medicare-certified facility (so there's 24/7 nursing care). • Medicare does not consider actively dying a crisis. • Every Medicare-certified hospice agency is required to furnish GIP care when it's needed. • Hospice team members (nurse, social worker, chaplain) continue to see the patient while they’re in GIP care. Get more information about hospice and connect with hospice nurse Shelley Henry at The Amity Group. Website: www.amitystaffing.com Watch Shelley’s Tips for Hospice Nurses videos here or on Facebook, Instagram, YouTube, or TikTok. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. It’s easy to connect by phone or video. You can book a 30-Minute Navigation Session for just $45 if you’re starting to talk about end of life care. A 60-Minute Navigation Session for $95 provides for an in-depth discussion, and allows for up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Instagram LinkedIn YouTube Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

What happens when the hospice nurse who has long stood at the bedside of the dying becomes the patient herself? A Butterfly Has Been Released is a death-positive documentary film that follows Allyson from her terminal brain tumor diagnosis to her final breath—revealing courage, love, and the raw realities of letting go.  Filmmakers Jason Zamer and Barry Koch capture Allyson’s journey in an intimate way that bears witness to the reflections of Allyson, her family, and friends during her last 39 days.  They only spent 12 days filming with Allyson, but the experience impacted them deeply.  When you watch the film, you’ll feel the same.   Connect with Jason and Barry at TG Beyond: Website - tgbeyond.com Documentary rental, community screenings, and CE class available through a Partnership with Hospice Foundation of America on their website. From Caregiver to Patient: Hospice Nurse Allyson's Final 39 Days. ( https://hospicefoundation.org/product-category/from-caregiver-to-patient-hospice-nurse-allysons-final-39-days/) Instagram - @tgbeyond Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. It’s easy to connect by phone or video. You can book a 30-Minute Navigation Session for just $45 if you’re starting to talk about end of life care. A 60-Minute Navigation Session for $95 provides for an in-depth discussion, and allows for up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.  Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Instagram LinkedIn YouTube Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Hospice chaplain and end of life doula Daniel DeLoma is devoted to the sacred task of helping others die well, with dignity, presence, and the steady rhythm of the heart as their guide. His work has purpose. From the very start of Daniel’s work in end of life care, he knew the importance of working with the dying. Daniel’s chaplain work made him realize that presence and prayer were not enough to meet the spiritual needs of his patients and caregivers. The development of meditative heartbeat therapy grew organically through his practice. The therapy connects people with their own heartbeat and is easily utilized by anyone. Using simple techniques, heartbeat therapy has a calming effect, reducing anxiety and pain perception. The therapy can be implemented to help patients fall asleep. Using a special stethoscope (like a Littman or Eko stethoscope) enables recording the heartbeat for playback for both the patient and the family. Hearing a loved one’s heartbeat can be a source of comfort after a death.     Connect with Chaplain Daniel DeLoma and Meditative Heartbeat Therapy: Website:https://www.heartbeattherapy.com/ Purchase a copy of Daniel’s book Meditative Heartbeat Therapy: A Contemplative Guide to Presence, Rhythm, and Care at End-of-Life here Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. It’s easy to connect by phone or video. You can book a 30-Minute Navigation Session for just $45 if you’re starting to talk about end of life care. A 60-Minute Navigation Session for $95 provides for an in-depth discussion, and allows for up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Instagram LinkedIn YouTube Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Encore episode - Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength.  As the founder of Dementia Darling, Carrie has established herself as a leading voice in dementia education and support.  She’s cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge prevailing narratives about dementia and aging, and foster moments of joy.  She continues to push boundaries as an educator and advocate in dementia care, creating a movement that celebrates life and builds a supportive community. Connect with Carrie Aalberts on social media - @dementiadarling, or through her podcast "Gather Darlings" to join her mission of spreading knowledge and understanding the dementia and caregiving community. Website:  dementiadarling.com Social media:  Instagram   LinkedIn   Facebook   TikTok    YouTube Listen to the Gather Darlings Podcast here Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook   IG   LinkedIn   Twitter (X)    YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a 30-Minute Navigation Session for $49 or an in-depth 60-Minute Navigation Session for $95.  If you're gathering information about starting end of life care, or troubleshooting the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.  Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Trigger Warning:  The content of this episode includes narratives about suicide.  If you need to, catch up with us on another episode and take time to care for yourself. Dr. Delia Chiaramonte shares the story of her father’s suicide in this deeply emotional and personal episode.  She wanted the best end of life experience for her father.  Because his renal failure was at the end stage, he had a terminal prognosis.  As a palliative care physician, Dr. Chiaramonte made sure she and her dad had the important conversations about end of life.  She describes the complicated and disenfranchised grief she’s feeling.  Delia’s experience is one that many grievers can relate to.  There’s so much to learn from her story.  Connect with Integrative Palliative Physician Dr. Delia Chiaramonte: The Integrative Palliative Institute More information about Dr. Chiaramonte’s Courageous Caregiver program is available at www.CaregivingIsHard.com. Listen to the Integrative Palliative Podcast here. Buy your copy of Dr. Chiaramonte’s book Coping Courageously: A Heart-Centered Guide for Navigating a Loved One’s Illness Without Losing Yourself Download Dr. Chiaramonte’s free resources here Social media for Dr. Chiaramonte: LinkedIn  Facebook  TikTok  YouTube If you have experienced a loss by suicide, we hope you find support. Here are some resources that might help. Alliance of Hospice Suicide Awareness Voices of Education Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook   IG   LinkedIn   Twitter (X)    YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a 30-Minute Session for $49 or an in-depth 60-Minute Session for $95.  If you're gathering information about starting end of life care, or troubleshooting the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

We're honored to feature this intimate and warm conversation with Ken Ross, founder of the Elisabeth Kubler-Ross Foundation and son of Dr. Elisabeth Kubler-Ross. Ken describes the life and work of his mom, as well as her unconventional approach to the dying. Towards the end of Dr. Kubler-Ross's life, Ken was her caregiver. He describes how her open-hearted nature drove her to become one of the most widely known experts in the field of death and dying. Ken is carrying that work forward at the Elisabeth Kubler-Ross Foundation, providing education all over the globe. Her legacy continues on in grief support groups, workshops, and conferences that teach about death, dying, and the human experience. Connect with the work of Ken Ross: Ken Ross Photography: kenrossphotography.com Elisabeth Kubler-Ross Foundation website: ekrfoundation.org EKR Foundation Education opportunities: ekrfoundation.org/education Social media for the EKR Foundation: Facebook YouTube Instagram LinkedIn Books: Real Taste of Life: A Journal by Ken Ross and Elisabeth Kübler-Ross, 2002 Tea with Elisabeth by Ken Ross, Fern Stewart Welch, and Rose Winters, 2009 Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book an in-depth 60-Minute Navigation Session for $95. If you're gathering information about starting end of life care, or troubleshooting the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Pediatric palliative care physician Dr. Jared Rubenstein opens up about what it really means to show up for families when there’s no easy fix. Jared and his team support seriously ill kids and their families, bringing compassion and utilizing Dignity Therapy techniques modified especially for kids. The unique medical and emotional needs of those sick kids shape everything the palliative care team does. Dr. Rubenstein unpacks the realities of caring for children and their families in the midst of a flawed healthcare system, and acknowledges the vast rewards of being part of their care. If you care for a seriously ill child and want to connect with Dr. Jared Rubenstein’s work: Website: JaredRubensteinMD.com Socials:  IG   Threads   Bluesky   Youtube Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook   IG   LinkedIn   Twitter (X)    YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Anyone with a serious illness needs a strong advocate who has their back and makes sure their needs are met. Erin Galyean did that for her sister, learning on the job how to be an advocate as a caregiver. When her sister became ill with cancer and a serious lung disease, Erin became a long-distance champion for her sister’s care. Her book Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves covers everything from building a support team for both the caregiver and the patient, to asking doctors effective questions to get the real answers you need. Erin’s advice doesn’t stop there - she encourages every caregiver to learn to find the balance in being both compassionate and assertive as a caregiver.   Although Erin’s online Empowered Advocate Community has since shut down, every caregiver can benefit from hearing her caregiving story, and from buying her book. Find your copy of Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves here. Links for Erin Galyean: Badass Advocate Book Badass Advocate Website Socials for Erin Galyean: LinkedIn TikTok  Facebook Instagram YouTube Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

End of Life Doula Diane Button has been taught how to live well by caring for the dying.  Her life’s work has been to support people to find meaning, comfort, joy, and peace in life and in death. One of the biggest influences on how Diane lives was her Grandpa Charlie, and she continues to be inspired by how he lived his life. Diane has collected stories and wisdom from every person for whom she’s provided care while they were dying.   In 2022, during the pandemic, Diane wrote an article for Maria Shriver’s Sunday Paper that remains widely-read and one of their most popular articles. What Matters Most: Lessons the Dying Teach Us About Living is her latest book, written at the invitation of Maria Shriver and published by Penguin Random House. It is available everywhere books are sold. Connect with Diane Button: Website:  dianebutton.com End-of-Life Doula Website: Bay Area End-of-Life Doula Alliance Instagram: @dianebuttondoula Facebook:facebook.com/diane.button.12 Get your copy of Diane’s book! – What Matters Most: Lessons the Dying Teach Us About Living Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Socials for Barbara Karnes: Facebook   IG   LinkedIn   Twitter (X)    YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

We’re deep diving into advance care planning with hospice Social Worker Rosie Gaston, talking about diagnosis specific advance directives.  With diseases like Alzheimer’s and other types of dementia on the rise, the need to plan for end of life situations for neurodegenerative diagnoses is increasing.  It’s hard to predict  every scenario, but considering basic care needs and wants is important.  Some of the things that should be considered include where the person wants to live out their life, what treatments they want/don’t want, who’ll be the primary caregiver, and how care will be paid for.  A dementia specific directive might include directions about treating infections like UTI’s and pneumonia, and choices about feeding, feeding tubes, and VSED options.  Even though it’s not possible to think of every situation that might happen, it’s important to have conversations about needs, wants, and wishes for end of life. Be specific.  Those conversations can make decisions so much easier when a crisis arises later in the disease trajectory.  Have the conversations early - and often! Connect with Rosie Gaston, MSW, LICSW, APHSW-C: www.ABetterEnding.org Socials for Rosie Gaston:  IG    RESOURCES:  End of Life Choices New York dementia advance directive resourceCompassion and Choices Dementia Priorities and Values ToolThe Conversation Project handout for caregivers for someone with Alzheimer’s and other dementias Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

There isn’t a greeting card for every type of grief.  Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief.  Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself.  This kind of grief is felt by both the person who’s dying and the caregivers and family.  Disenfranchised grief occurs when the relationship with the deceased person wasn’t one that’s recognized by society, and can't be publically mourned.  Ex-spouses, abusive and estranged relationships can all be situations of disenfranchised grief.  It can be difficult to find support for grief like this, making the griever feel isolated.  Disenfranchised grief can be more complicated than grief related to healthy and close relationships.   If you need information about grief, check out the Hospice and Grief Info section of the Hospice Foundation of America’s website.   Website: hospicefoundation.org Research on grieving: hospicefoundation.org/research-on-grief-and-grieving Grief and other types of loss: hospicefoundation.org/grief-and-other-types-of-loss Facebook: www.facebook.com/hospicefoundation Instagram: www.instagram.com/hfahospice X: x.com/hfahospice Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Social Worker Rosie Gaston talks about getting back to the basics of what matters most to start an advance care plan.  Reflecting on values and beliefs is a great starting place.  The next step is having conversations with people who matter most to us (along with healthcare providers) to communicate the kind of care we want when our bodies begin to shut down, and what embodies quality of life.  When should we make an advance care plan?  Rosie recommends anyone over 18 make an ACP and revisit it whenever there’s a life change.  End of life wishes change and ACP should change to stay in alignment with who we are.  Getting a life-altering or serious diagnosis, changing marital status, or having a change in healthcare provider are all milestones where review of an advance care plan should happen.  Have the conversations early, have them often.    Connect with Rosie Gaston, MSW, LICSW, APHSW-C: www.ABetterEnding.org Socials for Rosie Gaston:  IG    Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Hospice Nurse Julie McFadden is using TikTok to teach over 1 million followers what death really looks like.  As a nurse with 15 years of experience in end of life care, she’s seen all the ups and downs of community-based bedside hospice care.  Julie also spent years working in ICU, and learned the intense needs of the dying.  Her book Nothing to Fear: Demystifying Death to Live More Fully prepares readers for death and dying, with stories interwoven throughout.  Her newest book is The Nothing to Fear Journal: Questions and Reflections for Demystifying and Preparing for the End of Life.  The journal has four sections that give prompts to help the user’s writing process.  The sections cover anything and everything related to dying, including beliefs and fears, how to have end of life conversations, ways to ask for help, and practical tips for planning your own end of life experience.  Who should read the books?  Hospice Nurse Julie says they’re for anyone who’s going to die.  Links to Hospice Nurse Julie’s book, journal, socials, and website: Nothing to Fear The Nothing to Fear Journal https://www.hospicenursejulie.com/ https://www.instagram.com/hospicenursejulie https://www.tiktok.com/@hospicenursejulie https://www.youtube.com/@hospicenursejulie https://www.facebook.com/people/Hospice-nurse-julie/100077937666311 Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Dr. Jessica Zitter sees how hard family caregivers work and it inspires her to keep going as a physician and caregiver advocate.  Working as a critical care and palliative care physician, an author, and a documentary film maker has positioned Dr. Zitter uniquely to advocate for caregivers and the heavy burden of family caregivers.  Jessica has had personal experiences working as part of an interdisciplinary team that have made her a better practitioner and doctor, and more aware of her own biases. Here are some highlights of this conversation: • The size of the caregiver workforce in the U.S. has grown to 63 million as of 2025. • Caregiving from a distance carries its own set of stressors, including increased financial burden. • Working in an interdisciplinary team can create accountability among the various disciplines. • Implicit and explicit bias influences the quality of the healthcare people receive. • Teams need to make space for every discipline, and it’s the responsibility of those professionals to step forward and claim their seats.  Connect with Reel Medicine Media at reelmedicinemedia.org Find information about The Chaplain and The Doctor Find information about Caregiver: A Love Story Watch the trailer for Extremis here Find Dr. Zitter’s book Extreme Measures: Finding a Better Path to the End of Life here Text the word “caring” to 66866 to recieve the Reel Media newsletter and get a free resource guide to chaplaincy. Social media for Dr. Jessica Zitter:  IG   Facebook   X   LinkedIn   YouTube   Vimeo Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com Find more podcast episodes of  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Palliative Care Chaplain Cody Hufstedler shares the end of life experiences of his patients and their families using compassion, healthy boundaries, and a little bit of humor.  After 12 years of working as a chaplain, he’s seen the best and worst of death and dying.  Cody believes his job is to help people work through changes when bad news happens, and help them pivot back to the values they hold most dear.  He’s stepping into the place where panic happens and works to be the calm inside the chaos.   As host of The Dying to Tell You Podcast, Cody features one-on-one conversations with guests who are living with a serious illness—including cancer, ALS (Lou Gehrig's disease), Alzheimer's disease, brain cancer, multiple myeloma, and other terminal diagnoses. These aren't patients of his; ethical boundaries are carefully maintained. These are intimate dialogues with people from across the country and around the world who are willing to share their experiences with mortality.  Listen to The Dying to Tell You Podcast Check out The Caring Perspective Podcast here and here. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Jessica Guthrie is more than a millennial caregiver - she’s an advocate using her voice to change how we approach the care of loved ones. When her mom Constance was diagnosed with early onset Alzheimer’s disease at 66 and Jessica was 26, Jessica began coordinating her care from a distance. The trajectory of the disease soon required a move to be closer to Constance. Jessica describes it as “a shock to the system” as she began trying to figure out how to manage her mom’s care. None of her friends were talking about caregiving or Alzheimer’s disease. In the ten years since the diagnosis, there have been ups and downs in Jessica’s caregiving journey, including admission and discharge (and readmission) to hospice. Jessica Guthrie founded When Career & Caregiving Collide, sharing what she’s learned to empower other caregivers. She’s teaching and speaking, featured in podcasts and webinars. You can find Jessica Guthrie at jessicacguthrie.com      Find Jessica on social media: Instagram  LinkedIn Check out interviews and articles about Jessica here. You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

When dementia is the diagnosis, end of life discussions can be intense and heartbreaking.  Hospice social workers Lisa Pahl and Jessica Empeno shed light on how to make things easier.  Whether the dementia diagnosis is the primary (or terminal) diagnosis, or it is happening alongside another serious illness, the topics to be considered are complex.  Everything from incontinence management to feeding tubes to ventilator support needs to be addressed.  Talks about advance care planning should happen early and often, and include healthcare teams, family members, and anyone who might be involved in the caregiving group.   The Dementia Deck is one of the great tools out there to facilitate advance care plan conversations when there’s a dementia diagnosis in the mix.   You can connect with Lisa Pahl (co-creator of The Dementia Deck) at thedeathdeck.com. Purchase your The Dementia Deck here. Check out The Death Deck here. Get a copy of The EOL Deck here. Follow The Death Deck:  Insta     Facebook     TikTok Visit the Compassion and Choices website to access the Dementia Values and Priorities Tool here. Read more about the Dementia Values and Priorities Tool at compassionandchoices.org Follow Compassion and Choices:  Insta     Facebook     YouTube     LinkedIn     Bluesky Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help.  Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95.  If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions.  A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website:  theheartofhospice.com Social media:  Facebook     Twitter    Instagram   LinkedIn Email:  helen@theheartofhospice.com More podcast episodes:  The Heart of Hospice Podcast

The team at Caring House is supporting the dying with compassion and respect, and a willingness to say yes to every end of life wish. Caring House is more than a non-profit organization; it’s a home focused on helping residents and families through the end-of-life experience. It’s the only one of its kind in Los Angeles County. Executive Director David Zartman and Resident Care Manager Joanna Franco lead the Caring House team to empower the dying and their caregivers. Admission to Caring House is open to all regardless of who they are, and support is provided 24/7. The Caring House staff take on the caregiving responsibilities, giving families time to simply be at the bedside of their person. Dying with dignity and comfort is their top priority. Donating to the work Caring House is a great way to honor someone you’ve lost. You can make your donation to support their work here.  If you want more information about the Omega Home Network, visit omegahomenetwork.org Connect with the work of Caring House at yourcaringhouse.org Follow Caring House on social media:  Instagram  Facebook  YouTube Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast