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Hear from the people actually living with pancreatic cancer for inspiration and education about this deadly disease.
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Dr. Raymond Wadlow is the Director of the High Risk Pancreatic Cancer Clinic, which focuses on early detection and prevention for individuals at high risk of developing pancreatic cancer. This clinic is part of the Pancreatic Cancer Early Detection (PRECEDE) Consortium, an international effort to improve the five-year survival rate for pancreatic cancer patients.
Dr. Wadlow is a highly regarded oncologist at the Inova Schar Cancer Institute, specializing in gastrointestinal oncology. His commitment to cancer research and treatment is driven by the personal loss of his mother, former Virginia State Senator Emily Couric, to pancreatic cancer. In addition to his role at the clinic, he serves as Co-Director of Gastrointestinal Oncology Research, Program Director of the Hematology-Oncology Fellowship Program, and is an Assistant Professor at the University of Virginia School of Medicine.
Living Hope: Your Journey with Pancreatic Cancer host Roberta Luna and her husband Vic, recap the recent PurpleStride event at the Honda Center. This was the 16th such event in Orange County and is known as "the ultimate walk to end pancreatic cancer." Anaheim Ducks Goalie Coach Sudarshan “Sudsie” Maharaj was diagnosed with pancreatic cancer in May 2023, was the guest speaker.
Amy Reiss, Director of Patient Programs with the Hirshberg Foundation for Pancreatic Cancer Research joined Living Hope to talk about the 18th Annual Hirshberg Symposium taking place on April 13 at UCLA Luskin Conference Center. Symposium topics include the latest in pancreatic cancer care, genetic testing, enzyme research, just to name a few. There’s also a chance to ask questions of the experts and connect with survivors. You can attend in person or virtually, go to pancreatic.org to register.
This episode is dedicated to Survivors Julie Lopp and Tom Arai
Thom Mrozek, a 12-year survivor of pancreatic cancer, diagnosed on the unique day of Leap Day. Thom's diagnosis day has become symbolic of his extraordinary journey—rare, remarkable, and filled with unexpected turns. As he celebrates each leap year, he also marks another year of survival, another year of making a difference, and another year of cherishing the gift of time. His story is a profound testament to resilience, courage, and the unwavering human spirit.
This episode is dedicated to Tom Gregory and his wife Debbie.
In this episode of Living Hope, we welcome Mike Greenstein, a committed advocate in the battle against pancreatic cancer, driven by his experience as a caregiver for his sister Jackie. Mike combines his business expertise with deep compassion in his work at Let's Win! Pancreatic Cancer, aiming to strengthen the network of support for patients and their families. He delves into the caregiver's view on recognizing a patient's struggles and discusses ways to assist his sister within this reality. Additionally, Mike highlights the vital role that coaches play in guiding families through the pancreatic cancer journey. Tune in for a heartfelt discussion on empathy, assistance, and united efforts towards hope.
"As long as you speak my name, I shall live forever" is dedicated to Jaclyn Hope Greenstein. Jackie is remembered for her spirit and profound love for her family and friends, she was the embodiment of courage. Facing her fears with unwavering bravery. Her legacy of inspiration continues to touch lives daily.
Pamela Acosta Marquardt and Julie Fleshman have both been profoundly impacted by the loss of their parents to pancreatic cancer, which fueled their dedication to creating change. In 1996, Pam faced the loss of her mother after a six-month struggle with the disease. Confronted by the lack of resources and support for pancreatic cancer, she was driven to take action, ensuring that individuals and families affected by this illness would have access to vital information, resources, and hope. Similarly, Julie's journey at PanCAN was ignited by personal tragedy when she lost her father just four months following his diagnosis at the age of 52. Dissatisfied with the inadequate treatment options available, Julie has spent over two decades as a leader and a global catalyst for change, fighting for better outcomes for those facing pancreatic cancer. Together, their personal experiences have not only shaped their leadership at PanCAN but also exemplified their unwavering commitment to the cause.
While facts are critical to understanding and treating the disease, feelings are equally important in shaping the patient's experience and approach to care. The podcast serves as a reminder that in the face of a challenging diagnosis, the fusion of facts and feelings guides not just survival, but the quality of life.
Dr. Jose Trevino serves multifaceted roles one as the Surgeon-in-Chief at Virginia Commonwealth University Massey Cancer Center. He is dedicated to not only providing patient care and education but also contributing to the field of pancreatic cancer research. Developing novel therapies and advancing research in health disparities related to pancreatic cancer are crucial efforts that can have a significant impact on improving outcomes for patients. Clinical trials play a crucial role in advancing medical research and improving healthcare outcomes. We had a honest in depth talk with Dr. Trevino about the world of clinical trials.
"I wanted to be the that person that was going to tackle the the biggest obstacles and you can't get a bigger obstacle than pancreatic cancer." Dr Trevino
"As long as you speak my name I shall live forever" is dedicated to Shana Stein and the others who have participated in a clinical trial with our deepest appreciation.
Sarah Banks from Hirshberg Foundation joins us to discuss her own mother's journey with Pancreatic Cancer. Sarah Banks' personal connection to pancreatic cancer through her mother's journey likely provides a deeply heartfelt and insightful perspective. Her experience may offer a unique blend of personal and professional insights into the challenges faced by both patients and their families when dealing with this disease.
Jay shares his personal journey with pancreatic cancer. Such openness can be incredibly impactful for others facing similar challenges, offering them insight, guidance, and hope.
Thom Mrozek's decade-long battle with pancreatic cancer is a testament to resilience and determination in the face of a challenging illness. Such a journey likely involved numerous highs and lows, requiring immense strength and perseverance.
Dr. Lighter Chen's exploration of acupressure and its potential to facilitate the body's natural healing process by balancing energy flow aligns with traditional Chinese medicine principles. Acupressure is believed to stimulate specific points on the body to alleviate pain, enhance relaxation, and promote overall wellness by addressing imbalances in the body's energy pathways.
Thom Mrozek's willingness to share his experience with the Whipple Procedure offers invaluable insight into a significant aspect of pancreatic cancer treatment. The procedure is known for its complexity and challenges, and hearing firsthand from someone who has undergone it can provide a unique perspective. Thom's journey and his insights could help demystify the procedure for others facing similar decisions and offer them a sense of what to expect in terms of recovery and adapting to post-operative life. What specific aspects of his experience did Thom find most challenging, and what advice does he have for individuals preparing for or recovering from the Whipple Procedure?
Diagnosed in June 2021, Mike Kratzer is an incredibly resilient individual. Facing pancreatic cancer with positivity can be a tremendous challenge, but it also speaks volumes about his strength and mindset. Maintaining such a positive attitude during a difficult journey like this can inspire and uplift not only himself but also those around him. How did he find the strength to stay positive, and what advice does he have for others facing similar challenges?
Losing someone can make the holiday season incredibly tough. It's okay to feel sad during these times. Finding ways to honor and keep the memories of our loved ones alive by sharing stories about them can be a beautiful way to keep their spirit alive during the holidays and help us through the grieving process. Guest Stephannie Ruvalcaba Ho shared some ways to remember our loved ones only on OC Talk Radio livestreamed from @UCI Beall Applied Innovation Center.
Not everyone is up to the Holiday cheer, this episode is dedicated to St James in Newport Beach “Annual Blue Christmas” service on Thursday, December 21 at 7pm “to pray, meditate and console your heart.” For information please email info@stjamesnewport.org
Andrea O'Donnell is a certified Nutritional Therapy Practitioner and owner of Rising Roots Nutrition. She started her business after years of struggling with her own health issues. She went to the doctors but felt she was not being heard or supported by doctors. Wanting to bring her daughter into a healthier lifestyle and wanting to help others after her mother's diagnosis of pancreatic cancer, Andrea started her company. You can contact Andrea at andrea@risingrootsnutrition.com
"I was determined not to let cancer control my life.” Laurie MacCaskill a Professional Speaker, Motivator, Patient Advocate, Cancer Life Coach and a 17-year pancreatic cancer survivor shares her journey and some invaluable tools she developed to help in her fight with the world’s toughest cancer.
Why volunteer for a cancer that has such a dismal outcome? Bringing awareness being around people that you share something in common with helped her to heal having a voice helped her to feel empowered.
Stephannie was the Caregiver for her Grandmother in the non tradional sense. She would visit her, read to her, dance for her or just hold her hand and talk with her.
Stephannie's favorite event is PurpleStride, this year she had a different role, she was able to speak with people attending and was able to share her story and hear their story. In talking to people they expressed they felt hope, felt love and gratiful to have so many people there fighting for a cure.
Stephannie feels volunteering with this group is rewarding in itself. Being a part of something that is giving back to people. The deep friendships you make with the people you volunteer with is rewarding.
"As long as you speak my name, I shall live forever." Is dedicated to my dad, Bill Whitson "Gramps" who died on June 1, 1998 - 25 years ago.
Amy Reiss, the Patient and Family Support Coordinator from the Hirshberg Foundation previewed their 17th Annual Symposium on Pancreatic Cancer (in collaboration with the UCLA Hirshberg Center for Pancreatic Diseases) that was held at UCLA's Luskin Conference Center March 11, 2023.
Watch the 17th Annual Symposium https://youtu.be/OgMZ-TqgrCc
SAVE THE DATE: The 18th Annual Symposium on Pancreatic Cancer is on Saturday, April 13! Registration opens in January 2024
When a guest is unable to come, as sorry as we are, that gives Paul and I the opportunity to talk and do a little catch up. We covered a large range of topics like the Hirshberg Symposium, Taking a Leap of Faith, PanCAN's PurpleStride OC, November Awareness, is COVID still affecting the pancreatic cancer community, mask vs no mask.
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