Living With Lupus UNCENSORED

This season is about YOU. Those of you who have reached out with specific questions on how to help yourself or your loved ones. I hear you and I see you. This journey isn’t an easy one and I’m here to make sure that you can get through it with some support. Episode one is about 5 lesson that I’ve learned while being diagnosed, all through my own experience and with recognition of those who’ve reached out and shared their own experiences. As always, you can find me on Instagram @akidney4paulina - stay strong warriors !

In today’s podcast I review evidence on whether or not lupus is connected to hormone imbalances. I want to remind you guys that my podcast are for you and that if you ever need me to answer something, if you want to reach out please do…you are not alone.

In this episode, I go over my own experience of how our family dynamic completely shifted after a lupus diagnosis in the family. I discuss whether or not genetics play a part in your diagnosis and how the shift in family responsibility depends on who gets diagnosed with lupus and or an auto immune disease

In this episode, I go over the different types of stress and how your body reacts to stress. Everyone reacts differently to stress, but that doesn’t mean we can’t try to decrease the response our body has when we are stressed out. The app I mentioned towards the end of the podcast is called Insight Timer and I highly recommend it! Follow me on social media @akidney4paulina

Today I go into what it is like for me to deal with fatigue in my day to day. I also jump in what it was like dealing with lupus and dating. NOT EASY but we do what we can with the hand we were dealt. Reach out on social media @akidney4paulina

In this podcast, I take the time to discuss the different types of dialysis modes and why I am sticking to the one that I currently have (CVC). Remember I’m always available to answer questions (the best I can) or just talk on insta, Twitter, or tik tok @akidney4paulina

In this episode I go into what it was like for me to grieve the old me. The me before my diagnosis. Although I speak in the lens of autoimmune disease I mention that everyone could experience a time in there life where they were caused to change. Reflect on the accepting of letting go of who you once were. Again, reach out to me on insta @akidney4paulina

In this podcast I go over what it may be like to be gaslit by your health care team and or yourself! I review two research studies that review how often lupus warrior downplay their pain and I share why I think it’s common. I’m always available on Twitter or insta @akidney4paulina

This podcast is meant to shed some light on the negative effects of ageism and invisible illnesses (both mentally and physically). We have all been victim to ageism so now it’s time to talk about it! Please reach out if you want to talk more about it on Twitter or insta @akidney4paulina

In this episode I go over my UCLA SM Hospital stay and why I believe UCLA SM hospital isn’t fit for long term stays. I stayed at UCLA SM for about a month and throughout my stay I went through various stressful events that could’ve been avoided with proper resources, and proper staff training. Follow me on insta @akidney4paulina — ask me your questions, give me your comments — next episode coming next Sunday

Here I go into some background on me, the host of this podcast and my lupus story. I also describe what it was like growing up and being diagnosed at 12. It definitely had its challenges but I hope I’m able to shed some light on a dark situation. Find me on instagram @akidney4paulina if you have comments, questions or insights you’d like me to share or even if you’re a fellow LUPUS WARRIOR 💜🫶🏾 YOU ARE NOT ALONE!