Chasing the Light

In this week’s entry, I share my trip down memory lane as we read through my childhood vision file. I felt so many emotions as I recognized the amount of vision I lost over the past 20 years, and the vision I regained following my surgery in the LCA5 clinical trial. Also, I share the results from my 18-month vision assessments in Philadelphia, and some new findings from the imaging of my retinas. Thank you all so much for following my vision journey through the CTL podcast journal!

In this week’s entry, we welcome a brand-new season of the CTL podcast journal! I share the results of my genetic testing for the breast cancer gene and my MRI from last month. Also, I discuss my upcoming trip to Philadelphia for my 18-month post-surgery vision assessments. Finally, I explain my approach to self-care as I encounter life’s challenges each day. Questions or comments? 📧 CTLpodcastjournal@gmail.com

In this week's entry, I share a special announcement to conclude season 4 of the Chasing the Light Podcast journal. I am so excited to provide a glimpse into my new project, and I hope everyone finds encouragement as they listen to this finale entry! As always, thank you all so much for your love and support as I share my vision journey with you. Please reach out with questions, comments, and/or suggestions for future entry topics via email at: CTLpodcastjournal@gmail.com

In this week’s entry, I share my most recent experience as a guest speaker while I answered teenager’s questions about blindness. Listeners will learn how I describe my vision when I am asked, “what can you see?” Finally, I briefly discuss my new opportunity to ensure accessibility and inclusion for the b/vi community.  Stay tuned for more exciting news and health updates in the next few weeks! Thank you all so much for following my vision journey! Please consider sending your questions and suggestions future entry topics 📧 CTLpodcastjournal@gmail.com

Details: In this week's entry, I provide a detailed health and vision update. Specifically, I share the results from my recent ultrasound and the status of my liver enzyme count. Also, I share my experience with an unexpected running injury to my foot, and the severe symptoms that followed. Lastly, I discuss our upcoming trip to Philadelphia for my 18-month vision assessments in the LCA5 clinical trial. Thank you so much for supporting the Chasing the Light Podcast Journal!

In this week’s entry, I share my recent experiences connecting with others who are currently losing their vision. Listeners will learn proactive suggestions for individuals who may lose their vision in the future. Specifically, I recommend resources, trainings, nutrition tips, and services that may benefit those individuals who are affected by blinding diseases. Finally, listeners will hear my experiences and practices while dealing with vision loss throughout my life.

In this week's entry, I share the details from our most recent snowboarding adventure. Listeners will learn about my past experiences with this awesome winter sport and the recent challenges caused by my vision loss throughout the last decade. It was so special to be able to share a piece of my youth with my family, but it was discouraging to recognize the effects of my retinal disease in my adulthood. Regardless, I am grateful for the vision that remains, and I am confident in God's protection over my life no matter what happens. As always, thank you all so much for supporting the Chasing the Light podcast journal! Questions or comments? E-mail us at CTLpodcastjournal@gmail.com

In this week’s entry, I share the details from our eventful first week of the new year. Listeners will learn about a health concern that could be potentially related to my vision condition, Lebers Congenital Amaurosis. Also, I discuss our latest travel adventure and the challenges I experienced as a result of my blindness. Let’s just say, we are in for a wild 2025 if the rest of this year reflects the first seven days!

In this week’s entry, I am thrilled to be joined by my husband Zach and our two sons, Lucas & Jaxon! This is an unfiltered and unscripted authentic edition in celebration of reaching 50 podcast journal entries! Listeners will enjoy a candid conversation between the Rambo Family which includes some fun rapid-fire questions for the whole crew! We couldn’t think of a better way to welcome 2025! Happy New Year everyone! Thank you all so much for supporting Chasing the Light!

In this week’s entry, it is my pleasure to introduce my new friend, Audrey Joy! Listeners will have the opportunity to hear Audrey’s incredible vision story and learn about our newly discovered bond through blindness as LCA5 sisters! This is a super special entry that I can’t wait to share with everyone! Enjoy a lovely & original tune sung and played by Audrey at the end of our interview. As always, thank you all so much for supporting Chasing the Light! Questions or comments? E-mail us at CTLpodcastjournal@gmail.com

In this week’s entry, I share the details from my birthday week and the wonderful blessings I experienced from some very special moments. Specifically, I discuss the beautiful connections made during the National Clinical Trial Webinar, a race to remember, and the awesome news of having my book purchased for sale in a local farm market! Listeners will hear the details about my birthday book launch and the sweet celebration that occurred during my workday. Lastly, I will share my excitement about my first time meeting someone else who has the LCA5 vision disease such as my own. It was surely an unforgettable way to embark on a new year of life! As always, thank you all so much for supporting Chasing the Light and my first book, Joyfully and Faithfully Fit! Joyfully and Faithfully Fit is available on Amazon today! Please see the link below: Joyfully and Faithfully Fit: A 12-Week Daily Devotional for a Healthy Heart and Soul https://a.co/d/gHVqW2h All proceeds generated from the sale of this book will be donated to the Foundation Fighting Blindness to fund critical sight-saving research and treatments for various blinding inherited retinal diseases.

In this week's entry, I share the recording from the Foundation Fighting Blindness Clinical Trial Webinar on December 7, 2024.  Specifically, I recorded the Panelist and Q&A session of the event in which I was honored to share my clinical trial experience alongside two other panelists (parents of children in clinical trials).  It was a wonderful opportunity to learn about the various active clinical trials and I am very excited to share this special memory with our Chasing the Light audience!  As always, thank you all so much for supporting the podcast journal!

In this week’s entry, I share another significant detail about my book, Joyfully and Faithfully Fit and the positive impact that may result with the purchase of each copy. Also, listeners will learn about the local businesses who are interested in including my book in their market inventory in the months ahead! Finally, I discuss the upcoming National Webinar on Clinical Trials which I will serve as a panelist on December 7th (please find the free register link below if you would like to attend this virtual event). As always, thank you all so much for supporting the podcast journal and all of my adventures! 👁️ 🌈 🙏🏻 Register here for the Foundation Fighting Blindness' National Webinar on Clinical Trials: https://www.fightingblindness.org/events/national-webinar-on-clinical-trials-2022

In this week’s entry, I share hosting hacks to keep in mind while welcoming blind and low vision guests into your home this holiday season! 🎄 Listeners will hear a few of my personal experiences with this topic and suggested solutions to the struggles I encounter when I enter an unfamiliar environment for the first time. Thank you all so much for supporting Chasing the Light! Have a blessed and beautiful Thanksgiving! 🦃

In this week’s entry, I am so excited to announce the official release date of my book Joyfully and Faithfully Fit! Also,  listeners will have the opportunity to hear me read the introduction from the book and I will share the behind the scenes details of my book writing process over this past year!  As I read the introduction, I hope listeners gain a greater understanding of the difficulties associated with reading as an individual with a visual impairment. I am full of gratitude as I near the finish line for this goal in my life. I truly poured my heart and soul into this project, and I pray it encourages and touches the lives of those who choose to read it. 🙏🏻 Stay tuned for another entry with more book details coming soon!

In this week’s entry, listeners will hear a recap of our family’s October fun which includes long runs, basement finishing projects, and two very exciting announcements! We tied up many loose ends last month and I am super thrilled to share some awesome news with you all! Thank you so much for supporting Chasing the Light!

In this week’s entry, I eagerly share the latest results from my one-year post surgery vision assessments in Philadelphia. Throughout tow full days of testing, we had the privilege to learn that I have gained another increase in vision since February (6-month appointments). I am excited to share the details from this most recent visit to the University of Pennsylvania! Thank you all for your continued love, support, encouragement, and prayers throughout my vision journey!

In this week’s entry, listeners will hear a flashback entry which combines my pre-surgery and post-surgery entries from last September. New Chasing the Light listeners will have an opportunity to gain a great understanding of the mental, physical, and emotional aspects associated with my participation in the LCA5 clinical trial and surgery. Additionally, our faithful- from-the-start listeners will have an opportunity to flashback with us and recognize the many positive vision changes and blessings which occurred over this past year. I hope everyone finds encouragement and hope as they listen to this very special podcast journal entry. Thank you all so much for your amazing support and love throughout my vision loss and restoration journey!

In this week’s entry, I share a behind the scenes look into my year of wandering and pondering the next season of my life. I discuss the many emotions I experienced while I dealt with rejection after rejection during my job search this past year. Listeners will learn the details about the many closed doors I encountered and how they lead me to the beautiful opportunities I have today!

In this week’s entry, I share the details from our recent move to Virginia and a recap of our first summer in the new house. Listeners will learn about my experience navigating our new community with my visual impairment. Also, I include a highlight of the reactions I continue to receive as I meet new people and tell them I am legally blind. For those of you who have been waiting on the full scoop from our move, this entry has it all! Lastly, stay tuned for an update following my one year post-op vision assessments in September! 👁️🌈🙏🏻