Neuroshambles

To kick off Season 3, Mark welcomes back Neuroshambles favourite Heidi Mavir - bestselling author, speaker, fearless advocate and proud neurodivergent parent - for a lively and cathartic deep dive into swearing. From F-bombs on the trampoline to grandparent-safe alternatives, they explore how language, context, and neurodivergent wiring all shape how (and why) our kids swear. This warm and witty episode unpacks the relationship between swearing and regulation, impulse control, PDA (Pathological Demand Avoidance), sensory overload, and social context. Expect plenty of laughs, the occasional C-bomb, and a ton of relatable chaos for anyone raising autistic, ADHD, or otherwise differently-wired kids. Whether you’re a proudly sweary household or struggling to police your neurodivergent child's potty-mouth moments, this episode is packed with nuance, honesty, and a surprising amount of empathy - even for those who hate bad language. ⸻ CHAPTER TIMESTAMPS (Estimated): 00:00 - Welcome Back & Meet the Guest: Heidi Mavir 03:00 - School Turbulence, Burnout & Finding Your Flow 08:00 - Why Swearing Is This Week’s Topic 12:00 - What Is a Swear Word Anyway? 18:00 - Swearing, Context & Cultural Taboos 25:00 - Family Rules: “Nana Swears” vs “F-Bombs at Home” 33:00 - Parenting Through Swearing: Where Do You Draw the Line? 41:00 - PDA, Equalising Behaviour & Rage Rooms 50:00 - When the Swears Are Aimed at You 58:00 - Swearing as a Self-Regulation Strategy 1:03:00 - Should We Be Policing Swearing at All? 1:12:00 - Swearing and Impulse Control in ADHD 1:17:00 - Teaching Context Without Policing Expression 1:25:00 - Workarounds, Wordplay & Sweary Shenanigans 1:30:00 – Tiny Epic Wins 1:35:00 – What the Flip? Moments 1:40:00 - Wrap-Up & Where to Find Heidi ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: Heidi Mavir website - https://www.heidimavir.com/ Heidi’s “Your child is not broken” book - https://amzn.eu/d/cjoih9W Eliza Fricker “Can’t not won’t” book - https://amzn.eu/d/91m7voc PDA (Pathological Demand Avoidance) - https://www.pdasociety.org.uk/what-is-pda/ “F*ck you I won’t do what you tell me”, song lyric by Rage Against The Machine - https://www.youtube.com/watch?v=bWXazVhlyxQ Lindsay McGlone - https://www.instagram.com/rollinwithlindsay_/ Reclaimed Means Business - https://lindsaymcglone.kartra.com/page/RMB2025 ⸻ CONTACT US 🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme music by Skilsel on Pixabay: pixabay.com

In this season finale, Mark welcomes back the brilliant Lisa Galley (@school_run_mum_autism), who is an autism family consultant, ex-speech and language therapist, and mum of three grown-up autistic humans.  Together, they discuss how the summer holidays are a very different experience for parents of neurodifferent kids and why the concept of a “relaxing summer” is more often myth than reality. Touching on the common parental feelings of boredom, guilt and the ever-present FOMO, this is a candid, humorous and occasionally insightful look at what we're going to be experiencing over the summer when it seems like we're house-bound with our autistic, ADHD and PDA kids. ⸻ CHAPTER TIMESTAMPS (Estimated): 00:00 - Intro & Meet the Guest: Lisa Galley 04:00 - Introducing the topic of the week 06:30 - The burden of boredom 10:00 - Dealing with guilt of not providing the "perfect" summer 17:00 - The loss of spontaneity and the rampant FOMO 26:30 - The unspoken impact on working parents 30:00 - Attempting to go on holiday 34:00 - The importance of summer holidays for our kids 38:00 - Q&A: Answering listeners' summer holiday questions 41:00 - Testing out home education in the summer 45:00 - How to help yourself as a parent 47:30 - The challenges of co-parenting in the summer holidays 58:00 - Advice from listeners 1:03:00 - The positives of the summer holidays 1:05:00 - Neurodiversity Champions 1:08:30 - Tiny Epic Wins 1:11:30 - "What the Flip?" moments 1:16:30 - Outro and Season Wrap-Up ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: Lisa Galley Instagram: https://www.instagram.com/school_run_mum_autism/ Parent Carer Cheerleeding Squad Facebook Group - https://www.facebook.com/parentcarercheerleadingsquad Special Assistance at airports - https://www.caa.co.uk/passengers-and-public/special-assistance/accessing-special-assistance/ We're Not Your Typical Podcast - https://were-not-your-typical-podcast-258bbca3.simplecast.com/ Let’s Talk Neurodivergent Kids Podcast - https://pod.link/1442067009 Legoland Windsor Accessibility Pass - https://www.legoland.co.uk/plan-your-day/before-you-visit/accessibility/ "Holidays" episode of Neuroshambles - https://pod.link/1710455546/episode/2b5dc7973b418c9d6069ced370c409b9 "Hobbies" episode of Neuroshambles - https://pod.link/1710455546/episode/19a31193017cd7413d681ff3b36119eb Lisa Galley's Summer Survival Guide - https://lisagalley.myflodesk.com/survival ⸻ CONTACT US 🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme music by Skilsel on Pixabay: pixabay.com

In this episode of Neuroshambles, Mark is joined by returning guest Hatty Ashdown - not only a parent of a neurodivergent child, but also a brilliant comedian, writer and host of the Funny Mummies podcast. Together they dive into the deceptively simple but totally chaotic world of swimming. For children with autism, ADHD, PDA, and other forms of neurodivergency, swimming can be simultaneously a magical sensory experience and an absolute logistical nightmare. From the infuriating act of trying to get them to swim in the first place, to negotiating the changing room routine, navigating the lockers and dealing with their antics in the pool, Mark and Hatty share candid and hilarious tales of what it’s like to take your neuro-exceptional brood swimming - and why we keep doing it, despite the enormous faff. ⸻ CHAPTER TIMESTAMPS (Estimated): 00:00 - Intro & Meet the Guest: Hatty Ashdown 06:00 - Topic of the Week: Swimming 09:00 - Why do neurodivergent kids love swimming? 15:00 - The challenge of teaching neurodivergent kids to swim 30:30 - The massive faff of a swimming trip: Hatty's routine 37:00 - The massive faff of a swimming trip: Mark's routine 42:00 - The chaos of changing rooms 46:30 - The stress of the lockers 53:00 - Shenanigans in the pool 59:30 - Losing their goggles 1:04:00 - The Positives: the joy of swimming 1:08:00 - Neurodiversity champions 1:12:00 - Tiny epic wins 1:15:00 - What the Flip? Moments 1:20:00 - Wrap-Up and Where to Find Hatty ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: • Hatty Ashdown’s Website – https://hattyashdown.com/ • Funny Mummies Podcast: Basics – https://pod.link/1451332466 • Funny Mummies Podcast: VIP (Patreon) – https://www.patreon.com/FunnyMummiesPodcast • Bella Ramsey (Neurodiversity Champion) – https://en.wikipedia.org/wiki/Bella_Ramsey ⸻ CONTACT US 🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme music by Skilsel on Pixabay: https://pixabay.com

Following on from part 1, fan favourite Jo Matthews joins Mark once more for another laughter-filled, cathartic rant through the most mind-bogglingly ill-informed things people have said about raising autistic, ADHD, PDA and otherwise neurodivergent kids. This one features a fresh batch of well-meaning nonsense, unsolicited advice, and flat-out offensive comments submitted by Neuroshambles listeners. It’s funny, familiar, and frighteningly relatable. ⸻ CHAPTER TIMESTAMPS (Estimated): 00:00 - Intro & Meet the Guest: Jo Matthews Returns 05:30 - "Have you tried a routine?" 10:30 - "Have you tried a parenting course?" 13:30 - “Have you tried changing their diet?” 17:00 - "Why don't you take their screens away?" 20:00 - "Does he have mild autism?" 25:30 - Good autism v bad autism 29:00 - “We’re all a bit autistic" 34:30 - "ADHD is just an excuse" 37:00 - “It doesn't define him” 41:00 - "There's nothing wrong with him" 43:00 - Medical v Social models of disability 47:30 - "My kid does that" 50:00 - “He'll eat when he's hungry" 52:30 - “He'll grow out of it" 54:30 - “He doesn't look autistic" 56:30 - “But, he can talk, so he can’t be autistic” 59:00 - “ADHD is just for boys” 1:01:30 - "What's wrong with him?" 1:02:30 - "I bet he's good at maths" 1:04:30 - "I don't know how you do it" 1:07:00 - Misguided empathy: "I know how you feel" 1:09:00 - "But I do that and I'm not autistic" 1:14:00 - The completely batshit mental comments 1:20:00 - Neurodiversity Champions 1:21:30 - Tiny Epic Wins 1:25:00 - "What the flip?" moments 1:27:30 - Wrap-up & contact info ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: The medical vs social models of disability: www.scope.org.uk/about-us/social-model-of-disability/ Autism assessments (AQ Test): www.embrace-autism.com/aq-10/#test Bowles Outdoor Centre - www.bowles.rocks ⸻ CONTACT US 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme music by Skilsel on Pixabay: https://pixabay.com

In this episode, Mark is joined once again by the brilliant Jo Matthews for a cathartic, hilarious, and occasionally sweary dive into the unfiltered reality of parenting autistic, ADHD and PDA kids. From "It's just a label" and "He’s fine with me" to "You just need to push them out of their comfort zone", this is part one of a two-part special on the unsolicited commentary we all get, whether it’s from strangers, family members, or well-meaning-but-utterly-wrong professionals. The kind of comments that pretend to be supportive but are really just dismissive, ignorant, or unhelpfully optimistic. Together, Mark and Jo share personal stories, listener submissions, and a few moments of pure rage-laughter, as they unpack why these statements cut so deep – and how to push back with humour, honesty, and the occasional incredulous raise of the eyebrow. ⸻ CHAPTER TIMESTAMPS (Estimated): 00:00 – Intro & Meet the Guest: Jo Matthews 06:00 – “It's just a label” 08:00 - The story of Rube Waddell 16:00 - "Stop Mollycoddling your child" 21:00 - "You let them win too much" 22:30 - "Can't you just make them do it?" 26:00 - "You should make their home life more unpleasant" 28:00 - "Your parenting is wishy washy" 31:00 - "Children just need boundaries" 36:00 - "You need to push them out of their comfort zone" 43:00 - "Are you too afraid to say no?" 48:00 - "How will they manage in the real world?" 52:00 - "Sometimes, it's a choice" 54:00 - "They're just trying to get their own way" 01:02:00 - "They're fine when they're with me" 01:07:00 - The Positives 01:09:30 - Neurodiversity Champions 01:12:00 - Tiny Epic Wins 01:14:30 - What the Flip? 01:17:00 - Wrap-Up & What’s Coming in Part Two ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: Rube Waddell - https://en.wikipedia.org/wiki/Rube_Waddell "Am I raising an arsehole?" episode of Neuroshambles -https://pod.link/1710455546/episode/a313c1057becbcd2e24d64c5bf94820e "The Explosive Child" book - https://drrossgreene.com/the-explosive-child.htm ⸻ CONTACT US 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme music by Skilsel on Pixabay: https://pixabay.com

In this episode, Mark takes a typically sideways look at the idea of hobbies – those wholesome after-school activities that see neurotypical kids flourish… but which, for many neurodivergent families, are either a logistical nightmare, a sensory minefield, or a fast track to public meltdown. Joining him is the brilliant Nicole Bateman – podcast host (Conversations with a SEND Mum), former teacher, trainer, and founder of The Friendly SEND Advisor and Super Sensory Squad. Together, they explore the myths, pressures and downright ridiculousness of what “having hobbies” means when your kids are autistic, ADHD or PDA. They cover what actually works, what definitely doesn’t, and the benefits of learning to follow your neurodifferent child's lead, so you can meet them where they're at, rather than where you want them to be.   STUFF WE COVER: 00:00 – Intro & Meet the Guest: Nicole Bateman 03:00 – The fantasy of hobbies vs the reality 08:00 – Issues with trust and accessibility 13:00 – After-school clubs 18:00 – The Summer holiday hobby void 25:00 – Trying to force your neurodivergent children to have a hobby 33:00 – Social disconnect in group settings 39:00 – When your best intentions fail 44:00 - Environmental barriers to adopting a hobby 47:00 – Competitive Sport: Gift or Curse? 53:00 – Caesar-or-Nothing syndrome & hobby avoidance 59:00 – Drop-off disasters 1:07:00 – What *does* work? 1:12:00 – It's not all rubbish: A look at the positives 1:15:00 – Neurodiversity Champions 1:23:00 – Tiny Epic Wins 1:26:00 – What the Flip? Moments 1:29:00 – Wrap-Up & Where to Find Nicole   LINKS TO STUFF WE MENTION IN THIS EPISODE: Nicole Bateman’s Website – Friendly SEND Advisor and Super Sensory Squad: https://nicolebateman.co.uk/ Conversations with a SEND Mum – Nicole’s podcast: https://conversationswithasendmum.buzzsprout.com/ Super Sensory Squad Book – ‘Buzz’s Birthday’ and other penguin-based sensory tools: https://www.thesupersensorysquad.com/ Cub Scouts: https://www.scouts.org.uk/cubs/being-a-cub/joining-cubs/ Lisa Lloyd reel - Neurotypicals watching what their parents watch: https://www.instagram.com/reel/DIzCFBxNzxT “Why Can’t I Just Enjoy Things?” by Pierre Novellie – Caesar-or-nothing brains and comedy insight: https://amzn.eu/d/dSZA4dC Minecraft Club - Online Social Group for 7-14 year olds: https://minecraftclub.co.uk/ Press Play - Stop frame animation workshops in Sussex: https://pressplayfilms.co.uk/  Boogie Beat - Music and movement classes: https://boogiebeat.co.uk/ Sam Mills – Disability Tennis Brighton: Email smsportsolutions@gmail.com for information   CONTACT US 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles   CREDITS 🎶 Theme music by Skilsel on Pixabay: https://pixabay.com  

This week, Mark dives into the chaotic, absurd and quite often traumatic world of shopping with neurodivergent children. If you’ve ever emerged from a supermarket having to impulse buy paracetamol just to get you through the shop, then this one’s for you. Joining Mark is the brilliant Helen Stuart – a mum of six (four of her own and two step-children - all diagnosed or suspected neurodivergent), home educator, and co-founder of Thrive Together Training. Between them, they dissect the minefield of supermarkets, the unpredictability of meltdowns triggered by automatic doors, sensory overwhelm, the trauma of shopping for clothes, rage waiting, and the unholy panic when you realise the supermarket has unexpectedly moved everything around. This is a laugh-out-loud, painfully relatable episode for anyone who has ever had lofty ambitions to do a quick “top up shop”, before ending up having to negotiate UN-level peace deals with your child in the frozen food aisle.   STUFF WE COVER: 00:00 – Intro & Listener Feedback 02:00 – Meet the Guest: Helen Stuart 06:00 – Topic of the Week: Shopping 13:00 – Why Supermarkets Are Sensory Torture 19:00 – The Emotional Toll of Trolleys and Comments 25:00 – PDA Autonomy, Meltdowns, and the Elsa Cup Incident 33:00 – Supermarket Sweep, PDA-Style 39:00 – Self-Checkouts vs Human Interaction 45:00 – Clothing & Footwear Battles 52:00 – Lush, Libraries and Return Rage 59:00 – When Book Tokens Become a Poisoned Chalice 1:04:00 – The Positives (Yes, Really!) 1:10:00 – Neurodiversity Champions 1:16:00 – Tiny Epic Wins 1:20:00 – What the Flip? Moments 1:23:00 – Wrap-Up & Thrive Together Info LINKS TO STUFF WE MENTION IN THIS EPISODE: PDA Society - Support and resources for families living with a PDA profile: https://www.pdasociety.org.uk Supermarket Sweep - https://en.wikipedia.org/wiki/Supermarket_Sweep_(British_game_show) Sunflower Lanyard Scheme - For invisible disabilities: https://hiddendisabilitiesstore.com Waterstones Book Tokens - https://www.waterstones.com/help/gift-cards-and-vouchers/32 H&M - https://www2.hm.com/en_gb/kids.html Skechers - https://www.skechers.co.uk/kids/ Lindsay's Swim School - https://www.facebook.com/profile.php?id=100063580090089&sk=about Nelson Street Church, Rochdale - https://www.nelsonstreetchurch.org/ Thrive Together Training website – https://thrivetogethertraining.co.uk Thrive Together Training Facebook page – www.facebook.com/thrivetogethertraining Thrive Together Training Instagram account – www.instagram.com/thrivetogethertraining ⸻ CONTACT US 🎧 Do you have a “What the flip?” moment or a tiny epic win to share? 📧 Email us: hello@neuroshambles.com ⸻ FOLLOW US 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme tune by Skilsel on Pixabay: https://pixabay.com  

In this long-overdue episode, Mark is joined by the brilliant Helen Daniel, who is a qualified teacher, sensory mentor, public speaker and founder of Outside the Box Sensory, as they dig into the myriad challenges of early years education and what it means for our neurodivergent kids. Helen brings a unique perspective not only as a parent of an autistic child (diagnosed autistic, suspected ADHD), but also as a late-diagnosed autistic ADHD-er herself, and a former teacher who’s seen the system from the inside out. Together, she and Mark pick apart the weird rituals, unrealistic milestones and baffling expectations of primary school - and why it often ends up being a really poor fit for neurodivergent kids. From sensory overload and academic gaslighting to the slow-burning isolation that builds in the school playground (for kids and parents alike), this one is jam-packed with insight, shared experiences and the usual healthy dose of humorous venting. ⸻ STUFF WE COVER: 00:00 – Intro & Listener Message 01:45 – Meet the Guest: Helen Daniel 06:00 – Topic of the Week: Early Years & School 21:00 – Sensory Profiles and Unrealistic Expectations 34:00 – ND Communication Styles & Social Hierarchies 47:00 – Parent Isolation and Drop-Off Struggles 56:30 – School Pickup Dread & Neurodivergent Burnout 1:03:00 – What Needs to Change in Education 1:04:45 – Neurodiversity Champions 1:09:00 – Tiny Epic Wins 1:14:00 – What the Flip? Moments 1:17:00 – Wrap-Up & Helen’s Book Plug ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: Outside the Box Sensory (Helen’s website for talks, training and resources) - https://outsidetheboxsensory.com Follow Helen on Instagram – https://www.instagram.com/otbsensory Follow Helen on Facebook - https://www.facebook.com/outsidetheboxsensory Helen’s book – Neurosensory Divergence: Autistic Languages and Inclusion (Amazon): https://www.amazon.co.uk/dp/B0CV4PSMH7 The Double Empathy Problem – Dr. Damian Milton: https://reframingautism.org.au/miltons-double-empathy-problem-a-summary-for-non-academics Heidi Mavir Neuroshambles Empathy Episode - https://www.podbean.com/ew/pb-avrx7-17af07c Pete Wharmby Neuroshambles Masking Episode - https://www.podbean.com/ew/pb-cke9u-18156f6 Progressive Education – Resources for alternative provision and inclusive practice: https://www.progressiveeducation.org Grove Neurodivergent Mentoring & Education – Interest-based communities for ND kids: https://www.gr0ve.org/ Silent Disco - https://en.wikipedia.org/wiki/Silent_disco ⸻ CONTACT US 🎧 Got a “What the flip?” moment or a tiny epic win to share? 📧 Email us: hello@neuroshambles.com ⸻ FOLLOW US 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles ⸻ CREDITS 🎶 Theme tune by Skilsel on Pixabay: https://pixabay.com  

Have you ever felt like the odd one out in your own family? In this episode, Mark chats with Kirsty Hockenhull, a fellow self-diagnosed neurotypical in the midst of a chaotic, neurodivergent household. They discuss how it feels to be the lone neurotypical in a family teeming with autism, ADHD, and PDA - touching on everything from helping them navigate everyday social conventions to how to cope when your emotional needs are the only ones not being accommodated for. They discuss the challenges of bridging two worlds - interpreting “neurotypical” rules for neurodivergent loved ones, while also learning where those same social norms should be thrown out of the window altogether. There are candid insights into parenting styles, navigating brutal honesty (“Mum, why are you so old?” or “Dad, you should iron your face!”), and the realisation that sometimes your greatest strength is simply having enough “spoons” to hold it all together. Finally, there’s a celebration of the positive side: how being the lone neurotypical can be a privilege in its own right, helping you see the world from an entirely new perspective and become a better parent—and person—along the way. ⸻ LINKS TO STUFF WE MENTION IN THIS EPISODE: Pizza Express - https://www.pizzaexpress.com/ The Great Escape - https://greatescapefestival.com/ Wife Swap - https://en.wikipedia.org/wiki/Wife_Swap_(British_TV_series) Gorilla Gym - https://amzn.eu/d/bpK6C0G Angela Barnes – https://www.angelabarnescomedy.co.uk/ The Stimming Pool - https://www.thestimmingpool.com/ Electric Palace Cinema, Hastings - https://www.electricpalacecinema.com/ Lucy Bronze – https://www.youtube.com/watch?v=xriJ8wZm1w4 ⸻ CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions, or any “What the flip?” moments you’d like to share, feel free to email us: hello@neuroshambles.com ⸻ FOLLOW US Instagram: instagram.com/neuroshambles TikTok: tiktok.com/@neuroshamblespod Facebook: facebook.com/Neuroshambles Threads: threads.net/@neuroshambles ⸻ CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/   Thank you for listening and being part of the Neuroshambles community. If you enjoyed this episode, please tell a friend, leave a review, or share it on social media. Have a nice life!

This episode shines a light on the tricky subject of parental burnout, which isn't widely discussed in relation to the challenges of raising neurodifferent kids. Mark chats with the magnificent Liz Evans of "The Untypical OT Talks" podcast, who is a parent of a 14-year old boy (undiagnosed neurotypical) and a 13-year old boy (diagnosed autistic, with sensory processing difficulties and suspected Ehlers Danlos Syndrome). Liz discusses her own experiences of parental burnout, and shares her knowledge of how to spot the signs of impending burnout, before offering guidance on strategies we can implement to avoid it happening to us - because let's face it, many parents of neurodivergent kids are constantly dancing around the edges of it.   LINKS TO STUFF WE MENTION IN THIS EPISODE: Together For Send Conference, Bristol - https://www.bristolparentcarers.org.uk/events/togetherforsend2025/ The Untypical OT website - https://the-untypical-ot.co.uk/ The Untypical OT podcast - https://open.spotify.com/show/0L6K6RwcErY5Z9tggI40F3?si=d32fc06ab7ca4c60 The Untypical OT podcast (Heidi Mavir episode) - https://open.spotify.com/episode/49CtSzTKt8WStCL6bo8d5h?si=gVjZWlSgSj23eHJoMIGxWA Workplace Burnout - https://www.who.int/news/item/28-05-2019-burn-out-an-occupational-phenomenon-international-classification-of-diseases Brené Brown short film on Empathy - https://youtu.be/1Evwgu369Jw?si=nRHnjrN2pb4jZ-W7 Super Good Bikers For Autism - https://www.supergoodbikersforautism.com/ The Stimming Pool - https://www.thestimmingpool.com/     CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

In this special episode, Mark speaks to Tam, who is his former partner, current co-parent and long time friend. They discuss the long and arduous diagnosis journeys of their three neuro-exceptional kids, who each followed completely different routes in the UK - from NHS/CAMHS and private diagnosis, to the "Right to Choose" pathway. This is a uniquely intimate and candid episode, where both parents reflect on the emotional rollercoaster of seeking diagnoses for Jay (11, diagnosed autistic/ADHD), Otto (9, diagnosed autistic/ADHD) and India (suspected autistic/ADHD... until now). By a strange quirk of fate, the recording date of this episode fell on the same day they received the results of India's autism assessment, so you can hear their reaction to this, just moments after receiving the news, as they consider what it now means for their family.   LINKS TO STUFF WE MENTION IN THIS EPISODE: CAMHS - https://www.youngminds.org.uk/young-person/your-guide-to-support/guide-to-camhs/ The Effra Clinic - https://www.effraclinic.co.uk/ Right To Choose - https://www.nhs.uk/using-the-nhs/about-the-nhs/your-choices-in-the-nhs/ All Dogs Have ADHD - https://amzn.eu/d/8Tzq6dj All Cats Are on the Autism Spectrum - https://amzn.eu/d/byZg2mQ ADHDUK - https://adhduk.co.uk/ Heba App (formerly Hibi) - https://www.heba.care/     CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

This episode takes a deep dive into why so many of our neurodivergent children feel the need to mask their autistic traits in social situations. Mark chats to fabulous guest, Pete Wharmby, who, as well as being a parent of a 10 year old girl (suspected autistic, but if anyone's going to be able to spot one, it's Pete), is also an author, a tutor, a conference speaker and a prolific advocate for the neurodivergent community. As an autistic/ADHD adult, he offers some frank and honest insights into some of the masking behaviours he employed when he was a child. This fascinating and wide ranging conversation looks at what masking is, why our kids do it and the many strategies they use to hide their autistic traits in many staunchly neurotypical environments. They also discuss some masking strategies used by people with ADHD, before looking at the harmful impact masking can have in the long term if accommodations aren't made. LINKS TO STUFF WE MENTION IN THIS EPISODE: Pete Wharmby's website - https://petewharmby.com/ "Untypical" by Pete Wharmby - https://amzn.eu/d/35cWwBh Alexis Quinn - https://www.autism.org.uk/advice-and-guidance/stories/stories-from-the-spectrum-alexis-quinn University of Edinburgh study in autistic communication with other autistics - https://salvesen-research.ed.ac.uk/our-projects/autistic-autistic-communication Autistic code switching - https://myautismmind.com/autism-masking/ Autistic Girls Network - https://autisticgirlsnetwork.org/ Lego hidden disabilities sunflower - https://hdsunflower.com/uk/insights/post/the-lego-group-joins-hidden-disabilities-sunflower "What I Want To Talk About" by Pete Wharmby - https://amzn.eu/d/3HoKSt9   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

This episode deals with the familiar frustration of having to deal with the experts who are gatekeepers to the accommodations our neurodifferent kids need. From teachers, whose evidence you have to seek in order to get a diagnosis, to CAMHS specialists, GPs, occupational therapists and paediatricians - the list of professionals we need to interact with is dizzying. Mark talks to wonderful guest Charlotte Mountford, parent to three neurodivergent boys: a 17-year old (suspected autistic), a 14-year old (diagnosed autistic) and a 13-year old (diagnosed autistic, suspected ADHD). Mark and Charlotte swap stories of their own experiences with experts - both good and bad, and discuss how to react when you realise that you actually know more than the professional in front of you.  LINKS TO STUFF WE MENTION IN THIS EPISODE: "Outliers: The Story of Success" by Malcolm Gladwell - https://amzn.eu/d/91hZpN4 Dean Beadle Instagram - https://www.instagram.com/deanbeadlespeaker/  Dean Beadle Facebook - https://www.facebook.com/dean.beadlespeaker Dan Beadle YouTube - https://youtube.com/@deanbeadleuk Eliza Fricker - https://missingthemark.co.uk/ Kieran Rose - https://theautisticadvocate.com/ "Bilal's Bad Day" by Neelum Khan - https://amzn.eu/d/5amH9zO "Neurotypicals don't juggle chainsaws" podcast - https://neurotypicalsdontjugglechainsaws.co.uk/ Liz Evans: The Untypical OT - https://the-untypical-ot.co.uk/ Badger Education Instagram - https://www.instagram.com/badger.education Badger Education Facebook - https://www.facebook.com/Badger.Education.Inclusive.Supports Badger Education Free PDF - https://badger-education.co.uk/reasonable-adjustments-opt-in-2893   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark talks to the tremendous Rebecca Huseyin, who is a blogger, trainer, neurodiversity advocate and Mum of a neurodifferent son (13, diagnosed autistic with a PDA profile and suspected ADHD). They swap tales of the ludicrous lengths they go to when trying to navigate personal hygiene tasks, such as cleaning hands, wiping faces, brushing teeth, having baths, cutting fingernails and wiping bums. There are some hilarious anecdotes of the lengths to which Mark and Rebecca go to encourage their kids to engage in hygiene tasks - from fake drowning them in the bath, cleaning their teeth like a Victorian ghost and introducing the concept of "special dry". LINKS TO STUFF WE MENTION IN THIS EPISODE: The Lighter Side of PDA Facebook Group - https://www.facebook.com/groups/LighterPDA/ Rebecca Huseyin blog (A Boy Less Ordinary) - https://aboylessordinary.com/ SENDIASS - (Google for your local county SENDIASS details) PDA Society - https://www.pdasociety.org.uk/ Proprioception and Interoception: https://www.autismspeaks.org/sensory-issues Oranurse unflavoured toothpaste - https://oranurse.co.uk/unflavoured-toothpaste/ Little teeth toothpaste - https://www.aquafresh.com/en-gb/our-products/kids-oral-care/little-teeth-toothpaste/ Big teeth toothpaste - https://www.aquafresh.com/en-gb/our-products/kids-oral-care/big-teeth-toothpaste/ The Prism Cat - https://linktr.ee/KyraChambers   Tesco Mobile Sensory Box - https://bettersociety.net/tesco-mobile-sensory-box.php Insanity Arcade, Poole - https://www.insanityarcade.com/home   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark welcomes back the phenomenal Heidi Mavir, who is an  author, a neurodivergent advocate, activist, public speaker and Mum of a neurodifferent son (20, diagnosed autistic with a tic disorder, as well as suspected dyslexia and  Ehlers Danlos Syndrome). They pick up on a topic they very briefly touched on in the previous episode they recorded, which is whether there's any truth to the commonly-held belief that autistics don't feel empathy (spoiler alert - that view is abject nonsense). They dissect the very concept of empathy to try and understand why it's viewed as so important to neurotypicals, what "the double empathy problem" is and why our kids' way of displaying and responding to empathy is so varied. This is a genuinely insightful episode that gives a lot of food for thought when considering whether our own kids are able to feel empathy.   LINKS TO STUFF WE MENTION IN THIS EPISODE: Heidi Mavir EOTAS Matters website - https://www.heidimavir.com/ "Your Child Is Not Broken" by Heidi Mavir - https://amzn.eu/d/8di4y0X "Why Can't I Just Enjoy Things?" by Pierre Novellie - https://amzn.eu/d/fd51tDR "How To Win Friends and Influence People" - https://amzn.eu/d/fd51tDR The Double Empathy Problem - https://reframingautism.org.au/miltons-double-empathy-problem-a-summary-for-non-academics/ "I Didn't See You There" by Charlotte Gail - https://amzn.to/3PUk4n1 Sesame Street Introduce Autistic Character - https://youtu.be/dKCdV20zLMs Muppet Christmas Carol - https://youtu.be/JXaVI60BFJM Heidi Mavir on TikTok - https://www.tiktok.com/@heidimavir   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

In response to several requests from listeners, this episode is all about the complexities of giving medication to our neurodivergent kids. Mark speaks to the tremendous Danielle Jata-Hall, who is an author, award-winning blogger and a disability campaigner. She has three children (13, 11 and 8 - all diagnosed Autistic with a PDA profile, as well as a blend of ADHD, Anxiety and potential bipolar disorder). Mark and Danielle discuss the medication journeys they've been on with their own kids, from overcoming their initial misgivings and dealing with the judgement of others, to the administrative nightmare of trying to get medication prescribed by medical professionals. They compare different prescription pathways and share their experiences of the difficult process of titration - not to mention the rigamarole of actually getting their kids to take the medication we've fought so hard to get for them.   LINKS TO STUFF WE MENTION IN THIS EPISODE: "The Journey Into S.E.N.D Fatherhood" book - https://amzn.eu/d/0qwN0il Danielle Jata-Hall blog - https://pdaparenting.com/ Newbold Hope -  https://www.newboldhope.com/ FII (Fabricated or Induced Illness) - https://www.nhs.uk/mental-health/conditions/fabricated-or-induced-illness/overview/ "The Parent's Guide to ADHD Medicines" book - https://amzn.eu/d/i2e73JM Shared Care - https://www.england.nhs.uk/medicines-2/regional-medicines-optimisation-committees-advice/shared-care-protocols/ "I'm Not Upside Down, I'm Downside Up" book - https://amzn.eu/d/avsMxy2 "Black Rainbow" book - https://amzn.eu/d/he1Nd8K "Steph's Two Girls" blog with tips on getting your child to take medication - https://www.stephstwogirls.co.uk/2020/01/top-tips-when-your-child-wont-take.html "A boy less ordinary" blog - https://aboylessordinary.com/   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

What was it like to raise an autistic child 30 years ago? Mark has a fascinating chat with Stephanie - his wonderful neighbour from over the road, who has a 31 year old son (diagnosed autistic with moderate learning difficulties, OCD and anxiety).  They discuss how parents of autistic children were able to navigate the process of understanding how best to raise their kids, without access to the internet, social media or the breadth of information we have available now?  This is an enlightening and surprisingly uplifting episode, which shines a light on just how far society has come in a relatively short space of time, when it comes to understanding, supporting and championing our neurodivergent kids. LINKS TO STUFF WE MENTION IN THIS EPISODE: Disneyland, Paris - https://www.disneylandparis.com/en-gb/ Echolalia - https://en.wikipedia.org/wiki/Echolalia The Very Hungry Caterpillar, Eric Carle - https://amzn.eu/d/boDv6wN Rain Man - https://en.wikipedia.org/wiki/Rain_Man The Essential Different, Simon Baron Cohen - https://amzn.eu/d/3Y5xgWv Gentle Parenting - https://www.psychologytoday.com/gb/blog/on-babies/202405/gentle-parenting-doesnt-mean-permissive-parenting Leonardo Da Vinci - https://www.independent.co.uk/news/health/leonardo-da-vinci-adhd-health-mona-lisa-a8927641.html Social Stories - https://www.autism.org.uk/advice-and-guidance/topics/communication/communication-tools/social-stories-and-comic-strip-coversations Supported Employment - https://www.base-uk.org/about/members/brighton-hove-city-council Fare Share - https://fareshare.org.uk/ Oxfam - https://jobs.oxfam.org.uk/jobs/home/ Leonardslee Gardens - www.leonardsleegardens.co.uk/   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark welcomes back former guest "Belle", as they discuss the perils of transport. "Belle" has two neurodivergent children - a 9-year old girl (diagnosed autistic with sensory processing disorder and a PDA profile), and a 7-year old boy (diagnosed autistic with Tourette Syndrome and suspected ADHD). Alongside Mark's three neurodivergent kids (with a giddy blend of autism, ADHD, anxiety and PDA), they have a trove of transport-related horror stories to tell. As well as discussing tales of travelling on buses, planes, trains, boats and cars, there are also more Neurodiversity Champions, Tiny Epic Wins and What The Flip moments, as well a particularly insightful proposal to create a demand-avoidant sat nav. LINKS TO STUFF WE MENTION IN THIS EPISODE: Gatwick Airport Special Assistance - https://www.gatwickairport.com/passenger-guides/special-assistance.html Ferry cabins (DFDS) - https://www.dfds.com/en-gb/passenger-ferries/onboard/newhaven-dieppe/sleeping Jen Marillat, Dramatherapist - https://jenmarillat.com/ Health and Care Professions Council - https://www.hcpc-uk.org/ The British Association of Dramatherapists - https://www.badth.org.uk/  EMDR Therapy - https://www.bacp.co.uk/about-therapy/types-of-therapy/eye-movement-desensitisation-and-reprocessing-emdr Riding For the Disabled Association (RDA) - https://rda.org.uk/ Aspens, East Sussex - https://www.aspens.org.uk/   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark chats to the magnificent Lisa Lloyd about the judgement they regularly receive from outsiders as parents of neurodivergent kids. Lisa has two children - an 11-year old boy (diagnosed autistic) and a 7-year old girl (diagnosed autistic, with a PDA profile) and, as a prominent content creator on social media (@asd_with_a_g_and_t), she is no stranger to being judged by people who don't have a neurodivergent child, much less a clue about how to raise one. Mark and Lisa swap tales about comments they receive from people judging their children ("He's not autistic, he's just naughty"), judging their parenting ("He wouldn't act like that if he was my son") and judging the entire concept of neurodivergency ("It's just a label"). They discuss the misconceptions that cause people to act this way, as well as the appropriate responses you can give them in return. This is a great one to listen to if you've ever been told that "He doesn't look autistic" or "Everyone's a bit on the spectrum".   LINKS TO STUFF WE MENTION IN THIS EPISODE: Raising the Sen-Betweeners, Lisa Lloyd - https://amzn.eu/d/4hm6Sb0 SEND Reform England - https://www.sendreformengland.com/ Lisa Lloyd Instagram - https://www.instagram.com/asd_with_a_g_and_t/ Lisa Lloyd TikTok - https://www.tiktok.com/@asd.with.a.g.and.t Lisa Lloyd Facebook - https://www.facebook.com/ASDwithGandT     CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok:https: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

Mark discusses the innate human desire to "keep up with the Joneses" with returning guest Samuel Wilson, who is an author and parent of two children: an 8-year old daughter (on the autism pathway, with Cerebral Palsy, Cerebral Visual Impairment and Sensory Processing Disorder) and a 5-year old son (suspected neurotypical). They discuss how unhelpful that can be in the early days of your diagnosis journey and how liberating it is when you finally let go of the expectations of being "normal" and embrace your family in all of their neuroshambolic glory. LINKS TO STUFF WE MENTION IN THIS EPISODE: Simpsons clip - https://www.youtube.com/watch?v=784seqWxsMk&t=469s Dad La Soul - https://www.dadlasoul.com/ BBC Woman’s Hour - https://www.bbc.co.uk/sounds/play/m0022ss7 India Croc replacement saga - https://www.instagram.com/p/C9hLMewpBH6/ "Lend a Hand", Samuel Wilson's book - www.littlestepspublishing.co.uk/books/lend-a-hand   CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/