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Welcome!! We're glad you found us! If you have Hidradenitis Suppurativa (HS), or know someone who does, this is the podcast for you!
Join Brindley, Cyd and Mahala, who each have unique perspectives on what living with HS looks like, as we talk about life with HS. We'll cover common misconceptions, motherhood, talk with experts, mental health, sex and intimacy with HS, getting diagnosed, and everything in between!
If you have any questions or topics you would like to see covered please tell us here so we can be sure to cover what's important to you! We love your feedback!!
If you feel like you may have HS or know someone with Hidradenitis Suppurativa please know you’re not alone! Visit our Dermatology List here to find a dermatologist near you who is familiar with HS.
For more information on all things HS, please visit www.hsconnect.org.
Don’t forget to give us a follow + subscribe to our channels!
@HSConnectorg
@hsfightclubco
@socialcydd
Edited by: Kaden Rushton of KRUSH Studios
Join Brindley, Cyd and Mahala, who each have unique perspectives on what living with HS looks like, as we talk about life with HS. We'll cover common misconceptions, motherhood, talk with experts, mental health, sex and intimacy with HS, getting diagnosed, and everything in between!
If you have any questions or topics you would like to see covered please tell us here so we can be sure to cover what's important to you! We love your feedback!!
If you feel like you may have HS or know someone with Hidradenitis Suppurativa please know you’re not alone! Visit our Dermatology List here to find a dermatologist near you who is familiar with HS.
For more information on all things HS, please visit www.hsconnect.org.
Don’t forget to give us a follow + subscribe to our channels!
@HSConnectorg
@hsfightclubco
@socialcydd
Edited by: Kaden Rushton of KRUSH Studios
21 Episodes
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New to HS or an experienced warrior? No matter where you are in your journey, we all need help with product suggestions! Tune in to learn what works for us!www.hsconnect.org/product-suggestionsMake sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Let's talk about beginning the Advocacy/Influencer journey...where and how does it start? If this is something you're interested in learning more about, be sure to tune in!Make sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Let's talk about nutrition with Jillian Ondreyka, HS warrior, Registered Dietitian, and owner of Embrace Health Nutrition!www.embracehealthnutrition.com Make sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Join us as we talk about wound care with HS! Hear directly from us what works for our HS and options for you to try!Make sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Join us as we talk more about HS with Dr. Barry Resnik! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Let's talk food and nutrition with Made Whole cookbook author Cristina Curp! Hear about her journey with HS and how food and nutrition helped her and became her passion and livelihood!Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg@hsfightclub@socialcyddTikTok: @cristina_maria_curp IG: @cristimadewhole Please keep in mind that HS triggers vary per person and food is not a trigger for all.
Tune into episode 8 with the Hidradenitis SuppuraDIVAS where we talk TRIGGERS! Some of us have certain things that we know triggers our HS to flare up, others have no idea what their triggers are, and some are on a journey to find out...and ALL of these are OK! For some, triggers can be certain clothing, mechanical stress, sweat, friction, what you may or may not be eating...the list goes on so we took some time to talk about it! We have said it once & will say it forever,...
Tune into episode 7 with the Hidradenitis SuppuraDIVAS! In this episode we sat down with Dr. Kiera Barr and open up the shame vault! It was so impactful to sit down with Dr. Barr and talk about some life's obstacles living with Hidradenitis Suppurativa. Not only did she validate a lot of the struggles we walk through with the medical community, but she gave us tools to overcome this huge burden we lay on ourselves. If you take anything from the podcast we want you to know, HS is not...
Tune into episode 6 with the Hidradenitis SuppuraDIVAS! In this episode you will gain insight from men & HS influencers Joey Torre & Parish Armstead.Dive in with us as we ask them what it’s like being a man living with Hidradenitis Suppurativa. They talk about the mental heaviness it may cause & how they deal, toxic masculinity, and more! You don't want to miss their special insight on life with as a male.We hope this episode resonates with you & if you know a male struggling ...
Tune into episode 5 with the Hidradenitis SuppuraDIVAS! In this episode you will gain insight from each co host on ways to feel supported on your HS journey! We know battling HS can feel isolating & that’s why we came together to share tips on how to get the support you need from those around you. From your partner, to your friends & family, we talked about different ways you can help give them insight on your HS journey and we even dropped a few tips they can use too! It’s ...
Welcome to episode 4 with the Hidradenitis SuppuraDIVAS! In this episode you will gain insight from each co-host and their real life experiences living with HS. As moms and wives there can be an overwhelming feeling of guilt when our household doesn’t match the societal norm. We have to nurture our relationships differently, and most importantly, learn to prioritize ourselves. Dive in with us and talk about real life with HS! If you have any special tips or tricks working for you— f...
Welcome to episode 3 with the Hidradenitis SuppuraDIVAS & Dr. Steven Daveluy!Dr. Daveluy is a board certified dermatologist who specializes in HS at Wayne State University in Detroit and also serves on the HS Foundation board. Imagine having an hour to sit down and ask a dermatologist ALLLLLL the things you’ve been dying to know; from learning when you should head to the dermatologist if you think you may have HS, to what treatment options may be the best fit for you.Dr. Daveluy tal...
Thanks for joining us for episode 2...What is HS? Dive into the basics of what Hidradenitis Suppurativa IS and IS NOT. We know that misinformation is a big issue within the HS community, so we feel a huge responsibility as patients and advocates to make sure you are getting the correct info at all times We hope you find value in this episode and remember how important it is to advocate for yourself & the power of telling your story! If you think you may have HS or know som...
Welcome!! We're glad you found us! If you have Hidradenitis Suppurativa (HS), or know someone who does, this is the podcast for you! Join Brindley, Cyd and Mahala, who each have unique perspectives on what living with HS looks like, as we talk about life with HS. We'll cover common misconceptions, motherhood, talk with experts, mental health, sex and intimacy with HS, getting diagnosed, and everything in between!If you have any questions or topics you would like to see covere...
Welcome to Episode 1, getting to know the Hidradenitis Suppuradivas, your podcast hosts for all things HS! On this episode we'll talk about how we all ended up sitting in this studio together, a bit about each of our backgrounds with HS, and a preview of what's to come on future episodes!If you have any questions or topics you would like to see covered please tell us here so we can be sure ! We love your feedback!!If you feel like you may have HS or know someone with Hidradenitis ...
Join us as we talk about pediatric HS with Peds Derm Dr. Colleen Cotton! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Dishing with Denise, HS Connect's co-founder! Learn how this whole HS Connect thing got started, why community is so important, and how that played a role in starting this organization!Make sure you like and subscribe so you can continue laugh & cry with us about all things HS!@hsconnectorg@hsfightclub@socialcydd
Welcome to Season 2!! We're so excited to be back with more episodes!This episode we're talking all things HS surgery with Dr. Stephanie Goldberg. Dr. Goldberg is a wonderful surgeon who has focused her career on helping those with HS.Join us as we learn more about surgery options and even surgery for @SocialCydd's bum and what Dr. Goldberg would recommend for her!Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg@h...
WOW! Hard to believe it's the end of Season 1, but there's more coming with Season 2!! In this recap we'll talk about our favorite episodes of Season 1 including HS 101 with Dr. Daveluy, better understanding of the mind/body connection with Dr. Barr, and clearing up misinformation about HS. If you've learned one thing from this first season, we hope that it's YOUR HS IS NOT YOUR FAULT and that you're ready for the ride with us in season 2!Make sure you like and subscribe so you ca...
YES, you read that right! We know talking about sex & intimacy can feel uncomfortable for those of us living with Hidradenitis Suppurativa. BUT, we are ready to dive in and talk about what it looks like for us.. How we talk to our partners about our scars/ wounds & how to navigate the conversation! This will be a good one you don’t want to miss! Not to mention, this is an inclusive conversation so we would love to hear about what works for you too! Make sure you like and sub...
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