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Investigating HLH

Investigating HLH

Author: Sobi Inc.

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Investigating HLH, brought to you by Sobi Inc., is a podcast that takes a deep dive into the complex world of hemophagocytic lymphohistiocytosis, or HLH. As a rare and fatal disease that was once considered incurable, HLH presents with a range of severe signs and symptoms that make diagnosis difficult. Join us as we discuss insights about HLH from all angles with various experts in the field of hematology-oncology who have helped to advance the understanding and treatment of this devastating disease. When treating patients with HLH, knowledge is power—because knowing what to look for can save lives.
6 Episodes
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What is MAS?

What is MAS?

2025-09-2329:31

In this episode of Investigating HLH, Adam Narloch speaks with Dr  Daniella Schwartz and Dr Randy Cron to discuss a rare, potentially fatal syndrome characterized  by hyperinflammation⎯macrophage activation syndrome (MAS). Dr Daniella Schwartz is a rheumatologist in Pittsburgh, Pennsylvania, and is affiliated with the University of Pittsburgh  Medical Center (UPMC) Presbyterian Shadyside and the UPMC Magee-Womens Hospital. Dr  Randy Cron is a pediatric rheumatologist at Children’s Hospital of Alabama at the University of  Alabama (UAB). Hear from these 2 experts about MAS⎯a subtype of hemophagocytic lymphohistiocytosis (HLH) that can occur in rheumatic diseases such as SAll's disease, including  systemic juvenile idiopathic arthritis (sJIA).Follow UsYouTube @Sobi-PharmaLinkedin @SobiPresented by Sobi Inc.https://www.sobi.com/usa/en ©2023 Sobi, Inc. All rights reserved. NP-32204 12/23  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Kari Magee speaks with Dr Bethany Verkamp to discuss her recent research on evaluating treatment response to etoposide-based treatment in patients with HLH. Dr Verkamp is a hematology/oncology fellow in the Cancer and Blood Diseases Institute at Cincinnati Children's Hospital. Hear from Dr Verkamp about her research, findings, and important considerations for assessing patient response to first-line etoposide-based HLH therapy.Follow UsYouTube @Sobi-PharmaLinkedin @SobiPresented by Sobi Inc.https://www.sobi.com/usa/en ©2023 Sobi, Inc. All rights reserved. NP-32204 12/23  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Treating HLH

Treating HLH

2024-06-0535:38

Adam Narloch is joined by Dr. Saara Kaviany and Dr. Blachy J. Dávila Saldaña for a discussion about treating patients with HLH. Dr Kaviany is a pediatric hematologist-oncologist and an assistant professor of pediatrics at University of Chicago Medicine. Dr Saldaña is also a pediatric hematologist-oncologist and an associate professor of pediatrics at George Washington University. Hear from these 2 experts about the overall treatment goals and strategies for patients with HLH.Follow UsYouTube @Sobi-PharmaLinkedin @SobiPresented by Sobi Inc.www.sobi.com ©2023 Sobi, Inc. All rights reserved. NP-32204 12/23  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Diagnosing HLH

Diagnosing HLH

2024-05-1553:00

Adam Narloch speaks with Dr Ashish Kumar and Dr Scott Canna to discuss the challenges involved with diagnosing and managing HLH. Dr Kumar is a pediatric hematologist- oncologist, and a director of the Histiocytosis Center at Cincinnati Children's Hospital. Dr Scott Canna is a pediatric rheumatologist and an Assistant Professor of Pediatrics at Children’s Hospital of Philadelphia. Hear from these 2 experts about why a prompt diagnosis is critical for patients with HLH—and why it can be so difficult to achieve.Follow UsYouTube @Sobi-PharmaLinkedin @SobiPresented by Sobi Inc.https://www.sobi.com/usa/en ©2023 Sobi, Inc. All rights reserved. NP-32204 12/23  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
Introduction to HLH

Introduction to HLH

2024-04-2223:001

Adam Narloch speaks with Dr Michelle Hermiston to discuss the history of HLH and advances in understanding this rare disease. Dr Hermiston is a pediatric hematologist-oncologist, a bone marrow transplant specialist, and the director of the Pediatric Immunotherapy Program at UCSF Benioff Children’s Hospital. Join us as we start our journey into the world of HLH!Follow UsYouTube @Sobi-PharmaLinkedin @SobiPresented by Sobi Inc.https://www.sobi.com/usa/en ©2023 Sobi, Inc. All rights reserved. NP-32204 12/23  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
An Introduction to HLH

An Introduction to HLH

2023-11-1400:41

In this episode of Investigating HLH, Adam Narloch, a Thought Leader Liaison at Sobi, speaks with Dr Michelle Hermiston to discuss the history of HLH and advances that have been made in understanding this rare disease. Dr Hermiston is a pediatric hematologist-oncologist, a bone marrow transplant specialist, and the director of the Pediatric Immunotherapy Program at UCSF Benioff Children’s Hospital. Join us as we start our journey into the world of HLH!Follow UsYouTube @Sobi-PharmaLinkedIn @SobiPresented by Sobi Inc.https://www.sobi.com/usa/en ©2023 Sobi, Inc. All rights reserved. NP-32204 12/23  Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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