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IBDidit
IBDidit
Author: IBDidItPodcast
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Hi everyone! Our names are Simona and Nadia, and we are two high school students dealing with Inflammatory Bowel Disease. We are here to support and empower other individuals through they're journey, or even just to educate on such an important topic! Each episode will explore different topics to help navigate this crazy journey as we share our own. If you are newly diagnosed or have had it for a long time, our goal is to be honest, authentic, and share our optimism! We also want to thank you for listening to our podcast! We love all our supporters. Follow our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com! We would love to hear from you! (Episodes are typically 10-20 minutes long!)
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In this episode, we look at how IBD shows up across different countries, exploring differences in medical access, cultural attitudes, diet, and stigma. We talk about what it means to have IBD in places with limited resources versus advanced care, and how culture shapes the way patients cope, advocate, and heal.Here is the link to more personal stories: https://www.crohnscolitisfoundation.org/blog/what-its-like-to-live-with-ibd-around-the-worldHere is the link to IBD Passport: https://www.ibdpassport.com/en-nz/travelling-ibd/health-care-abroadHere is all our research tools!:https://arc-nwl.nihr.ac.uk/news/delayed-diagnosis-of-inflammatory-bowel-disease-is-linked-to-worse-clinicalhttps://www.sciencedirect.com/science/article/pii/S0002934325005455https://www.ajmc.com/view/addressing-disparities-in-ibd-care-to-reduce-costs-and-improve-access https://www.centerforbiosimilars.com/view/the-growing-impact-of-biosimilars-in-ibd-care
Before a medication ever reaches patients, it must pass through one of the most carefully regulated systems in medicine: clinical trials. In this episode, we break down how clinical trials work, why they’re structured in phases, and what is determined to approve them. This episode explains what really happens behind the scenes, and why clinical trials are essential to evidence-based medicine...Follow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! Let us know what inventions you would like to create that could help with IBD. We would love to hear from you!
Welcome to the first episode of 2026!Living with IBD means constantly adapting. This creates room for innovation. So, in this episode, we explore IBD-inspired invention ideas, from tools that could improve daily comfort to technologies that could transform our knowledge about our own IBD and own guts. Designed by patients, for patients, these ideas imagine a future where living with IBD is easier, smarter, and more humane....Follow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! Let us know what inventions you would like to create that could help with IBD. We would love to hear from you!
In this episode, we explore how to make eating with IBD easier, more comfortable, and fun. We talk about gut-friendly ingredients and recipes that we love to support digestion and reduce symptom triggers. Whether you’re in a flare or maintaining remission, this episode offers help to build meals for you!Link to Costco rice ramenFollow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you!
In this episode, we talk about the essentials for IBD in dorm rooms. We discuss how to navigate the basic dorm life, what you need to bring, and what to do before you even get there. Lets make dorm life feel like home while managing life with Crohn’s or colitis!Follow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you!
In this episode, we dive into how new technology is reshaping the IBD world —from apps that track flare patterns to AI tools helping doctors personalize treatment. We talk about the gadgets, digital health breakthroughs, and even future tech that could make living with IBD a little easier. Stay tuned for more episodes like this!Follow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you! We WILL tell your storyHere are our sources for today: https://academic.oup.com/ecco-jcc/article/17/10/1596/7143403https://www.gastrojournal.org/article/S0016-5085%2825%2900359-2/fulltexthttps://academic.oup.com/ecco-jcc/article/19/Supplement_1/i247/7966932
In this episode, we talk about what it really means to advocate for yourself with IBD in the spaces that matter most—like the doctor’s office and even at school. We share tips for speaking up during appointments, asking the right questions, and making sure your voice is heard when discussing treatment. We also dive into everyday situations—like figuring out how to get to the bathroom when you need it most—and how to handle them with confidence. This is all about finding your voice, being prepared, and knowing you deserve support.Follow us too! Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you! We WILL tell your story
In this episode, we dive into immunosuppressant medications—how they work, why they’re used in managing IBD, and what their real-life effects can be. We’ll break down the science in a simple way and talk about what it’s like to be on them, from helping calm inflammation to handling side effects.Follow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you!Here is the sources if you want to check them out!https://www.cghjournal.org/article/S1542-3565%2818%2930736-5/fulltexthttps://www.e-guide.ecco-ibd.eu/interventions-therapeutic/thiopurines https://www.sciencedirect.com/science/article/pii/S159086582100267X https://www.cghjournal.org/article/S1542-3565%2822%2900958-2/fulltext https://www.gastrojournal.org/article/S0016-5085%2823%2905228-9/fulltext https://www.mdpi.com/2077-0383/13/16/4678
In this episode we hear about how Sofia works with her IBD through school and sports such as volleyball. IBD is different for everyone, so this story is different then ours! Listen to here how IBD can differ based on different lifestyles and different severity.Thank you for listening! Go check out Sofia's page and let us know your story! Here they are below! https://www.instagram.com/combat_crohns?utm_source=ig_web_button_share_sheet&igsh=OXFiYW13cHlhajJsGo check us out too, and email us or DM us! Tune is next time!!
In this episode we hear all about Sofia's diagnosis and life with IBD. We want to share more stories, so listen to hear all about how IBD patients can be so similar and so different from you at the same time.Thank you for listening! Go check out Sofia's page and visit the Crohn's and Colitis Foundation Website to see more about upcoming legislation and stories! Here they are below! Sofia's PageCrohn's and Colitis FoundationGo check us out too, and email us or DM us with your story or a story of someone you know! Tune is next time!!
In this episode, we chat with Neha D. Shah, a registered dietitian, about the complex relationship between food and IBD. We talk about tips, new ideas and we dive into what really matters when it comes to eating with a sensitive gut—and how to feel more confident at mealtime.Here is Neha's Instagram, go check her out! https://www.instagram.com/nehagastrord?utm_source=ig_web_button_share_sheet&igsh=d3lycHB0NWI3Nm5uGo check us out too, and email us with any episode ideas or questions! See you next time!
Traveling alone is never easy — but IBD can definitely make it harder. In this episode, we share what it's like to travel solo as a teenager. We cover topics like managing medication, to managing language barriers. Buckle up and join us for this flight!!Follow us too!Our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you!
In this episode, we break down what cell and gene-based therapies are and how they’re shaping the future of IBD treatment. From engineered regulatory T-cells to CRISPR-edited genes, these emerging approaches aim to restore immune balance without the broad side effects of traditional treatments. This is such a breakthrough for IBD patients! Be ready to learn and feel the hope :)Also, follow us on instagram at @ibdiditpodcast and comment more ideas; we would love to hear from you!Here are all the sources- go check it out! “AstraZeneca Enters Agreement with Quell Therapeutics to Develop Autologous Treg Cell Therapies for Autoimmune Diseases.” AstraZeneca, 13 June 2023, https://www.astrazeneca.com/media-centre/press-releases/2023/astrazeneca-agreement-with-quell-therapeutics.html.Barnes, Emma L., et al. “Emerging Therapies and Gene Editing in the Management of Autoimmune Disease.” Cell Reports Medicine, vol. 4, no. 9, 2023, https://www.sciencedirect.com/science/article/pii/S2372770523000621.“CRISPR-Cas9 Gene Editing: Revolutionizing Autoimmune Disease Treatment.” Autoimmune Institute, https://www.autoimmuneinstitute.org/articles/crispr-cas9-gene-editing-revolutionizing-autoimmune-disease-treatment/.“Major Cause of Inflammatory Bowel Disease Discovered.” Francis Crick Institute, 5 June 2024, https://www.crick.ac.uk/news-and-reports/2024-06-05_major-cause-of-inflammatory-bowel-disease-discovered.“New Research Discovery Could Change Future of IBD Treatment.” HealthCentral, https://www.healthcentral.com/news/crohns-disease/new-research-discovery-could-change-future-of-ibd-treatment.“OP22 A Phase 1/2 Study of AZD0466 Monotherapy or in Combination with Anti-TNF in Patients with Moderate-to-Severe Ulcerative Colitis.” Journal of Crohn's and Colitis, vol. 19, Supplement_1, 2025, p. i447, https://academic.oup.com/ecco-jcc/article/19/Supplement_1/i447/7967034.“Quell Therapeutics Achieves Key Milestone in Its CAR-Treg Cell Therapy Program for Inflammatory Bowel Disease.” GlobeNewswire, 10 June 2025, https://www.globenewswire.com/news-release/2025/06/10/3096491/0/en/Quell-Therapeutics-Achieves-Key-Milestone-in-its-CAR-Treg-Cell-Therapy-Program-for-Inflammatory-Bowel-Disease.html.
In this episode, we’re talking about an exciting new approach in IBD research—single-cell omics. Basically, instead of looking at gut tissue as one big mix of cells, scientists can now study individual cells to see what each one is doing during inflammation. This has helped uncover new cell types, understand why complications like strictures or fistulas happen, and even figure out why some treatments don’t work for everyone. It’s early days, but this research could lead to more personalized and effective care for people with Crohn’s and Colitis! Here is the link to the article - go check it out!https://gut.bmj.com/content/early/2025/02/04/gutjnl-2024-334165.abstract
Guest Speaker! Today, Poppy, from Stoma Scene, helps us dive deeper into the life with IBD from someone with a stoma. She talks about stigmas, what a stoma is like, her journey, and she is SUPER funny! This new perspective gives us better advice and fun new stories... Follow our instagram @IBDiditpodcast and email us at ibdiditpodcasts@gmail.com about your stories or anything else! We would love to hear from you! ALSO: Follow @stoma_scene on instagram because her content is so relatable.
Before we get into it...Here is the link to more information about the walkathon!https://takesteps.crohnscolitisfoundation.org/index.cfm?fuseaction=donorDrive.event&eventID=1603Its located at NTC Park in Liberty Station! Lets see you there!!AP exams are stressful enough — but for students living with Inflammatory Bowel Disease (IBD), they come with an entirely different set of challenges. In this episode, we talk about challanges and useful tips for AP exams with or withour IBD! We love you and follow us on instagram @ IBDiditpodcasts and stay tuned for next episode!
Join us as we explore the power of community in the IBD journey. In this episode, we share stories, struggles, and how you can find support with IBD. You are not in this alone, and we wanted to emphasize the community around you...We hope you enjoyed this episode and have a wonderful week!
In this episode, we’re making talking about Inflammatory Bowel Disease (IBD) a little less awkward and a lot more empowering! Learn how to have the conversation with your teachers in a way that feels comfortable and gets you the support you need. We’ll share tips, tricks, and real talk about how to confidently discuss IBD, explain what it means for your day-to-day, and ensure your teachers are on the same page. Tune in for a fun and relatable guide to navigating school with IBD!
Socializing with IBD can feel like a balancing act, but it doesn’t have to mean missing out. In this episode, we talk all about how to navigate social situations with IBD – from handling food and FOMO, plus how to react in certain situations. Tune in for tips on all of these. We love you so much and thank you for supporting us two teenagers! Follow us @ibdiditpodcasts on Instagram!!
In this episode, we explore how IBD impacts body image and fashion choices. We talk about tips, things to avoid, clothing brands, and body image. Tune in for tips, personal stories, and a teenage perspective on style and body positivity with IBD. We love you! Follow us on instagram @ibdiditpodcasts.- Simona and Nadia




