The Beautiful Bag

This episode is from 2021 with guest Angie Davenport as she shares her journey with her ostomy.

In this episode, I’m sharing some real-life experiences and lessons learned that I think so many ostomates will connect with.First, I talk about my recent travel through airport security in Italy — and the unexpected moment when a security guard didn’t understand what my ostomy pouch was. That experience reminded me how important it is to find ways to communicate across language barriers so we can advocate for ourselves with confidence.I also dive into the importance of pelvic floor therapy for ostomates. Since many of us no longer use certain muscles the same way, therapy can make a huge difference for things like bladder health, painful intercourse, and overall quality of life. I share a bit about my own journey, including how my therapist is helping me with adhesions — and why it’s always essential to check with your doctor first before starting something new.Finally, I highlight Hollister’s upgraded pouches and the improvements they’ve made to support comfort and confidence in daily life.✨ Whether you’re traveling, navigating health challenges, or exploring new products, I hope this episode encourages you and reminds you that you’re not alone.

In this episode, LeeAnne Hayden speaks with Sandra Mannon about her journey with scleroderma and the decision to undergo an ileostomy. Sandra shares her experiences as a trauma nurse and the challenges she faced after being diagnosed with a rare autoimmune disease. The conversation delves into the complexities of her medical journey, the emotional impact of transitioning to life with an ostomy, and the importance of patient advocacy. Sandra reflects on her past year of healing and adaptation, highlighting the resilience required to navigate her health challenges. In this conversation, the speaker shares her personal journey of overcoming the challenges of living with an ostomy due to scleroderma. She discusses the emotional and physical struggles she faced, including feelings of defeat and despair, and how she found healing through mindfulness practices such as meditation and yoga. The speaker emphasizes the importance of acceptance and positivity in redefining her identity and living life fully despite her condition. She also shares practical tips for managing life with an ostomy and encourages others to embrace their strength and resilience.TakeawaysSandra's journey with scleroderma began after a meningitis infection.She faced multiple health challenges, including bowel obstructions and reflux.The decision for an ileostomy was a significant turning point in her life.Sandra emphasizes the importance of being your own health advocate.Her experience highlights the complexities of managing a rare autoimmune disease.Post-surgery, she encountered unexpected complications, including infections and prolapses.The emotional impact of transitioning to life with an ostomy was profound for her.Sandra's medical background provided her with knowledge but also created challenges in accepting her situation.She learned to navigate her health challenges with resilience and determination.The past year has been a journey of healing and adaptation. I was just exhausted.I wanted to die.I truly, truly believe that I had a healing there.Life is now good.I eat by gravity.I want to live my life.It's just so easy.The mind is so powerful.This ostomy is not the end of our life.Let this show how strong that you are.

SummaryIn this episode of the Beautiful Bag podcast, host LeeAnne Hayden is joined by Kimberly Coleman and Jessica Miles to discuss their personal journeys as ostomates, their experiences with Hollister products, and the importance of skin health and advocacy in the ostomy community. They share insights on choosing the right products, the significance of skin care, and the need for support and education for those living with ostomies.TakeawaysKimberly is a stage two colorectal cancer survivor diagnosed at 47.Jessica has a genetic collagen disorder leading to her ostomy.Choosing the right ostomy products is crucial for comfort and care.Skin health is a major concern for ostomates.Hollister products have been beneficial for both Kimberly and Jessica.Advocacy and education are essential for ostomates.Different ostomy products serve different needs at different times.Support services like Secure Start can help ostomates navigate their care.Active lifestyles can be maintained with the right ostomy products.Community support is vital for those living with ostomies.

In this episode, LeeAnne Hayden interviews Elizabeth, who shares her personal journey with Crohn's disease and ulcerative colitis. Elizabeth discusses her diagnosis, the challenges of living with IBD, her experiences with various treatments, and the impact of lifestyle changes on her health. She also talks about her surgeries, including the decision to have a stoma, and how she navigated life during the COVID-19 pandemic. The conversation highlights the importance of nutrition, mental health, and support in managing chronic illness. In this conversation, Elizabeth shares her journey of living with a stoma, emphasizing the importance of community support and the positive impact of social media in her healing process. She discusses her approach to nutrition post-surgery, highlighting the trial and error involved in finding what works for her body. The conversation also delves into the significance of supplements in maintaining health and wellness, as well as the shared experiences of navigating life with chronic conditions. The episode concludes with a focus on the importance of personal journeys and the support found within the community.TakeawaysElizabeth was diagnosed with Crohn's and colitis in 2009.She experienced severe symptoms for over a decade before diagnosis.Nutrition became a passion for Elizabeth due to her health struggles.She had multiple flare-ups and was often put on steroids.Elizabeth underwent surgery to manage her condition, including a stoma.She learned the importance of vitamin D for her health.Living in Bali positively impacted her well-being.Elizabeth transitioned to working for herself, which improved her quality of life.She faced challenges during the COVID-19 pandemic after her surgeries.Elizabeth emphasizes the importance of mental health in managing chronic illness. I was one of the lucky ones because my passions were around health and wellness.I went on Instagram and found a community of people living with stomas.I was actually very positive and grateful going in.The more we share our journeys, the better it will be for the next generation.Food is everything, and it's all trial and error for each of us.Our bodies are very smart; they will tell us what's going on.I can't have fiber because it causes blockages for me.I take all the supplements that help with inflammation and health.Living with a stoma has been a massive trial and error.Community support is crucial in navigating health challenges.

In this episode of The Beautiful Bag podcast, host LeeAnne speaks with Nina Hayes, a nutritionist and yoga instructor who shares her journey with ostomy and how it has transformed her life. They discuss the importance of yoga and meditation in healing, the challenges of nutrition for those with ostomies, and practical tips for traveling with an ostomy. Nina emphasizes the significance of intuitive eating and how it empowers individuals to listen to their bodies. The conversation concludes with Nina's insights on vulnerability as a strength and resources for those seeking support.takeawaysNina's journey with ostomy began in 2002 after her colon was removed.Yoga has been a crucial practice for Nina, helping her manage pain and improve posture.Intuitive eating allows individuals to trust their bodies and make informed food choices.Traveling with an ostomy requires careful planning and packing extra supplies.Nina emphasizes the importance of community and support for those with ostomies.Practicing yoga can help alleviate adhesions and prevent further surgeries.Nutrition for ostomy patients can include pureed vegetables and juices.Nina offers a 12-week transformational program for women with ostomies.The journey with an ostomy can lead to personal growth and empowerment.Vulnerability is a strength that can foster connection and resilience.

In this episode, LeeAnne Hayden interviews Michelle Valentino, who shares her inspiring journey of living with an ostomy after years of battling chronic illness. Michelle discusses her early health struggles, the challenges of motherhood while managing her condition, and the impact of her surgery during the COVID-19 pandemic. She emphasizes the importance of community support, self-acceptance, and resilience in overcoming the stigma associated with living with an ostomy. Michelle's story is a testament to the strength of the human spirit and the power of connection in navigating life's challenges.TakeawaysMichelle's health struggles began at a young age, leading to a diagnosis of ulcerative colitis.Embarrassment and fear often prevent individuals from seeking help for health issues.Life with chronic illness can be challenging, but it doesn't have to define one's identity.Motherhood brought additional health challenges, but Michelle persevered.Surgery was a turning point, but the COVID-19 pandemic complicated the process.Adjusting to life with an ostomy requires patience and support.Overcoming embarrassing moments is part of the journey to self-acceptance.Finding a supportive community is crucial for mental health and resilience.Life after surgery can lead to newfound freedom and energy.It's important to share experiences to help others feel less alone.

In this episode, Krista shares her inspiring journey of living with Crohn's disease since childhood and her decision to undergo ostomy surgery. She discusses the challenges she faced, including pain and incontinence, and how she advocated for her health. Krista highlights the positive changes in her life post-surgery and offers encouragement to others facing similar health challenges.TakeawaysKrista was diagnosed with Crohn's disease at a young age.She experienced significant challenges before her ostomy surgery.Advocacy for her health was crucial in her journey.The decision for surgery was influenced by her upcoming wedding.Post-surgery, Krista has experienced a better quality of life.She emphasizes the importance of community support on Instagram.Living with an ostomy has brought unexpected positives.Krista encourages others to not let their illness define them.She shares that it’s important to express feelings about health.Life can improve significantly after making difficult health decisions.

In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Lauren Beach, a Crohn's disease survivor who shares her journey from diagnosis at a young age to living with an ostomy. Lauren discusses the challenges she faced during her teenage years, including health struggles, body image issues, and the impact on her dating life. She emphasizes the importance of self-acceptance, community support, and maintaining a positive outlook. The conversation also touches on fitness and how Lauren has adapted her workout routine post-surgery, proving that a fulfilling life is possible with an ostomy. The episode concludes with Lauren's inspiring message about resilience and finding joy in life despite challenges.TakeawaysLauren was diagnosed with Crohn's disease at 12 years old.She faced significant health challenges during her teenage years.Living with an ostomy has its ups and downs, but it's manageable.Dating can be challenging, but honesty is key.Fitness is still possible and beneficial with an ostomy.Community support on social media has been inspiring for Lauren.Self-acceptance is crucial for mental health and confidence.Accidents can happen, but they are not the end of the world.Positivity can help navigate life's challenges.Lauren encourages others to find joy and gratitude in life.

In this episode, LeeAnne Hayden shares her personal journey with small bowel obstructions and adhesions, detailing her experiences in the hospital, the impact on her health, and the dietary changes she has made to manage her condition. She emphasizes the importance of understanding adhesions, the challenges of navigating health issues, and the need for community support. LeeAnne also explores alternative remedies and practices to improve her well-being, ultimately encouraging listeners to take charge of their health and share their own stories.takeawaysLeeAnne shares her personal journey with small bowel obstructions.Understanding adhesions is crucial for managing health post-surgery.Dietary changes can significantly impact digestive health.Hospital visits can be daunting but are necessary for treatment.Maintaining a soft stool is essential for preventing obstructions.Alternative remedies like castor oil may help with adhesions.Coca-Cola is mentioned as a potential remedy for blockages.Community support is vital for those dealing with health issues.LeeAnne emphasizes the importance of self-advocacy in healthcare.Living with a chronic condition requires ongoing adjustments and learning.

In this episode, Kim Fleck shares her personal journey through health challenges leading to her ileostomy. From her background as a special education teacher to her struggles with misdiagnosis and autoimmune issues, Kim's story highlights resilience and the importance of community support. She discusses her experiences with various treatments, the impact of her health on her life, and her exploration of natural remedies and dietary changes. In this conversation, the speakers delve into the misconceptions surrounding vegetarianism, the importance of self-discovery, and the transformative journey of healing through alternative medicine. They share personal stories of resilience, the significance of listening to one's body, and the power of relationships with healers. The discussion emphasizes the need for quiet reflection and the choice to spiral up in life despite challenges.TakeawaysThis is my perspective, not a prescription for others.I had no previous health issues before moving to Connecticut.I got obsessed with P90X to stay fit despite my health issues.Losing all my hair was a significant emotional challenge.Brain lesions affected only 1-2% of the population, and I was one of them.I decided to embrace my appearance and never wore a wig again.I developed a cancer imposter syndrome due to misconceptions about my health.Hospitalization led to my permanent ileostomy, which changed my life.I learned the importance of advocating for my health and choices.Dietary changes became crucial in managing my health issues. There's a lot of processed foods in vegetarian diets.Meeting Dr. Ming Wu was a turning point in my health journey.Self-discovery is crucial for healing.Listening to your body can guide your health choices.Qigong and meditation helped me find peace.Reinventing life after teaching was necessary for my growth.Healing involves building relationships with supportive healers.Vulnerability is a strength, not a weakness.You have a choice to spiral up or down in life.Knowing yourself is key to navigating health challenges.

In this episode, Molly shares her unique journey of living with an ostomy, starting from her childhood struggles with chronic constipation to her eventual ileostomy surgery. She discusses the challenges she faced, the importance of community support, and how her perspective on life has changed since her surgery. Molly emphasizes the significance of mental health and acceptance in navigating life with an ostomy, and she inspires listeners to embrace their journeys and seek support.TakeawaysMolly's journey began with chronic constipation from birth.She faced numerous medical challenges before her ileostomy surgery.The ostomy community is supportive and empowering.Living with an ostomy has improved Molly's quality of life.Mental health is crucial in the journey of acceptance.Finding a support system can help process emotions.Molly's condition is linked to Ehlers-Danlos syndrome.She encourages others to share their stories and connect.Ostomy is not a death sentence, but a life sentence.Authenticity and openness can inspire others.

In this episode of the Beautiful Bag podcast, LeeAnne Hayden explores the multifaceted nature of burnout, particularly in the context of living with an ostomy. She delves into the emotional, physical, and behavioral signs of burnout, emphasizing the importance of recognizing these symptoms as the first step towards recovery. LeeAnne shares practical tools for assessing life balance through the 'bucket method' and encourages listeners to take actionable steps to fill their life buckets. The episode concludes with an introduction to the Worthy of Wellness Club, a community initiative aimed at helping individuals overcome burnout and live a balanced, purposeful life.TakeawaysBurnout encompasses emotional, physical, and spiritual exhaustion.Recognizing the signs of burnout is crucial for recovery.Saying no is essential for maintaining personal energy.Assessing life balance can be done through the bucket method.You are worthy of living a fulfilling life, free from burnout.

In this episode of the Beautiful Bag Podcast, host LeeAnne Interviews Danielle and Joe as they share their personal journeys with ostomy surgeries due to Crohn's disease and ulcerative colitis. They discuss how they met through social media, the birth of their advocacy platform 'Double Bagging It', and the importance of community support. The conversation highlights the transformative impact of ostomy on their lives, the freedom it has brought them, and their mission to raise awareness and share stories within the ostomy community.Takeaways:The importance of community support for those with ostomies.Social media can be a powerful tool for connection.Ostomy can lead to a more fulfilling life.Advocacy is crucial in raising awareness about ostomy.Personal stories can inspire and help others.Living with an ostomy can be liberating.It's okay to share your journey in your own way.Finding your tribe is essential for emotional support.Health journeys are unique and should not be compared.Embracing life after ostomy surgery is possible and rewarding.

In this podcast episode, Stephanie Benson shares her inspiring journey of living with Crohn's disease and navigating life with an ostomy. From her initial diagnosis to the challenges of dating and self-acceptance, Stephanie discusses the importance of community support and finding strength in adversity. She offers practical tips for managing health, fashion choices, and maintaining a positive outlook despite the struggles of chronic illness. The conversation emphasizes the significance of open communication and the power of shared experiences in fostering resilience and hope.TakeawaysStephanie was diagnosed with Crohn's disease in high school.Living with an ostomy has transformed Stephanie's life for the better.Community support is crucial for those dealing with chronic illness.Dating with an ostomy requires open communication and honesty.Fashion choices can be adapted to accommodate an ostomy.Managing health involves understanding personal dietary needs.Chronic illness can lead to unexpected blessings and growth.It's important to grieve the loss of the pre-illness self.Maintaining a positive outlook is essential for mental health.Finding a supportive community can make a significant difference.

In this episode of The Beautiful Bag podcast, host Speaker interviews Tom, a rectal cancer survivor who shares his journey from diagnosis to recovery. Tom discusses the initial shock of his diagnosis, the challenges of chemotherapy and surgery, and the adjustments he has made to life with an ostomy. He emphasizes the importance of support from family and community, the dietary changes he has experienced, and the various ostomy products available. Tom's story is one of resilience, hope, and a desire to help others facing similar challenges.TakeawaysTom was healthy until he experienced sudden pain.The importance of follow-up appointments cannot be overstated.Chemotherapy and radiation were part of Tom's treatment plan.Support from family was crucial during Tom's journey.Dietary changes were significant after surgery.Tom found strength in online communities.It's essential to try different ostomy products.There is a stigma around ostomies that needs to be addressed.Tom encourages others to reach out for support.You are not alone in your journey.

In this episode of The Beautiful Bag podcast, host and guest Brianna share an insightful conversation about living with an ostomy, her journey with Ehlers-Danlos syndrome, and the importance of raising awareness about ostomies. Brianna discusses her initial struggles, the adjustments she made after surgery, and how her perspective on life with a stoma has evolved over the years. She emphasizes that having an ostomy is not as daunting as many believe and shares her experiences to help others understand and accept their own journeys.TakeawaysBrianna has had her permanent ileostomy for over three years.She was diagnosed with Ehlers-Danlos syndrome, affecting her GI tract.Adjusting to life with an ostomy took time and patience.Brianna named her stoma Stella, which has become a part of her identity.She emphasizes the importance of raising ostomy awareness.Many people fear ostomies due to misconceptions about smell and lifestyle.Brianna's recovery journey included multiple surgeries and challenges.She has learned to navigate ostomy products and find what works best for her.Brianna encourages others to share their stories and experiences.Living with an ostomy can improve quality of life despite initial fears.

In this episode of the Beautiful Bag podcast, LeeAnne Hayden shares her personal journey through marriage, love, and the challenges she faced, including a cancer diagnosis and the impact it had on her relationship. She emphasizes the importance of communication, commitment, and resilience in navigating the ups and downs of marriage. LeeAnne reflects on her experiences, the lessons learned, and the significance of family and support in overcoming life's obstacles. Takeaways: February is often seen as the month of love, but love should be celebrated all year round. Marriage is a commitment that requires work and dedication. Facing challenges together can strengthen a relationship. Cancer can be a life-altering experience, but there is hope and support available. Adjusting to significant life changes, like a colostomy, requires open communication. Financial struggles can put a strain on relationships, but they can also lead to growth. Rebuilding a relationship often involves starting fresh and focusing on each other. Communication is essential for a healthy marriage. It's important to give each other space to grow and change. True love is about supporting each other through thick and thin. Chapters 00:00 Introduction and Overview of the Episode 10:14 Navigating Challenges in Marriage 17:05 Adjusting to Life with a Colostomy 25:01 Rebuilding the Relationship in New York

In this episode of The Beautiful Bag podcast, Yvonne Holly, known as Crohn's Mummy on Instagram, shares her profound journey with Crohn's disease, which began at the age of 11. She discusses her diagnosis, the challenges of living with a colostomy bag, and her experiences with pregnancy while managing her health. Yvonne's story highlights the resilience required to navigate chronic illness and motherhood, offering insights into the emotional and physical hurdles she faced along the way. In this conversation, Yvonne shares her profound journey through motherhood, health challenges, and the experience of living with an ostomy. She reflects on the emotional turmoil of her daughter's health struggles, her own battles with sepsis and surgeries, and how these experiences shaped her resilience. Yvonne emphasizes the importance of finding positivity in adversity and encourages open discussions about health issues to foster support and understanding. Takeaways: Yvonne was diagnosed with Crohn's disease at age 11. She underwent a colostomy in 2010, which became permanent in 2016. Living with a perianal abscess for nine years was a significant challenge. The colostomy bag provided relief and improved her quality of life. Pregnancy had a positive effect on her Crohn's symptoms. Yvonne had to plan her pregnancies around her health condition. She experienced complications during her second pregnancy. Her daughter Felicity faced health challenges at birth. Yvonne has undergone over 50 surgeries throughout her life. The support from the NHS was crucial during her pregnancies. It's not my fault, but I felt responsible. She needs to fight for her life before she learns to feed. My daughter is the strongest little girl I know. I was rushed in with sepsis again, it was scary. I just remember signing and saying, take it all away. I love my colostomy bag just as much as my children. My ostomy has given me a life back. You can always find the positivity in anything. Never suffer in silence, always talk about your illness. Talking about your illness can do wonderful things to your brain. Connect on Instagram: LeeAnne https://www.instagram.com/leeannehayden/ Yvonne https://www.instagram.com/crohns.mummy/

Summary In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Kaya, who shares her journey with ulcerative colitis and living with an ostomy. Kaya discusses her diagnosis at a young age, the challenges of managing her health, and the emotional toll it took on her. She also shares her experiences with pregnancy, the transition to a J-pouch, and the support she received from her family and husband. Throughout the conversation, Kaya emphasizes the importance of self-advocacy, embracing one's situation, and helping others who face similar challenges. Takeaways: Kaya was diagnosed with ulcerative colitis at 14. She experienced significant weight loss and health challenges. Navigating life with an ostomy was initially overwhelming. Surgery was a turning point in her health journey. Transitioning to a J-pouch involved dietary adjustments. Pregnancy brought new health complications for Kaya. Support from family and friends was crucial during tough times. Kaya's husband played a significant role in her recovery. She learned to embrace her ostomy and share her story. Kaya encourages others to ask questions and seek support.