DiscoverEvery Patient's Right: Ending Isolation In Healthcare, a podcast of The NEVER Alone Project
Every Patient's Right: Ending Isolation In Healthcare, a podcast of The NEVER Alone Project
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Every Patient's Right: Ending Isolation In Healthcare, a podcast of The NEVER Alone Project

Author: The NEVER Alone Project

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What would you do if the person you loved most in the world was about to die in isolation and you couldn't be with them?

Every Patient's Right: Ending Isolation in Healthcare is a powerful podcast by Steve Reiter, sharing the deeply personal story of losing his wife, Elizabeth, due to strict isolation policies during the pandemic. Through his experience and those of countless others, Steve highlights the emotional and physical toll of being separated from loved ones during critical medical moments. This show investigates how these policies came to be, the long-term consequences for patients and families, and why love, touch, and advocacy are essential to healing.

Featuring interviews with survivors, medical experts, and policymakers, the show explores what went wrong and how to ensure no patient is ever left alone again. With insights from grief and trauma specialists, Every Patient's Right provides tools for healing while advocating for legislation to protect patients' visitation rights. Join Steve on this vital journey to bring change to healthcare and ensure no one is forced to die alone.
18 Episodes
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Steve E Reiter is interviewed by Steve Reiter. Welcome to "Every Patient's Right." On this episode of Every Patient's Right: Ending Isolation in Healthcare, Steve Reiter sits down with his longtime friend, Stephen E. Reiter, to explore the devastating consequences of medical isolation—both from personal heartbreak and systemic failures. Stephen shares the deeply moving story of his wife Mary, whose routine emergency room visit spiraled into weeks of painful isolation, mismanaged care, and ultimately loss. Together, Steve and Stephen reflect on striking parallels in their own experiences, the vital role of patient advocates, and the need for hospital reforms to keep loved ones connected, especially in times of crisis. Their conversation highlights not just the grief and lasting impact of separation, but also the fight for legislative change to ensure every patient's right to have a loved one by their side. Tune in for a powerful episode about love, loss, and the urgent call to end unnecessary medical isolation. Outline: (00:02) "Ending Medical Isolation Podcast" (06:04) Hospital Visit Amid Severe Pain (06:42) "Mary's Painful ER Experience" (11:20) "No Privacy, Mistreatment at Hospital" (14:44) "Denied ICU Visit, Went Anyway" (19:02) Hospital Process Reform Proposal Declined (21:02) "Career Highlights in IT Leadership" (25:10) "Everyone Needs an Advocate" (27:35) "Navigating Grief and Survival" (33:22) Painful Memories and Legal Barriers (34:59) "Final Goodbye to Mary" (38:28) "Mary's Illness and Hospital Stay" (43:27) Love, Family, Faith, and Healing (46:35) "Support the Never Alone Project" About the Guest: Stephen E. Reiter is a skilled medical professional recognized for his expertise in nerve connection procedures. In a challenging case, Stephen worked at Erlanger Hospital—the largest teaching hospital in the region—where he was faced with a patient suffering from severe pain, rated between 8 and 10. Despite the crowded conditions brought on by the COVID pandemic, Stephen remained dedicated and focused, assuring that his surgical techniques would provide the relief the patient desperately needed. Through his commitment and brilliant medical work, Stephen brought hope and comfort to both the patient and her loved ones during a difficult time. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org
In this episode of Every Patient's Right: Ending Isolation in Healthcare, host Steve Reiter welcomes Dr. Howard Cohn of the Cohn Health Institute to share insights on Neuro Emotional Technique (NET)—a groundbreaking method for healing emotional trauma, especially in the wake of medical isolation during the COVID-19 pandemic. Together, they dive into how NET uses muscle testing and principles from traditional Chinese medicine to uncover and resolve the deep-seated emotional roots of physical symptoms. Dr. Cohn explains the science behind NET, shares powerful stories of transformation from his decades of practice, and discusses its rising acceptance among both alternative and mainstream practitioners. Whether you've experienced healthcare trauma yourself or work with those who have, this episode offers fresh hope and real-world strategies for restoring human connection and well-being.   Outline: 06:59 "Pavlov Meets Chinese Medicine Insights" 11:43 Be a Positive Force 17:44 "N.E.T. and the Emotional Triad" 23:49 Vibrational Communication Techniques 30:34 "Unresolved Emotions Lead to Issues" 33:37 Emotional Impact on Gluten Intolerance 38:15 Perception Over Historical Fact 46:35 "Exploring Total Body Modification Technique" 51:10 "Mind-Body Wellness Resources" 53:51 "Bio Stacking: Innovative Health Techniques" 01:00:27 Universal Health Tip: Reduce Carbs and Oils 01:03:51 Revolutionizing Coffee with Antioxidants About the Guest: Dr. Howard Cohn has always been fascinated by the miracles of the human body. The first time he encountered functional muscle testing—a technique he would later help revolutionize—he recalls being both amazed and skeptical. It was hard for him to envision that something so seemingly simple could yield such powerful results. But as he delved deeper, he understood the profound philosophy behind it: the body is "simply intricate and intricately simple." As the founder of all functional muscle testing, Dr. Cohn built his approach on the idea that, while we often complicate healing with conscious thought, the subconscious mind and body communicate in straightforward, reactionary ways. By harnessing this natural connection, Dr. Cohn's techniques help people uncover and address the root causes of their physical and emotional issues. Driven by his belief that "your mind and your body are the same thing," Dr. Cohn's work continues to transform lives and expand the frontiers of holistic healing. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org
Gail Macrae is interviewed by Steve Reiter. Welcome to "Every Patient's Right." In this episode of Every Patient's Right, host Steve Reiter interviews Gail Macrae, a former nurse from Kaiser Permanente in Santa Rosa, California. Gail shares her firsthand experience on the frontlines during the COVID-19 pandemic, revealing how strict hospital isolation protocols negatively impacted patients, families, and healthcare workers alike. She discusses the moral dilemmas and trauma nurses faced and explains why she ultimately left hospital medicine to advocate for ethical care and legal reforms. Together, Steve and Gail examine the essential role of family presence in healing and call for the restoration of humanity and patient rights in our healthcare system. Outline: (00:02) Balancing Grad School and Work (11:12) Post-Recovery Vaccine Concerns (13:14) Unprecedented Summer Hospital Crowds (17:24) Grad School Data Analysis Insight (22:51) Fighting Legal Injustices for Families (28:16) Family's Role in Patient Care (37:26) Empathy and Ethics in Crisis (42:35) Revisiting Unethical Hospital Protocols (48:54) Moral Injury in Healthcare Journey (52:17) Sabotaged: Clinician's Setback Tale (01:00:11) Peer Acceptance Limits Self-Identity (01:01:33) Rethinking Educational and Leadership Norms (01:07:23) "Pursue Dreams for True Happiness"     About the Guest: Gail Macrae began her nursing career as a new graduate at Sutter Health, one of the largest hospital organizations in the United States, in 2013. Driven by a passion for both clinical care and teaching, she then expanded her horizons internationally, spending a year at a teaching hospital in Africa. There, she balanced providing primary care with instructing aspiring Tanzanian nurses, gaining invaluable global experience. Returning to the U.S., Gail joined Kaiser Permanente in 2015, further solidifying her expertise in hospital medicine. By the time the pandemic began, she had accumulated seven to eight years of hands-on experience, earning her reputation as an expert nurse. Despite some unique experiences abroad, Gail sees her journey as grounded in the core values and challenges of hospital nursing. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org  
Steve Reiter interviews Dr. Susan Heitler. Welcome to "Every Patient's" the p" podcast from the Never Alone Project, dedicated to ending isolation in healthcare and restoring vital human connections. In this episode, host Steve Reiter talks with Dr. Susan Heitler, a clinical psychologist and author of "Prescriptions Without Pills," about the emotional challenges caused by medical isolation, particularly during events like the COVID-19 pandemic. Dr. Heitler shares practical, non-medication strategies for managing grief, depression, anger, and anxiety, drawing from both her clinical expertise and personal experience. Together, they discuss the importance of support, share powerful techniques for emotional healing, and highlight how reconnecting with others can foster resilience and well-being. If you or someone you know is navigating loss, stress, or isolation, this episode offers hope and actionable steps to find relief and community. Outline: (00:02) "Overcoming Negative Emotions" (06:5") Access and Isolation During Pandemic (11:13) Shiva: Mourning and Companionship Ritual (17:45) Healing from Grief and Neglect (24:35) Emotion Code vs. PTSD Healing (28:11) Energy Shift Experiment (36:21) Healing Insights from Sarah'sSarah's Code (41:39) Comparing Past and Present Relationships (47:52) "Anxiet" Loop and Subconscious Triggers" (49:3") Red Dress: Memories and Anger   About the Guest: Dr. Susan Heitler is a renowned psychologist who has dedicated her career to exploring the origins of negative emotions and helping people effectively overcome them. Inspired by the idea that anger, depression, and anxiety arise when we hit "bumps" or pr" problems in life, Dr. Heitler believes our responses to these challenges determine whether we fall into destructive emotional habits or find our way back to happiness. Rejecting a reliance on medication as the only solution, she developed a practical approach—detailed in her popular books—for solving problems directly. By providing "recipe for breaking out of negative states and tackling issues head-on, Dr. Heitler empowers individuals to restore their well-being and regain control of their emotional lives. Her compassionate, solution-focused approach has offered hope and practical tools to countless individuals seeking to transform emotional struggles into personal growth. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every atientPatient's Ending Isolation and Healthcare." He lo"t his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org  
Welcome to another episode of Every Patient's Right, the podcast from the Never Alone Project, where we explore the real-life impact of medical isolation during the COVID-19 pandemic and the urgent need for compassionate care policies. In this heartfelt conversation, host Steve Reiter sits down with KC Netzke, who shares the moving story of her father, Carroll Netzke—a Minnesota farm boy, a devoted family man, and someone who, like many others, spent his last days isolated in a hospital room due to strict no-visitor policies. KC takes us through the ripple effects of being separated from a loved one in their most vulnerable moments, the struggles her family faced in trying to communicate with hospital staff, and the emotional aftermath of not being able to say goodbye as a family. Her reflections on her father's character, their cherished family memories, and the deeply felt loss give a personal face to a problem that affected thousands. Join us as we talk about what was lost during pandemic-era patient isolation, the flaws in hospital visitation policies, and why it's vital to advocate for legislation that ensures no one has to die alone. Outline: (00:02) Ending Isolation in Healthcare (05:39) "Random Testing During Holidays" (08:29) Media Confusion in Early 2020 (13:02) Chaos and Concern Over Dad's Care (14:12) Support the Never Alone Project (18:30) "Pandemic Struggles and Family Separation" (20:54 "Uncertain Recognition in Final Moments" (26:09) Colorado Legislation for Pandemic Preparedness (27:40) "Intimate Knowledge of Loved Ones" (30:58) "Dad's Sudden Exits"   About the Guest:  KC Netzke's story is rooted in the heartland of Minnesota, where they were shaped by their father's independent and inventive spirit. As one of ten siblings on a farm, KC's dad became resourceful out of necessity—turning discarded items into treasures and making do with limited resources. Known by everyone in their small town for his knack for finding value where others saw waste, KC's father instilled a sense of resilience, creativity, and self-reliance. Growing up in a close-knit community, KC carries forward these values, connecting deeply with the ingenuity and determination of their family's rural roots. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org    
Laura Jensen is interviewed by Steve Reiter.  Welcome to "Every Patient's Right" by the Never Alone Project. On today's Every Patient's Right episode, host Steve Reiter sits down with Laura Jensen for a powerful and deeply personal conversation. Laura shares the heart-wrenching story of her husband, Gary, a vibrant and larger-than-life man who passed away after weeks in the hospital during the early days of the COVID-19 pandemic. As Laura recounts her family's experience—how her requests to be with Gary were repeatedly denied and how hospital isolation policies kept them apart during his most vulnerable days—we explore the dire consequences of forced medical isolation. Laura's story is filled with love, loss, and frustration, but also important lessons and calls for change. Together, Steve and Laura dig into why human connection is essential in healing, how current policies failed patients and families, and what needs to happen so that no one is ever forced to face critical illness alone. This episode is a testament to the resilience of families and a reminder of what's at stake as we fight to end isolation in healthcare. Outline: (00:02) Finding Urgent Care Amid Crisis (04:46) Midnight Emergency: A Quick Decision (07:30) Hospitalization and Slow Recovery Hope (11:50) Lung Complications and Oxygen Struggles (15:12) Struggles with Health and Separation (24:32) COVID Hospital Visit Restrictions (28:30) Witnessing a Loved One's Decline (33:22) Antibiotic Response Uncertainty (39:58) Unanswered Questions About His Death (42:09) Regrets About Being More Vocal (47:06) "Missing Him: A Proud Moment" (49:20) Compassionate Policy Making Matters About the Guest:  Laura Jensen's story begins with a shared household ordeal: a severe bout of flu that struck her family one after the other. Laura was the first to fall ill, soon followed by her daughter, and together they quarantined themselves upstairs, battling waves of exhaustion. Her husband was the last to get sick, but his illness progressed quickly, affecting his lungs just days after symptoms began. Laura's sense of responsibility and care kept them together as each family member succumbed, even as the fatigue dragged on. Through it all, Laura's resilience and dedication shone as she navigated her family through a challenging time with compassion and unity. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org  
Steve Reiter speaks with Scott Schara, whose daughter, Grace, born with Down syndrome, tragically passed away in October 2021 following forced medical isolation during a hospital stay. Scott shares Grace's joyful spirit, how their family navigated hospital protocols, and how his advocacy seeks to protect others from experiencing the same injustice. Together, they discuss the limits of patient rights, the shortcomings of the ADA, and the importance of love and humanity in healthcare. Outline: 00:00 April Fool's Day Memories 03:26 "Unexpected Joy in Grace's Birth" 07:18 Welcoming Parenthood and Down Syndrome 11:34 "Negligence Led to Grace's Death" 16:18 Hospital Negotiation and Disability Lawsuit 17:14 ADA Critique: "Dog and Pony Show" 22:41 Pulse Oximeter Discrepancy Dispute 26:34 "Morning Hospital Incident with Grace" 30:25 Caution: Respiratory Risks with Medication 34:02 Unanswered Questions After Hospital Death 38:02 Uncovering Hospital Malpractice 38:58 Hospital Refuses Meeting After Fatality 42:31 Judgment Against Unwanted DNR Order 46:03 "Grace's Legacy of Love" 50:52 "Loving the Unlovable" 52:01 "Embracing Joy and Connection"   About The Guest: Scott Schara is a passionate advocate for patient rights and disability justice. After losing his 19-year-old daughter, Grace, to questionable hospital practices during forced medical isolation in October 2021, Scott became deeply involved in legislative and educational efforts to prevent similar tragedies. He shares Grace's story nationwide in Wisconsin to champion "No Patient Left Alone" legislation and the importance of compassion in healthcare. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org
Chelsey Hellwege and Calley Riste are interviewed by Steve Reiter.  Welcome to "Every Patient's Right" by the Never Alone Project. In this episode, sisters Chelsey Hellwege and Calley Ristee share the heartbreaking experience of losing their father, Driggs Jessup, to COVID-19 in September 2021. They recount the isolation he faced in the hospital, despite being a fit and active community figure known for his work as a pastor and school resource officer. Chelsey and Calley discuss the difficulties of advocating for their father's care and dealing with the healthcare system while feeling helpless and shut out. Tune in as we explore their story to highlight the need for compassionate care in hospitals and work towards preventing such isolation in the future. Outline: (00:03) "Beloved Father and 'RoboCop'" (04:36) False Assurances, Medical Emergency Discovery (07:23) Plea for Dad's Hospital Visitation (11:25) Flu Shot Dilemma for Sick Patient (13:49) Hospital Visit Connections (19:10) Dismissed Concerns on Ivermectin (20:42) Denied Farewell in Final Moments (23:08) "No Ventilation Without Family Present" (27:40) Activism After Father's Death (32:33) Federal Support for Hospital Decisions (36:04) Distrust in Politicized Medical Practices (37:50) "My Dad: A Beloved Presence" About the Guest:  Chelsey Hellwege was distressed when she noticed something was amiss with a loved one, despite assurances that everything was fine. Concerned and proactive, Chelsey decided to visit him, only to find his condition worse than she expected. Sensing the urgency, she quickly obtained a pulse oximeter, which revealed alarmingly low readings. Understanding the seriousness of the situation, Chelsey contacted a doctor friend for advice, who recommended immediate emergency assistance. Her responsiveness and decisive actions reflect her deep concern and commitment to those around her in times of need. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at neveraloneproject.org    
Host Steve Reiter engages in a poignant conversation with Gregory Gandrud, a man whose firsthand experience with the complexities of healthcare isolation during the COVID-19 pandemic offers a critical lens on the intricacies of patient care. Gregory, who was hospitalized with COVID-19 at the age of 60 and faced a prolonged period of isolation, recounts the harrowing journey through intensive care and his subsequent recovery. His story highlights the trauma of being ventilated without the presence of loved ones, the psychological impact of hallucinations, and the challenges of navigating a healthcare system influenced by both medical protocols and financial incentives. As Gregory shares his road to recovery and the lasting effects of his experience, this episode underscores the vital importance of patient advocacy, informed consent, and the need for compassionate healthcare practices that prioritize the human element of healing. Join us as we delve into Gregory's journey and explore how his story can contribute to a broader understanding of ensuring no patient is ever left alone in their time of need. Outline: (00:03) Ending Isolation in Healthcare (05:56) Post-Quarantine Convention Leads to Illness (15:16) Oxygen Dependency and Medical Uncertainty (18:52) "Conforming Under Medical Pressure" (22:24 Drug-Induced Medical Paralysis Experience (27:00) ICU Delirium and Isolation Effects (36:31) Return to Work After Hospital (37:50) Driving Independence Post-Hospitalization (45:35) "Remdesivir Controversy and Financial Motives" (51:39) Supportive Spouse in ICU Needed (54:30) Governor's Veto and Patient Rights (01:02:45) ER Staff Income Concerns During COVID About the Guest: Gregory Gandrud maintained an active and health-conscious lifestyle, prioritizing nutritious foods and regular exercise, even into his later years. At the age of 60, Gregory was recognized by his doctors for his exceptional health, often being told he appeared ten years younger than his chronological age. In addition to his daily walks to work and consistent workout routine, Gregory was diligent about his vaccinations, ensuring he was protected whenever necessary, such as before traveling to the jungles of South America. This commitment to health and wellness has been a defining aspect of Gregory's life, even as he approaches his 64th birthday. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. Through his podcast, Steve shares powerful stories, such as that of Tracy Bird, whose late husband Jeff experienced isolation in December 2021, deeply affecting his health and ultimately leading to his untimely death. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Share your story, learn more, listen, and subscribe at:  neveraloneproject.org    
In this episode of Every Patient's Right, host Steve Reiter speaks with guest Steve Dettel about his experiences during forced medical isolation during the COVID-19 pandemic. Steve Dettel shares the challenges he and his late wife faced while being isolated in the same hospital, even though they both had the same illness. Their story emphasizes the effects of such isolation, highlighting the obstacles to human connection and care during a difficult time. As they discuss Steve's journey, listeners will learn about the strength and hope he found after his loss, including his support from a community of widows and widowers and the new relationship he formed with another COVID-19 widow, Kat. Join us for this insightful discussion on loss, recovery, and the need for changes in healthcare protocols. Outline: (00:03) "Ending Isolation in Healthcare" (05:09) Hospital Communication Challenges (08:51) Confusion in Hospital's COVID Ward (11:22) Playing Dumb with Blood Thinners (19:29) Caregiving Challenges and Family Support (21:22) Chaotic Hallway Dragging Incident (25:42) "Hospital Encounter with Security Threat" (31:12) Recovering from COVID Incrementally (33:32) Overmedication Concerns and Seeking Answers (36:53) Censorship in COVID-19 Discussions (41:23) "Emerging from the Cave" (44:25) Huberman Podcast Explores Grief Science (46:36) "Overcoming Exhaustion for Family" About the Guest:  Steve Dettel found himself in an unusual and unsettling situation. Amid a chaotic environment filled with confusion and urgency, Steve faced a medical emergency that seemed to involve numerous doctors, each seemingly unaware of his circumstances. After receiving treatment for five days, during which he began to feel somewhat better, Steve decided to take matters into his own hands. Venturing into the hospital hallways, he discovered an eerie emptiness, even as he explored what appeared to be a COVID ward on the Fifth Floor. Despite his best efforts to call for attention, his shouts echoed unanswered—a surreal moment highlighting the isolation and disarray of his experience. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at neveraloneproject.org  
In this episode of "Every Patient's Right" Ending Isolation and Healthcare Podcast, host Steve Reiter speaks with Gail Seiler, her husband, Brad Seiler, and their daughter, Angela Haynes, about Gail's hospitalization experience in late 2021. Gail shares her story of being admitted to a Texas hospital for COVID-19 and facing significant isolation due to restrictive visitation policies. Brad, a former RN, and Angela discuss their efforts to advocate for Gail's care from outside the hospital. They discuss their challenges, including difficulties in ensuring proper medical treatment and overcoming strict COVID-19 regulations that kept them from being by Gail's side. The episode explores the impact of Texas legislation intended to protect patients but ultimately contributed to Gail's isolation. The family emphasizes the importance of clear legislative language and the need for family presence in healthcare settings to provide support and advocacy. Listeners will hear about the steps Brad and Angela took to bring Gail home for care, including navigating legal and logistical hurdles. The conversation will highlight the critical role of family advocates in patient care and provide insights into how listeners can become involved in legislative processes to support patient rights.   Key Points: Gail's hospitalization and isolation experience during COVID-19 in Texas. The importance of family advocacy in ensuring proper patient care. The challenges of navigating hospital policies and state legislation. Steps the Seiler family took to bring Gail home safely. Encouragement for listeners to engage in advocacy and legislative efforts. For more information and support, or to share your own isolation story, visit: neveraloneproject.org Email: info@neveralonepandemic.org Join us to learn more about Gail's story and the need for reform to prevent isolation in healthcare settings.
In today's episode, we have Dr. Stephen Guffanti, a former emergency room physician turned holistic medicine practitioner and literacy advocate. Dr. Guffanti shares his harrowing hospital experience, where both he and his roommate faced severe mistreatment. He exposes systemic flaws in corporate healthcare, criticizes the COVID protocols, and emphasizes the crucial role of patient advocates. Dr. Guffanti also discusses the potential for health savings accounts to empower patients and calls for essential reforms in the relationship between doctors and hospitals. Join us to hear Dr. Guffanti's compelling story and explore actionable solutions for improving patient rights and healthcare quality. This episode is essential listening for anyone dedicated to patient-centered care. Stay tuned! Outline: (03:32) Hospital priorities over patient care and research. (09:30) Games engage kids, fostering reading interest. (11:11) COVID ignored led to hospitalization; not contagious. (14:22) All lung viruses are initially unfamiliar. (18:52) Reduced oxygen, observing struggling roommate's breathing. (21:47) Denied doctor's name: HIPAA violation concerns raised. (23:55) Mystery behind hospital's undisclosed doctor and isolation. (30:45) Free doctors prioritize healthcare over corporate profit. (34:57) Calm babies may indicate serious breathing issues. (38:46) Passion for medicine and financial incentives influence. (41:11) Chest pain is diagnosed as thoracic strain, and treatment is required. (44:13) Criticizing ineffective mask policies in hospitals. (51:21) Being vigilant can help notice undiagnosed issues.     About the Guest:  Stephen Guffanti, known for his academic brilliance, began his medical career with a pioneering spirit. During his internship in California, he noticed the absence of a specialty in emergency medicine. Undeterred, he crafted his path by working in the emergency room of the LA County Jail for three months. This intense environment, dealing with the harsh realities of gang violence, opened his eyes to a critical societal issue: 80% of gang-involved youth might leave the gangs and stop the violence if they could read at their grade level. Fueled by a passion for emergency medicine, which he admired for its ever-changing challenges, Stephen has advocated for literacy to prevent youth violence and foster better futures. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.   
Steve Reiter interviews Debbie Shivers. Welcome to this episode of "Every Patient's Right: Ending Isolation and Health Care" by the Never Alone Project. Welcome to "Every Patient's Right," a podcast examining the effects of forced medical isolation and advocating for essential healthcare policy reforms. This episode focuses on the case of Rodney Shivers, who faced severe medical challenges during the COVID-19 pandemic. The episode compares his hospitalization experiences in 2013 and 2020, highlighting the stark differences caused by isolation policies. It covers the attempts to bypass these restrictions through legal channels and the emotional impact on the Patient and family due to enforced sPatienton during critical health episodes. The discussion extends to legislative efforts inspired by these experiences and the broader implications for patient rights. This episode emphasizes the need for changes to ensure no patient endures medical isolation alone. Stay tuned for an insightful exploration of these crucial issues. Outline: (04:39) Horrific hospital experience with restricted access. (06:38) Frustration with John Deere's customer service communication. (12:43) Patient was intubated before arrivalPatient H1N1. (14:58) Intubation was intended for rest; recovery took longer. (19:20) Feeling unwell, tested positive, previous lung issues. (22:25) Lacking equipment led to transferring COVID-19 patients. (24:37) Needed charger to FaceTime, stayed supporting him. (29:33) He was my rock until the end. (33:36) Retired teacher praises man's resilience and expertise. (35:59) Intubation notified; prior refusal, potential consent. (39:52) Firmly defend personal rights; refuse opposition. (43:51) Ending forced medical isolation, ensuring awareness. About the Guest: Debbie Shivers is a resilient and determined individual who, against all odds, survived despite preexisting conditions that should have precluded her from doing so. Her story is one of both struggle and fortitude, particularly during a period when access to loved ones was denied, leaving patients without much-needed support. Debbie's emotional journey includes grappling with her inability to confront her yet loved one's medical records, a task that brings too much pain but is something she is willing to share with those who are ready to face it. Debbie spent countless hours at Swedish Hospital, often in an intensive care unit, where some compassionate nurses allowed her to stay beyond the official visiting hours, understanding she wasn't a disruption. Her experience is a testament to the importance of unwavering support and the human spirit's resilience in the face of adversity.   About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show is a platform for exploring the balance between medical needs and the basic human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection in healthcare, making his podcast a significant platform for addressing these pressing issues.   Share your story, learn more, listen, and subscribe at:  neveraloneproject.org
Host Steve Reiter converses with Patti Giliano, a seasoned psychiatric nurse practitioner, about the intense challenges faced during the early stages of the COVID-19 pandemic. Tune in as Patti recounts the widespread hospital shutdowns influenced by corporate and CDC directives, which led to significant nurse layoffs and halted crucial medical operations. She shares her personal COVID-19 battle, struggles for necessary care, and recovery using alternative treatments. Patti also explores the impacts of patient isolation, the supply chain crisis, and the community's incredible response. Her story highlights the clash between following guidelines and upholding patient well-being, advocating for family presence in patient care. Join us for an eye-opening discussion about the realities of Healthcare during the pandemic and the fight to uphold every patient's right. Outline: (00:03) Healthcare visiting policies relaxed significantly pre-pandemic. (06:52) Relocation before COVID pandemic panic and preparations. (15:47) Questioning mandates and restricting family visits' necessity. (23:33) Inconsistent iPad use and ignored nurse concerns caused resignations. (27:59) Overly incentivized nurse travel led to issues. (36:40) Limited nurse interaction; improper equipment use concerns. (39:36) Hospital discharge despite unchanged condition; miscommunication occurred. (45:23) Sought off-label medication, fearing long-haul symptoms. (53:15) Masks hinder human connection and empathy negatively. (54:40) Post-COVID: Human connection lost to digital communication. (01:01:23) Prioritize patients over profits; rethink healthcare priorities.     About the Guest: Patti Giliano began her nursing career over 38 years ago as a fresh-faced nurse in the mid to late eighties. Initially unsure of what the profession would hold, she quickly adapted and thrived in various healthcare environments. Throughout the eighties and nineties, Patti focused primarily on the perioperative arena, amassing a wealth of experience in various surgeries, including orthopedics, cardiovascular, and neurosurgery. Her dedication and expertise naturally propelled her into leadership roles, marking an exciting and impactful career in nursing. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show is a platform for exploring the balance between medical needs and the basic human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection inHealthcaree, making his podcast a significant platform for addressing these pressing issues.   Share your story, learn more, listen, and subscribe at  neveraloneproject.org  
In today's episode, Steve sits down with State Representative Julie Mayberry from Arkansas, who has been a formidable advocate for improving hospital patient visitation rights, especially during the COVID-19 pandemic. Rep. Mayberry shares her personal experiences and the journey of crafting and passing the "No Patient Left Alone" bill, addressing the legislative hurdles and the importance of family presence in patient care. She highlights the balance between infection control and emotional well-being, emphasizing that patient support is crucial. Tune in as we explore her inspiring work, the challenges met along the way, and how these efforts aim to ensure no patient endures medical isolation. Join us for this important conversation about patient rights and legislative advocacy. Outline: (04:05) Veteran denied companionship in final moments. (08:07) Ensuring constant care requires attentive visitor presence. (11:58) Desperate parent pleading for a role in care. (15:43) CMS influenced COVID hospital visitation rules significantly. (18:57) Legislators initially feared potential hospital bankruptcies. (23:05) Colonoscopy requires post-anesthesia accompaniment for safety. (24:49) Hospitals restricted patient visitors, clergy excluded. (27:12) Reports are often unfiled due to fear of discrimination. (30:41) Prevent infection by allowing constant ICU visits. (37:52) Americans' uncompromising nature requires incremental wins.     About the Guest: Rep. Julie Mayberry's journey into the spotlight didn't happen overnight; it is marked by personal trials and unwavering resolve. In March 2020, as the world shut down due to the pandemic, her husband was scheduled for brain surgery. Initially deemed non-essential, his surgery was delayed, causing significant distress. When the surgery was eventually rescheduled, strict hospital protocols prevented Julie from being by his side, leaving her to wait anxiously in the parking lot. This profound experience underscored the challenges of the healthcare system during crises and fueled Julie's commitment to public service, advocacy, and pushing for compassionate healthcare policies. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show serves as a platform for exploring the balance between medical needs and the essential human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection in healthcare, making his podcast a significant platform for addressing these pressing issues. Share your story, learn more, listen, and subscribe at neveraloneproject.org
host Steve Reiter sits down with Tracy Bird, who shares the heartbreaking story of her husband, Jeff, and his isolation during his battle with COVID-19 in December 2021. Tracy recounts the fear and confusion leading up to Jeff's hospitalization, the lack of communication with medical professionals, and the trauma of being unable to say goodbye. This episode delves into the ethical implications of medical isolation, the need for humane treatment, and Tracy's plea for legislation to ensure families are never separated from their loved ones during medical crises again. Join us as we explore the deeply personal and emotional journey of Tracy Bird and discuss how we can work together to prevent such experiences in the future. Outline: (00:02) Podcast on forced medical isolation's impact. (06:02) He was admitted and improved with oxygen treatment. (09:35) Parents found nurse advice; risky remdesivir discussed. (13:22) Family excluded from palliative meeting, decisions made. (15:13) Inhumane to deny family presence in ICU. (20:29) Wise, generous, insightful man, deeply missed. (23:37) Share feedback at neveraloneproject.org website.   About the Guest: Tracy Bird is a talented costume designer and business owner who faced significant changes in March 2020 when his costume design business was forced to shut down due to the pandemic. As daycare facilities also closed, Tracy took on the full-time responsibility of caring for his grandson, shifting from two to three days a week to support his stepson and daughter-in-law. While his spouse continued working in commercial construction, Tracy adapted to the new demands of family life, demonstrating resilience and devotion to his loved ones. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show serves as a platform for exploring the balance between medical needs and the essential human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection in healthcare, making his podcast a significant platform for addressing these pressing issues.   Share your story, learn more, listen, and subscribe at neveraloneproject.org
Today, we're joined by Carolyn Blakeman from the former Feds Group and Rachel Rodriguez, a dedicated Florida-based attorney. In this episode, we delve into the critical issues of forced medical isolation during the COVID-19 pandemic, exploring its devastating impact on patients and their families. Our guests share powerful personal stories, spotlight systemic healthcare problems, and emphasize the importance of having advocates present for better patient outcomes. We also examine legislative efforts to ensure no patient is left alone in hospitals, discussing both successes and ongoing challenges. Join us as we unravel the coercion in healthcare, the financial incentives behind treatment protocols, and the fight for stronger patient rights and accountability. Let's end isolation in healthcare and protect every patient's right. Outline: (00:02) Vietnam's COVID-19 response conflicted with U.S. information. (06:43) Seek justice for COVID-related hospital deaths. (09:21) Neglected and saved by husband's intervention. (14:51) Discussed medical malpractice factors with Brad since 2022. (19:21 Hospital protocols, not the pandemic, caused tragedy. (21:32) Presence changes actions; witnesses influence behavior. (25:51) Relationships affect care; advocacy is needed for patients. (30:15) Coercive action denies basic human rights. (33:16) Isolation worsened outcomes; human touch is vital. (37:53) Get involved, demand transparency, question authority, advocate. (41:17) Clear legal language is needed due to differing morals. (45:48) ADA modification concerns and global standards implications. (47:33) Patients need advocates to ensure their rights. (52:03) Truth-telling raises awareness and understanding of issues. About the Guest: Carolyn Blakeman, an advocate with firsthand experience, has a unique perspective shaped by her observations and connections. During the COVID-19 pandemic, she worked closely with healthcare professionals, including a Vietnamese doctor known as Dr. Thu. While the Vietnamese government provided differing accounts from the U.S. government, Carolyn became concerned about the urgency to supply ventilators to Vietnam, a nation with limited resources. Dr.Thu expressed skepticism about ventilators, citing the risk of dependency and mortality. Despite initially low death rates in Vietnam, a significant rise in fatalities ensued shortly after the introduction of vaccines, leading Carolyn to uncover critical insights about the unfolding situation. Her work underscores the complexities of global health crises and the importance of understanding local contexts. Rachel Rodriguez began exploring medical malpractice issues in Florida in early 2022. Teaming up with Brad, she delved deeply into the complexities of the matter. Although initially, there were only 17 factors under consideration, their investigative efforts gradually uncovered more elements. Rachel's dedication to understanding the nuances and interconnectedness of these factors underscores her commitment to addressing significant legal and medical challenges, akin to comprehensively examining a surge of break-ins in a city. Her collaborative and persistent approach highlights her as a diligent and insightful professional in the field.   About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery. The show is a platform for exploring the balance between medical needs and the basic human care that aids patient recovery. Steve's dedication to this cause highlights his commitment to advocating humane treatment in healthcare settings. Steve's work underscores the critical importance of human connection in healthcare, making his podcast a significant platform for addressing these pressing issues.   Share your story, learn more, listen, and subscribe at:  neveraloneproject.org
Why This Podcast?

Why This Podcast?

2024-12-1710:22

In this powerful and emotional full trailer episode of Every Patient's Right, host Steve Reiter narrates his heartbreaking personal experience of losing his wife, Elizabeth, during the COVID-19 pandemic. Despite both being COVID-negative, Steve and his family were denied the opportunity to be at Elizabeth's bedside during her 21-day hospitalization. As Steve recounts the tragic series of events and the systemic isolation policies that kept them apart, he raises vital questions about the lack of human touch and companionship in healthcare settings during the pandemic. Steve shares his story not just as a grieving husband, but as an advocate for change, questioning why hospitals, nursing homes, and other medical facilities were unprepared to allow vital visitation in safe, controlled ways. He discusses the emotional toll of isolation on patients and families, highlighting the critical role that love, touch, and companionship play in the healing process. This episode sets the stage for future discussions on the podcast, where Steve will delve into the impact of these policies on countless others, feature interviews with survivors, victims' families, and experts in various fields. Through these conversations, Steve aims to explore solutions to ensure that no one in the medical system is forced into solitary confinement again. Join Steve Reiter in this deeply personal yet universally resonant journey to advocate for every patient's right to human connection and companionship in healthcare. Learn more: https://neveraloneproject.org Email us: info@neveralonepandemic.org Donate here: https://donorbox.org/donation-form-124
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