Inflammatory!

In this powerful episode of Inflammatory!, Debbie and Katy are joined by Hansa, who was diagnosed with rheumatoid arthritis at just 19 years old while at university.Hansa shares her journey of navigating diagnosis alone,hiding her condition at work, managing pregnancy and motherhood with inflammatory arthritis, and finally finding relief through biologic treatment.An honest and relatable conversation about pain, resilience,cultural expectations, self-advocacy, and raising empathetic children while living with an invisible illness.KeywordsRheumatoid arthritis, inflammatory arthritis, autoimmune disease, young diagnosis, university diagnosis, chronic illness, invisible illness, biologics, pregnancy and arthritis, motherhood with chronic illness, strength training, self-advocacy, NHS rheumatology, flare ups, chronic pain, Asian cultural expectations, arthritis support, biologic medication, autoimmune parentingKey Topics CoveredBeing diagnosed with rheumatoid arthritis at 19Feeling lost after diagnosis and receiving little informationCultural stigma and keeping illness privateHiding chronic illness at university and in the workplaceDating, relationships, and fears about acceptancePregnancy with inflammatory arthritisManaging flares while raising young childrenThe impact of biologic medication and finding the right treatmentThe emotional toll of “just coping” with chronic painLearning to speak up and advocate for yourselfRaising children to understand invisible illnessStrength training and movement for joint healthThe importance of community and shared storiesMemorable takeaways“I hid it from people, and I hid it from myself.”Pain became “normal” until the right medication changed everything.Speaking up earlier is something Hansa wishes she had done.Children raised around chronic illness often develop deep empathy and understanding.You shouldn’t have to justify yourself for having an autoimmune disease.Connect with us Sign up to our newsletter at inflammatoryarthritis.orgFollow us on Instagram, Facebook, LinkedIn, BlueSky Watch episodes on YouTube🎧 Follow, rate & download the podcast wherever you listenIf this episode resonated with you, please share it with someone who may need to hear it. Stories like Hansa’s remind us that we are not alone and that life with inflammatory arthritis can still be full of strength, growth, and joy.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

In this episode of Inflammatory!, Debbie and Katy are joined by Katy’s close friend Cat for an honest and heartfelt conversation about love, friendship, and living with chronic illness. Together, they reflect on the evolution of their friendship, the realities of navigating inflammatory arthritis, how it felt to see your closest friend physically struggle, and the power of communication, humour, and support. Through shared memories and personal stories, they explore how diagnosis can reshape relationships and why awareness and understanding matter more than ever.Key topics: The theme of the month is love, friendship, and chronic illness.Friendship can evolve from work colleagues to lifelong companions.Understanding inflammatory arthritis requires open communication and education.Memories from shared experiences can highlight the onset of symptoms.Navigating a diagnosis can be challenging without clear communication.Chronic illness impacts relationships and requires support from friends.Hindsight often reveals what we wish we had known during difficult times.Supportive friendships are crucial for those living with chronic illness.Celebrating achievements despite challenges is important.Continuing the conversation about chronic illness helps raise awareness.Sound bites"I definitely think fun.""You deal with things with humour.""I think it was quite a shock."Connect with us Website: inflammatoryarthritis.orgNewsletter: Sign up on the websiteSocials: BlueSky, Instagram, Facebook, LinkedInDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.

Keywordschronic illness, inflammatory arthritis, support networks,medication management, health transparency, empathy, friendship, diagnosis,patient experience, healthcareSummaryIn this episode of Inflammatory! the hosts reflect on how stress, relationships, and chronic illness shape everyday life. Including the realities of moving house while managing refrigerated medication, highlighting the extra planning people with inflammatory conditions must navigate. They revisit last week’s guest, Haffy, and her experience of being diagnosed with inflammatory arthritis while pregnant and what that means for decision-making and self-advocacy.A key theme is frustration with NHS systems and the lack of easy access to personal blood test results, despite growing calls for shared decision-making in healthcare.With February’s theme of love, friendship, and chronic illness, Debbie and Katy discuss how living with inflammatory arthritis affects relationships, including:Key topics:    Managing medications during a move can be stressful.Support networks are crucial for those with chronic illnesses.Transparency in medical data is essential for patient empowerment.Explaining chronic illness to friends requires honesty and openness.Empathy is key in understanding the challenges of chronic illness.It’s important to recognize true friends during difficult times.Chronic illness can change social dynamics and friendships.Patients should have access to their medical information.Living with chronic illness involves a continuous learning process.Finding a supportive community can greatly enhance the patient experience.Sound bites"Why can't we see our blood test results?""It's a new life. It's a new chapter."Connect with usWebsite: inflammatoryarthritis.orgNewsletter: Sign up on the websiteSocials: BlueSky, Instagram, Facebook, LinkedInDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this powerful and deeply personal episode of Inflammatory! Debbie and Katy are joined by Haffy, a clinical pharmacist, university lecturer, and mum of two, who shares her journey of being diagnosed with rheumatoid arthritis and undifferentiated mixed connective tissue disease in her late 20s.Despite her medical background, Haffy’s diagnosis was delayed, highlighting the challenges of being a young woman with inflammatory arthritis and the importance of self-advocacy. She opens up about pregnancy, motherhood, cultural expectations, navigating work, and finally finding the right treatment that transformed her quality of life.This is an honest, emotional, and inspiring conversation about resilience, trust in your body, and making the most of the good days.Key topics discussedEarly symptoms of inflammatory arthritis and delayed diagnosisLiving with rheumatoid arthritis in your 20sBeing dismissed due to age and “normal” blood resultsThe emotional impact of misdiagnosis and missed test resultsPregnancy, fertility, and treatment decisions with inflammatory arthritisBalancing motherhood, chronic illness, and a demanding careerCultural attitudes toward illness and “just getting on with it”The importance of support systems and finding your “village”DMARDs, treatment side effects, and finally finding the right medicationLearning to pace yourself and protect your mental healthAdvocating for yourself within the healthcare systemMemorable takeawaysYou are the expert in your own body.Trust your instincts, if something feels wrong, keep pushing for answers.Chronic illness doesn’t stop at joints; it affects your whole life.Pregnancy decisions with inflammatory arthritis are deeply personal.The right treatment can be truly life-changing.Good support, family, work, and healthcare makes all the difference.Resources and links🌐 Visit: inflammatoryarthritis.org📩 Sign up for the Inflammatory Arthritis UK newsletter🎥 Watch the episode on YouTube⭐ Rate & follow the podcast wherever you listenDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

Keywords: inflammatory arthritis, AI in healthcare, personalized medicine, early diagnosis, chronic illness, patient care, healthcare technology, living with arthritis, health podcast, medical advancementsIn this episode of Inflammatory!, Debbie and Katy dive into the growing role of artificial intelligence (AI) in healthcare and what it could mean for people living with inflammatory arthritis. They talk openly about the promise of AI, from helping personalise treatment to supporting earlier diagnosis, while also reflecting on the very real challenges of living with a long-term condition.Alongside the tech talk, the conversation keeps coming back to what really matters: human connection. Debbie and Katy explore why empathy, understanding and being truly heard can’t be replaced by algorithms, no matter how advanced they become. They also touch on the everyday realities of chronic illness, including fatigue, invisible symptoms and the importance of learning to advocate for your own health.The episode wraps up with a fun quickfire round, where the hosts share their honest thoughts on AI, data and the future of healthcare.Key topics:How AI has been around for decades and why it’s now becoming more visible in healthcareWhy personalised medicine matters so much for inflammatory arthritisThe life-changing impact of early diagnosisWhy human care and compassion must stay at the heart of healthcareFatigue and other invisible symptoms that are too often overlookedHow AI could reduce trial-and-error when prescribing medicationsThe importance of speaking up and advocating for yourselfWhy AI data needs to represent all patients, not just a fewLiving in the moment with a chronic conditionHow AI could give healthcare professionals more time to focus on patientsA thoughtful, honest conversation about balancing innovationwith humanity and putting people first.Sound Bites"You know your body better than anyone.""We need to advocate for our health.""AI predictions: trust or side-eye?"Keep connectedPlease do rate, follow and download the podcast andsubscribe to our YouTubechannel Follow us on social media: Search Inflammatory Arthritis UKon Facebook, Instagram, Bluesky and LinkedInSign up to our newsletter at https://inflammatoryarthritis.org/Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/

Keywords: chronic illness, spoon theory, energy management, school absences, NHS online hospitals, parenting, inflammatory arthritis, healthcare, pets, community support In this episode, Debbie and Katy discuss the challenges faced by parents of children with chronic illnesses, particularly in relation to school absences and the perception of illness by educational institutions. They delve into the concept of spoon theory, which illustrates how individuals with chronic conditions manage their energy levels throughout the day. The conversation also touches on the emotional support provided by pets, the potential impact of NHS online hospitals on patient care, and the importance of community engagement in navigating these challenges.Key Topics covered: Parenting, illness, and January fatigueSchool absence and chronic conditions (including JIA)Individual Healthcare Plans (IHPs)Spoon theory and energy managementPacing, boundaries, and prioritisationMedication-related fatiguePomodoro technique and life “project management”GPS theory of life and non-linear progressSocial media comparisons and chronic illnessPets as emotional supportFriendships and chronic illness (preview)NHS online hospitals and digital healthcare concernsHelpful Resources & Stay connectedIndividual Healthcare Plans (IHPs) – via the Healthcare in Schools Alliancehttp://healthconditionsinschools.org.uk/Follow Inflammatory Arthritis UK on Facebook, Instagram, LinkedIn, and BlueSkyPlease rate and review the podcast — it really helps others find us 💛Manage your spoons, pace yourself, and remember: my pace, not yoursDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/

Keywords: New Year, holiday experiences, illness impact, darts, self-care, resolutions, FOMO, JOMO, inflammatory arthritis, charity goals #MyPaceNotYours, Empowering patientsIn this episode, Debbie and Katy reflect on their holiday experiences, discuss the impact of illness on celebrations, and share their newfound interest in darts. They celebrate the one-year anniversary of their podcast, emphasizing the importance of self-care and the shift from New Year's resolutions to more sustainable intentions. The conversation also touches on the concepts of FOMO and JOMO, the challenges of managing inflammatory arthritis in winter, the goals for their charity in the coming year and their theme for January #MyPaceNotYours.They finish by talking about confidence in healthcare appointments, the importance of remembering that you are the expert in your own body, and how mutual respect between patients, parents, and clinicians is key.Topics covered in this episode:Christmas, New Year & managing fatigueCold weather, flares & winter symptomsOne year of Inflammatory Arthritis UKPressure of New Year’s resolutions“My pace, not yours”Incremental change vs unrealistic goalsFOMO vs JOMOSelf-compassion & pacing with IAConfidence in healthcare appointmentsBeing the expert in your own lived experienceAdvocacy, awareness & sharing IA storiesGet Involved: Visit: inflammatoryarthritis.orgSign up to the newsletter for podcast updates, events & research opportunitiesFollow Inflammatory Arthritis UK on BlueSky, Facebook, LinkedIn & InstagramSubscribe to our YouTube channel: Inflammatory Arthritis UKPlease rate, follow & share the podcast, it really helps others find us 💙Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

This week’s podcast episode didn't go entirely to plan so we decided to have a shorter relaxed end-of-year chat with quite a few laughs and festive outfits (you can watch the episode on YouTube!). Make sure you listen right to the end of the episode to hear our bloopers and outtakes, they’re too good (and too embarrassing) not to share.What we discuss:How exhausting this time of year can be (even when good things are happening)Debbie celebrating her Nan’s 100th birthday 🥳 — including a very special card from the King and QueenThe reality of podcast bloopers, outtakes, and why our intros take longer than the actual episodeChristmas onesies, sparkly jumpers, and making an effort (even when you’re knackered)Sending love to those celebrating Hanukkah and to friends in Australia during a difficult timeBeing very unprepared for ChristmasHow hard it is to buy presents for kids and partners who “don’t want anything”Moving house stress and a Christmas tree that’s up… but not decoratedWhy New Year’s resolutions don’t really work for us anymoreIntroducing our January theme: #MyPaceNotYoursHow do you set goals when your body doesn’t always cooperate?A look ahead to February, where we’ll be talking about love, friendship, and chronic illnessA huge thank you to everyone who’s listened, followed, messaged, and supported us this yearStay connected:We’d love to hear your thoughts for #MyPaceNotYoursFollow, rate, and review the podcast wherever you listenFollow us on social media (and thank you for helping us grow!)Sign up to our newsletter at inflammatoryarthritis.org for updates, research, and eventsWe will be back in January with new episodes (and a postponed guest!). Until then, take care of yourselves, rest when you need to, and go at your pace. 💛Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/  

Keywords:  Darts, Fitness, Running, Mental Health, Community, Podcast, Christmas, Health Challenges, Strength Training, Autoimmune DiseaseDebbie and Katy wrap up the year with a warm, funny, and reflective catch-up. Katy shares her unexpected victory at a work darts tournament and recaps her chilly final 10K of the year, complete with a painful lesson in running gear. Debbie talks about flare-ups, stress, and picking up her daughter’s cold while trying to keep everything in balance.Together, they look back on their favourite episodes, the importance of strength training, mental health, and how hard it can be to juggle fitness with chronic illness. They also celebrate listener feedback, their growing global audience (hello Australia and Norway!), and the power of lived experience within the inflammatory arthritis community.The hosts chat about changing Christmas party trends, from darts to aquariums, and share some exciting plans for the podcast in the new year, including new guests, new trustees, and more community-focused content.Key TopicsKaty’s Flight Club darts triumphRunning injuries, rest, and balancing multiple sportsDebbie’s flare-ups, stress, and festive-season coldsStrength training vs endurance and why it’s hard to balance bothReflections on mental health, vulnerability, and community supportSpotify Wrapped listener statsChristmas party trends and alcohol habitsNew podcast plans and growing the charity’s reachEpisodes MentionedStrength Training (with Matt)1% BetterSound SystemYou Are Not Alone (mental health deep dive)Sex & RelationshipsOur Journey BeginsCan You Keep Your Humour?Alcohol EpisodeGuest episodes with James, Rachel, Adam, and SarahFollow us on social media: Bluesky, Facebook, Instagram,LinkedIn and YouTubeDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/   

James Hollens joins us on Inflammatory! to share his honest and emotional journey of living with two types of inflammatory arthritis, whilst keeping his sense of humour, it is a very funny and honest episode. He talks about the sudden joint pain that hit in his early twenties, the months of misdiagnoses, and the moment a rheumatologist finally recognised rheumatoid arthritis. At just 21, James had to face the shock, stigma, and mental toll of a lifelong diagnosis far earlier than he ever expected.His story then takes us to China, where a new wave of intense back pain landed him in an emergency hospital and a suspected diagnosis of ankylosing spondylitis. Navigating a foreign healthcare system, language barriers, and a specialist shutdown during Chinese New Year made the experience even more daunting. Returning to the UK brought answers, faster treatment, and eventually a confirmed AS diagnosis, followed by a long recovery supported by biologics, physio, and major lifestyle shifts.We also dive into the emotional side of chronic illness,from pandemic isolation to the mental health battles many patients face. James shares how lock-down volunteering grew into a thriving social media presence where he raises awareness, builds community, and spreads humour and honesty, including his popular “prick & pic” travel series. He closes with heartfelt advice to his younger self about shame, vulnerability, and finding support sooner.Key Topics CoveredEarly symptoms and repeated misdiagnosesReceiving an RA diagnosis at age 21Living abroad and a second suspected diagnosis (AS)Navigating a foreign medical system and language barriersReturning to the UK for answers and treatmentRecovery with biologics, physiotherapy, and lifestyle changesMental health challenges and pandemic isolationHow volunteering led to chronic illness advocacy onlineTravelling with medication & the “prick & pic” seriesAdvice for his younger self:don’t be ashamedopen up soonerfind communitycare for mental & physical healthstop fighting yourselfConnect with James: Instagram: @JamesHollensConnect With Us: Follow Inflammatory Arthritis UK and the podcast on: Instagram | BlueSky | Facebook | LinkedIn💬 Please like, share, and comment to help us reach more people.⭐ And don’t forget to rate and follow the podcast wherever you listen! Coming UpWe have two more episodes before our festive break,including another special guest and our reflections on the past year—plus our favourite moments!Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

Debbie and Katy dive into the chaos, pressure, and unexpected joys of the festive season, all while managing inflammatory arthritis. From flare frustrations and frozen fingers to minimalist Christmases, Santa mishaps, school nativity seating struggles, and the great“real tree vs fake tree” debate, this episode is full of relatable laughs and honest reflections.They explore how stress, weather, family expectations and endless December commitments can trigger symptoms and why giving yourself permission to slow down can be the best gift of all. Plus: cheese boards, mince pies, Christmas tiffins, flare-friendly cooking shortcuts, and why Debbie wants a “Be More Like Katy” t-shirt.The hosts also share what’s coming in 2026 and invite the IA community to get involved with recipes, workplace stories, mental health tips,and New Year’s habits.Next week: an incredible guest joins the show with a hilarious and moving story about life with RA and axial spondyloarthritis.Topics CoveredManaging flares during winter and holiday stressChristmas pressures vs. keeping it simpleReal vs. fake Christmas treesSanta experiences and family traditionsSchool nativity plays & accessibility challengesHosting vs. being a guest at ChristmasFlare-friendly cooking and festive food shortcutsMental health during busy seasonsCommunity contributions for the 2026 podcast plansPlease do follow, rate, and share the podcast to help grow the IA community.Website: inflammatoryarthritis.orgFind us on BlueSky, Instagram, Facebook and LinkedIn.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

This week, Debbie and Katy dive into how a sudden UK cold snap is affecting their inflammatory arthritis and how the community is feeling it too. Debbie shares her current whole-body flare, why pacing is key, and the importance of looking after yourself when symptoms spike.They also chat about:How cold weather triggers stiffness and flaresYour feedback on sleep, boundaries, and slowing downDiet confusion: flare triggers, food testing, and why diet advice can be… irritatingExciting charity updates and new grants for 2025Energy management, spoon theory, and putting yourself firstHeated steering wheels, hot tubs, and Diet Coke vs fizzy waterWhy everyone’s IA journey is so individualPlus: a fun quick-fire Q&A covering brain fog, flare-day outfits, stairs vs tiny buttons, pain vs fatigue, sofa vs bed, and whether they’d choose Strictly Come Dancing or I’m a Celebrity.As Christmas approaches, the hosts talk openly about festive pressure, stress-related flares, and finding humour and community support during tough seasons.Stay ConnectedWebsite: inflammatoryarthritis.orgNewsletter & resources: via the websiteFollow us: BlueSky • Instagram • Facebook • LinkedInPlease rate and follow the podcast—it really helps us grow!Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In true Inflammatory! style, Debbie and Katy bring plenty of humour, honesty, and a healthy dose of real talk in this heartfelt and relatable episode. They dive into what “looking after yourself” really means when you’re living with inflammatory arthritis or any long-term condition — and spoiler alert: it’s about a lot more than bubble baths and early nights!They chat about everything from blue post-it notes and children’s times tables to deep-tissue massages, blood test bureaucracy, hospital parking nightmares, and the realities of trying to cook healthy meals when your joints won’t cooperate. The conversation circles back to the importance of self-respect, community, and remembering to put on your own oxygen mask first.Key Takeaways: Self-care isn’t just physical, it’s mental, emotional, and social too.It can mean different things, from spa days to colouring books.Community and friendship are vital parts of health.Listen to your body and don’t feel guilty for slowing down.Advocate for yourself, whether with a massage therapist or the hospital system.Health management comes with invisible costs that deserve recognition.Find joy in the small things: origami, art therapy, and simple creativity.Resources & Links Mentioned:Teapot Trust – Art therapy charity supporting children and young people: teapot-trust.orgInflammatory Arthritis UK – Resources, blogs, and stories: inflammatoryarthritis.orgListen & Connect:Subscribe and follow Inflammatory with Debbie & Katy wherever you get your podcasts:Spotify | Apple Podcasts | Amazon Music | YouTubeJoin the conversation:Follow us on Instagram, Facebook, LinkedIn, and BlueSky — and share how you look after yourself.Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our persona lhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this week’s episode of Inflammatory with Debbie and Katy, the hosts dive into a conversation that every person living with inflammatory arthritis can relate to - what causes a flare and how to cope when it hits.From birthday party chaos and moving-house stress to hormones, grief, and sleepless nights, Debbie and Katy share their personal experiences, insights, and practical coping strategies. They explore the “cycle of doom” when life’s stresses, fatigue, and overdoing it collide, and discuss how to break that pattern with self-compassion, rest, and a realistic approach to living well with inflammatory arthritis.This honest, funny, and heartfelt chat reminds listeners that while flares are tough, they don’t define you, and you can still live a full, joyful life beyond diagnosis.Key takeaways:Stress is a major trigger: even positive stress like birthdays or weddings can cause a flare.Sleep is crucial: fatigue and poor rest often make symptoms worse.Hormones, grief, and big life events can all affect inflammation levels.Listen to your body: rest when you need to, without guilt.Don’t blame yourself: flares sometimes happen for no clear reason.Empowerment over management: learn from each flare rather than just “managing” it.Reach out for support: use your rheumatology team’s helpline, and don’t delay if pain persists.Resources & Links:Inflammatory Arthritis website & newsletterFollow Inflammatory with Debbie and Katy onInstagram | Facebook | LinkedIn | BlueskyIf this episode resonated with you, please rate, follow, and share the podcast. Your support helps others living with inflammatory arthritis discover they’re not alone and that life goes on, even through the flares.Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/ 

Final chance to fill Inflammatory! consultation hereTrustee Week Special – Behind the Scenes of Running aCharityThis week, Debbie and Katy celebrate Trustee Week (3–7November) with an honest chat about what it’s really like to start and run a charity from scratch.They share the story behind Inflammatory Arthritis UK,from that first message and business plan to launching a national charity, all while managing work, health, and life (plus a bit of Halloween chaos and a laser quest birthday party!).Hear them discuss:What being a trustee really involvesThe challenges of governance, funding, and planningBalancing health and volunteering with inflammatory arthritisWhy time is the best currency you can giveHow you can get involved as a trustee or volunteerIf you’ve ever thought about volunteering, joining a board,or just wondered how charities really work behind the scenes, this episode’sfor you.📧 Get in touch: info@inflammatoryarthritis.orgLearn more: inflammatoryarthritis.orgMemorable Quotes“When you’re on a board, you’re all equal. It’s about havingthe confidence to use your voice.” – Debbie“The best thing anyone can give is their time. That’s thebest currency.” – Katy“We might not have big funds, but we have creativity,purpose, and lived experience and that’s powerful.” – DebbieFollow and share to help us grow the community 💫Instagram | Facebook | LinkedIn | Bluesky → @InflammarthritisNext week: What Triggers a Flare? 🔥🎧 Keywords:trustee week, charity, volunteering, nonprofit, chronic illness, arthritis,inflammatory arthritis, autoimmune disease, health advocacy, patient voice,trustees, governance, lived experience, charity leadership, giving back,community support, health podcast, UK charitiesDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. Thepodcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/  

As autumn turns to winter, Debbie and Katy chat about the ups and downs of seasonal change, the darker mornings, aching joints, and staying motivated when it’s cold outside.They share personal stories, warmth hacks, and practical tips for managing energy, mood, and inflammation through the colder months all with their usual humour and honesty. Topics CoveredSeasonal changes & mood: Why darker days can make us sluggish and how to boost your energy and mindset.Seasonal Affective Disorder (SAD): Recognizing symptoms and easy lifestyle tips to help combat the “winter blues.”Keeping warm:The ultimate indoor washing setup (dehumidifier + fan + heating)Fleece-lined trousers, heat packs, and hand warmersJoint pain & cold weather: Are aching joints in winter real or psychological? Debbie and Katy discuss their experiences.Motivation & movement:Scheduling exercise to beat the “it’s too cold” excuseIndoor exercise options (from Pilates YouTube videos to bean-can workouts)How to make movement fit your day and your moodStaying cozy:Hot water bottles, electric blankets, and recliner sofasKaty’s love of her dry robe (even if she’s not a wild swimmer!)Comfort foods and slow-cooker meals — soup, shepherd’s pie, and warm lunchesSelf-compassion: Letting go of guilt for not meeting unrealistic exercise targets. Listen to your body — and rest when you need to. Key Takeaways✅ Something is better than nothing. Small bursts of movement can make a big difference.✅ Daylight matters. Try to get outside during daylight hours, even for 10 minutes.✅ Warmth = comfort. Invest in items that make winter more bearable, from gloves to cozy blankets.✅ No guilt zone. Don’t feel bad for slowing down; winter is a time for rest and reset.✅ Community helps. Exercising with others keeps you motivated and connected.Links:⁠Hand warmers⁠ ⁠Coat ⁠📲 Follow us:Instagram | Facebook | BlueSky | LinkedIn📺 Watch the podcast on YouTube⭐ Rate, follow, and subscribe wherever you listen to your podcasts“Just listen to your body. If you want to wrap up in a blanket and watch a film - do it. There’s nothing wrong with cozy.” DebbieDisclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to ⁠https://inflammatoryarthritis.org/⁠

Guest: Matt Brown, Physiotherapist & Strength CoachIn this week’s episode, Debbie and Katy chat with Matt Brown, a physiotherapist and strength coach, about how strength training can support people living with inflammatory arthritis (IA).Matt shares his journey from personal training to physiotherapy and offers practical advice for building strength safely, even on flare days. They bust common myths, discuss how movement benefits both body and mind, and explore the science behind why something is always better than nothing.Key Takeaways:What Is Strength Training? Understanding what “strength” really means and how it differs from “resistance training.”Exercise & IA: How people with inflammatory arthritis can safely engage in strength training, and why it can improve overall health, bone density, and confidence.Bridging the Gap: The disconnect between personal trainers and healthcare professionals when it comes to chronic conditions — and how education and awareness can close that gap.Practical Advice:Start small — even 5–10 minutes of activity can help.Focus on something over nothing — every bit of movement matters.Modify exercises to suit your symptoms and energy levels.Track your response to activity to understand your body’s patterns.Find trusted, supportive fitness professionals who understand chronic illness.The Mental Health Link: How movement can support mood and motivation during flares.Systemic Benefits: Strength training not only supports joints and muscles, but also improves cardiovascular and immune health.“Start where you are, build gradually, and know that every bit of movement makes a difference.” – Matt BrownConnect & resources:Instagram: @mattbrown_physioFollow Inflammatory! on YouTube, Instagram, Facebook, LinkedIn & BlueSky.Research linkDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/

In this listener-led episode, Debbie and Katy answer yourmost-asked questions about living with inflammatory arthritis. From managing pain and fatigue to navigating treatment options like DMARDs and biologics, they share their real-life experiences, the challenges, the lessons, and the small wins that make a big difference.The pair also catch up on exciting developments in arthritisresearch and patient initiatives, including Debbie’s work on a new Versus Arthritis-funded consortium and Katy’s role in the Parkrun Practice Initiative, which uses social prescribing to support community wellbeing.This is an honest, relatable, and hopeful conversation foranyone affected by inflammatory arthritis, whether you’re newly diagnosed, supporting someone who is, or looking for practical ways to live well day to day.Key Questions DiscussedHow long did it take to feel your symptoms were under control?How has your relationship with your body changed since diagnosis?What everyday gadgets or apps make life easier with IA?What do you still hope to achieve or experience despite living with IA?Key TakeawayManaging inflammatory arthritis looks different for everyone, progress takes time, and “well-managed” doesn’t always mean pain-free. With the right support, community, and mindset, it’s possible to live a fulfilling, confident life while managing chronic illness.Resources MentionedKettleZip up beddingJar openerParkrunInflammatory Arthritis UKDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to  https://inflammatoryarthritis.org/

In this episode of Inflammatory!, Debbie and Katydive into an honest conversation about alcohol and its impact on life with inflammatory arthritis (IA). From social pressures to medication side effects, cultural habits to personal choices, they explore how drinking affects their health, fatigue, and flare-ups and how difficult it can be to balanceself-discipline with wanting a “normal” social life. They also reflect on conversations with their children about alcohol, the changing attitudes among younger generations, and practical realities like what to wear, how late to stay out, and the fatigue that comes the next day.What You’ll Hear in This Episode:Katy's love for cardio tennis and how sport fits into IA lifeDebbie's experience with boxercise as a mental health boostHow alcohol interacts with disease modifying antirheumatic drugs (DMARD's) medications and blood testsDifference in drinking culture between the UK and EuropeHonest reflections on binge drinking, FOMO and self-disciplineParenting with IA: open conversations about alcohol with children and teensThe real impact on drinking on joints, fatigue, and flare daysWhy choosing to drink (or not) is deeply personal and always evolvingJoin the Conversation:How does alcohol affect your IA symptoms, flares, or fatigue? Do you drink socially, at home, or not at all? We’d love to hear your experience, share your tips, thoughts, or stories with us on social media or by completing our survey.Watch & Connect:Watch full episodes on YouTubeFollow us on Facebook, Instagram, Blueksy and LinkedInRate and Review the podcast wherever you listenDisclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to  https://inflammatoryarthritis.org/

In this week’s episode of Inflammatory with Debbie andKaty, the hosts open up about one of the most difficult and often invisible aspects of living with inflammatory arthritis: pain. From describing what the pain actually feels like, to coping mechanisms that work (and don’t work), they share their personal journeys with honesty, humour, and resilience.This conversation covers everything from the daily frustrations of flare-ups, to how pain affects mood, fatigue, relationships, and even simple tasks like cooking dinner or holding hands. Debbie and Katy also discuss practical tools like wrist supports, heat/cold packs, breathing exercises, and distraction techniques that help them push through the tough days.Key Topics in This EpisodeWhy pain is so difficult to describe and how doctors don’talways “get it”. The difference between constant dull pain and sharp flare pain.Coping strategies: from ice packs and warm baths to breathing and distraction. The impact of pain on mood, patience, and social life.How fatigue and pain often feed into each other. Gadgets, occupational health, and supports that makedaily life easier. Building resilience and finding community through shared experiences. Learning not to take everyday activities (like typing or making dinner) for granted  TakeawaysPain is highly individual — no two people feel or describe it the same way. Distraction, relaxation, and pacing yourself can be as important as medication. Support systems matter, but sometimes solitude and self-care are what’s needed. Living with IA means constant balancing acts between movement, rest, and resilience.📲 Connect with UsFollow Inflammatory with Debbie and Katy on: Facebook,Instagram, Blue Sky, LinkedIn, YouTubeSign up to our regular newsletter at inflammatoryarthritis.org