Autism Odyssey

Betsy Hicks-Russ and Julie Swanson, aka the Life Skills Lady, shares insightful ways parents, educators, and caregivers can teach essential life skills, address barriers, and leverage accommodations to improve adult outcomes for autistic individuals. Discover how to set realistic goals, build motivation, and implement routines that foster independence at any age.Julie Swansonhttps://www.lifeskillslady.comBetsy Hicks-Russhttps://Betsyonthego.com

Betsy Hicks-Russ interviews David Kaufer, who discusses the biases and misconceptions surrounding non-speaking autistic individuals and their communication methods. Kaufer highlights the flaws in message passing tests, the role of expert witnesses in debunking alternative communication methods, and the importance of presuming competence. He also touches on recent legislative changes that support communication rights for non-speakers and shares personal experiences with his son, Stone, who uses spelling to communicate. The discussion emphasizes the need for advocacy, awareness, and a shift in societal perceptions of non-speaking individuals.https://davidkaufer.comhttps://BetsyOnTheGo.comTakeawaysDavid Kaufer challenges the biases against non-speaking autistic individuals.Message passing tests are flawed and do not accurately assess communication abilities.Expert witnesses often have financial incentives to debunk alternative communication methods.Presuming competence is crucial for empowering non-speaking individuals.Legislative changes are being made to support communication rights for non-speakers.Personal experiences highlight the effectiveness of spelling as a communication method.The conversation emphasizes the need for greater advocacy and awareness.There is a coordinated effort to undermine alternative communication methods.The psychological implications of message passing tests can lead to unfair assessments.The future of communication for non-speakers looks promising with increased awareness.

For many families of non-speaking autistic people, the search for communication doesn’t begin with choice—it begins with desperation. Years of therapy. Years of assessments. And still no reliable way to hear their child’s thoughts, preferences, or inner life.In Episode 3 of the Presume Competence Series, we build directly on the foundation laid in Episodes 1 and 2—where we explored why spelling-based communication works and how motor planning differences can interfere with traditional AAC and speech-based expectations.Once motor planning is understood, the question shifts. Not whether someone understands—but how they can most reliably express what they already know.This conversation examines how assessments are often used far beyond what they are capable of measuring. We unpack how speech and language tests are mistaken for measures of intelligence, how compliance and immediate motor output are confused with comprehension, and why brief assessment snapshots are treated as permanent conclusions. Our panel explores how these practices shape belief systems, silence parental intuition, and discourage families from exploring spelling-based communication—often through fear-based narratives that are not supported by the evidence they claim to rely on.As one panelist reminds us: no expert, in any capacity, ever has the right to tell a family there is no hope.We invite parents and professionals alike to reconsider the role assessments play in decision-making—and to remember that assessments are tools for gathering information, not verdicts on intelligence, potential, or inner language. Because when communication finally becomes possible, it changes everything. And no family should be told not to look simply because the system isn’t ready to see.BetsyOnTheGo.comAutismOdyssey.orgTakeaways:No expert has the right to tell you there's no hope.Assessments often fail to measure true intelligence.Spelling-based communication offers a reliable expression method.Motor planning is crucial for understanding non-speakers.Current assessments are often misused and misunderstood.Parents must advocate for their child's communication needs.The system often silences parental intuition.Spelling methods are not harmful, contrary to some claims.Education should equip and enrich, not just test.Parents are the legal authority in their child's education.Takeaways

Betsy Hicks-Russ and Natalia Meehan delve into the fascinating world of plant medicine, telepathy, and the healing power of herbs. They explore Nina's journey as a non-speaker who communicates through spelling, the importance of nutrition, and how plants can guide us in our healing journeys. The discussion also covers practical tips for using herbs, the significance of seasonal eating, and the role of mushrooms in immune health. Throughout the conversation, they emphasize the need for nourishment and the deep connection between humans and plants.Natalia Meehanhttps://www.floweringfutures.comBetsy Hicks-Russhttps://BetsyOnTheGo.comTakeawaysNina's communication through spelling has transformed her family's understanding of her needs.Herbs can guide personal healing journeys and provide essential nutrients.The importance of nourishing the body before making convenience food choices.Plants have been used for healing long before modern medicine.Aromatherapy can enhance well-being and grounding for individuals with sensory needs.Seasonal eating aligns with the body's natural rhythms and nutritional needs.Quality ingredients in herbal remedies can significantly impact health outcomes.Mushrooms like reishi and lion's mane offer immune support and cognitive benefits.Understanding the body's detoxification process is crucial for overall health.Herbal infusions can be a powerful way to extract the benefits of plants.

In this episode, we open a doorway into acknowledging the contrast of a neurotypical brain and body verses an autistic brain and body and how they each learn & process the world—we explore autistic communication, and the unique challenges that arise when AAC (Augmentative and Alternative Communication) devices are part of the equation. It also examines how traditional approaches like ABA (Applied Behavior Analysis) can create additional barriers by overlooking the impact of apraxia on motor-based communication. The essence of the conversation points out the fundamental flaw of the traditional methods—a lack of presumption of competence in the intellect of the individual leads to misguided perceptions of what a child’s motor response actually means. These methods can often lead to increased anxiety, meltdowns, and conditioning of rote motor responding instead of purposeful motor responding. The conversations highlight that the method yielding the most transformative outcomes for many nonspeaking individuals is presuming competence in their intellect and utilizing the letterboard—an approach that honors purposeful motor planning and supports unlimited expression, while illuminating what truly fosters meaningful communication: understanding the motor system behind expression, recognizing the parent’s role in nurturing a pathway to authentic voice, and embracing the power of community, consistent practice, and shared encouragement as individuals develop and strengthen their communication—however that voice comes forward.Love John Paul Foundationhttps://lovejohnpaul.org/Communication 4 All https://communication4all.org/Sara Intonato - Autism Changemakershttps://www.skool.com/autismchangemakers/about?ref=91091eabcbb74826b4cb2581d181dc47The importance of presuming competence in non-speakers.Understanding the differences in how autistic and neurotypical brains process information.Motor planning is crucial for effective communication.Scrambling loops can help break repetitive behaviors.AAC devices have limitations that can hinder communication.Independence in communication should not come at the cost of support.Autonomy is essential for the well-being of non-speakers.Parents play a vital role in their child's communication journey.Community support is crucial for parents of non-speakers.Daily practice and engagement are key to developing communication skills.

Betsy Hicks-Russ and Elizabeth Miller explore the complexities of caregiving, emphasizing the importance of self-care, community support, and the need to avoid comparison among caregivers. They discuss the emotional challenges caregivers face, the significance of establishing routines, and the necessity of recognizing burnout signs. The dialogue highlights the journey of finding joy in caregiving and the power of reflection in personal growth.Elizabeth Millerhttps://thehappyhealthycaregiver.comBetsy Hicks-Russhttps://BetsyOnTheGo.comTakeawaysCaregivers often lose their identity and struggle with self-care.Resentment can arise from comparing caregiving experiences.It's important to avoid the comparison trap among caregivers.Self-care needs vary and require introspection to identify.Recognizing signs of burnout is crucial for caregivers.Building a self-care toolbox can help manage stress.Establishing non-negotiable routines can enhance well-being.Morning rituals can set a positive tone for the day.Reframing self-care activities can make them feel less burdensome.Community support is vital for caregivers' mental health.Self-advocacy is essential in caregiving roles.

Betsy Hicks-Russ interviews Nicci Smith, the mother of Tanner from 'Love on the Spectrum.' They explore themes of identity, the challenges of parenting a child with autism, the importance of fitness and self-care, and the impact of social media on their lives. Nicci shares her journey of self-discovery, the significance of nutrition, and the realities of living with autism. The discussion also touches on the constructive criticism they face in the public eye and the importance of kindness in online interactions.Nicci Smith - Tanner with the tism - Tannerwiththe_tismNicci Smith - nicci_smith6Talk to Me Sis Podcast - ttmspodBetsy Hicks-RussBetsyonthego.comAutismOdyssey.orgTiktok, Instagram & Facebook - BetsyOnTheGoTakeawaysNicci Smith is a passionate advocate and mother of Tanner from 'Love on the Spectrum.'Navigating identity can be challenging for parents of children with special needs.Fitness and self-care are crucial for mental and physical well-being.Social media can amplify both support and criticism for public figures.Nutrition plays a vital role in maintaining health, especially in midlife.The journey of parenting a child with autism is filled with both challenges and joys.Constructive criticism can lead to personal growth and reflection.It's important to be open-minded and sensitive to the experiences of others.Creating a supportive community is essential for personal and collective well-being.Kindness and understanding should be prioritized in online interactions.

This episode brings together speech-language pathologists, seasoned practitioners, parents, and a scientist for an open, thoughtful conversation about spelling as a communication method for nonspeaking autistic individuals. Rather than meeting criticism with defensiveness, we invite listeners—including those who hold doubts—to explore the real science behind motor challenges, apraxia, and the often-overlooked intelligence of spellers.Our aim isn’t to argue, but to illuminate. There is no “debunking” to be done—only a call to look more closely, ask better questions, and recognize that at the very least, the evidence is far from settled. And when evidence is inconclusive, the safest and most humane path is to presume competence and allow individuals the right to communicate in the way that works for them.This conversation is a gentle invitation to pause judgment, listen with curiosity, and consider what becomes possible when we give every person a chance to be heard. It’s also the beginning of a larger series—there is more to explore, more evidence to share, and more voices to uplift.

Betsy Hicks-Russ joins podcaster David Kaufer for a conversation about her journey from the early years to present. David broaches the subject of Telepathy (or the WooWoo topic) and the concept of non-local communication, exploring its scientific basis and the challenges in defining related terms like psy abilities and synesthesia. Both emphasizes the need for a better understanding of these phenomena and the potential abilities that may exist beyond current knowledge.David Kauferhttps://davidkaufer.comThe David Kaufer Podcast: The Lighter Side of the SpectrumBetsy Hicks-Russhttps://BetsyOnTheGo.comTakeawaysTelepathy often carries woo-woo connotations.Non-local communication is recognized in scientific discourse.Synesthesia is a term used in scientific contexts.There is a struggle to find the right language for these concepts.The speaker believes we are just beginning to explore these abilities.Understanding these phenomena requires open-mindedness.Scientific inquiry can help demystify telepathy.The conversation highlights the intersection of science and perception.There is a need for more research in this area.The speaker expresses curiosity about unexplored abilities.

Betsy Hicks-Russ and Becca Cramer explore the intersection of skepticism, telepathy, and the scientific community's response to non-verbal communication methods like spelling. They discuss personal experiences, the challenges faced by parents of non-speakers, and the potential for non-local communication to revolutionize understanding and treatment of individuals with communication challenges. The dialogue emphasizes the need for a shift in perspective within the scientific community and the importance of presuming competence in non-speakers.Becca Cramerhttps://substack.com/@beccacramer?r=3izcpe&utm_medium=iosInstagram - Becca_CramerBetsy Hicks-Russhttps://Betsyonthego.comhttps://AutismOdyssey.orgComprehensive list of studies. The site will be launched in Novemberhttps://PresumeComp.orgIf you need them earlier, email betsy@autismodyssey.orgTakeaways:The skepticism surrounding telepathy often stems from a lack of understanding.Personal experiences can challenge scientific consensus.Non-local communication may offer a new framework for understanding telepathy.Trust and connection are crucial in communication with non-speakers.The scientific community has historically dismissed telepathy without thorough investigation.Parents often feel frustrated by the scientific community's dismissal of their experiences.Research on non-local communication is limited but necessary for progress.The language of spellers can be advanced despite their communication challenges.Believing in the words of non-speakers can change their treatment and understanding.The future of communication may involve new methods that transcend traditional speech.

Betsy Hicks-Russ and Natalia Meehan explore the intricate relationship between herbal medicine and autism, emphasizing the importance of gentle, holistic approaches to healing. They discuss the significance of community support, the body's innate healing abilities, and the vital role of gut health in overall well-being. The conversation also delves into the challenges of picky eating, the empowerment of parents in dietary choices, and the nourishing qualities of herbs and spices. Throughout, they highlight the connection between nature and healing, advocating for a more mindful and compassionate approach to health and nutrition.Natalia Meehan Flowering Futures https://floweringfutures.comInstagram - NataliaMeehanInstagram - TheNinaFoundationTakeawaysHerbal medicine can support the healing of sensitive bodies.Community and connection are vital for personal growth.The body has an innate ability to heal itself.Gut health is crucial for overall well-being.Nature provides essential healing benefits.Detoxification is important for autism support.Picky eating is often linked to gut health issues.Empowering parents can lead to better dietary choices.Flavorful herbs enhance the nutritional value of meals.Motor skills play a key role in communication for non-speakers.

Betsy Hicks-Russ and Natalia Meehan explore the intricate relationship between herbal medicine and autism, emphasizing the importance of gentle, holistic approaches to healing. They discuss the significance of community support, the body's innate healing abilities, and the vital role of gut health in overall well-being. The conversation also delves into the challenges of picky eating, the empowerment of parents in dietary choices, and the nourishing qualities of herbs and spices. Throughout, they highlight the connection between nature and healing, advocating for a more mindful and compassionate approach to health and nutrition.Natalia Meehan Flowering Futures https://floweringfutures.comInstagram - NataliaMeehanInstagram - TheNinaFoundationBetsy Hicks-Russhttps://BetsyOnTheGo.comhttps://AutismOdyssey.orgTakeawaysHerbal medicine can support the healing of sensitive bodies.Community and connection are vital for personal growth.The body has an innate ability to heal itself.Gut health is crucial for overall well-being.Nature provides essential healing benefits.Detoxification is important for autism support.Picky eating is often linked to gut health issues.Empowering parents can lead to better dietary choices.Flavorful herbs enhance the nutritional value of meals.Motor skills play a key role in communication for non-speakers.

Betsy Hicks-Russ and Kimber Allen, share Betsy's journey from grief to love after the sudden passing of her husband, John. She recounts how psychic medium, Kimber, connected her with John's spirit, leading to unexpected guidance and a new love with Ron. The conversation explores themes of love, loss, and spiritual connection.Kimber Allen - AllenKimber@gmail.comBetsy Hicks-Russ - BetsyOntheGo.comAutism Odyssey - AutismOdyssey.org@BetsyOnTheGo TakeawaysBetsy Hicks-Russ shares her journey from grief to love.Kimber Allen, a psychic medium, connects Betsy with John's spirit.John's spirit guides Betsy to new love with Ron.Betsy finds peace and acceptance in her journey.The conversation explores themes of love, loss, and spiritual connection.Betsy and Kimber discuss the impact of spiritual guidance.Betsy's story highlights the power of unexpected connections.The narrative emphasizes healing and moving forward.Betsy honors her past while embracing new beginnings.The discussion reflects on the importance of love and support.

Betsy Hicks-Russ and Diana Pastora Carson explore the profound impact of sibling relationships in the context of autism. Diana shares her journey growing up with her brother Joaquin, discussing the challenges and triumphs of advocating for his inclusion and well-being. They delve into the importance of presuming competence, the evolving understanding of ableism, and the need for systemic changes in education and support systems. The discussion emphasizes the role of siblings as advocates and the spiritual journey of caregiving, highlighting the importance of community awareness and the future of disability advocacy.Diana Pastor-Carsonhttps://www.dianapastoracarson.comBetsy Hicks-Russhttps://Betsyonthego.comTakeaways*Diana emphasizes the importance of sibling perspectives in autism advocacy.*The relationship between Diana and her brother Joaquin has shaped her advocacy work.*Presuming competence is crucial for empowering individuals with disabilities.*Advocacy requires a community effort and systemic change.*Diana's journey reflects the challenges of navigating responsibilities as a sibling.*The importance of mental health support for caregivers is highlighted.*Diana believes in the spiritual journey of caregiving and learning from those with disabilities.*Awareness of ableism is essential for creating inclusive environments.*The conversation stresses the need for better housing and support systems for individuals with disabilities.*Diana's work aims to redefine disability awareness in educational settings.

Betsy Hicks-Russ and Mackenzie Frost discuss the intricacies of finding and hiring caregivers, particularly for individuals with autism. They explore the challenges and qualities that make a great caregiver, the importance of matching caregivers with clients based on personal interests, and the role of state support in caregiving. The conversation also touches on the significance of understanding and accommodating the unique needs of both caregivers and those they care for.McKenzie Frost - Serengeti Care in Bellinghamhttps://serengeticare.comBetsy Hicks-Russhttps://betsyonthego.comhttps://autismodyssey.orgTakeawaysCaregivers should be matched with clients based on shared interests.State support can be crucial in caregiving arrangements.Understanding personal interests enhances caregiver-client relationships.Caregivers with diverse backgrounds can offer unique strengths.Training programs are essential for new caregivers.Care plans should be personalized and detailed.Communication is key in managing caregiver expectations.Caregivers need to be adaptable to different situations.Hiring caregivers with lived experiences can be beneficial.Providing incentives can help retain good caregivers.

Betsy Hicks-Russ and Sarah Intonato explore the multifaceted challenges and strategies in supporting individuals with autism. They discuss the importance of self-care for parents, the role of movement and nutrition in managing behavior, and the significance of co-regulation during meltdowns. Sarah emphasizes the need for parents to take care of themselves to effectively support their children, and they both highlight the importance of building a supportive community for families navigating autism. The discussion also touches on the journey of change and growth for both parents and children, encouraging a proactive approach to parenting in the autism world.Sara Intonatohttps://www.skool.com/autismchangemakers/about?ref=91091eabcbb74826b4cb2581d181dc47Sara.Intonato Betsy Hicks-Russhttps://BetsyOnTheGo.comhttps://AutismOdyssey.orgPodcast on YouTube, Spotify, and AppleBetsyonthego - Instagram, Facebook, TikTokTakeawaysSelf-care is essential for parents to support their children effectively.Movement should be viewed as a non-negotiable part of daily life.Nutrition plays a critical role in managing behaviors in children with autism.Co-regulation is vital during meltdowns; parents must regulate themselves first.Building a supportive community can alleviate feelings of isolation among parents.Parents often need to be reminded that they are the change makers for their children.Small, consistent changes in diet can lead to significant improvements in behavior.It's important to address the emotional needs of both parents and children during challenging times.Parents should model healthy habits to encourage their children to adopt them.Communication during meltdowns should focus on reassurance and presence rather than intervention.

Brooke Wagner interviews Betsy Hicks-Russ to share her journey with her son Joey, who is non-speaking and has profound autism. Betsy discusses the transformative power of spelling as a means of communication, the challenges of apraxia, and the concept of telepathy among non-speaking individuals. She emphasizes the importance of mindfulness for parents and the need for a supportive environment to foster communication. Betsy also highlights the significance of nutrition in the well-being of autistic individuals and the evolving understanding of autism in society.Brooke Wagner - Finding Hope on the Spectrum PodcastBetsy Hicks Russ - BetsyontheGohttps://betsyonthego.comhttps://autismodyssey.orgtakeawaysBetsy Hicks-Russ is the director of Autism Odyssey, focusing on empowering autistic individuals.Joey, Betsy's son, is a non-speaking individual with profound autism, who has shown remarkable intelligence through spelling.The journey of discovering Joey's ability to communicate through spelling was filled with challenges and surprises.Apraxia is a significant barrier for many non-speaking individuals, affecting their ability to express themselves.Telepathy is a concept that many parents of non-speaking individuals are exploring, as it relates to their children's communication.The Hill is a term used by non-speaking individuals to describe a place of connection and communication beyond words.Mindfulness practices are essential for parents to create a calm environment for their children.Nutrition plays a crucial role in the well-being of autistic individuals, impacting their behavior and communication.The future of autism advocacy is shifting towards recognizing the capabilities of non-speaking individuals as leaders in communication.Betsy encourages families to explore spelling as a communication method and to seek proper guidance from practitioners.

Betsy Hicks-Russ and April Katz discuss the importance of movement and outdoor activities for individuals of all abilities, particularly those with autism. They explore creative approaches to engaging children in sports like cycling, pickleball and hiking, emphasizing the significance of midline crossing and the benefits of weighted vests during physical activities. April shares insights from her work with the Airow Project, a nonprofit focused on adaptive recreation, and encourages parents to seek community support and resources for their children. The discussion highlights the joy of movement, the need for inclusive opportunities, and the power of friendship in advocacy.Coach April Katzhttps://www.theairowproject.orgInstagram/Tiktok/Facebook - coach_aprilkatzInstagram - the_airow_projectBetsy Hicks Russhttps://betsyonthego.comhttps://AutismOdyssey.orgInstagram/Tiktok/Facebook - BetsyonthegoSpotify/Apple - Autism Odyssey TakeawaysMidline crossing is crucial for physical coordination.Pickleball can be adapted for individuals with disabilities.Movement is essential for learning and development.Outdoor activities provide sensory feedback and engagement.Weighted vests can enhance hiking experiences.Community support is vital for adaptive recreation.Parents should not apologize for their child's behavior.The Arrow Project aims to create inclusive opportunities.Adventure caregivers can make a significant impact.Every child has unique challenges that require understanding.

Betsy Hicks-Russ and Regan Larson discuss the importance of radical inclusion and presumed competence in the context of autism advocacy. They explore the journey into spelling therapy, the challenges faced by parents and children, and the role of schools in supporting spellers. The discussion also delves into ableism, the significance of communication, and the contrast between grievance parenting and gratitude advocacy. Additionally, they highlight the benefits of the Autistic Be Kind vest and the concept of motor coaching to aid in purposeful movement for children with autism.Regan Larson - Instagram and Tiktok - ReganAdvocates and WatchGigiSpellBetsy Hicks-Russ - https://BetsyOnTheGo.comtakeawaysRadical inclusion is essential for effective communication.Presuming competence means believing in a child's abilities.Spelling therapy can be a transformative journey for families.Ableism is a pervasive issue that needs addressing.Grievance parenting can hinder positive advocacy.The Autistic Be Kind vest promotes understanding in public spaces.Motor coaching helps children with autism navigate tasks more effectively.Listening is a powerful tool for spellers to learn and grow.Parents must lead by example in advocating for their children.Community support is vital for navigating the challenges of autism.

Lauren Flack shares her journey of creating the Channing's Joy Foundation after her son Channing's autism diagnosis. She discusses the emotional challenges she faced and how she transformed her grief into action by supporting families. The conversation delves into the importance of communication, understanding apraxia, and the various therapies that have helped Channing. Lauren also highlights the significance of community support and shares personal anecdotes about daily life with autism, including the joy found in simple activities and indulgent snacks.Lauren Flackhttps://www.channingsjoy.com/Instagram and Tiktok - LaurensFlackPodcast - Our First RodeoBetsy Hicks-Russhttps://betsyonthego.comInstagram, Facebook & Tiktok - BetsyonthegoPodcast also on Spotify and AppletakeawaysChanning's Joy Foundation was born from personal grief.Transforming challenges into positive actions is empowering.Supporting families through therapy is crucial.Communication with autistic children can take many forms.Understanding apraxia is essential for effective support.Therapies like OT and speech are vital for development.Purposeful movement aids in communication skills.Daily life with autism involves unique challenges and joys.Community support can make a significant difference.Indulgent snacks can bring joy and connection.