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Stronger than Lipedema

Stronger than Lipedema
Author: Cindy Howell & Kristy Dellacroce
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Welcome to Stronger Than Lipedema, the podcast dedicated to empowering women managing lipedema. Hosted by Cindy Howell and Kristy Dellacroce this show dives into all things health, wellness, and self-care to help you navigate life with these unique challenges.
Each episode explores practical tips, expert advice, and real-life stories to help you reduce inflammation, boost your energy, and feel confident in your body. From understanding the science behind lipedema to uncovering the best strategies for nutrition, movement, and mindset.
Each episode explores practical tips, expert advice, and real-life stories to help you reduce inflammation, boost your energy, and feel confident in your body. From understanding the science behind lipedema to uncovering the best strategies for nutrition, movement, and mindset.
36 Episodes
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In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy discuss the challenges and solutions related to lipedema diagnosis, surgery, and insurance. Joined by Lea Fowler and Samantha Kershinsnik, the discussion covers personal stories, expert advice, and practical steps for navigating insurance claims, including summary plan descriptions (SPDs), gap exceptions, and the importance of knowing your coverage. The episode aims to empower women with lipedema through shared experiences, detailed process explanations, and the importance of self-advocacy.00:00 Welcome to Stronger Than Lipedema00:56 Introducing Leah Fowler and Samantha01:25 Leah's Journey in Healthcare03:48 Understanding ERISA04:39 Sam's Role and Support06:14 Challenges with Insurance for Lipedema15:04 Navigating Insurance Appeals19:00 The Importance of Accurate Documentation22:06 Surgeons and Diagnosis30:43 Outrageous Insurance Practices33:40 Insurance Fee Schedules and Underpayments34:39 Filing Complaints and Advocacy Challenges35:38 Success Stories and Emotional Rollercoaster37:48 Importance of Summary Plan Reviews39:08 Understanding Insurance Language and Exclusions46:07 Preexisting Conditions and Obamacare56:04 Navigating Self-Funded Plans and Employer Involvement59:43 Final Advice and Contact InformationFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBReady to take your journey to the next level? Join the private Facebook community for exclusive support, practical tips, and a group of women who truly understand. Let's empower each other to thrive—click here to join! https://www.facebook.com/groups/7021999704562921/What my FREE checklist: Top 5 Food to Avoid for Managing Lipedema! Click there Link: https://withcindyhowell.com/checklist/Looking for personalized guidance to manage lipedema? Work with me one-on-one to create a tailored plan that fits your unique needs and empowers your health journey. Click here to learn more and get started today! https://l.bttr.to/WaDwKFree Lipedema Surgery Course:https://l.bttr.to/6cATBSamantha IG: https://www.instagram.com/lift_up_lipedema/ Lea Fowler IG: https://www.instagram.com/erisaadvocacy/Website: erisaadvocacy.com Email: leafowler78@gmail.com
Empower Your Journey: Overcoming Challenges with Martha Krejci In this episode of 'Stronger Than Lipedema', host Cindy welcomes entrepreneur Martha Krejci to share her inspiring journey from the restaurant industry to creating an eight-figure business from home. Martha discusses the importance of belief and advocacy, sharing personal anecdotes that emphasize the power of self-advocacy and resilience. Through real-life stories and expert insights, this episode offers valuable guidance and motivation for women navigating lipedema and other challenges. Whether you're newly diagnosed or have been managing lipedema for years, this conversation provides hope, strategies, and a reminder that you're not alone.00:00 Introduction to Stronger Than Lipedema00:54 Meet Martha Krejci: A Unique Perspective02:16 Martha's Journey from Hospitality to GoDaddy06:25 A Life-Changing Moment and Career Shift10:05 Building an Eight-Figure Brand from Home10:47 Empowering Women with Lipedema17:06 The Importance of Self-Advocacy and Mindset32:59 The Impact of Technology on Our Minds35:18 Understanding Lipedema: A Growing Concern38:51 Personal Experiences with Lipedema43:17 Exploring Treatment Options for Lipedema45:34 The Journey of Weight Loss and Self-Acceptance58:59 Advocating for Yourself and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBOral Peptides:https://makewellness.com/450241Martha Krejci:https://www.instagram.com/themarthakrejci/https://gold.withmartha.com/members/vaults/6057?ref=mtdhogz
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome Hiba Hamati, a dedicated advocate who shares her personal journey with Lipedema. Diagnosed five years ago, Haba's discusses her experience with multiple surgeries, the importance of self-diagnosis, and her commitment to helping others. The conversation delves into the emotional and physical challenges of managing Lipedema, the impact of toxic diet culture, and the need for a strong support system. The episode also highlights the importance of informed decision-making for surgery and finding joy amid the struggles. Discover insights, strategies, and hope for those navigating the complexities of Lipedema.00:00 Introduction to Stronger Than Lipedema01:04 Guest Introduction: Hiba's Lipedema Journey01:53 Early Symptoms and Misdiagnosis03:17 The Impact of Diet Culture04:27 Challenges of Early Diagnosis12:45 Self-Diagnosis and Official Diagnosis16:54 Surgery Experiences and Decisions23:55 Conservative Therapies and Personal Adjustments31:43 Navigating Medical Documentation for MLD32:29 Coping with the Emotional Challenges of Lipedema37:17 The Importance of Support Systems44:50 Deciding on Surgery: Personal Advice and Reflections58:42 Reframing Your Mindset and Finding Joy01:02:55 Conclusion and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/the.lipediva/
Navigating Lipedema: Lift_up_lipedema ( Samantha Kershisnik)In this episode of Stronger Than Lipedema, hosts Cindy and Kristy welcome guest Sam to discuss her journey with lipedema and other associated conditions. Sam shares her experiences from diagnosis, the struggles with the healthcare system, and finding effective treatments. The conversation covers valuable topics such as early screening, the need for specific diagnostic codes for lipedema, and the importance of self-advocacy. The hosts and Sam also emphasize the role of community and support in managing lipedema. This episode is packed with insightful personal stories and practical advice for those living with lipedema.00:00 Introduction to Stronger Than Lipedema00:54 Sam's Diagnosis Journey05:32 Challenges with Medical Professionals11:48 Advocacy and Self-Education16:21 Finding the Right Medical Support23:26 Negative Feedback and Vibration Plate24:49 Pizza Making and Celiac Disease26:58 Balancing Life and Content Creation31:20 Lipedema Advocacy and Insurance33:07 Future of Lipedema Treatment39:02 Advice for Lipedema Patients44:47 Conclusion and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBFollow Samantha on Instagramhttps://www.instagram.com/lift_up_lipedema/
In this episode of Stronger Than Lipedema, hosts Cindy and Kristy welcome guest Kasi Grosvernor, who shares her inspiring journey with lipedema. Kasi's, who hails from Mechanicsville, Virginia, discusses her experiences, from early symptoms in childhood to her ultimate diagnosis. She details the challenges she faced in seeking medical validation and her journey through conservative treatments and five lipedema reduction surgeries. Kasi's emphasizes the importance of a holistic approach, including mental health support, lifestyle changes, and consistent conservative care post-surgery. She also highlights the role of community, self-advocacy, and ongoing research in managing this condition. This episode is a beacon of hope and practical advice for anyone dealing with lipedema.00:00 Introduction to Stronger Than Lipedema00:58 Meet Casey Groner01:53 Kasi 's Lipedema Journey Begins04:44 Struggles with Diagnosis and Acceptance08:15 Emotional and Physical Challenges12:52 The Importance of Conservative Therapies20:38 Navigating the Healthcare System28:34 Kasi 's Surgical Experience30:01 Personalized Approach to Lipedema Surgery31:01 Managing Post-Surgery Symptoms and Complications32:25 Skin Excision Surgeries and Loose Skin Management34:54 Conservative Measures for Lipedema Management35:59 The Role of GLP-1 Medications in Lipedema Treatment48:54 Mental Health and Community Support54:56 Final Thoughts and EncouragementFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBFollow Kasihttps://www.instagram.com/thrivingwithlipedema/
In this episode of Stronger Than Lipedema, hosts Cindy and Kristy are joined by Dr. Sayeed, a board-certified plastic surgeon based in Manhasset, New York, to discuss comprehensive management and treatment strategies for lipedema. Dr. Sayeed covers his journey into plastic surgery, the increase in lipedema cases in recent years, and the crucial role of social media and AI in patient research and awareness. The conversation includes an in-depth look at the consultation process, insurance authorization, the importance of compression garments post-surgery, and the holistic approach of his boutique practice in treating lipedema patients. Dr. Sayeed emphasizes personalized patient care, setting realistic expectations, and the need for greater awareness and support within the medical community.The episode wraps up with advice for women with lipedema on finding the right healthcare providers and maintaining perseverance through their journey.00:00 Introduction to Stronger Than Lipedema00:50 Meet Dr. Sayeed: A Journey in Plastic Surgery02:05 The Rise of Lipedema Awareness02:52 The Role of AI in Modern Medicine05:14 Consultation Process for Lipedema Patients09:03 Insurance and Surgery Options13:38 Post-Surgery Compression and Recovery19:03 Choosing the Right Compression Garments21:44 The High Costs of Lipedema Treatment21:58 Surgical Techniques and Liposuction Modalities24:38 Skin Tightening and J Plasma26:51 Setting Realistic Expectations for Surgery30:58 Patient Support and Post-Surgery Care33:20 Common Concerns and Recovery38:41 Raising Awareness in the Medical Community40:30 Final Advice for Women with Lipedema42:42 Conclusion and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBSyed Sayeed MD FACShttps://www.instagram.com/drsayeedny/
Navigating Lipedema with Michelle KeithIn this episode of Stronger Than Lipedema, hosts Cindy and Kristy speak with Michelle Keith, a prominent advocate with a significant social media following, who shares her personal journey with lipedema. Diagnosed in 2023 after first hearing about the condition in 2022, Michelle discusses the emotional and physical challenges she faced, including her son's autism and her recovery from addiction. Michelle highlights the importance of self-advocacy, the benefits of conservative measures like anti-inflammatory nutrition, and the support she has received and provided through online communities. She also touches on future plans for possibly undergoing surgery and developing resources for the lipedema community. Whether newly diagnosed or long-term, Michelle's story offers hope, practical advice, and inspiration for those navigating life with lipedema.00:00 Introduction to Stronger Than Lipedema00:55 Michelle's Lipedema Journey Begins01:59 Navigating Diagnosis and Family History02:50 Balancing Lipedema with Personal Challenges06:00 Building a Supportive Community12:53 Conservative Measures and Weight Loss16:02 Considering Surgical Options20:10 Managing a Large Support Group23:30 Final Thoughts and Encouragement26:22 Conclusion and FarewellKristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBMichelle Keith: lipedemacareandfitness@gmail.comhttps://linktr.ee/michelleekeith
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome Bonnie Newlin, a dietitian, owner and founder of Crave Nourishment, to discuss her personal journey with lipedema and her professional expertise as a dietician. Bonnie shares her story of navigating through diagnosis and managing her condition, as well as her pivot from a focus on general weight loss and gut health to specializing in nutrition for women with lipedema. She emphasizes the importance of individualized nutrition plans based on biomarkers and lifestyle, debunks common misconceptions about carbs and gluten, and offers valuable advice on managing dietary restrictions while maintaining a balanced, enjoyable diet. The episode also touches on the physical and mental challenges of lipedema, the impact of surgery, and the importance of self-advocacy and continuous learning.00:00 Introduction to Stronger Than Lipedema00:50 Meet Bonnie Newland from Crave Nourishment01:31 Bonnie's Journey with Lipedema03:45 The Lipedema Method and Individualized Nutrition07:30 Debunking Nutrition Myths16:35 Managing Overwhelm and Building Habits19:47 Gluten Sensitivity and Lipedema24:45 Mental Health and Lipedema25:30 The Power of Nutrition25:52 Understanding Food and Binge Eating26:21 Personal Stories and Experiences27:35 Hormone Labs and Early Detection30:26 Surgery and Its Impacts42:13 The Aging Process and Body Image43:33 Final Thoughts and AdviceFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce, MS, OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBMPA, MS, RD, CLT - Dietitian + Nutritionisthttps://www.instagram.com/cravenourishment_thelippyrd/#Website:www.cravenourishment.com
Empowerment Through Experience: Cara's Lipedema Journey and AdvocacyIn this episode of Stronger Than Lipedema, hosts Cindy and co-host Kristy discuss with Cara, known as Pale Ginger Pear on social media, about her extensive journey managing lipedema and lipo- lymphedema. Cara shares her personal story of discovering her condition, undergoing seven surgeries, managing post-surgical care, and adopting a sugar-free lifestyle. The discussion covers the emotional and physical challenges faced, the importance of a supportive community, and practical advice for others navigating similar paths. Cara also touches on her upcoming wedding and the importance of maintaining well-being amidst life changes.00:00 Introduction to Stronger Than Lipedema00:57 Meet Cara: A Journey with Lipedema01:44 Discovering Lipedema: The Early Struggles03:36 Navigating the Medical System04:43 The Role of Social Media in Lipedema Awareness07:44 Surgery Experiences and Challenges14:00 Documenting the Journey: The Importance of Transparency30:10 Community Support and Personal Insights32:41 Monthly Lipedema Support Meetings33:33 Personal Coaching and Consulting34:44 Navigating Social Media and Support Groups37:04 Compression Garments and Daily Life39:10 Finding Love and Support48:03 Wedding Plans and Preparations50:52 Advice for the Lipedema Community58:32 Conclusion and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Click there Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBFollow Cara (palegingerpear)https://www.instagram.com/palegingerpear/?hl=enLympha- Press Round table.https://youtu.be/5-rh68E9_7M
13 Weeks Post-Op: Cindy's Lipedema Surgery Journey with Dr. HagopianIn today's episode, Kristy interviews Cindy about her experiences at 13 weeks post-op from her lipedema surgery with Dr. Hagopian, located in Atlanta, Georgia. Cindy shares her pre-op consultation process, the surgery, and her recovery journey. She discusses the necessity of in-person consultations, the pre-op preparation, and the importance of compression garments post-surgery. Cindy also talks about the decision to fly versus drive for surgery and the challenges of post-surgical swelling. Additionally, Cindy highlights the benefits of staying at a specialized recovery house and how it alleviated some post-op care burdens. The episode wraps up with insights on continuing conservative measures like anti-inflammatory diets and the necessity of self-advocacy for those struggling with lipedema.00:00 Introduction and Overview01:30 Details of the Surgery02:06 Pre-Op Preparations04:57 Travel and Post-Op Experience10:10 Insurance and Scheduling14:49 Recovery and Compression24:34 Surgical Techniques and Personal Experiences33:30 Navigating Post-Surgery Challenges34:43 Bruising and Unexpected Recovery Experiences36:06 Compression Garments: Tips and Tricks38:42 Finding Support and Resources41:32 Choosing the Right Surgeon46:39 Mental and Physical Preparation for Surgery52:19 Post-Surgery Realities and Expectations01:04:13 Advocating for Yourself in the Medical SystemFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Click there Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATB
Navigating Lipedema Surgery with Deborah Ford: Advocacy, Insurance, and ResilienceIn this episode of Stronger Than Lipedema, hosts Cindy continues her conversation with Deborah Ford, who shares her journey through multiple lipedema surgeries and her experience with finding a new surgeon. Deborah provides invaluable advice on navigating the insurance processes, advocating for oneself, and managing the emotional and physical toll of dealing with lipedema. She emphasizes the importance of self-love, persistence, and building a supportive community. This episode offers hope, practical tips, and inspiration for anyone managing lipedema.00:00 Welcome to Stronger Than Lipedema00:55 Deborah Ford's Surgery Journey02:39 Navigating Insurance Challenges04:39 Advocating for Yourself24:27 The Emotional Rollercoaster of Surgery27:12 The Importance of Support and Community29:13 Building Community Through Podcasts30:22 Finding What Works for You31:31 Diet and Lifestyle Choices32:38 Navigating Health Noise39:40 The Importance of Compression40:08 Personal Journey and Success45:10 Challenges and Misconceptions49:25 Loving Yourself Beyond Appearance52:39 Final Thoughts and EncouragementFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Click there Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATB
In this episode of 'Stronger Than Lipedema', hosts Cindy and Kristy welcome Debra Ford, who shares her personal battle with lipedema. Debra discusses her late diagnosis, the challenges she faced growing up with the condition in rural Alabama, and her numerous lipedema removal surgeries. The conversation dives deep into her experiences with weight loss surgery, the struggles with chronic pain, and the various treatments and strategies she has employed to manage her condition. Despite multiple surgeries and moving across the country for better medical care, Debra's resilience and determination shine through as she continues to fight for better health and mobility. The episode also touches on the correlation between lipedema, ADHD, and autism. Debra emphasizes the importance of self-advocacy and the personalized nature of managing lipedema.00:00 Introduction to Stronger Than Lipedema00:58 Debra's Lipedema Journey Begins03:35 Challenges and Misdiagnoses04:55 The Role of Autism and ADHD06:17 Exploring GLP Medications12:51 Weight Loss Surgery Struggles17:03 Discovering Lymphedema18:41 Fighting for Proper Diagnosis19:23 The Impact of Silicone Allergies25:29 Mobility and Osteoarthritis Issues27:45 Seeking Advanced Treatment28:26 Emotional Aftermath and Initial Struggles28:58 Exploring International Surgery Options30:25 Finding Dr. Haggerty31:14 Challenges and First Surgeries32:11 Daily Life Before and After Surgery34:42 Insurance Battles and Further Surgeries36:21 Recovery and Realizations37:07 The Brutal Reality of Lipedema Surgery41:16 Advocacy and Self-Reliance43:25 Final Surgeries and Insurance Struggles52:40 Concluding Thoughts and Next StepsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Free surgery course: https://l.bttr.to/6cATBhttps://l.bttr.to/6cATB
In this episode, we welcome Dr. Thomas Hagopian, a board-certified plastic surgeon in Atlanta, Georgia, specializing in Lipedema. Dr. Hagopian shares his background, the reason behind his move to Atlanta, and his experience in treating Lipedema. He discusses the complexities of Lipedema surgery, from the challenges of insurance approvals to the differences between cosmetic and symptomatic surgery. Dr. Hagopian emphasizes the importance of patient expectations, the need for thorough consultations, and the significance of finding a qualified surgeon. He also addresses the concerns and misconceptions about anesthesia, the role of physical therapy in preparing for surgery, and the trends in insurance coverage for Lipedema. This episode provides valuable insights into the surgical and non-surgical management of Lipedema, aiming to educate and guide patients through the process.00:00 Introduction and Guest Background00:40 Journey to Atlanta02:09 Specializing in Lipedema03:29 Insurance and Patient Experience05:37 Surgical Techniques and Considerations08:56 Importance of Board Certification20:46 Insurance Challenges and Trends28:19 Navigating the Complexities of Lipedema Documentation29:09 Challenges Faced by Lipedema Patients30:08 Misconceptions and Misunderstandings About Lipedema33:18 The Role of Surgery in Lipedema Treatment43:40 Consultation and Insurance Process for Lipedema Surgery51:03 Advice for Lipedema Patients Considering SurgeryFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Dr. Thomas Hagopian https://www.instagram.com/drthomashagopian/?hl=enhttps://youtu.be/0AWz2pKmahU?si=nU33GFLzY4tJPS8fTo schedule a consult, call the office:
In this episode of Stronger Than Lipedema, hosts Cindy welcomes Debbie's, an advocate who educates on the benefits of vibration plates for managing lipedema and other fat disorders. Debbie shares her personal journey of discovering the effectiveness of vibration plates, which began with her own need for a non-invasive solution to knee pain. Despite not having lipedema herself, Debbie's experience led to the creation of a support group that has become a vital resource for many. The discussion covers how vibration plates work, the benefits they offer, including pain relief and improved lymphatic flow, and provides advice on selecting the right equipment. Debbie emphasizes the importance of starting slow and listening to one's body to avoid overuse. This episode is filled with insights, practical advice, and encouragement for anyone managing lipedema and related conditions.00:00 Introduction to Stronger Than Lipedema00:56 Debbie's Journey with Vibration Plates02:47 Starting a Vibration Plate Studio03:31 The Rise of Home Vibration Machines04:45 Discovering Lipedema and Community Support07:13 The Importance of Personalized Approaches20:48 Understanding Vibration Plates28:52 Benefits and Cautions of Vibration Plates42:14 The Rise of Vibration Plates44:23 Debunking Misconceptions53:05 Contraindications and Safety57:25 Choosing the Right Vibration Plate01:09:39 Final Thoughts and Recommendations01:19:11 Conclusion and Farewellhttps://linktr.ee/debbypelletierFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161
Empowerment Through Knowledge: Navigating Lipedema with Expert Insights and Personal StoriesIn this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy aim to empower women living with lipedema by sharing knowledge, support, and practical solutions. Special guest Dora shares her journey from initial symptoms and misdiagnoses to discovering her lipedema diagnosis through research and consultations with Dr. Kim in Sacramento and Dr. Crawford in Roseville. Dora discusses her experiences with pain management, conservative treatments, and navigating the healthcare system to find specialists and surgical options. The episode highlights the importance of self-advocacy, building a medical support team, and exploring different treatment avenues for managing lipedema effectively.00:00 Welcome to Stronger Than Lipedema00:57 Meet Dora: A Personal Journey01:33 Discovering Lipedema03:37 Challenges in Finding a Diagnosis05:29 Living with Lipedema07:24 Exploring Treatment Options09:11 Preparing for Surgery13:53 Post-Surgery Experiences21:18 Traveling for Treatment26:53 Emotional and Physical Changes30:49 The Illusion of Online Photos31:07 Mental and Emotional Challenges32:35 Comparing Surgical Results34:03 Post-Surgery Struggles36:20 Compression Garments Tips38:55 Sharing Surgery Resources40:49 Unexpected Bruising and Pain49:58 Dealing with Drainage52:06 Advocating for Lipedema Awareness58:39 Conclusion and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161
Empowering Women with Lipedema: Nurse Fonda's Journey into Post-Op CareIn this episode of 'Stronger Than Lipedema,' host Cindy and engages with Nurse Fonda to discuss her transition into post-op care and her dedication to assisting women recovering from plastic or cosmetic surgeries. Nurse Fonda shares her personal journey, the unexpected events that led her to start her own business, and the deep satisfaction she finds in her work. She describes the services she offers, including surgical support, nutrition, pain management, and the importance of lymphatic drainage and compression in recovery. The episode also provides informative insights into managing lipedema and underscores the critical need for post-op support. Nurse Fonda offers encouragement and practical advice for women considering surgery but lacking adequate support.00:00 Introduction to Stronger Than Lipedema00:55 Meet Nurse Fonda: A Journey in Post-Op Care01:56 The Birth of a Post-Op Care Business03:21 The Growing Need for Post-Op Care06:09 Providing Surgical Recovery Services09:14 Challenges and Insights in Lipedema Surgery14:14 The Importance of Compression and Mobility19:44 Massage Services for Post-Surgery Patients20:25 Mobile MLD and Compression Therapy24:30 Booking and Consultation Process25:25 Meal and Dietary Accommodations27:28 Surgical Supplies and Post-Op Care30:44 Accommodation and Support Services34:25 Final Thoughts and EncouragementFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Nurse Fonda:IG https://www.instagram.com/nurse_fonda_llc/Facebook:https://www.facebook.com/profile.php?id=100083025810117Phone#404-274-7956Booking link https://form.jotform.com/230893666259066
In this episode of Stronger Than Lipedema, hosts Cindy engages in a heartfelt conversation with Lisa from Canada, who shares her personal journey coping with lipedema. Lisa discusses her diagnosis, the initial struggles with identifying the condition, and her experiences with multiple surgeries in Germany. She emphasizes the importance of taking pictures to track progress, sharing stories for community support, and trusting the process during treatment. Lisa's journey underscores the ongoing battle against lipedema and highlights the significance of support networks and informed choices in managing the condition.00:00 Introduction to Stronger Than Lipedema00:54 Lisa's Personal Journey with Lipedema03:23 Struggles and Misdiagnosis07:14 The Turning Point: Diagnosis and Realization09:04 Navigating the Healthcare System15:04 Exploring Conservative Measures18:17 Choosing the Right Surgeon21:21 Surgery Experience and Reflections27:54 Post-Surgery Challenges and Recovery29:25 Support Systems During Recovery30:00 Experiences with Post-Op Care31:07 Traveling for Surgery and Recovery35:30 Surgery Outcomes and Reflections45:25 Sharing Personal Stories and Community Support51:38 Advice and Encouragement for Others55:54 Conclusion and Future PlansFollow us on Social media!!!Kristy's Contact information:Stan store: stan.store/Sunrisehealingaz IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG:https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Follow Lisa on IG: https://www.instagram.com/lisa_lipedema_journey/
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome their guest Megan Meyer to discuss her journey with lipedema. Diagnosed only recently in 2024, Megan shares her personal challenges and triumphs in seeking a diagnosis, dealing with various comorbidities, and navigating the healthcare system. Kristy and Megan talk about the importance of self-advocacy, emotional support from family, and useful resources like online communities and weight management providers. Megan also touches on her weight loss experiences, lifestyle adjustments, and plans for future surgeries.This heartfelt conversation aims to empower listeners by highlighting the collective struggles and victories of those living with lipedema.00:00 Introduction to Stronger Than Lipedema01:11 Meet Megan: A Journey of Self-Discovery02:13 The Diagnosis Journey03:48 Connecting the Dots: EDS, Lipedema, and More06:48 Family Matters: Discussing Lipedema with Loved Ones12:04 Weight Loss and Lipedema Management18:28 Support Systems and Finding Community20:23 Navigating Healthcare and Advocacy24:12 Navigating Insurance for Lipedema Treatment24:24 Preparing for Surgery: Steps and Challenges25:36 Consultations and Insurance Limitations27:11 Exploring Treatment Options and Vendors33:26 The Importance of Advocacy and Support39:17 Final Thoughts and EncouragementFollow us on Social media!!!Kristy's Contact information:Stan store: stan.store/Sunrisehealingaz IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG:https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite:Follow us on Social media!!!Kristy's Contact information:Stan store: stan.store/Sunrisehealingaz IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG:https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Megan Meyers:https://www.instagram.com/navigating_lipedema/Megan's weight management provider that she mentioned that diagnosed her is:University of Iowa Health Care Weight Management Clinic (part of Endocrinology & Diabetes clinic)Katharine Reustow, ARNP, DNP
In this episode of 'Stronger Than Lipedema,' hosts Cindy sits down with Dr. Laura Haydon, a seasoned physical therapist specializing in lymphatic disorders, to delve into the intricacies of managing lipedema. Dr. Haydon shares her personal journey with lipedema, the importance of proper diagnosis, and the role of conservative therapies like compression and manual lymphatic drainage. She also discusses the challenges patients face in navigating treatment options and the critical need for a comprehensive approach to managing the condition. Whether you're newly diagnosed or have been living with lipedema for years, this episode offers valuable insights and practical advice to help you on your journey towards better health and well-being.00:00 Introduction to Stronger Than Lipedema01:10 Meet Dr. Laura Hayden01:52 Dr. Hayden's Journey with Lipedema03:22 Challenges in Diagnosing Lipedema13:36 The Role of Compression in Lipedema Management24:01 Exploring Compression Options25:04 Personal Experiences with Compression25:51 Lifestyle Factors and Lipedema26:53 Challenges of Inactivity27:40 Travel and Swelling Issues29:22 Conservative Measures and Tools36:52 Surgery Considerations for Lipedema41:22 Advice for Those Suspecting Lipedema43:32 Conclusion and Final ThoughtsDr. Laura Haydon's:https://www.instagram.com/haladayphysicaltherapy/Follow us on Social media!!!Kristy's Contact information:Stan store: stan.store/Sunrisehealingaz IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG:https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161
In this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy welcome Adrien Mackenzie, a certified lymphedema therapist and clinical advisor for Airos Medical. The discussion covers a range of topics including the evolution and requirements of pneumatic compression devices, challenges in securing insurance coverage, the need for proper diagnosis, and the importance of comprehensive self-care and community support for those managing lipedema. Adie shares her journey, valuable insights on treatment options, and highlights the importance of advocacy and staying informed about the latest medical advancements. Join them for an informative conversation aimed at empowering women with lipedema.00:00 Welcome to Stronger Than Lipedema01:12 Meet Addie Mackenzie: Certified Lymphedema Therapist02:55 Role and Responsibilities of a Clinical Advisor03:46 Understanding Aeros Medical's Products10:05 Challenges with Insurance and Lipedema12:58 The Importance of Preventative Healthcare18:51 Innovations and Future Directions at Aeros Medical31:16 Discussing Diagnosis and Awareness32:32 Challenges of Social Media and Body Image33:34 Portable Compression Devices34:50 Traveling with Compression Devices35:22 FDA Approved vs Non-Approved Devices36:18 Benefits of Compression Therapy46:11 Challenges in Diagnosing Lipedema51:50 Virtual Consultations for Lipedema58:06 Insurance and Psychosocial Factors01:00:09 Conclusion and Final ThoughtsFollow us on Social media!!!Kristy's Contact information:Stan store: stan.store/Sunrisehealingaz IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qrFB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite is below Kristy Dellacroce,MS,OTR/L, MLD-CSunrise Healing, LLC sunrisehealingaz.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG:https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN PHC MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Adrien MacKenzie: Adie.mackenzie@gmail.com