The Fine, But Not Fine Podcast

38 Episodes

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World Lymphoma Day Belongs to the Rare Ones Too - Ep. 38

2026-09-1516:37

Rare lymphomas are hard to build an awareness campaign around — and a global awareness day does matter. Why one day of visibility does what three thousand patients a year can't do alone.

Did I Really Have to Say That? Disclosing a Cancer Diagnosis at Work - Ep. 37

2026-09-0120:03

This episode is about telling clients, partners, and vendors about a cancer diagnosis. I share how I read someone before I decide, what I actually say, and why I still wonder whether I say too much.

Why Mycosis Fungoides Takes Years to Diagnose: What I've Learned - Ep. 36

2026-08-1831:23

Most people with mycosis fungoides spend 2–6 years being told it’s “just eczema.” I wasn’t one of them. And it wasn’t because I got biopsied early (I did, and it was wrong). I got diagnosed in 4–6 months because I accidentally landed with a dermatologist who knew what to look for, chose the right biopsy site, and knew that early biopsies often can’t confirm it. In this episode, I walk through what usually goes wrong, what happened in my case, and the four obstacles that keep this disease hidden.

The Mycosis Fungoides Rule Out - Ep. 35

2026-08-0419:32

A patch showed up on my lower eyelid practically overnight. Itchy, red, scaly — and it could have been almost anything. Having mycosis fungoides doesn't make you immune to ordinary skin problems. It just turns every ordinary skin problem into a question. And answering that question takes months. This episode is the process. The steroid that did nothing. Four weeks of topicals that did nothing. A biopsy on my eyelid. Seven days of waiting. And the answer I already expected, which changed things anyway. I don't have the ending yet. I'm telling you anyway.

Treatment Fatigue: Doing the Hard Thing Forever With No Finish Line - Ep. 34

2026-07-2108:30

Most hard things come with a finish line — six rounds, twelve weeks, "get through this and you're on the other side." I don't get that sentence. My treatment doesn't end; it just continues, for as long as my body needs it. This episode is about treatment fatigue, not the kind where one appointment is brutal, but the kind where the hard part is the forever of it. And how I've learned to carry that without letting it stop me.

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