Claim OwnershipGOALS: An ALS United Podcast
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Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org
35 Episodes
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Mary Grams is the new Executive Director at ALS United North Carolina. In this GOALS Podcast, Mary discusses her family's ALS story, progress in ALS care, the extensive research programs in North Carolina, and how the ALS United network collaborates to advance the ALS cause. To learn more about her work, visit www.alsnc.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Stephanie Dobak, MS, RD, LDN, CNSC, is a clinical dietitian at the Jefferson Weinberg ALS Center in Philadelphia, Pennsylvania. In this podcast episode, Stephanie talks with Alisa Brownlee about important questions for people with ALS and their caregivers regarding nutrition and diet.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Gary Goldstein joins our ALS United Mid-Atlantic GOALS Podcast to discuss his role in ALS advocacy. In this episode, Gary talks about his wife Paula's battle with ALS, successes through advocacy, his Named Fund for Paula, and being a Visiting Volunteer.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
ALS United Mid-Atlantic nurse Annette Miller, RN, joins the GOALS Podcast to discuss her work and experience caring for people with ALS. In this episode, Annette talks about how her role as a nurse has evolved, how she guides people through the challenges of ALS, the services offered through ALS United Mid-Atlantic, and the growing reputation of the ALS Treatment Center at Penn State Health Hershey Medical Center.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Vincent Cella is a 22-year retired Gulf War veteran from Sewell, N.J., with 18 years spent in the Navy and four with the Army. After years of health issues, Cella was diagnosed with ALS in August of 2024. He joins the ALS United Mid-Atlantic GOALS Podcast to share his story to bring more attention to the issue of veterans and ALS.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Director of Development Donna Cleary talks about her work at ALS United Mid-Atlantic, how to leave a lasting legacy, and her personal connections to the ALS cause.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Michele Yelland was diagnosed with ALS in 2024. When she saw that many people did not understand her symptoms and experience with ALS, she decided to write and publish her own book about it. In this podcast, Michele talks about what inspired her to write her book, her travels with ALS, and what gives her hope.
Order her book now at: https://www.amazon.com/ART-LIVING-JOY-FIGHTING-ALS/dp/B0FJFJRZDN/
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Jessie Meier, MSW, LSW, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her role as a social worker with ALS United Mid-Atlantic, her connection with ALS patients and families, what it means to be a caregiver and to live with purpose, and the upcoming Lehigh Valley ALS United Walk. To join the Walk, register or donate at www.alsunitedwalk.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Larry Gifford is living with Parkinson's Disease. He formed PD Avengers to raise awareness of Parkinson's Disease and advocate for more research to find new treatments. In this ALS United Mid-Atlantic GOALS Podcast, Larry talks about his efforts and collaboration and education with groups like ALS United. Learn more about his work at: https://www.pdavengers.com/
The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Chris Albright joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS United Walk program and upcoming ALS United Walk events. The ALS United Walk is the signature event for ALS United Mid-Atlantic. Register now at www.alsunitedwalk.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Ashley Lee joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's ALS story and what has inspired her to be an ALS advocate. In this episode, Ashley talks about advances in advocacy and research and the connection between ALS and military veterans.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
ALS United Mid-Atlantic speaks with Emma Allen and Myah Stone about the ALL ALS Consortium and the benefits of ALS research and observational studies. To learn more about their work, visit: https://www.all-als.org/
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
ALS United Mid-Atlantic collaborate with a growing list of partners to address the needs of the ALS community and to support wider issues that include research funding and accessibility. In this GOALS Podcast, Lauren Holder of Help 4 HD speaks about her experience living with Huntington's Disease and how we can accomplish more by partnering for our shared goals. View her podcast at @help4hdtv
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
#ALS #ALSUnited #Trending #HuntingtonsDisease #ALSresearch
Raziel Green is living with a genetic form of ALS due to the SOD1 mutation. In this ALS United Mid-Atlantic GOALS Podcast, Raziel talks about her diagnosis, participation in a clinical trial, and her life since starting use of Toferson, otherwise known as Qalsody.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
#ALS #ALSResearch #Research #Trending #LivingwithALS
Placing Stones joins the ALS United Mid-Atlantic GOALS Podcast to discuss a special offer to preserve the legacies of loved ones, including those with ALS.
To the ALS United Mid-Atlantic Community, We’re honored to support your journey in preserving meaningful memories. As a special offer, we’d like to provide your first year free on Placing Stones—our digital legacy platform. https://placingstonesstudio.com/
Simply enter the code STRENGTH25 in the coupon field at checkout. To help you get started, we’re also offering complimentary individual and group training sessions. Just click the Contact Us button on our website to schedule a time that works best for you.
Thank you again for the opportunity to be part of your story. We look forward to building something meaningful together.
Warm regards, The Placing Stones Team
The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
#ALS #ALSUnited #Legacy #Family
Jayne Etskovitz joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work supporting ALS patients and caregivers. Jayne shares examples of how resource groups benefit all aspects of ALS care and she talks about her favorite ALS United events, helping people solve problems, and building a stronger community for ALS families.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
#ALS #ALSUnited #ALSAwareness #SocialWork #Caregiving
Doug Yocum joins the ALS United Mid-Atlantic GOALS Podcast to discuss living with ALS, his initial ALS symptoms, and a review of his experience with the Philadelphia Phillies for ALS Awareness Night and Lou Gehrig Day. In this episode, Doug talks about home care, research, care from the team at the Jefferson Weinberg ALS Center, expanded access for clinical trials, and support for ACT for ALS.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
In this latest ALS United Mid-Atlantic GOALS Podcast, Sheri Strahl, MPH, MBA and David Buseck share their experience and insight into ALS research through their work at ALS Network.
Topics include filling the gaps of private industry and empowering ALS patients through research. Lean more about ALS Network @youralsnetwork at https://alsnetwork.org
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Drs. James Grogan and Andrew Geronimo of @PennStateHealth join the ALS United Mid-Atlantic GOALS Podcast to discuss advances in Brain Computer Interface and other communication tools and how they benefit people with ALS. In this podcast, they discuss the nature of communication, how BCI works, measuring BCI success, and lessons from technology such as video games.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Paul Melmeyer from @MDA joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaborating on ALS Advocacy, recent advocacy successes like the ALS Disability Insurance Access Act, reauthorization of ACT for ALS, and protecting Medicaid.
Learn more about MDA's work on Medicaid at: https://www.mda.org/press-releases/proposed-medicaid-and-health-coverage-cuts-raise-substantial-concern-for-the-neuromuscular-community
The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
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