Inflammatory!

James Hollens joins us on Inflammatory! to share his honest and emotional journey of living with two types of inflammatory arthritis, whilst keeping his sense of humour, it is a very funny and honest episode. He talks about the sudden joint pain that hit in his early twenties, the months of misdiagnoses, and the moment a rheumatologist finally recognised rheumatoid arthritis. At just 21, James had to face the shock, stigma, and mental toll of a lifelong diagnosis far earlier than he ever expected.His story then takes us to China, where a new wave of intense back pain landed him in an emergency hospital and a suspected diagnosis of ankylosing spondylitis. Navigating a foreign healthcare system, language barriers, and a specialist shutdown during Chinese New Year made the experience even more daunting. Returning to the UK brought answers, faster treatment, and eventually a confirmed AS diagnosis, followed by a long recovery supported by biologics, physio, and major lifestyle shifts.We also dive into the emotional side of chronic illness,from pandemic isolation to the mental health battles many patients face. James shares how lock-down volunteering grew into a thriving social media presence where he raises awareness, builds community, and spreads humour and honesty, including his popular “prick & pic” travel series. He closes with heartfelt advice to his younger self about shame, vulnerability, and finding support sooner.Key Topics CoveredEarly symptoms and repeated misdiagnosesReceiving an RA diagnosis at age 21Living abroad and a second suspected diagnosis (AS)Navigating a foreign medical system and language barriersReturning to the UK for answers and treatmentRecovery with biologics, physiotherapy, and lifestyle changesMental health challenges and pandemic isolationHow volunteering led to chronic illness advocacy onlineTravelling with medication & the “prick & pic” seriesAdvice for his younger self:don’t be ashamedopen up soonerfind communitycare for mental & physical healthstop fighting yourselfConnect with James: Instagram: @JamesHollensConnect With Us: Follow Inflammatory Arthritis UK and the podcast on: Instagram | BlueSky | Facebook | LinkedIn💬 Please like, share, and comment to help us reach more people.⭐ And don’t forget to rate and follow the podcast wherever you listen! Coming UpWe have two more episodes before our festive break,including another special guest and our reflections on the past year—plus our favourite moments!Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

Debbie and Katy dive into the chaos, pressure, and unexpected joys of the festive season, all while managing inflammatory arthritis. From flare frustrations and frozen fingers to minimalist Christmases, Santa mishaps, school nativity seating struggles, and the great“real tree vs fake tree” debate, this episode is full of relatable laughs and honest reflections.They explore how stress, weather, family expectations and endless December commitments can trigger symptoms and why giving yourself permission to slow down can be the best gift of all. Plus: cheese boards, mince pies, Christmas tiffins, flare-friendly cooking shortcuts, and why Debbie wants a “Be More Like Katy” t-shirt.The hosts also share what’s coming in 2026 and invite the IA community to get involved with recipes, workplace stories, mental health tips,and New Year’s habits.Next week: an incredible guest joins the show with a hilarious and moving story about life with RA and axial spondyloarthritis.Topics CoveredManaging flares during winter and holiday stressChristmas pressures vs. keeping it simpleReal vs. fake Christmas treesSanta experiences and family traditionsSchool nativity plays & accessibility challengesHosting vs. being a guest at ChristmasFlare-friendly cooking and festive food shortcutsMental health during busy seasonsCommunity contributions for the 2026 podcast plansPlease do follow, rate, and share the podcast to help grow the IA community.Website: inflammatoryarthritis.orgFind us on BlueSky, Instagram, Facebook and LinkedIn.Disclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

This week, Debbie and Katy dive into how a sudden UK cold snap is affecting their inflammatory arthritis and how the community is feeling it too. Debbie shares her current whole-body flare, why pacing is key, and the importance of looking after yourself when symptoms spike.They also chat about:How cold weather triggers stiffness and flaresYour feedback on sleep, boundaries, and slowing downDiet confusion: flare triggers, food testing, and why diet advice can be… irritatingExciting charity updates and new grants for 2025Energy management, spoon theory, and putting yourself firstHeated steering wheels, hot tubs, and Diet Coke vs fizzy waterWhy everyone’s IA journey is so individualPlus: a fun quick-fire Q&A covering brain fog, flare-day outfits, stairs vs tiny buttons, pain vs fatigue, sofa vs bed, and whether they’d choose Strictly Come Dancing or I’m a Celebrity.As Christmas approaches, the hosts talk openly about festive pressure, stress-related flares, and finding humour and community support during tough seasons.Stay ConnectedWebsite: inflammatoryarthritis.orgNewsletter & resources: via the websiteFollow us: BlueSky • Instagram • Facebook • LinkedInPlease rate and follow the podcast—it really helps us grow!Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In true Inflammatory! style, Debbie and Katy bring plenty of humour, honesty, and a healthy dose of real talk in this heartfelt and relatable episode. They dive into what “looking after yourself” really means when you’re living with inflammatory arthritis or any long-term condition — and spoiler alert: it’s about a lot more than bubble baths and early nights!They chat about everything from blue post-it notes and children’s times tables to deep-tissue massages, blood test bureaucracy, hospital parking nightmares, and the realities of trying to cook healthy meals when your joints won’t cooperate. The conversation circles back to the importance of self-respect, community, and remembering to put on your own oxygen mask first.Key Takeaways: Self-care isn’t just physical, it’s mental, emotional, and social too.It can mean different things, from spa days to colouring books.Community and friendship are vital parts of health.Listen to your body and don’t feel guilty for slowing down.Advocate for yourself, whether with a massage therapist or the hospital system.Health management comes with invisible costs that deserve recognition.Find joy in the small things: origami, art therapy, and simple creativity.Resources & Links Mentioned:Teapot Trust – Art therapy charity supporting children and young people: teapot-trust.orgInflammatory Arthritis UK – Resources, blogs, and stories: inflammatoryarthritis.orgListen & Connect:Subscribe and follow Inflammatory with Debbie & Katy wherever you get your podcasts:Spotify | Apple Podcasts | Amazon Music | YouTubeJoin the conversation:Follow us on Instagram, Facebook, LinkedIn, and BlueSky — and share how you look after yourself.Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our persona lhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to https://inflammatoryarthritis.org/

In this week’s episode of Inflammatory with Debbie and Katy, the hosts dive into a conversation that every person living with inflammatory arthritis can relate to - what causes a flare and how to cope when it hits.From birthday party chaos and moving-house stress to hormones, grief, and sleepless nights, Debbie and Katy share their personal experiences, insights, and practical coping strategies. They explore the “cycle of doom” when life’s stresses, fatigue, and overdoing it collide, and discuss how to break that pattern with self-compassion, rest, and a realistic approach to living well with inflammatory arthritis.This honest, funny, and heartfelt chat reminds listeners that while flares are tough, they don’t define you, and you can still live a full, joyful life beyond diagnosis.Key takeaways:Stress is a major trigger: even positive stress like birthdays or weddings can cause a flare.Sleep is crucial: fatigue and poor rest often make symptoms worse.Hormones, grief, and big life events can all affect inflammation levels.Listen to your body: rest when you need to, without guilt.Don’t blame yourself: flares sometimes happen for no clear reason.Empowerment over management: learn from each flare rather than just “managing” it.Reach out for support: use your rheumatology team’s helpline, and don’t delay if pain persists.Resources & Links:Inflammatory Arthritis website & newsletterFollow Inflammatory with Debbie and Katy onInstagram | Facebook | LinkedIn | BlueskyIf this episode resonated with you, please rate, follow, and share the podcast. Your support helps others living with inflammatory arthritis discover they’re not alone and that life goes on, even through the flares.Disclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personalhealth journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for anylosses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/ 

Final chance to fill Inflammatory! consultation hereTrustee Week Special – Behind the Scenes of Running aCharityThis week, Debbie and Katy celebrate Trustee Week (3–7November) with an honest chat about what it’s really like to start and run a charity from scratch.They share the story behind Inflammatory Arthritis UK,from that first message and business plan to launching a national charity, all while managing work, health, and life (plus a bit of Halloween chaos and a laser quest birthday party!).Hear them discuss:What being a trustee really involvesThe challenges of governance, funding, and planningBalancing health and volunteering with inflammatory arthritisWhy time is the best currency you can giveHow you can get involved as a trustee or volunteerIf you’ve ever thought about volunteering, joining a board,or just wondered how charities really work behind the scenes, this episode’sfor you.📧 Get in touch: info@inflammatoryarthritis.orgLearn more: inflammatoryarthritis.orgMemorable Quotes“When you’re on a board, you’re all equal. It’s about havingthe confidence to use your voice.” – Debbie“The best thing anyone can give is their time. That’s thebest currency.” – Katy“We might not have big funds, but we have creativity,purpose, and lived experience and that’s powerful.” – DebbieFollow and share to help us grow the community 💫Instagram | Facebook | LinkedIn | Bluesky → @InflammarthritisNext week: What Triggers a Flare? 🔥🎧 Keywords:trustee week, charity, volunteering, nonprofit, chronic illness, arthritis,inflammatory arthritis, autoimmune disease, health advocacy, patient voice,trustees, governance, lived experience, charity leadership, giving back,community support, health podcast, UK charitiesDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. Thepodcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to https://inflammatoryarthritis.org/  

As autumn turns to winter, Debbie and Katy chat about the ups and downs of seasonal change, the darker mornings, aching joints, and staying motivated when it’s cold outside.They share personal stories, warmth hacks, and practical tips for managing energy, mood, and inflammation through the colder months all with their usual humour and honesty. Topics CoveredSeasonal changes & mood: Why darker days can make us sluggish and how to boost your energy and mindset.Seasonal Affective Disorder (SAD): Recognizing symptoms and easy lifestyle tips to help combat the “winter blues.”Keeping warm:The ultimate indoor washing setup (dehumidifier + fan + heating)Fleece-lined trousers, heat packs, and hand warmersJoint pain & cold weather: Are aching joints in winter real or psychological? Debbie and Katy discuss their experiences.Motivation & movement:Scheduling exercise to beat the “it’s too cold” excuseIndoor exercise options (from Pilates YouTube videos to bean-can workouts)How to make movement fit your day and your moodStaying cozy:Hot water bottles, electric blankets, and recliner sofasKaty’s love of her dry robe (even if she’s not a wild swimmer!)Comfort foods and slow-cooker meals — soup, shepherd’s pie, and warm lunchesSelf-compassion: Letting go of guilt for not meeting unrealistic exercise targets. Listen to your body — and rest when you need to. Key Takeaways✅ Something is better than nothing. Small bursts of movement can make a big difference.✅ Daylight matters. Try to get outside during daylight hours, even for 10 minutes.✅ Warmth = comfort. Invest in items that make winter more bearable, from gloves to cozy blankets.✅ No guilt zone. Don’t feel bad for slowing down; winter is a time for rest and reset.✅ Community helps. Exercising with others keeps you motivated and connected.Links:⁠Hand warmers⁠ ⁠Coat ⁠📲 Follow us:Instagram | Facebook | BlueSky | LinkedIn📺 Watch the podcast on YouTube⭐ Rate, follow, and subscribe wherever you listen to your podcasts“Just listen to your body. If you want to wrap up in a blanket and watch a film - do it. There’s nothing wrong with cozy.” DebbieDisclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       Formore information, head to ⁠https://inflammatoryarthritis.org/⁠

Guest: Matt Brown, Physiotherapist & Strength CoachIn this week’s episode, Debbie and Katy chat with Matt Brown, a physiotherapist and strength coach, about how strength training can support people living with inflammatory arthritis (IA).Matt shares his journey from personal training to physiotherapy and offers practical advice for building strength safely, even on flare days. They bust common myths, discuss how movement benefits both body and mind, and explore the science behind why something is always better than nothing.Key Takeaways:What Is Strength Training? Understanding what “strength” really means and how it differs from “resistance training.”Exercise & IA: How people with inflammatory arthritis can safely engage in strength training, and why it can improve overall health, bone density, and confidence.Bridging the Gap: The disconnect between personal trainers and healthcare professionals when it comes to chronic conditions — and how education and awareness can close that gap.Practical Advice:Start small — even 5–10 minutes of activity can help.Focus on something over nothing — every bit of movement matters.Modify exercises to suit your symptoms and energy levels.Track your response to activity to understand your body’s patterns.Find trusted, supportive fitness professionals who understand chronic illness.The Mental Health Link: How movement can support mood and motivation during flares.Systemic Benefits: Strength training not only supports joints and muscles, but also improves cardiovascular and immune health.“Start where you are, build gradually, and know that every bit of movement makes a difference.” – Matt BrownConnect & resources:Instagram: @mattbrown_physioFollow Inflammatory! on YouTube, Instagram, Facebook, LinkedIn & BlueSky.Research linkDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content. For more information, head to https://inflammatoryarthritis.org/

In this listener-led episode, Debbie and Katy answer yourmost-asked questions about living with inflammatory arthritis. From managing pain and fatigue to navigating treatment options like DMARDs and biologics, they share their real-life experiences, the challenges, the lessons, and the small wins that make a big difference.The pair also catch up on exciting developments in arthritisresearch and patient initiatives, including Debbie’s work on a new Versus Arthritis-funded consortium and Katy’s role in the Parkrun Practice Initiative, which uses social prescribing to support community wellbeing.This is an honest, relatable, and hopeful conversation foranyone affected by inflammatory arthritis, whether you’re newly diagnosed, supporting someone who is, or looking for practical ways to live well day to day.Key Questions DiscussedHow long did it take to feel your symptoms were under control?How has your relationship with your body changed since diagnosis?What everyday gadgets or apps make life easier with IA?What do you still hope to achieve or experience despite living with IA?Key TakeawayManaging inflammatory arthritis looks different for everyone, progress takes time, and “well-managed” doesn’t always mean pain-free. With the right support, community, and mindset, it’s possible to live a fulfilling, confident life while managing chronic illness.Resources MentionedKettleZip up beddingJar openerParkrunInflammatory Arthritis UKDisclaimer: Debbie and Katy are not medical professionals. They share personal experiences of living with IA to build connection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.·       For more information, head to  https://inflammatoryarthritis.org/

In this episode of Inflammatory!, Debbie and Katydive into an honest conversation about alcohol and its impact on life with inflammatory arthritis (IA). From social pressures to medication side effects, cultural habits to personal choices, they explore how drinking affects their health, fatigue, and flare-ups and how difficult it can be to balanceself-discipline with wanting a “normal” social life. They also reflect on conversations with their children about alcohol, the changing attitudes among younger generations, and practical realities like what to wear, how late to stay out, and the fatigue that comes the next day.What You’ll Hear in This Episode:Katy's love for cardio tennis and how sport fits into IA lifeDebbie's experience with boxercise as a mental health boostHow alcohol interacts with disease modifying antirheumatic drugs (DMARD's) medications and blood testsDifference in drinking culture between the UK and EuropeHonest reflections on binge drinking, FOMO and self-disciplineParenting with IA: open conversations about alcohol with children and teensThe real impact on drinking on joints, fatigue, and flare daysWhy choosing to drink (or not) is deeply personal and always evolvingJoin the Conversation:How does alcohol affect your IA symptoms, flares, or fatigue? Do you drink socially, at home, or not at all? We’d love to hear your experience, share your tips, thoughts, or stories with us on social media or by completing our survey.Watch & Connect:Watch full episodes on YouTubeFollow us on Facebook, Instagram, Blueksy and LinkedInRate and Review the podcast wherever you listenDisclaimer: Debbie and Katy are not medicalprofessionals. They share personal experiences of living with IA to buildconnection and community. The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to  https://inflammatoryarthritis.org/

In this week’s episode of Inflammatory with Debbie andKaty, the hosts open up about one of the most difficult and often invisible aspects of living with inflammatory arthritis: pain. From describing what the pain actually feels like, to coping mechanisms that work (and don’t work), they share their personal journeys with honesty, humour, and resilience.This conversation covers everything from the daily frustrations of flare-ups, to how pain affects mood, fatigue, relationships, and even simple tasks like cooking dinner or holding hands. Debbie and Katy also discuss practical tools like wrist supports, heat/cold packs, breathing exercises, and distraction techniques that help them push through the tough days.Key Topics in This EpisodeWhy pain is so difficult to describe and how doctors don’talways “get it”. The difference between constant dull pain and sharp flare pain.Coping strategies: from ice packs and warm baths to breathing and distraction. The impact of pain on mood, patience, and social life.How fatigue and pain often feed into each other. Gadgets, occupational health, and supports that makedaily life easier. Building resilience and finding community through shared experiences. Learning not to take everyday activities (like typing or making dinner) for granted  TakeawaysPain is highly individual — no two people feel or describe it the same way. Distraction, relaxation, and pacing yourself can be as important as medication. Support systems matter, but sometimes solitude and self-care are what’s needed. Living with IA means constant balancing acts between movement, rest, and resilience.📲 Connect with UsFollow Inflammatory with Debbie and Katy on: Facebook,Instagram, Blue Sky, LinkedIn, YouTubeSign up to our regular newsletter at inflammatoryarthritis.org

Living with Rheumatoid Arthritis: Sarah’s Journey from Denial to EmpowermentIn this episode of Inflammatory!, Debbie and Katy sitdown with Sarah Yorke, who shares her deeply personal journey with rheumatoid arthritis (RA), from the confusion of her first symptoms to the challenges of getting a diagnosis, coping with denial, and ultimately finding strategies that help her live well with this unpredictable condition.Sarah opens up about: The frustration of being dismissed by doctors as "too young" for arthritis. The shock of learning RA is a lifelong condition, not a temporary setback. How denial shaped her early response & what finally helped her move forward. The mental health struggles that come with living with fluctuation illness. Day-to-day strategies that make the biggest difference: sleep, nutrition, exercise & pacing. The importance of self-advocacy in healthcare & learning to trust your own instincts. Misconceptions about RA & why fatigue is one of the hardest symptoms to explain. Her story is one of resilience, honesty, and hope, and a reminder that while everyone’s journey with RA is different, no one has to face it aloneGuest:Follow Sarah Yorke on Instagram at @arthritisfit_by_sarahfor more on her health, fitness, and RA journey.Links & Resources:Take our Inflammatory Survey to shape future episodes InflammatoryArthritis.orgWatch episodes on YouTubeFollow us on Facebook, Instagram, Blue Sky & LinkedInSubscribe to our newsletter at InflammatoryArthritis.org🎧 Don’t forget to rate, follow, and share the podcast to help us reach more people living with inflammatory arthritis. 

We need your help. Please do take a few minutes tocomplete our anonymous survey, to help us grow and improve the podcast. Please fill out the survey here: https://tinyurl.com/mtr7fvz5Please note: All responses are anonymous. Aggregateresults may be shared with funders, trusts, and partner organisations to highlight the need for Inflammatory! and ensure its sustainability.🎙️ Episode 26: Is Sitting Bad for Our Health?This week Debbie and Katy are back after the summer break to tackle a big question: how bad is sitting for our health, especially with inflammatory arthritis?They first discuss their summers, exam results, holidays andhaving a bout of Covid thrown into the mix. They then cover:   Why sitting for long periods can harm jointsSimple hacks to move more: school runs, dog walks, standing desks, fitness trackersSupporting children with JIA at school: healthcare plans & small adjustmentsUniversity and work Disability Student Allowance, workplace support, and useful toolsHealth updates: new JIA guideline consultation & vaccine news (chickenpox, shingles, flu, COVID)Resources & Links Healthcare Plan templateDisability Student AllowanceBSR JIA guideline surveyVaccine update: Chicken pox, shinglesStay ConnectedFollow Inflammatory Arthritis UK on Instagram,Bluesky, Facebook & LinkedIn.Sign up for the newsletter at InflammatoryArthritis.org.Disclaimer: The podcast is for informational purposes onlyand is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/

In this bonus summer episode, Debbie and Katy catch up while one of them enjoys a holiday in Crete, navigating the intense heat, a lingering cold, and the added challenges of inflammatory arthritis and being immunosuppressed.They explore the realities of travelling with a chronic condition, from heightened sun sensitivity due to medication, to the constant need for sun protection, shade, and mindful pacing to balance relaxation with health needs.Their conversation also delves into family dynamics, making thoughtful food choices on all-inclusive holidays, and the value of self-compassion when things don’t go as planned. They reflect on the delicate balance between denial and mindfulness when living with a long-term condition, and the importance of giving yourself permission to rest.The episode closes with a gentle reminder to be kind to yourself, savour the moment, and stay connected through their website and social media.Stay Connected:Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys, and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this heartfelt episode, Debbie and Katy reflect on recent personal experiences, listener feedback, and plans for the future as they wrap up the podcast season for a short summer break.Topics Discussed:Coping with Heat & Chronic IllnessKaty shares a stressful experience with her son falling ill from the heat, leading to missed plans and increased physical symptoms. Both hosts reflect on how extreme weather and heat exacerbate chronic conditions like inflammatory arthritis and fibromyalgia, including the emotional and physical toll. They also cover community responses from Instagram on weather-related symptom changes and coping strategies.Symptom Management & SupportKaty describes how distraction helped her cope with wrist pain, while Debbie talks about medication access issues and the challenge of identifying whether symptoms stem from arthritis, fibromyalgia, or both. Mental Health & Chronic ConditionsThe hosts revisit the strong listener response to their mental health-focused episode, Episode 5 You’re not alone, highlighting the blurred lines between physical and emotional well-being. They emphasise how living with a chronic illness often affects mental health.Summer Break & Future PlansDebbie and Katy announce a summer pause for the podcast to recharge, plan future episodes, secure funding, and create outreach materials. They reflect on how much the podcast and charity has grown since launch and the impact it’s had on their community.Holiday Plans & Chronic Illness RealitiesThe hosts share their personal holiday preferences and how inflammatory arthritis still “tags along,” affecting travel plans and energy levels. From city breaks to cruises, they discuss balancing relaxation with the unpredictability of symptoms.Spreading AwarenessThey invite listeners to help raise awareness by sharing posters and materials about the podcast and charity in their local communities, hospitals, and libraries.Stay Connected:Follow the team on Facebook, Instagram, LinkedIn, and Blue Sky. Visit inflammatoryarthritis.org for updates, newsletters, and ways to support the cause.Until Next Time:This isn’t goodbye, just a “see you soon.” The podcast will return in September with new stories, guests, and conversations to continue supporting those living with inflammatory arthritis.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

This week, Katy and Debbie offer a raw and honest conversation about what it really means to live with inflammatory arthritis (IA). As both are currently experiencing flares, Katy facing increasing symptoms and Debbie managing spinal arthritis and severe pelvic pain, they speak from a place of lived experience, bringing warmth, truth, and relatability to the challenges of daily life with IA. They reflect on last week’s inspiring interview with Adam Newton (listen here), whose swift diagnosis contrasts starkly with the long, frustrating journey many, especially women, face. They highlight this disparity by referencing Rachell Smith’s powerful story (Listen here), where it took over 13 years to receive a diagnosis, underscoring how gender bias and symptom dismissal remain pressing issues in rheumatology. Katy and Debbie also speak openly about the emotional toll of IA and the importance of a good support network to help ease the isolation. A central theme of the episode is IAUK’s mission, grounded in the four pillars of AREA: Advocacy, Research, Education, and Awareness. The hosts explain how these values shape every aspect of the charity’s work, from elevating patient voices and building innovative research partnerships, to creating educational content like this podcast and spreading awareness about the realities of life with IA. They also explore the broader context in which IA exists, acknowledging that many people live with overlapping conditions such as fibromyalgia or chronic fatigue. Katy and Debbie call for a more joined-up, compassionate healthcare approach that sees the whole person, not just a diagnosis. Finally, they invite listeners to share their own stories and experiences, reinforcing the belief that every voice matters. Through speaking out, connecting with others, and challenging misconceptions, the IA community can grow stronger and together, push for the change and recognition they deserve. Links: ·      NHS Confederation Link·      Research paper on weather and IA·      REACT Study Link·      Please donate to our podcast appeal·      Sign up to IAUK newsletter Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this powerful episode, personal trainer and father of three daughters (all under the age of 5), Adam Newton shares his journey of being diagnosed with inflammatory arthritis while pursuing extreme endurance goals, including training for a 100-mile ultramarathon. His symptoms began with psoriasis and escalated following a 24-hour charity cycling event. Although quickly referred to rheumatology and diagnosed, Adam initially downplayed the seriousness of the condition, pushing through pain and keeping it mostly to himself.He opens up about the emotional and physical adjustments he’s had to make, from stepping back from sports like football and tennis to managing family life during painful flare-ups. Adam was diagnosed when his second daughter was just a few months old, and he speaks candidly about the crucial support he's received from his wife throughout his journey. He also reflects on how he talks to his daughters about his condition in an age-appropriate way, and how he eventually opened up to friends, helping them understand the reality of living with arthritis. Through trial and error, Adam has found ways to cope, emphasising the power of good nutrition, gentle movement, and a consistent routine. His transparency with personal training clients has helped build stronger relationships and foster empathy.Adam also hosts the podcast Through the Eyes of Adversity, where he speaks with others about how movement supports both physical and mental health through life’s challenges. He encourages anyone facing a new diagnosis to seek support, do their own research, and know they’re not alone.Find Adam on Instagram at @adam_c_newton, and listen to his podcast on YouTube and Spotify. Please do donate to our urgent appeal to keep the podcast going, https://www.justgiving.com/campaign/inflammatoryDo follow the podcast as it is easiest way to get updates on the podcast. Sign up to our newsletter at inflammatoryarthritis.org for more resources.Follow us on Facebook, Instagram, Bluesky and LinkedIn.  Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

In this episode, Debbie and Katy explore the powerful role of volunteering, especially for people living with inflammatory arthritis and chronic conditions, to coincide with volunteer’s week. The hosts share personal stories, practical advice, and inspiration on how giving back, even in small ways, can help you reclaim purpose and build a sense of community. They stress that meaningful volunteering is about using your strengths and passions, not about forced or physically demanding tasks e.g. clearing grave yards! Through anecdotes and humour, they illustrate the many forms volunteering can take, from peer support to admin roles, and emphasize the impact it can have on both the individual and the wider community.They also share that Inflammatory Arthritis UK is looking for volunteers and whether you're an expert in social media, admin, fundraising, grant writers, or would like to join the board of trustees or the expert advisory board, there's a place for you. If you would like to volunteer for IAUK, please do email info@inflammatoryarthritis.org🔑 What You'll Hear in This Episode:How volunteering helped us rediscover confidence and connection after diagnosisWays to get involved; without needing physical activity or prior experienceBehind the scenes of starting a new charity: strategy, structure, and passionThe power of small contributions (yes, even sweeping counts!)How you can join our Trustee Board or Expert Advisory GroupVolunteer opportunities in admin, social media, grant writing, and more📣 Get Involved:We’re actively looking for volunteers to support Inflammatory Arthritis UK. Whether you can give one hour a month or a little more, your skills and lived experience are invaluable.✅ Interested in volunteering, becoming a trustee, or joining our advisory group?📩 Contact us via: inflammatoryarthritis.org💬 Or reach out on: Facebook | Instagram | LinkedIn | BlueSkyFor more information about being a trustee and what it entails please see here.📝 Quote of the Episode:“The best way to find yourself is to lose yourself in the service of others.” – Mahatma Gandhi📬 Stay Connected:Sign up to our newsletter for updates, guest announcements, and more at inflammatoryarthritis.org.🎧 See you next week for another inspiring guest episode!Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

Inflammatory! is making a real difference, helping people feel seen, heard, and supported in their journey with inflammatory arthritis. If you’ve found value in what we do, please consider donating to help us continue creating meaningful content. Every contribution, big or small, makes a huge impact.👉 Donate here: https://www.justgiving.com/campaign/inflammatoryIn this heartfelt and humorous Q&A episode, Debbie and Katy discuss the lighter and often hilarious side of living with Inflammatory Arthritis (IA). From hospital mishaps to dodging duty-free trolleys on long-haul flights, they share real-life stories that bring warmth and authenticity to chronic illness.The episode kicks off with Katy sharing how her hospital appointments are never simple, this time, a burst water pipe added to the chaos. Despite the disruption, she still managed to get her blood test done and even turned it into a teaching moment for her son, explaining why regular tests are so important. Meanwhile, Debbie talks about the charity’s ongoing work, from ensuring the voices of those living with inflammatory arthritis are heard in NHS service improvements, to awaiting clarity on how the NHS’s 10-year plan will involve the charity sector. She also highlights meaningful discussions with researchers focused on making research truly inclusive and accessible at every stage. They then go on to answer questions from listeners: ·      What side effects have you had with medication? ·      Pregnancy, medication and parenting·      What is the most obscure cure you have been told that would cure your IA?·      Do you have a funny story about inflammatory arthritis? ·      How do you support a partner who lives with IA? They end on thoughtful advice to partners supporting loved ones with IA and remind us that laughter and communication are powerful tools for navigating the ups and downs.Disclaimer: The podcast is for informational purposes only and is not intended to replace professional medical advice. We talk about our personal health journeys and the podcast is not intended to provide professional medical advice, diagnosis, or treatment. We are not medical professionals and in no way claim to be medically trained. The podcast does not take responsibility for any losses, damages, or liabilities that may arise from the use of the podcast. The podcast does not assume responsibility for the accuracy of third-party content.For more information, head to https://inflammatoryarthritis.org/ Hosted on Acast. See acast.com/privacy for more information.

Urgent appeal for donations to help keep the podcast running until their planned summer break. Donate here https://www.justgiving.com/campaign/inflammatorySend us your questions for next week’s Q&A session, especially voice notes: https://inflammatoryarthritis.org/contact-us/In this episode of Inflammatory!, Debbie and Katy firstly reflect on the first Inflammatory Arthritis UK virtual community event, where they connected with the IA community and received helpful feedback on future topics. Katy shares touching moments of how the podcast has helped others, including family members who have a better understand life with IA.They then explore the vital role of research in improving care for people with inflammatory arthritis (IA). Katy shares her experiences participating in a range of studies, from surveys and focus groups to serving on research committees. The conversation highlights the importance of Public and Patient Involvement and Engagement (PPIE), showing how those with lived experience are essential in shaping research that truly matters.They discuss being involved in steering groups and helping to design digital health apps, while also reflecting on the real-world challenges of integrating new technology into clinical care, illustrated with a humorous story about handwritten notes on a napkin after a system failure.The episode also explores exciting areas of current research, including genetics, machine learning, and the MAPJAGstudy, which investigates what’s happening inside the joints by analysing biopsy samples from joint injections. Debbie and Katy emphasise how digital innovation and AI could transform diagnosis and treatment, while also urging caution around data privacy and the need for ethical use.A key theme is ensuring research remains inclusive and accessible—including fair compensation that doesn’t impact benefits. Finally, the hosts encourage listeners to find ways to get involved in research, whether through clinical studies, reviewing patient information, or sharing their voices to guide future priorities.Resources: ·       Research page: https://inflammatoryarthritis.org/research/·       Link to Map-JAG Study here·       Tax implications from HMRC“There will be no tax or NIC liability arising on the individual if the sums received do no more than reimburse the individual’s reasonable costs of participating in the trial or research, including costs of travel and subsistence. However, should the sums paid exceed those reasonable expenses then the excess may fall to be chargeable to tax as Miscellaneous Income, potentially giving rise to personal tax liabilities of the individuals which should be notified to the HMRC under Self Assessment”. Hosted on Acast. See acast.com/privacy for more information.