Claim OwnershipBruised But Not Broken: Living with ITP
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The diagnosis of immune thrombocytopenia may leave you wondering – how can I really live my life with ITP? PDSA’s podcast, “Bruised but not Broken: Living with ITP”, brings you empowering stories, lifestyle tips, and answers to the real-life questions the ITP community is asking.
29 Episodes
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In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by PDSA leaders Peter Pruitt and Derek Zimmerman for a behind-the-scenes look at how the organization is run and why strong leadership matters to patients. The conversation explores what a nonprofit board of directors actually does, how PDSA has grown into a trusted advocate for the ITP community, and how lived patient experience helps guide advocacy, research, and long-term impact—offering listeners insight, reassurance, and a deeper understanding of the work happening on their behalf.
This episode dives into one of the most common—and most confusing—questions people with ITP ask: Why do I have it, and could it be inherited? Dr. Michele Lambert, a leading pediatric hematologist and expert in platelet disorders, breaks down the difference between inherited thrombocytopenia and immune-mediated ITP in clear, relatable terms. She explains how genetics, immune system "confusion," family history, and targeted testing all play a role in getting the right diagnosis—and why that matters for choosing the most effective treatment. Whether you're newly diagnosed or have lived with ITP for years, this conversation offers eye-opening insights, practical takeaways, and real hope for more personalized care in the future.
In this episode, Barbara Pruitt sits down with pediatric hematologist Dr. Rachael Grace to take the mystery out of clinical trials for ITP. Dr. Grace explains what clinical trials are, how they differ from standard treatment, and why both research studies and clinical trials play a crucial role in improving care. They discuss when a clinical trial might be a good option; common concerns patients have, what participation actually looks like, and how research has already shaped major advancements in ITP treatment. Whether you're curious about future options, want to help move ITP research forward, or simply want to better understand what your hematologist might be recommending, this episode offers clarity, reassurance, and insight straight from an expert.
In this inspiring episode of Bruised but Not Broken: Living with ITP, meet Wyatt Critchfield, a ninth-grade ITP warrior, and his mom, Brittany, as they share how a love for cars turned into a powerful fundraiser for the Platelet Disorder Support Association. From organizing their first car show and raising $1,000, to spreading awareness in their community and connecting with others living with blood disorders, Wyatt and Brittany open up about the challenges and triumphs of life with ITP. You'll hear Wyatt's perspective on living with weekly treatments, Brittany's pride in seeing her son lead with courage, and their advice for families who want to start their own fundraisers. This heartfelt conversation shows how passion, creativity, and community can turn obstacles into opportunities.
In this inspiring episode of Bruised but Not Broken: Living with ITP, Dr. Kristin Hunt shares her journey from being diagnosed with ITP at just 12 years old to becoming a pediatric immunologist. She reflects on the challenges of growing up with a rare bleeding disorder, the role of PDSA in shaping her outlook, and how her experiences as a patient continue to influence the way she cares for children and families today. Listeners will hear about the turning points that led her to pursue medicine, what red flags patients and parents should watch for, and why community and advocacy matter so much. Whether you're newly diagnosed, a long-time patient, or supporting a loved one, Kristin's story offers both guidance and encouragement you won't want to miss.
In this special episode of Bruised but Not Broken: Living with ITP, we celebrate ITP Awareness Month with PDSA President & CEO Caroline Kruse and Director of Outreach and Community Engagement Melissa Hilsabeck. They share why September is such an important time for the ITP community, from lighting monuments purple around the world to uniting patients and families through events, stories, and support. You'll hear how awareness campaigns began, what's planned globally this year, and simple ways anyone can get involved—from wearing purple to hosting creative fundraisers. This uplifting conversation highlights the power of awareness, community, and connection in turning a rare disease into a recognized cause.
In this episode of Bruised But Not Broken: Living with ITP, host Barbara Pruitt sits down with Dr. Craig Kessler, a leading hematology expert, to discuss how immune thrombocytopenia (ITP) affects patients as they age. From the unique challenges of diagnosing and treating older adults, to managing fatigue, preventing falls, maintaining cognitive health, and staying up to date on vaccines, Dr. Kessler offers practical advice for both patients and caregivers. Whether you've lived with ITP for decades or were diagnosed later in life, this conversation is filled with insights to help you navigate the physical, emotional, and medical realities of aging with ITP.
In this episode of Bruised but Not Broken: Living with ITP, Dr. James Bussel, Professor Emeritus at Cornell and a leading expert in immune thrombocytopenia (ITP), joins host Barbara Pruitt for a timely and thoughtful conversation about vaccines and their relationship to ITP. From breaking down how vaccines can affect platelet counts to addressing concerns about relapses and immune response, Dr. Bussel offers science-backed guidance and reassurance for patients navigating vaccine decisions. Whether you're newly diagnosed or have lived with ITP for decades, this episode is packed with clarity, compassion, and practical advice.
U.S. insurance coverage can be just as challenging as the diagnosis itself. In this episode of Bruised but Not Broken: Living with ITP, we sit down with Becky Burns, Chief Operating Officer of the Bleeding and Clotting Disorders Institute, to unpack the complicated world of U.S. insurance and access to care. Becky shares real-life scenarios, breaks down confusing terms like prior authorizations and copay accumulators, and offers practical advice for navigating financial barriers to treatment. Whether you've struggled with high copays, coverage denials, or just understanding your plan, this episode offers clarity and hope.
What does it mean to grow older with ITP and how do you adapt when your body no longer bounces back like it used to? In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by fellow seniors Lib Elder and Rand Walker for an honest, insightful, and often humorous conversation about aging with immune thrombocytopenia. From treatment changes and brain bleeds to fall risks and advance planning, the trio shares real-life experiences, hard-earned wisdom, and practical advice for navigating ITP later in life. Whether you've lived with ITP for decades or are newly diagnosed in your senior years, this episode will leave you feeling informed, seen, and inspired.
Pregnancy with ITP can feel overwhelming—but it doesn't have to be. In this episode of Bruised but Not Broken: Living with ITP, two leading experts—Dr. Terry Gernsheimer and Dr. Edith Cheng—share what women with ITP need to know before, during, and after pregnancy. From coordinating care between hematologists and obstetricians to understanding delivery options and postpartum concerns, this conversation is packed with reassurance, real-world examples, and actionable guidance. Whether you're planning a pregnancy or already expecting, this episode offers clarity, confidence, and hope.
PDSA Resources:
https://pdsa.org/pregnancy
https://pdsa.org/images/stories/pdf/Women&GirlsWithITP.pdf
If you're parenting a toddler or preschooler with immune thrombocytopenia (ITP), this episode is for you. Pediatric hematologist Dr. Michael Tarantino joins us to share practical advice on keeping young children with low platelets safe without taking away their childhood. From babyproofing tips and daycare questions to navigating sports, tantrums, and emotional support, Dr. Tarantino offers expert insight grounded in compassion and experience. Whether you're new to ITP or deep in the trenches, you'll walk away with strategies, reassurance, and resources to help your family thrive.
Needle sticks are a frustrating reality for people living with ITP—but what if there were ways to make the experience less painful and more successful the first time around? In this episode of Bruised but Not Broken, host Barbara Pruitt speaks with vascular access RN Jeremy Johnson, who shares expert tips on how to make blood draws and IVs easier, from using ultrasound guidance to knowing your best veins. You'll also learn what patients can do before and after a poke to reduce bruising, ease anxiety, and advocate for themselves. Whether you're new to ITP or a veteran of the lab chair, this episode offers practical advice that can change your next needle experience.
Being a teenager isn't easy. And being diagnosed with ITP can make it even more overwhelming. In this episode of Bruised But Not Broken: Living with ITP, Dr. Michael Tarantino, a leading expert in bleeding disorders, shares what families need to know about diagnosing and managing ITP in teens. From early warning signs to navigating sports, treatment options, school support, and the emotional side of living with a chronic condition, Dr. Tarantino offers expert advice with compassion and clarity. Whether you're a teen, a parent, or a caregiver, this conversation is full of important insights, real-world tips, and hope for the journey ahead.
In this inspiring episode of Bruised But Not Broken: Living with ITP, Tracey Parker shares her deeply personal journey from diagnosis to empowerment. After facing multiple treatment challenges and a rollercoaster of platelet counts, Tracey found strength in community, advocacy, and becoming her own best health advocate. Hear how support from friends, persistence in the face of setbacks, and discovering PDSA changed her path—and how she's now giving back through one of the organization's most successful fundraising walks. Whether you're newly diagnosed or years into your ITP journey, Tracey's story is one of resilience, hope, and the power of connection.
In this heartfelt episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt talks with two inspiring guests—Josh Kelly, a teenager currently living with ITP, and Melissa Hilsabeck, who was diagnosed with ITP as a teen and now works with the PDSA. Together, they share their personal journeys through diagnosis, treatment, school, sports, and the emotional ups and downs of managing a rare blood disorder during adolescence. From overcoming challenges to finding community through PDSA and its teen track, their stories are honest, uplifting, and full of practical insight for anyone navigating life with ITP. Whether you're a teen, a parent, or just curious about the real-life impact of ITP, this episode is one you won't want to miss.
Living with ITP comes with unique challenges, from managing unexpected nosebleeds to staying prepared for emergencies. In this episode of Bruised but not Broken: Living with ITP, host and longtime ITP patient Barbara Pruitt shares her personal experiences and practical strategies for handling everyday situations with confidence. In recognition of Bleeding Disorders Awareness Month, she breaks down the must-have items for an ITP emergency kit, explains how to manage and prevent nosebleeds, and offers travel tips to ensure you're always prepared. Whether you're newly diagnosed or have been living with ITP for years, this episode is packed with valuable insights to help you navigate life with a bleeding disorder. Tune in to learn how a few simple preparations can make a big difference in your daily routine.
In this episode of PDSA's podcast, Bruised but not Broken: Living with ITP, Caroline Kruse, President and CEO of the Platelet Disorder Support Association, interviews Pam Gavin, CEO of the National Organization for Rare Disorders (NORD). They discuss the challenges and triumphs of living with rare diseases, focusing on immune thrombocytopenia (ITP). Pam shares her personal connection to the rare disease community and highlights NORD's mission to support patients through advocacy, research, and policy initiatives.
Listeners will gain insights into the importance of patient registries, the impact of the Orphan Drug Act, and the role of patient-focused drug development. The episode also covers the significance of Rare Disease Day, the need for comprehensive care through Centers of Excellence, and the financial assistance programs available for rare disease patients. With empowering stories, practical tips, and a deep dive into the world of rare disease advocacy, this episode is a must-listen for anyone interested in the rare disease community and discovering how they can make a difference in the lives of those affected by rare conditions.
In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt dives into the critical role of advocacy in making immune thrombocytopenia (ITP) a recognized priority in Washington. Joined by PDSA President and CEO Caroline Kruse and Government Relations Consultant Jim Romano, they discuss the ongoing fight for federal funding, the importance of patient voices in policy change, and how you can get involved—whether in person or virtually. Learn how sharing your ITP story can influence lawmakers, push for Centers of Excellence, and secure essential resources for the ITP community. Tune in to discover how you can be part of this powerful movement for change!
In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by PDSA President and CEO Caroline Kruse and Director of Research and Canadian Advocacy Jennifer DiRaimo to share exclusive insights from the American Society of Hematology (ASH) conference. They discuss the latest breakthroughs in ITP research, including promising new treatments, the role of the gut microbiome in autoimmune disease, and the impact of quality-of-life studies on patient care.
Listeners will also get a behind-the-scenes look at PDSA's presence at ASH, from engaging with clinicians at the nonprofit booth to presenting groundbreaking research from the ITP Patient Registry. Plus, hear about the prestigious McMillan Award recipient and why this year's plenary session was a major milestone for the ITP community.
Whether you're an ITP patient, caregiver, or advocate, this episode is packed with valuable information and hope for the future.
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