Claim OwnershipCMT Simplified
Subscribed: 4Played: 7
Subscribe
© 2026 CMT Simplified
Description
Welcome to CMT Simplified, brought to you by the Hereditary Neuropathy Foundation. This podcast delivers bite-sized updates on the latest research and advancements in Charcot-Marie-Tooth disease (CMT). In episodes under 20 minutes, we cut through the jargon to bring you clear, concise insights into breakthroughs, treatments, and scientific discoveries shaping the future of CMT.
Perfect for busy listeners, *CMT Simplified* is your on-the-go resource for understanding complex information in a straightforward and approachable way. Stay informed, empowered, and up-to-date—one short episode at a time!
11 Episodes
Reverse
Send us a text A slow-burning disease like Charcot Marie Tooth can fool even the best trials. Scores swing with sleep and stress, not biology, while tiny changes accumulate out of sight. We set out to replace guesswork with measurement and show how the right biomarkers can compress timelines, cut costs, and turn promising science into treatments that matter. First, we unpack the measurement problem and why functional scales are too noisy for a disease that changes over years. Then we get con...
Send us a text If resilience feels like a buzzword, consider this a reset. We explore a lived-in roadmap shaped by the Charcot-Marie-Tooth community, where change is constant and the goal isn’t to bounce back—it’s to move forward with smarter tools, stronger ties, and a lighter emotional weight. With Lily Sander, the 2025 MDA National Ambassador, and Estela Lugo from the Hereditary Neuropathy Foundation, we trace how connection creates “disabled joy,” a kind of relief that comes from being un...
Send us a text Wading through the Social Security Disability Benefits process feels like navigating a bureaucratic labyrinth—one that becomes even more daunting when you're dealing with Charcot-Marie-Tooth disease. From chronic muscle weakness to mobility challenges, CMT sufferers face enough hurdles without fighting government red tape. This episode cuts through the confusion, offering a specialized roadmap for CMT patients seeking disability benefits. We break down the two distinct pathway...
Send us a text Have you ever wondered how to navigate the complex intersection of your Charcot-Marie-Tooth disease and your professional life? This essential episode delivers a powerful roadmap for workplace success, breaking down the often intimidating process of requesting accommodations into clear, actionable steps. We demystify the concept of "reasonable accommodation" under the Americans with Disabilities Act, explaining not just what it means legally, but how to translate this knowledg...
Send us a text Facing a Charcot-Marie-Tooth diagnosis can feel like being dropped into unknown territory with a flood of questions and uncertainty. Where do you even begin? What steps are truly essential? How do you move from feeling overwhelmed to taking meaningful action? This episode cuts through the noise to deliver a comprehensive roadmap for newly diagnosed individuals and their families. We break down the critical first steps recommended by the Hereditary Neuropathy Foundation, ...
Send us a text Have you ever wondered what's actually involved in correcting CMT-related foot deformities? This episode cuts through medical jargon to deliver a comprehensive guide to foot surgery for people with Charcot-Marie-Tooth disease, combining expert clinical knowledge with invaluable first-person experience. The classic high-arched, inward-turning foot seen in CMT isn't just a cosmetic issue—it creates real functional problems that impact daily living. Walking on the outside edge of...
Send us a text AFOs might just be three letters—but for those living with CMT, they can mean the difference between daily struggle and confident mobility. In this episode, we explore how the right Ankle Foot Orthosis can reduce fatigue, improve stability, and even change the way you walk. From common gait compensations to what makes a good brace great, this conversation is packed with insights that could change your next step—literally. We also highlight two must-have tools, co-written by HNF...
Send us a text This episode explores the rapid advancements in understanding and treating CMT SORD, highlighting community engagement and innovative research, particularly focusing on the potential of the drug Gavorstat. The scientific journey from gene discovery to clinical trial showcases the power of collaboration, emphasizing patient voices in shaping treatment success. • Discussion on what CMT SORD is and its symptoms • Overview of the SORD gene’s role in the disease • Insig...
Send us a text Discover the complexities of Charcot-Marie-Tooth disease (CMT) and transform your understanding of this multifaceted condition. Join us on CMT Simplified as we uncover insights from the Global Registry for Inherited Neuropathies (GRIN) about the physical symptoms like foot drop and balance issues, as well as the emotional and social challenges faced by those living with CMT. We'll explore the emotional hurdles such as depression and anxiety that many grapple with, along with th...
Send us a text This episode dives into HNF's ABCs of CMT Pain Management Guide sharing effective strategies for managing pain associated with Charcot-Marie-Tooth disease (CMT). By exploring topics from dietary changes to the latest research in pain relief, we empower listeners with resources and insights to improve their quality of life. • Understanding neuropathic and musculoskeletal pain • The role of diet in pain management • Anti-inflammatory foods and dietary choices • Exercise as a...
Send us a text Patients are driving the future of Charcot-Marie-Tooth (CMT) research, and you can be part of the change! In this episode of CMT Simplified, we dive into how wearable technology, like BioSensics devices, is empowering patients to participate in clinical trials from the comfort of their homes. Learn how your everyday experiences can provide researchers with the critical data needed to develop better treatments and improve the quality of life for the entire CMT community. Your...
Comments
Download from Google Play
Download from App Store
United States