Living with Parkinson’s | Bryce Perry

Can Parkinson’s cause dry mouth AND drooling at the same time? Could hiccups be connected to Parkinson’s? And what does regular soda have to do with motor symptoms?Welcome to another episode of WHO KNEW?, where we uncover strange Parkinson’s research that makes you wonder what else this disease has been hiding!In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're exploring three surprising discoveries:• Dry mouth and drooling together: Researchers found that 18% of participants experienced both symptoms. How is that even possible?• Hiccups and Parkinson’s: One research review reported hiccups in approximately 20% of people with Parkinson’s compared with 3% of people without it.• Regular caffeinated soda: A large observational study found an association between drinking regular caffeinated soda and more severe Parkinson’s motor symptoms over time. Interestingly, coffee, green tea, and diet caffeinated soda didn't show the same association.Important: These findings do not prove that soda causes Parkinson’s progression or that hiccups indicate Parkinson’s. They're research clues worth exploring.You'll also hear Carmen’s Care Partner Corner, where Carmen shares research involving more than 30,000 care partners across 66 countries.Her discovery? Invisible symptoms such as anxiety, apathy, hallucinations, and changes in thinking or behavior can place an enormous burden on care partners.And don't miss the tease for Part Two, where we'll explore a futuristic sleep technology that could one day help people with Parkinson’s get better rest!Which discovery surprised you most?For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠You’ll find guides, community resources, and practical strategies to help you keep doing life today.🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔴Get information about the Inner Circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔔 Subscribe for weekly motivation and support⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠▶️ Video Podcast Playlist⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🎧 Audio Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠“With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.”⚠️ Important NoteThis is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider.#Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

“I love you with everything I have, but sometimes living beside Parkinson’s is really hard.”Those are words many care partners feel but rarely say out loud.We talk about medication, appointments, symptoms, and helping the person we love. But what about our own fears, exhaustion, frustration, and the feelings we're sometimes afraid to admit?In this special episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I'm stepping aside and handing the microphone to my wife, Carmen, for an honest conversation about what it's really like being a Parkinson’s care partner.Carmen shares the things care partners don't always say:• “I'm scared too.” The worry about what Parkinson’s may bring next.• Always watching: Constantly noticing changes, potential falls, medication timing, and safety concerns.• Knowing when to help: Balancing the desire to protect someone with respecting their independence.• Feeling frustrated: Why loving someone doesn't mean you never get irritated or overwhelmed.• Grieving the future you imagined: When Parkinson’s changes plans, dreams, and expectations.• Feeling helpless: When you desperately want to fix something that love alone cannot fix.• Protecting your relationship: Remembering you're still partners, not just a patient and caregiver.• Taking care of yourself: Why care partners need their own friendships, happiness, rest, and support.And then Carmen talks about one of the hardest feelings to admit:Resentment.Sometimes you resent Parkinson’s. Sometimes you resent the responsibilities. And sometimes you even feel frustrated with the person you love.Having those feelings doesn't mean you've stopped loving them.Carmen also shares something deeply personal. She never knew me before Parkinson’s. But that doesn't mean she hasn't experienced grief over the future we imagined together.Because Parkinson’s doesn't just affect the person diagnosed.It affects the relationship, the household, and the person standing beside them.And Carmen's message to care partners is one I hope everyone hears:“You don't have to be perfect to love someone well. You just have to keep choosing the person again and again.”Carmen-ism of the Episode"Sit down before gravity makes that decision for you." 😂The Message of the Episode"Parkinson’s may live in our house, but it does not get to own the relationship."For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠You’ll find guides, community resources, and practical strategies to help you keep doing life today.🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔴Get information about the Inner Circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔔 Subscribe for weekly motivation and support⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠▶️ Video Podcast Playlist⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🎧 Audio Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠“With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.”⚠️ Important NoteThis is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider.#Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

There are five words that can make my Parkinson’s worse almost instantly: “Bryce, we have to hurry!”Suddenly my hands stop cooperating, my feet get slower, and my brain seems to forget what it was doing.And somehow, the harder I try to move faster, the slower everything gets!In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I explain seven ways being rushed can make everyday life with Parkinson’s more difficult:• Movement becomes harder: Why adding pressure can interfere with movements that already require extra concentration.• Multitasking overload: How rushing while walking, talking, carrying things, or making decisions can increase hesitation and freezing.• Fine motor difficulties: Why buttons, zippers, phones, and credit cards suddenly become impossible when people are waiting.• Speech and thinking slow down: How time pressure can make finding words, answering questions, and making decisions harder.• The emotional toll: Why feeling responsible for making everyone late can create guilt, frustration, and anxiety.• When helping makes things worse: Why repeatedly saying "hurry up" may actually slow someone down further.• Planning ahead: How building extra time into your routine and reducing distractions can make everyday activities easier.And here's something I've learned:Sometimes nobody else is rushing me. I'm rushing myself.We remember how quickly we used to do things, and sometimes we forget to give ourselves the same patience we're asking others to give us.You'll also hear Carmen’s Care Partner Corner, where Carmen explains why helping someone with Parkinson’s sometimes means doing less, saying less, and giving them room to finish what they're doing.Instead of saying “Hurry up!”, try asking:“What do you need right now?”Because sometimes we need help.Sometimes we just need another minute.And those aren't the same thing.For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠You’ll find guides, community resources, and practical strategies to help you keep doing life today.🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔴Get information about the Inner Circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔔 Subscribe for weekly motivation and support⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠▶️ Video Podcast Playlist⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🎧 Audio Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠“With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.”⚠️ Important NoteThis is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider.#Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

Have you ever stood up and suddenly felt like something was wrong, but you couldn't quite explain it?Maybe your vision goes dark. Your legs feel weak. Your brain gets foggy. Or you suddenly need to grab the nearest chair.And here's what surprised me: Parkinson’s dizziness doesn't always feel like dizziness!Sometimes the room doesn't spin at all.In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we explore seven ways dizziness and blood pressure problems can affect everyday life:• The stand-up whoosh: That sudden lightheaded feeling when you rise from a chair.• Weak legs: When your legs suddenly feel unreliable after standing.• Brain fog: Why a temporary drop in blood pressure may make thinking feel unusually difficult.• Vision changes: When your vision becomes blurry, dim, or briefly dark after standing.• Heat and dehydration: Why hot showers, warm weather, and insufficient fluids can make symptoms worse.• After-meal dizziness: Why some people feel weak or faint after eating.• Medication effects: How Parkinson’s medications, blood pressure medications, and other factors can contribute.One possible explanation is orthostatic hypotension, a drop in blood pressure when you stand.But not all dizziness is caused by blood pressure, and recognizing the difference matters.I also share a simple way to describe these episodes to your doctor:Position. Timing. Feeling.Instead of saying, "I got dizzy," explain what you were doing, when it happened, and exactly what you experienced.You'll also hear Carmen’s Care Partner Corner, where Carmen talks about recognizing these moments and why giving someone time to sit and recover can help prevent a fall.Because sometimes the smartest thing you can do when Parkinson’s challenges your balance is stop trying to prove you can beat gravity.For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠You’ll find guides, community resources, and practical strategies to help you keep doing life today.🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔴Get information about the Inner Circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔔 Subscribe for weekly motivation and support⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠▶️ Video Podcast Playlist⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🎧 Audio Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠“With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.”⚠️ Important NoteThis is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider.#Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

One minute you're sweating. The next minute you're freezing. And everyone around you seems perfectly comfortable.Meanwhile, Carmen is asking me to pick a temperature.Believe me, I'd love to. But apparently Parkinson’s has taken control of my body's thermostat!In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're talking about something many people don't realize Parkinson’s can affect: your body's ability to regulate temperature.We explore seven surprising things:• Excessive sweating: Why you might suddenly start sweating even when the room isn't hot.• Uneven sweating: How some parts of your body may sweat too much while others sweat too little.• Heat intolerance: Why warm weather can leave you exhausted, dizzy, or feeling completely drained.• Feeling unusually cold: Why your hands, feet, or entire body may feel freezing when everyone else is comfortable.• Medication-related sweating: How sweating can sometimes be connected to OFF periods or dyskinesia.• Night sweats: Why you might wake up soaked even when your bedroom isn't particularly warm.• When temperature problems become serious: Why severe overheating, dehydration, confusion, or sudden major changes require medical attention.And here's something that surprised me:Sometimes excessive sweating in one part of your body may happen because other areas aren't sweating properly!I also share a simple way to recognize patterns by tracking three things: time, medication cycle, and environment.You'll also hear Carmen’s Care Partner Corner, where Carmen explains why temperature problems can be frustrating for both people.Because apparently my internal thermostat is broken, and Carmen has become the customer service department. 😂The biggest takeaway?You don't have to silently put up with temperature problems just because you have Parkinson’s.Recognizing patterns, making practical adjustments, and talking with your healthcare team can help you manage them.For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠You’ll find guides, community resources, and practical strategies to help you keep doing life today.🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔴Get information about the Inner Circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🔔 Subscribe for weekly motivation and support⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠▶️ Video Podcast Playlist⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠🎧 Audio Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠“With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.”⚠️ Important NoteThis is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider.#Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips