Claim OwnershipThe Incubator: Beyond The Beeps
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Hosted by Leah Jayanetti from parent support organization ICU Baby, Beyond the Beeps pulls back the curtain on the NICU experience, helping parents navigate this new world, understand their baby's journey, and learn about healthcare approaches and medical decision making. Through storytelling and education, we foster hope and empower parents to actively engage with their healthcare team, ultimately improving understanding and communication between families and medical staff.
20 Episodes
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In this episode of Beyond the Beeps, Leah MG Jayanetti discusses the unique challenges faced by families in the NICU during the holiday season. Joined by Alena Costume, a two-time NICU mother, they explore the emotional rollercoaster of having a baby in the NICU, the importance of community support, and strategies for coping with stress. Alena shares her personal experiences, highlighting the significance of parental presence and the impact of healthcare staff on the NICU journey. The convers...
In this episode, Leah Jayanetti speaks with Keira Sorrells, founder of the NICU Parent Network, about her personal journey through the NICU experience with her triplets and the advocacy work she has undertaken to support NICU families. They discuss the importance of family-centered care, the NICU Babies Bill of Rights, and the emotional challenges faced by parents in the NICU. Kira shares her insights on healing through storytelling and the need for self-care among NICU leaders, emphasizing t...
In this episode of Beyond the Beeps, Leah interviews Jennifer Bernardo, a passionate advocate and author of 'Week 26', who shares her journey through the NICU with her twins, Luke and Layla. Jennifer discusses the challenges of having premature babies, the healing power of writing, and the importance of community support. She emphasizes the role of presence in NICU care, the significance of involving siblings, and her advocacy efforts to raise awareness about the NICU experience. The conversa...
In this heartfelt episode of Beyond the Beeps, Leah and Christina discuss the emotional journey of navigating the NICU as a parent. Christina shares her experiences from the moment she went into preterm labor to the discharge day of her son, Caleb. The conversation highlights the importance of building a support system, advocating for your child, and finding resilience during challenging times. Christina emphasizes the need for information and education in the NICU environment, as well as the...
In this week’s episode of Beyond the Beeps, Leah and Lina explore the often-overlooked but critical role of communication in neonatal intensive care. The discussion focuses on how clinicians can bridge the gap between technical expertise and human connection. They reflect on practical strategies for listening actively, explaining medical information clearly, and adjusting communication styles to meet the needs of parents and families in high-stress situations. Drawing on real experiences, th...
In this episode of Beyond the Beeps, siblings of NICU babies share their personal experiences and insights on navigating life with a sibling in the NICU. They discuss the challenges, emotions, and responsibilities they faced, as well as the lessons learned about patience, awareness, and resilience. The conversation emphasizes the importance of support from parents and healthcare providers, and the need for open communication about the realities of having a sibling in the NICU. The siblings al...
In this episode, Leah and Ashley O'Neil discuss the profound experiences of navigating the NICU as both a parent and a medical professional. Ashley shares her journey with her son Colin, who was born prematurely, and the emotional and practical challenges she faced. The conversation explores themes of grief, the balance between professional knowledge and parental instincts, and the importance of communication with medical teams. Ashley also highlights the need for resources to support NICU fa...
In this episode of Beyond the Beeps, Leah discusses the journey of NICU families, focusing on gastroschisis, a condition where a baby's intestines are outside the body at birth. Ruby Bacardi shares her personal experience with her son Oliver, who was born with gastroschisis and spent three months in the NICU. The conversation explores the emotional challenges, medical insights, and the importance of support for families navigating this journey. Dr. Daphna Yasova Barbeau provides medical persp...
Leah and Shakeema Smiley discuss the challenges and triumphs of navigating life with a child in the NICU, particularly focusing on the experience of having a tracheostomy. Shakeema shares her personal journey with her daughter Lori, who was born prematurely and required extensive medical care. The conversation highlights the emotional and practical aspects of caring for a child with special needs, the importance of advocacy, and the power of hope and community support. Support the show As ...
In this episode of Beyond the Beeps, Leah discusses the importance of understanding a baby's senses in the NICU with occupational therapists Emily Hills and Lindsay Hardy. They explore the concept of co-occupation and co-regulation, emphasizing the vital role parents play in their baby's development. The conversation delves into the eight senses, the impact of early birth on sensory development, and practical tips for parents to enhance their baby's NICU experience. The episode highlights the...
Being a NICU parent comes with many challenges, but communicating with your baby’s healthcare team and loved ones doesn’t have to be one of them. In this video, NICU parent Valerie shares her personal journey and offers valuable tips for effective communication with doctors and medical providers. Learn how the right tools and conversations can improve your NICU experience, while also highlighting the importance of self-care, hope, and trust during this difficult time. Whether you’re navigatin...
In this conversation, Leah and Morgan discuss the complexities of being a parent in the NICU, emphasizing the importance of finding one's voice and advocating for their child. Morgan shares her personal journey, highlighting the challenges and triumphs she faced while navigating the NICU environment. The discussion covers themes of power dynamics, the stigma of being labeled a 'difficult parent', the significance of family-centered care, and the necessity of self-care for parents. Ultimately,...
In this conversation, Leah and Parijat Deshpande explore the profound impact of high-risk pregnancies and NICU experiences on parents. Parijat shares her personal journey through a traumatic pregnancy and the lessons learned about intentional living, relationships, and the importance of grieving. They discuss the role of healthcare professionals in supporting NICU families and the need for radical acceptance and mindful presence during such challenging times. The conversation emphasizes the n...
In this episode of Beyond The Beeps, host Leah Jayanetti speaks with Adriane Rodriguez, a mother whose daughter, Viviana, was born with Congenital Pulmonary Airway Malformation (CPAM), a rare lung condition. Adriane shares the emotional journey of discovering Viviana's condition during pregnancy, navigating complex medical decisions, and spending months in and out of hospitals, including time at the Children’s Hospital of Philadelphia. Adriane recounts the difficult decisions they faced, incl...
Annick Duvivier shares her experience in the NICU with her preemie daughter, Thalia, and her journey with pumping and breastfeeding. She discusses the challenges she faced, including the emotional toll of being separated from her baby, the difficulty of pumping and producing milk, and the loneliness she felt. Annick also talks about the importance of kangaroo care and the positive impact it had on both her and her daughter. Despite the hardships, Annick's resilience and determination shine th...
In this conversation, Pascal van Kipnis shares her experience of having triplets in the NICU. She discusses her struggles with infertility and pregnancy, the challenges of a high-risk pregnancy, and the expectations of having preemie babies. Pascal recounts the birth of her triplets and their admission to the NICU. She talks about the separation and recovery process, as well as the difficulties of breastfeeding and feeding challenges. Pascal also shares the setback her son faced with necrotiz...
In this episode of Beyond the Beeps, the conversation explores the experiences of fathers in the NICU and the challenges they face. It highlights the emotional journey of Alex Dominguez, whose daughter Mahalia was born prematurely at 25 weeks and spent six months in the NICU. The conversation touches on the struggles of infertility, the complications during pregnancy, and the difficult decision to deliver the baby early. It also discusses the impact of the COVID-19 pandemic on visitation righ...
Elizabeth Simonton shares her experience of unexpected NICU admission for her full-term baby, Ben. The journey includes pregnancy complications, NICU stay, and the emotional challenges faced by NICU parents. Elizabeth's story highlights the importance of hope, self-care, and community support in the NICU experience. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twi...
In this intimate chat with Leah, Isabella shares her experience of her baby Lily being born prematurely at 27 weeks and being admitted to the NICU. She talks about the initial shock and the unexpected journey of having a baby in the NICU. Isabella shares her daughter Lily's journey in the NICU, from surgery to feeding challenges and extended hospital stays. She emphasizes the importance of trusting your instincts as a parent. Isabella expresses gratitude for the medical staff and the lessons ...
One NICU mother’s story of resilience in the face of her baby’s multiple medical procedures. In this conversation, Leah interviews Katia Herminio, a mother of a former 24-week preemie who spent almost four months in the NICU. They discuss Katia's unexpected preterm birth experience, the procedures and surgeries her son underwent, the challenges of breastfeeding, and the setbacks they faced. Katia shares her first time holding her baby, the power of hope, and the strength and resilience she f...
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