How can the design of a home transform the daily life of a child with disabilities and have a lasting impact throughout their lifetime? How does this transformation affect their family and caregivers? This episode features Marcel Hernandez Development Director of Tucker's House, a nonprofit in Tennessee that customizes homes for disabled children. They focus on creating accessible spaces that cater to each child's needs, considering their future growth and independence. Marcel emphasizes the importance of a holistic and therapy-informed approach, not only making physical adjustments but also alleviating emotional stress for caregivers, acknowledging their critical yet often unnoticed role. He also discusses the "House to Home" video series, which illustrates the profound impact of these home transformations on families. Tune in to hear firsthand how compassionate home designs and builds are breaking barriers and bringing joy to families in need. [00:01 - 04:29] Opening Segment Tucker's House is a Tennessee-based nonprofit that specializes in home modifications for families with children who have disabilities The organization, active since 2009, estimates its impact on approximately 1200 to 1500 individuals, working annually with about 100 to 120 individuals Tucker's House is fully funded through private donations, including grants from foundations, corporate partners, and individual community champions, covering all costs for their core AIM program The AIM program involves a comprehensive process with a program manager, occupational and physical therapists, architects, and construction partners, to create personalized, practical modifications in homes [04:30 - 08:11] Building for a Lifetime: A Lasting Solution for Families and Caregivers Tucker's House focuses on long-term, sustainable home modifications for children with disabilities, considering their growth and evolving needs to provide lifetime solutions The organization's approach includes not just physical modifications but also aims to provide emotional relief and support for caregivers, recognizing their crucial role Their high client satisfaction and attention to detail in modifications underscore their commitment to delivering quality solutions without the need for major re-installations [08:12 - 13:40] Inspiring Stories Behind Accessible Homes Tucker's House not only modifies homes but also assists with ordering and installing durable medical equipment (DME), ensuring a perfect fit for each family's unique needs Their therapy-informed approach goes beyond typical remodeling, prioritizing the family's voice and choice throughout the process for personalized solutions The "House to Home" series offers a behind-the-scenes look at the challenges faced by families with disabilities and how accessible modifications alleviate these struggles This series also highlights the crucial role of caregivers and the physical and emotional toll of caregiving, underscoring the importance of ergonomic home design Tucker's House collaborates with financial partners who are also featured in the series and play a significant role in supporting and facilitating their initiatives [13:41 - 20:48] Navigating the Demand for Accessibility The organization is primarily referral-based, receiving clients through healthcare providers and gaining increased exposure through media and their House to Home series Their service criteria focus mainly on children but are flexible, considering each family's unique situation, including financial constraints and healthcare needs Marcel also talks about similar organizations that serve people of all ages [20:49 - 28:46] Closing Segment Marcel is deeply committed to setting a strong psychological foundation for his children, emphasizing the importance of a stable, nurturing home environment His nonprofit work, including founding Be About Change, reflects his dedication to elevating young people's trajectories, paralleling his role in Tucker's House to support children physically and psychologically Marcel finds inspiration in the resilience and positivity of those facing mental and physical challenges, which is evident in the impactful stories shared in the House to Home series Want to connect with Marcel? Reach out directly through marcel.hernandez@tuckershouse.org or contact 615 953 9572. Visit https://tuckershouse.org/ to learn more about their work and watch Episode 1 of House to Home: Zola's House Transformation on YouTube. Key Quotes: "We really focus on providing that lifetime solution. While some are looking for kind of a day-to-day impact, we really focus on going perhaps just an inch wide, but a mile deep in terms of the impact that we make with each household." - Marcel Hernandez "We do everything to preserve the family's voice and choice through the entire process so that it is really their plan and we're facilitating the realization of that plan." - Marcel Hernandez "I have a belief that the individuals that struggle mentally, physically, or both are, in my estimation, what I would just say closer to God, closer to divinity" - Marcel Hernandez Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters. To learn more, share feedback, or share guest ideas, please visit my website or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
What if we could bridge the gap between accessible housing for the aging population and job creation for marginalized communities? Join us for an inspiring conversation with Kat Kabat, Director of Construction Operations at Hope Renovations, a non-profit organization transforming lives through accessible home renovations and construction training for women and genderqueer individuals. Discover how Hope Renovations is breaking down barriers, building safe living spaces, and creating a more inclusive world, one home and one career at a time. Learn how to support initiatives that address accessibility and job creation together for an equitable future. Tune in and take action! [00:01 - 03:24] Opening Segment Hope Renovations is a non-profit organization and its dual mission is to train women and genderqueer individuals in skilled construction trades and provide aging in place renovations and repairs to homeowners They aim to make simple home modifications to meet the needs of an aging population, considering the strong desire of 95% of Americans to stay in their home They acknowledge the societal failure to adequately prepare for the challenges of an aging population and are committed to making a positive impact in this area [03:25 - 12:33] Designing Safe, Accessible, and Affordable Homes Kat emphasizes the need to make homes suitable for people as they get older and have different physical needs They have Certified Aging in Place Specialists who are trained to assess homes and make them safer for long-term living Their focus is on tub to shower conversions, as the bathroom is one of the most dangerous areas for individuals with mobility issues, and using innovative technologies to create solutions The organization's sliding scale model allows them to provide affordable renovations for individuals with limited expendable income They prioritize inclusivity and provide a sense of security for homeowners, especially for single women who may feel more comfortable with their crews [12:34 - 16:02] Offering Opportunities for Folks of All Abilities Kat talks about how they are providing employment opportunities for underemployed individuals Participants in their training program are paid, enabling them to support their families while fully committing to their education After the program, there are also endless career possibilities because of the big demand in the industry Regardless of abilities or differences, they recognize the potential of individuals and provide a supportive environment where they can thrive [16:03 - 21:23] The Importance of Collaboration in Strengthening Communities The organization is funded primarily through grants, both from the government and private foundations The key to their success has been building connections and finding supportive individuals and organizations in the community Kat also shares what's next for Hope Renovations [21:24 - 27:05] Closing Segment Kat discusses the importance of equal access to opportunities in the construction field They feel honored to be able to create a supportive community that brings joy and fulfillment to both workers and homeowners Want to connect with Kat? Check out Hope Renovations on Instagram and Facebook. Visit their website at hoperenovations.org. Key Quotes: "What a privilege it is for us to be able to be some of the first folks to help them navigate, like one of the most important and scary parts, which is making a home more accessible and the financial burden of that sometimes." - Kat Kabat "It shouldn't take having a handy dad for me to have found my way here. There should be other pathways." - Kat Kabat "The first step is probably taking the temperature of your community and finding those folks who are going to help you make it happen." - Kat Kabat Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters. To learn more, share feedback, or share guest ideas, please visit my website or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Welcome to Accessible Housing Matters! In today's episode, I welcome attorney Stephen Dale. Stephen and I discuss Special Needs Trusts and how they can be beneficial for people with disabilities. Stephen's law firm has helped countless families achieve control over their lives and live more independently through legal options like special needs trusts. As a long-time advocate in the disabled community, Stephen will walk us through how we can navigate these tools and find better solutions for our housing challenges. Listen to find out more about: [00:01 - 07:01] Opening Segment I welcome Stephen Dale to the show The Dale Law Firm Focusing on the quality of life What is a special needs trust? Third-party trust Self-settled trust [07:02 - 21:16] The Special Needs Trust Benefits of having special needs trust Trustees having the power to use the money The difference between revocable living trust and special needs trust The government couldn't take the money upon death How the special needs trust helped in housing accessibility Stephen shares some examples [21:17 - 27:41] The ABLE Act Allows a person of disability to save their own funds without losing government benefits Belongs to the beneficiary, not the trustee How these vehicles are not just for savings Mode of distribution Stephen talks about the big issues for people on SSI around housing Stephen shares how many families they help with special needs trust [27:42 - 29:59] Closing Segment See links below to know more about Stephen Dale Final words Tweetable Quote/s: "The word 'simple' and 'disability' are two words that don't go together. The ABLE Act and the Special Needs Trust are neither good nor evil...they are just tools." - Stephen Dale You can connect with Stephen Dale through YouTube, or you can visit www.DaleLawFirm.com and www.SpecialNeedsAlliance.org. Check out his videos about Special Needs Trust, Prop 19, and much more on www.AchievingIndependence.com. To learn more, share feedback, or share guest ideas, please visit our website, or contact us on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind, and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Welcome to Accessible Housing Matters! On today's episode, I welcome Steve Brown to the show. Steve is a historian, professor at the Center of Disability Studies, and the author of numerous books and articles about disability rights. Steve will share what disability culture is and how it relates to accessible housing in general. At the end of the day, the issue of providing accessible housing in our communities is clearly related to the way society manages its relationship with people with disabilities in general. Listen to find out more about: [00:01 - 06:40] Opening Segment I welcome Steve to the show What is disability culture? People with disabilities infusing experiences into the creation of culture Disability culture and accessible housing The lack of laws that require homes to be accessible [06:42 - 16:02] Disability Rights and other Cultural Issues Steve talks about how disability is still an issue since the 80s Being forced to settle for less Access issues leading to more radical behaviors The issue of housing at large [16:03 - 24:44] Accessible Housing is An Ongoing Fight Steve shares how we should consider housing issues What to do about the anxiety around housing? Having a network of support systems [24:45 - 28:43] Closing Segment What Steve is working on now A book about the disability culture Final words Tweetable Quote/s: "People with disabilities have been discounted and devalued forever...but, society as a whole doesn't see that as an issue." - Steve Brown Resources Mentioned: Eleanor Smith, Visitability Expert What Can A Body Do? By Sarah Hendren At Home by Bill Bryson You can connect with Steve by visiting www.instituteondisabilityculture.org To learn more, share feedback, or share guest ideas, please visit our website, or contact us on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind, and get your feedback about the show. Contact me directly at Stephen@AccessibleHousingMatters.com to share your thoughts or arrange a call.
Why is early and effective planning crucial for long-term home safety and independence? In this episode, Stephen interviews Janet Engel - an occupational therapist, certified aging-in-place specialist, and an executive certificate in home modification holder - to share her expertise and help people understand the importance of making their living space more accessible and safer for them to navigate. She explains how universal design features can help make life easier and stresses the importance of automation systems for those who don't do well with technology. Stephen and Janet discuss the challenges of aging in place and how to overcome them while emphasizing the importance of proper planning so people can live safely and independently at home for longer. Tune in for helpful tips on creating a safe space for aging in place! [00:01 - 09:53] Opening Segment • Less than 5% of the housing stock in the US has features that would make it universally designed • How Janet helps people live safely in their homes and teaches about this • Simple modifications to increase safety and independence The importance of automation systems [09:54 - 19:04] How Technology Can Help Women Age in Place Safely and Comfortably • Women are more at risk of being victims of criminal acts, so security in the home is important • How you can use Alexa to tie into home features like lighting and security systems • Arthritis is the number one disability that Americans have Impacting mobility and making everyday tasks difficult [19:05 - 28:06] Debunking Misconceptions & Understanding the Benefits of Aging in Place • Universal design features can make a home more functional • Better design for primary bathrooms should include counter space and storage to reduce fall risk • Accessible design is not ugly or institutional-looking [28:07 - 34:23] Closing Segment • You can beautifully design wheelchair ramps with safety features • What you need to create the best modifications for people with disabilities/progressive conditions/traumatic events Want to connect with Janet? Follow her on LinkedIn. Visit Home Designs for Life to encompass all stages of life and abilities! Key Quotes: "There needs to be a happy medium where people with unlimited funds and people with limited funds can change their environment, not just their bathroom." - Janet Engel "Ramps are one of the accessible features that is most often done incorrectly." - Janet Engel Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Why is it crucial to make homes more accessible for everyone? Today, Aaron Murphy, the founder of ForeverHOME, discusses how to create a safe and comfortable space for aging in place. Learn what universal design is and why it is vital to creating accessible homes for everyone. Hear how Aaron has been helping people age in place through his program and how to help those with limited financial resources access quality care. Discover what it's like to be part of the sandwich generation and how Aaron's own experience drives him to help others access the best care possible. Tune in for an inspiring conversation about creating homes that work for everyone! Aaron is a passionate design professional, consultant, and advocate for Aging-In-Place in your own community. He is a licensed architect, a "Certified Aging In Place Specialist" through NAHB, and an engaging and entertaining public speaker. [00:01 - 09:05] Opening Segment • Aaron's background as a licensed architect with experience in aging in place • Aaron introduces ForeverHOME How to create environments where people can live in their homes for their whole lives • How to disrupt the spec building industry and make existing housing stock more accessible [09:06 - 17:39] Advocating for Aging in Place • How people are working together to help people stay in their homes 90% of people prefer to age in place • Aging in place does not have to cost more if planned ahead The discussion around aging has become more mainstream [17:40 - 26:28] Understanding the Invisible Housing Crisis • How architectural coaching can help business owners and families prepare for aging in place A universal design that works better for everyone • The importance of discussing solutions for people with different types of accessibility concerns • ForeverHOME coaching program to gain access to utilizing the stock plans [26:29 - 30:16] Closing Segment • Anything is solvable with a checkbook, but it's worth considering if it's worth it • The cost of moving is 20% of the value of your home • Aaron's insights on the invisible housing crisis coming on Want to connect with Aaron? Follow him on LinkedIn. Head to ForeverHOME to live where you love and thrive where you live! Key Quote: "Housing can be the hub of your happiness, but it also needs to be empowering for every phase of life." - Aaron Murphy Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
How do you envision a future where every community prioritizes accessibility and inclusivity in their housing options? Join us as we explore the inspiring story of Michael Donnelly and Garrett Mayersohn, two people working together to provide accessible housing for people with disabilities and seniors. They discuss their plan to market barrier-free housing as well as the Certified Aging in Place (CAP), which helps people understand how to design for accessibility in the home. They also touch on solutions that can help disabled people live more independently and have better access to resources in their community. Tune in to explore the importance of building communities that are accessible for everyone! As the Builder and Retrofitter for Donnelly Construction and Barrier Free Contractors, Mike Donnelly focuses on creating Universal Design/Barrier Free/Aging-in-Place homes, specifically to provide accessibility and independence for persons with disabilities, the aging, and veterans in need. Garrett Mayersohn, born with cerebral palsy, brings valuable first-hand experience of living with a disability. He is passionate about advocating for and helping Barrier Free Contractors build and retrofit as many barrier-free houses as possible. [00:01 - 08:24] Opening Segment • How Mika and Garrett are changing lives through accessible housing Working in the housing space to help people with disabilities and seniors have a better life • How Mike found out nobody was building accessible housing or retrofitting existing homes He changed people's lives by building accessible, barrier-free homes [08:25 - 16:25] Barrier-Free Housing and Help People Live Better Lives • Mike is teaching Garrett his methods and helping him market barrier-free housing Garrett is trying to persuade contractors that it is the right thing to do • Pushback from contractors is that they don't want to spend money • Mike has developed a nonprofit, Liberty Access Foundation, to help people in need [16:26 - 24:03] Making Homes Accessible for Everyone • The need for policy change and education in aging communities • Realizing the importance of money and how it can change one's life • Struggles faced by people with disabilities in finding housing due to laws in the Fair Housing Act • The expensive nature of retrofitting existing homes [24:04 - 30:35] Closing Segment • The need for education to help society look at housing differently • Thinking about aging when building housing and communities • Making sure communities are accessible as individual houses Connect with Mike on YouTube Channel for Barrier-Free Contractors! Connect with Garrett on LinkedIn! Key Quotes: "Everybody should know that they should build a house for a possible problem down the road, and yet it looks just the same, and it looks beautiful." - Michael Donnelly "When I see a person's life changed, your life changes instantly." - Michael Donnelly "Find a way to help if possible, or just to spread the word. Whatever you can do to help a person have a better life pays its." - Michael Donnelly "Accessibility is essential, viable, and profit can be made from it. There it is a good thing for people to be barrier-free and universally designed, and it's just good for everyone." - Garrett Mayersohn Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
How can you make housing more inclusive and accommodating for people with disabilities? This episode explores Ari Aufgang's journey into creating supportive and inclusionary housing, his challenges, and the lessons he has learned along the way. He covers topics such as accessibility features for people with disabilities, how to manage public perception of inclusionary housing, and how to choose economical yet attractive elements when designing a building. Join us as we dive into understanding the needs of various populations and creating community within their designs! Ariel joined his firm at 18 while still a student at Rensselaer Polytechnic Institute. As a close, personal consultant to Aufgang clients, Ariel provides a full range of services, including land use consultation, peer review, design services, planning, and construction administration. [00:01 - 08:17] Opening Segment • Designing inclusive and supportive housing in New York City A design firm focused on architectural design, in-house engineering, and sustainability • 5-10% of units are adapted before opening for wheelchair accessibility • Preference is given to disabled people for accessible units [08:18 - 15:26] Exploring the Needs of Different Populations • How working with nonprofit developers has educated for-profit developers Almost half of the clients are not-for-profit developers, bringing people with special needs • Learning from both market-rate rental and supportive/low-income rental • Unique design considerations for luxury housing in New York City [15:27 - 22:23] Overcoming Challenges in Inclusionary Housing • How Ari learned to choose economical yet functional and attractive elements for low-income housing • The challenges of inclusionary housing in NYC Cultural issues and public perception • How diverse community within the building serves everybody [22:24 - 27:40] Understanding the Needs of Residents • Ari's experience in residential high-rise construction • The importance of understanding the needs of potential residents • Ari's mother encouraged him to get a title, and he became an architect. Why housing has always been important to Ari [27:41 - 31:40] Closing Segment • Big firms are now getting into housing, which was not seen before • Interacting with potential residents is essential to understand their needs Key Quotes: "Anytime we work with a particular population, one of the greatest parts of the process is learning the needs because it's never what you think it might be." - Ariel Aufgang "You never know what people need. We have guidelines you could follow, which are great, but they are just the average. You never know what the average is." - Ariel Aufgang Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Are you looking for a game-changer in healthcare and housing support? In this episode, Jacey Cooper – the California State Medicaid Director – talks about the changes being made to Medicaid in California to provide a broader range of services related to housing and accessibility. From providing community supports such as medically supportive housing and home modifications to recuperative care and rental assistance, she explains how these services are designed to help those in need remain safely housed. Hear how the CalAim initiative has successfully changed the trajectory of people's lives and how it can be cost-effective for states to advocate for similar initiatives. Tune in now! Ms. Cooper is responsible for the overall leadership of Benefits, Eligibility, Delivery Systems, Financing, Behavioral Health, Quality, Population Health, and Legislative and Governmental Affairs. As State Medicaid Director, Ms. Cooper represents California's Medicaid program (Medi-Cal) with federal partners at the Centers for Medicare & Medicaid Services. [00:01 - 07:39] Opening Segment • How Medicaid in California is changing regarding services being offered to consumers Housing, medically supportive services, home modifications, and social needs • How to support individuals experiencing homelessness or whose homes are not meeting their needs Recuperative care, short-term post-hospitalization housing, and enhanced care management [07:40 - 14:42] How Enhanced Care Management Can Help Those Experiencing Homelessness • Housing bundle, sustaining services, and recuperative care • The short-term post-hospitalization housing • Programs in the community or home for life skills, budgeting, cooking, cleaning, interpersonal relationships • Coordination across several people is needed for enhanced care coordination [14:43 - 21:56] California's Enhanced Care Coordination Program • Asking managed care plans to pay for something they know little about has been a monumental task • The role of counties, public hospital systems, safety net providers, and community-based organizations • Biggest challenge so far is the admin burden of different authorization forms and processes How is the team recognizing this quickly and working to streamline it? [21:57 - 29:53] Closing Segment • California's CalAim program aims to improve healthcare access and lower costs • The goal is to provide full-blown benefits, not just in lieu of services • Why Medicaid has a role to play in providing non-traditional supports Head to California Health Care Foundation and get the health care you need! Key Quotes: "We want people to be able to live in the community, live in their home, or an assisted living environment that allows them to receive the medical services that they need." - Jacey Cooper "We're trying to build a true continuum of care and services and supports for someone experiencing homelessness to be able to heal and improve their health outcomes ultimately." - Jacey Cooper Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Remembering Bill Pelter Last month, our community lost one of our most beloved members. Bill Pelter was a life-long advocate for the civil rights of people with disabilities in the San Francisco Bay Area. He was wise, passionate, and tireless in his advocacy. He was also my friend. In recent years, he frequently spoke about how an aging society meant that many family members are "aging out" of their ability to care for loved ones who rely on their support and whom they have supported their whole lives. I had the immense privilege of interviewing Bill for this podcast in 2021. It was a great discussion, and I wanted to share it with you again. Please enjoy the conversation, and please consider Bill's wise words… [00:01 - 05:49] Opening Segment Bill shares how he became a disability advocate The Story of the Two Bills Something magical at the Ability Now Bay Area Why are we living in a fantastic moment? [05:50 - 14:54] Advances in Assistive Technology Four significant numbers that matter How technology is leveling the playing field for all How the senior community is affecting technology development The eye-blink control and eye-gaze readers [14:55 - 29:29] Our Aging Society Why the general population has low expectations of people with disabilities How an aging society is considered a transformational change in society Why a master plan for accessible housing is needed in the Ability Now Bay area [29:30 - 34:01] Closing Segment The State's plan to provide care services All Hands on Deck: How You Can Help in Aging Initiatives Resources Mentioned: AARP Report: Home Alone Revisited Key Quotes: "If you desire to learn, we will work with you. We're going to help you; we're going to be part of your learning process to accomplish what you want to accomplish in your life." - Bill Pelter "The biggest issue that people with disabilities face with the general population is low expectations." - Bill Pelter Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
How does providing affordable, independent housing through Housing Unlimited improve the quality of life for adults in mental health recovery? In this episode, our guest is Abe Schuchman, CEO of Housing Unlimited, a Maryland-based nonprofit that provides housing services to individuals with mental health challenges. Abe breaks down their unique shared housing model and focuses on the importance of natural support in shared living environments. He touches on the benefits of portable vouchers and stresses why focusing on people's strengths rather than weaknesses is vital. Join us in this insightful conversation on the importance of accessible housing and the impact of shared living models in providing support and community. Abe Schuchman has served as Housing Unlimited's Executive Director (now CEO) (HUI) since Housing Unlimited began operations in December 1994. HUI purchased its first home in 1995 and is now a supported living housing nonprofit organization that provides permanent, safe, affordable, and independent housing to more than 230 low-income adults in mental health recovery. Mr. Schuchman, working closely with Housing Unlimited's strong and active Board of Directors and staff, has coordinated all of Housing Unlimited's affordable housing acquisition and management operations to date. [00:01 - 07:49] Opening Segment • Abe introduces Housing Unlimited Providing housing services to individuals with mental health challenges Promoting community integration and independence through a shared housing model • A nonprofit housing model focuses on traditional lease elements [07:50 - 15:51]Collaboration with Support Services for Tenants • How Housing Unlimited collaborates with other nonprofits for support services • How to provide natural support and tenant empowerment for shared living environments • Portable vouchers provide tenants with the opportunity to live independently [15:52 - 23:34] Live Independent Lives • What the tenant empowerment program includes Extra measure property management service and paid tenant internships • Importance of treating everyone as people first and focusing on their strengths • Meaningful representation on the staff of former tenants and leaders in mental health recovery [23:25 - 27:59] Closing Segment • How to create a supportive and empowering living environment Connect with Abe on LinkedIn, or visit Housing Unlimited, empowering people in mental health recovery to live independently! Key Quotes: "The most important lesson that I learned early on and has been talked to me in different ways is the importance of treating everyone as people first and focusing on their strengths rather than weaknesses." - Abe Schuchman Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
People and families thrive best when they have a place to call home and are fully included in the community. In this episode, Chris Canna dives deep into the challenges faced when providing accessible, safe housing for people with disabilities such as staffing needs and the cost of housing. He touches on CIL's work in Massachusetts & Connecticut and discusses how this is leading the way in providing accessible housing for people with disabilities, and their families and the importance of funding services. Let's dig into it! Chris Canna is the Vice President of Real Estate Development - an integral part of the team responsible for sourcing relevant projects for development and managing the department. He hunts for suitable projects and subsequently oversees development from start to finish. A member of several professional organizations dedicated to urban planning, Chris networks with his contemporaries around the country and applies his connections and expertise in his daily work at CIL. Key Highlights: [00:01 - 06:06] Opening Segment • Chris introduces the Corporation for Independent Living Working with service providers to develop housing for people with disabilities • How to serve people with intellectual and developmental disabilities [06:07 - 12:03] A Look at Inclusive Housing and Technology • Why housing is a major problem in the metro Boston area • The importance of focusing on the community resident model • How State laws protect against nimbyism in Connecticut and Massachusetts [12:04 - 17:58] The Corporation for Independent Living • Pursuing a national approach to housing development • Variation from state to state in terms of land, use controls, and Medicaid administration • How to leverage accessible housing with provider organizations and state officials [17:59 - 27:00] Closing Segment • Why Massachusetts is a role model for providing accessible housing • The challenges faced by the industry • How remote support services are being used to mitigate staffing problems Want to connect with Chris? Head to CIL, the connection of community! Resources Mentioned: Community Matters: CIL Celebrates 40 Years Key Quotes: "Housing is such a huge part of living a fulfilling, healthy, and happy life." - Chris Canna Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Are you building and remodeling to better meet the needs of everyone at every life stage? In this episode, Richard Duncan shares insights into how the R. L. Mace Universal Design Institute works to improve the built environment for those with disabilities. He touches on the efforts to promote universal design in the housing sector as well as potential funders who specialize in forward-thinking mechanisms to make this project viable. Let's dive into how home technology is changing the way people interact with their homes! Richard Duncan is the Executive Director of the RL Mace Universal Design Institute. Mr. Duncan has spent over 35 years in the field of architectural and product accessibility and universal design in residential, public, and transportation environments. He has extensive experience in the design, costs, materials, and products in residential and non-residential settings. His work includes the issues of affordable housing and home and repair financing and transportation accessibility as well as community design for constituencies that include people with disabilities and older households. Key Highlights: [00:01 - 06:31] Opening Segment Richard introduces the R. L Mace Universal Design Institute Improving the way the built environment works and supports people in society Louis Tenenbaum's work on using 401ks to help remodel homes for accessibility [06:32 - 12:09] Tap Resources to Renovate Your Home and Age Independently How renovating a home can be challenging and costly Low-income individuals may be able to access resources to help with renovations PACE programs are available in many states to help seniors stay in their homes [12:10 - 17:40] Promoting Universal Design Universal design is not yet embraced by the marketplace There are occasional attempts to create a national registry of experts in universal design Challenges in promoting universal design Lack of advertising budgets and resistance to the reality of aging [17:41 - 23:31] Exploring the Regulatory Environment for Universal Housing Builders of age-targeted/restricted housing finally got the message to design more accommodatingly Government money usually comes with special design considerations How the Fair Housing Act sets a minimum standard for accessibility in private-sector projects [23:32 - 30:25] Closing Segment The impact of technology's universal design How Smart Home technology is changing the way people interact with their home Want to connect with Richard? Head to R.L. Mace Universal Design Institute & Better Living Design. Key Quotes: "We work really in the area of built environment and products that work better for the wide range of the human condition for everybody in society." - Richard Duncan "It's not going to work if the universal housing you're trying to promote that we know works for everybody looks so radically different from all the other houses in the neighborhood." - Richard Duncan Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Happy New Year! This is the last in my series of "Best of" episodes I wanted to share with you a 2nd time during this holiday season. This past September, I met three powerful women who took on the recalcitrant bureaucrats in New York State and are changing their worlds and the future for their kids. It is an incredible story, and I'm delighted to share it with you again. I hope you have enjoyed these replays over the past few weeks. Next week, I'll be back with a brand new interview! Smokey Hollow was conceived by a parent who wanted to expand residential choices for her adult son who needs 24/7 support. In New York state, the group home model has years-long wait lists, and the individual and family have little choice in where and with whom the individual can live. That leaves a gaping hole in services for a vulnerable population with few viable options available to them. Created by Trish Albanese in collaboration with her son and other adults with intellectual/developmental disabilities (I/DD), Smokey Hollow will be a shared living community that meets the needs and wants of its residents. Prospective Smokey Hollow residents are the "inclusion generation". They have grown up going to school and participating in activities with their typical peers. Now they want the same rights as their peers when it comes to their residential needs. Located in the Syracuse, NY area, Smokey Hollow will provide the flexibility to share staff with other residents when appropriate, and to lead lives of dignity and choice, encompassing friends, activities, work, and volunteer goals. Key Highlights: [00:01 - 08:29] Opening Segment • Trish introduces Smokey Hollow An organization focused on developing more accessible housing in New York The organization has been working to change state laws to allow for more accessible housing • How Smokey Hollow has developed a model of accessible housing that others can replicate [08:30 - 16:28] Smokey Hollow: A Community for People with Disabilities • Where the idea of creating Smokey Hollow comes from • The importance of having legislation in place to make the community permanent • Advocates should focus on their dream and what they believe is best for their loved ones [16:29 - 24:19] Moms Moving Mountains • Why Smokey Hollow feels more respected than it did with the prior administration • When Trish, Liz, and Marilyn believe the Smokey Hollow community will be opened They disclose where their sons are living now [24:20 - 31:36] Closing Segment • The New York state needs to take its accountability to those with disabilities further to fund accessible housing solutions • There is a need for philanthropic and foundation support for accessible housing initiatives Want to connect with Smokey Hollow? Visit his website, and follow them on Facebook. Key Quotes: "We go to the core things that are important to our loved ones which is safety." - Trish Albanese "No one gets to defying what setting is appropriate for people, people get to define it for themselves." - Trish Albanese Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Happy Holidays! This is the 2nd of three of my most popular interviews from 2022, that I am sharing with you this holiday season. Back in March, I had the pleasure of interviewing Rosemarie Rossetti about her experience building her dream home…and developing a network of resources and accessible design standards in the process. It was a wonderful conversation, and I hope you enjoy hearing our discussion…especially if you missed it when it first came out. Please enjoy…and stay tuned for new guests and interviews next month! Rosemarie Rossetti, Ph.D. is a powerful, internationally recognized expert on accessible and universal design. She speaks to and consults with design and building professionals who want to design homes and workplaces that are more accessible, safe, and inclusive. She is the President of Rossetti Enterprises Inc. which she founded in 1997. Rossetti and her husband designed, built, and live in the Universal Design Living Laboratory, the national demonstration home, and garden. This is the highest-rated universal design home in North America earning three national certifications. Rossetti is the author of the Universal Design Toolkit. As a foremost expert on universal and accessible design, she shares her knowledge and experience through her book, feature articles in national publications, in-person presentations, webinars, radio/TV interviews, and podcasts. Rossetti is an inspiring entrepreneur who is rethinking design and building by spearheading discussions and experiments around re-imagined living and working spaces. [00:01 - 04:21] Opening Segment The Universal Design Living Laboratory How Rosemarie made this bigger than her own home Rosemarie's Grand Development [04:22 - 13:16] What Makes a Home Accessible Making the Universal Design Living Laboratory a national demonstration home Home accessibility and visibility 32 Months of Construction: The 10-Year Journey of Rosemarie's Dream home [13:17 - 25:04] Dream Home turned National Demonstration Site Rosemarie gives us a quick tour of their house Bringing impact to the disability and development communities Lessons and Changes from Rosemarie [25:05 - 30:18] Closing Segment Grab your own copy of The Universal Design Toolkit here You can connect with Rosemarie through rosemarie@rosemariespeaks.com, Universal Design Living Laboratory, Rosemarie's TEDx Talk, and Rosemarie's website! Key Quotes: "You do need that team to develop your accessible housing. You can't do it independently." - Rosemarie Rossetti Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Hi Everyone. Happy Holidays! It has been a wonderful year of great interviews and terrific learning here on the podcast. I thought it would be great to revisit a few of my most popular interviews from 2022. First up, my most popular show ever: Back in mid-January, I interviewed Don Shirley and Chris Cooley about SafeinHome. SafeinHome has been a "life changer" for Chris, and in this conversation, we learn all about his experience using the service. Enjoy! SafeinHome President Don Shirley brings more than thirty-five years of innovative healthcare and technology experience to the company and industry. Don has been instrumental in such endeavors as bringing home-dialysis therapies to patients seeking self-directed lifestyles, to being one of the pioneers in web-based purchasing for the healthcare industry. With a focus on safety, independence, and self-determination, Don has overseen all development and marketing activity for the company, expanding SafeinHome's service offering to eleven states and growing! Chris Cooley is legally blind and deaf and lives in Portsmouth, Ohio. He is an expert on service dogs and service dog awareness. Chris is also passionate about remote support technologies and the role they play in helping people with disabilities to live more independent lives. He is on the board of the Ohio tech ambassadors program. His role is to help spread awareness about technology and how it can help us live independently. His dog Larkin is a 4year old golden retriever. Key Highlights: [00:01 - 07:31] Opening Segment Don shares about SafeinHome Remote support for people with disabilities What are direct support and services? The human part of SafeinHome [07:31 - 21:40] A Story of Better Independent Living Chris shares his experience with SafeinHome SafeinHome Services Affordable, one person at a time, and available in other states The goal is to help the individual become more independent and self-sufficient [21:41 - 29:01] Closing Segment This is not a surveillance or an alarm company Providing service and support to one person at a time Check out SafeinHome, and their YouTube Channel to learn more about how remote supports work! Key Quotes: "We are here truly to provide service and support. And that service and support is defined person by person." - Don Shirley "Not everyone is the same, and not everyone needs the same service. You get to choose." - Chris Cooley Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Are you looking to live safely and independently at home? In this episode, Maria Zamora delves into PACE programs and how it provides access to all-inclusive care for the elderly. She breaks down how PACE helps participants retain their independence, live in their own homes, and decrease their reliance on institutional care. Maria points out the challenges these programs face and explains why they offer flexibility to address individual needs. Let's dig into it! Maria Zamora became CEO of the Center for Elders' Independence in March 2021, bringing over 24 years of experience in the healthcare and insurance industries. She has held executive management positions in for-profit and not-for-profit organizations and has an extensive background in PACE (Program of All-inclusive Care for the Elderly). Key Highlights: [00:01 - 08:05] Opening Segment Introducing The Center for Elders Independence (CEI) A comprehensive holistic approach to caring for vulnerable seniors Participants in PACE receive medical care, rehabilitation services, socialization, and home care The PACE model and how it helps seniors with many medical needs [08:06 - 15:59] Helping Seniors to "Age in Place" PACE organizations serve a majority of seniors who are dual medical and Medicare eligible How marketing and awareness of the PACE model are challenging The stringent requirements from CMS around how the program can be marketed Why participants are generally satisfied with PACE services [16:00 - 23:41] PACE Helps Participants Maintain Independence A team-based care model that helps participants stay in their homes and avoid institutionalization Challenges that PACE programs face Regulations that can be a barrier to enrollment The workforce shortages experienced by healthcare providers [23:42 - 30:22] Closing Segment Why PACE is so important People blossom as they no longer feel isolated and alone Want to connect with Maria? Head to Center for Elders Independence, healthcare, and services that keep you living at home! Resources Mentioned: National PACE Association California PACE Association Proposed Federal Legislation to improve PACE Programs Key Quotes: "It's not just about providing someone in the home, it's a beautiful combination of what works best for people." - Maria Zamora Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Have you ever wondered what you need to create inclusive, innovative & integrated accessible housing? In this episode, Paul Linet introduces 3i HoME and talks about their upcoming affordable and accessible housing project. He stresses how there's a dearth of accessible housing that meets the needs of people with mobility impairments and other disabilities. Paul digs deep into the challenges that are involved in creating accessible housing, and how you can help make this issue a priority. Let's dive in! Following decades of practice as an international trade attorney, in 2019 Paul Linet founded 3i Housing of Maine ("3i HoME") a 501c3 non-profit at the intersection of health care and stable affordable supportive housing for people with disabilities. 3i HoME is developing a universally designed, totally accessible apartment complex centered around the 3i's: Independent living through Innovative technology in an Integrated home and community-based setting with person-centered, coordinated services. Key Highlights: [00:01 - 04:45] Opening Segment How Paul ended up creating 3i Housing of Maine Building affordable and accessible housing in Maine Independent living through Innovative technology in an Integrated home and community Work with the local community members to ensure a project is sensitive to their needs and interests [04:46 - 09:51] Innovation, Independence, and Integration The development of a community for people with physical disabilities How 3i is working with a nationwide affordable housing organization to make it accessible One of the principles of the development is that it is no age restriction and that people can age in place Individual units will have technology solutions to address specific needs [09:52 - 14:58] Creating a New Paradigm in Accessible Housing How Paul installed a lift system to make it easier for her wife to move around the apartment What inclusive design means Integrating a service coordination function so that people have more options and less burden How the community is accessible to social environments [14:59 - 20:07] Building a Community for All The need for accessible and affordable housing, and how this is a worldwide issue Are there enough accessible housing projects going on for people with disabilities? There is a dearth of accessible housing that will meet the needs of people with disabilities [20:08 - 27:52] Closing Segment How accessible housing can help to break down barriers between different communities It is important to help people with disabilities live in the community and with their families Want to connect with Paul? Head to 3i Home, independent, innovative & integrated supportive housing! Key Quotes: "Our effort is now to really weave together some of the social determinants of health so that we can demonstrate that a better healthcare outcome will occur for our residents who are folks with physical disabilities." - Paul Linet "Technology is one of the ways that can be braided together to enable people to exercise their right to live under circumstances that they choose" - Paul Linet Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Are you looking for ways to create an accessible space to live in? In this episode, Julie Sawchuk digs into how to identify any potential accessibility issues in a building, what can be done to make the building more accessible, and how much money should be budgeted for accessibility. She also describes better practices that would be more comfortable and safe for people with disabilities. Tune in and discover how to create an accessible home for you, your family, and your future! Julie Sawchuk is a best-selling author, accessibility strategist, and educator at Sawchuk Accessible Solutions. After sustaining a spinal cord injury in 2015, Julie turned from teaching high school science to educating everyone that accessibility matters. Julie has completed accessibility ratings for commercial and institutional buildings all across Ontario Canada, but more importantly, she has helped people see that achieving a meaningful level of accessibility benefits everyone. Key Highlights: [00:01 - 06:47] Opening Segment • Julie Sawchuck shares her background and work Her journey as an accessibility strategist She experienced first-hand the challenges of living with a disability • How to help people build accessible homes [06:48 - 13:15] Giving People Independence • How thinking about the future can save money b Implementing universal design and accessibility • Julie's insights about ramps How to improve access for people with disabilities [13:16 - 20:02] Accessibility Equals Energy • Why accessibility equals energy Check out Building Better Bathrooms • Working with a professional to help you implement these strategies in your everyday life • Realizing how important it is to have accessible housing [20:03 - 26:47] Tips for Making Spaces More Accessible • Julie shares her experiences as a person with a lived experience of accessibility issues How that has helped her become an expert in the field • The importance of reaching out to your customers to get feedback on how accessible their spaces are People with accessibility concerns should reach out to experts in the field to make informed decisions • Make sure to connect with other advocates for accessible spaces [26:48 - 29:12] Closing Segment • How to improve energy efficiency in a bathroom Want to connect with Julie? Follow her on Instagram. Visit her website to move forward with accessibility! Key Quotes: "People with disabilities are problem solvers by nature, we have to be in order to basically live day to day." - Julie Sawchuk "Accessibility adds up to give people independence, dignity, and safety, and all of those things together equal energy." - Julie Sawchuk Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.
Maintaining yourself as a care partner in the best possible way to be physically, mentally, and emotionally strong is what allows you to provide the best care and support for this person who is relying on you for their well-being. In this episode, Elissa Lewin teaches how to care for yourself while caring for others, and how this will allow you both to maintain a level of independence. She breaks down the benefits of attending one of Nancy's House's retreats or online programs, as well as how to make them accessible to care providers who may not have the time or resources to attend in person. Let's dive in! Elissa Lewin is a licensed psychologist, licensed marriage and family therapist, and serial caregiver. She founded Nancy's House in 2006 to fill a need for service to family caregivers. Caregivers are the invisible backbone of our healthcare system. Yet, historically, there have been few services available to support them, despite the constant cry of "Caregivers need to take care of themselves." Key Highlights: [00:01 - 08:09] Opening Segment • Elissa introduces what Nancy's House does and its mission A nonprofit that provides support to family caregivers in the form of retreats, online programs, and workshops • How caregivers in the mid-Atlantic region can find relief from the stresses of care Some attendees may not be able to attend events, but there are shorter, accessible programs available [08:10 - 16:18] Nancy's House • The difference between Nancy's House and respite • Why the cost of Nancy's events is high • The educational workshops that are included Paying attention to body signals, maintaining independence, and recognizing when a loved one needs care [16:19 - 24:29] The Backbone of Accessibility • It's important for caregivers to care of themselves so they can take care of people with disabilities • Elissa stresses why the biggest challenge for caregivers is funding Caregivers are invisible, and finding recognition and support is hard • How Elissa came up with the name Nancy's House [24:30 - 29:56] Closing Segment • When the National Caregiving Conference will be Don't miss it, register here. Want to connect with Elissa? Head to her website, caring for caregivers! Key Quotes: "Nancy's house breaks the isolation and exhaustion that can come with taking care of somebody who is chronically ill or disabled." - Elissa Lewin "There is the gratification that comes with taking care of somebody else, and that is absolutely true and undeniable. And for a lot of people that gratification is what keeps them going." - Elissa Lewin "Care provision is the backbone of accessibility." - Elissa Lewin Please check out videos of many of the podcast episodes on my YouTube channel: Accessible Housing Matters, To learn more, share feedback, or share guest ideas, please visit my website, or contact me on Facebook and Twitter. Like what you've heard? Please review us! That helps let other people know about the podcast. Accessible Housing Matters is dedicated to raising awareness about important issues around accessibility and housing, and getting conversations going. I'd love to learn more about what's on your mind and get your feedback about the show. Contact me directly at stephen@accessiblehousingmatters.com to share your thoughts or arrange a call.