Alopecia Life

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

S5E9 Gut Healing & How to Reclaim Your Health with Lisa Taylor

Welcome to this episode of Alopecia Life. For those who have listened to past episodes, you may remember the 3 healthy habits to have in our lifestyle toolbelt that Integrative Nutrition and Gut Health Coach, Lisa Taylor, provided to all of us to start and continue a self-healing journey. Lisa is back to share about her upcoming FREE masterclass in March, along with her 12 week Alopecia Warrior Self-Healing collective group program. I believe we are becoming more empowered with our heal...

02-29
44:18

S5E8 Operation Hat Drop, with Allison & Anthony D'Alessandro

Thank you for joining us for this first Alopecia Life episode of 2024. It's a new year, and I'm so excited to have a feel-good story for you today. Our guests today are Allison & Anthony. I found out about this fabulous family within a group where Allison shared about the hat collection that was growing exponentially after they started a small ask of their friends and family to help support Anthony. Due to the number of hats they were receiving, she knew she wanted to find more kids who m...

01-11
26:26

S5E7 How to Share Your Story & Have It Make An Impact with your College Essay, with Jill Shulman

Welcome to this episode of Alopecia Life. A few months ago, I was talking with Kylie, another CAP mentor, who expressed an interest in helping college-bound kids share their alopecia story in the essay portion of their college application. I thought it was a fantastic idea, and got to work looking for the perfect podcast guest to speak on this topic, and found Jill Shulman. Jill is the author of College Admissions Cracked: Saving Your Kid (and Yourself) From the Madness. She is an estab...

12-07
51:04

S5E6 Boundaries Around Holidays and Gatherings

Welcome to this episode of Alopecia Life. The time for gatherings is here. Holidays, work parties, get-togethers with friends and family that "should" be fun. But...sometimes these gatherings turn into colossal upsets due to well-meaning or misguided family and friends. Of course, there does tend to be one total ass-hat who likes to take up space too. The early days of being diagnosed can be increasingly difficult with all of these events that we're expected to attend. Over t...

11-23
03:33

S5E5 Seasons Of Change with Skye Waggoneer

Thank you for listening to today's podcast. Back in September of this year, I re-interviewed Skye from season 2 of Alopecia Life to get an update on how things had changed for Ohna from when she was 9 until now at 13 with regards to school. Back then, It was 2020, and we were talking about back-to-school at a very strange and uncertain time. Today's interview is with Skye only. Ohna has given us the go-ahead and trust to share about her experience through Skye's own perspective. As we move in...

11-09
26:10

S5E4 Freedom Wigs - It's Not Only a Name, It's a Feeling! with Deanna Beattie

Welcome to this episode of Alopecia Life. Today's guest is Deanna Beattie of Freedom Wigs. Freedom Wigs has a unique origin story and an even more unique continuation of that story. As I was talking with Deanna, I discovered more about her as a mother, about someone who has a commitment and passion to provide a superior experience with Freedom Wigs, and takes into consideration knowledge, empathy, and respect for what goes into the process of making something so personal when someone is looki...

10-26
54:43

S5E3 Adventures For Alopecia - Where the Journey Ends, with Skylar Weaver

Welcome to this episode of Alopecia Life. Four years ago, Skylar Weaver set off on his mission to raise alopecia awareness while traveling through central America. As with most adventures and intentions, things come up that cause us to change direction, take a new route, and that's just what happened 7 months into the trip. It was great catching up with Skylar to see what the trip accomplished, not only for his own wellbeing, but also for the families and groups he met throughout the trip. Le...

10-05
17:02

S5E2 Alopecia Awareness What it Means to Spread Your Sparkle with Eryn Barclay

Welcome to this episode of Alopecia Life. It's the month of September, and as many of you know - it's Alopecia Awareness Month. Today's guest is Eryn Barclay. She is a wife and mother, and works full-time for the Walt Disney Company in the entertainment department as a cosmetologist. Eryn shares with us about the origin of Lou & Doe. How it started and the significance of what it has grown into in the last year. Sometimes, we wonder what we can do during alopecia awareness month, and this...

09-21
24:54

S5E1 504 Plans - How & When to Ask for Accommodations Around Alopecia with Dr. Sherri Barrow

Welcome to Season 5 of Alopecia Life. In this first episode, our guest is Dr. Sherri Barrow. Each season, around this time of year we talk about back-to-school and how we can make the school experience a good one for our kids. Looking back as a kid who lived with alopecia areata since the age of 7, I know I needed more support in school. I'm sure many of you would agree based on your own experience - there was very little to no support. Some things have changed since then. There are mor...

09-07
45:28

S4E28 Season 5 & Alopecia Awareness Month Starting Next Week

Next week will be the beginning of Season 5 for Alopecia Life and the beginning of Alopecia Awareness Month. I'm excited to bring you episodes with new and continuing conversations around living with alopecia areata. Thank you so much for listening over the last 4 years. I look forward to another season filled with amazing guests and topics that help us all understand there is a community of support out there who understands.Support the Show.Alopecia Life provides free resources for school an...

08-31
01:46

S4E27 Stories from Camp with Angelique, Abbee & Baylee

Welcome to this episode of Alopecia Life. This is one of the last ones for the summer of our Stories from Camp series. It was super cool to tune into the sounds of nature again - kids playing a game, birds chirping, and the hum of dragonfly wings. Today's guest is Baylee, and she is being interviewed by Angelique and Abbee who do a great job of asking questions on the fly. Baylee has the sweetest personality, and provides some very touching insight into what it's like in school, along with a ...

08-24
31:00

S4E26 Back-to-School with Alopecia Recap #2

Welcome to this next episode of Alopecia Life and the Back-to-School recap #2. This is 2020's episode where I interview Artist and Animator, Lydia Hibbert and Kerry Montgomery, the Psychological Wellbeing lead from Alopecia UK where we chat about the importance of raising awareness in a way that kids can relate to. Through their Talking About Alopecia animation, which features voices of children living with alopecia, alopecia awareness has been able to make a difference in a strong and unique...

08-17
01:28

S4E25 Back-To-School with Alopecia Recap #1

It's that time of year again for kids as they head back to school. Going back to school is often one of the biggest pain points for families, especially if their child has been diagnosed during summer break. This is the first recap of 4 of our back-to-school episodes set up to remind us that even though we cannot control our child's hair loss, we do have the capability of making the education experience better for them, no matter how old they are. These episodes are all setting up for t...

08-10
01:03

S4E24 Teen Talk with Abbee Tolman

Welcome to this episode of Alopecia Life. Today's second episode of Teen Talk is with Abbee Tolman. As she shares her story with us, you may feel memories pop up around sharing about your own hair loss, friendships that have been gained and lost, and the strong sense of self that comes from living with alopecia. I feel lucky to be invited in to listen to Abbee's story, and I have a feeling you will be too. Let's welcome Abbee to Alopecia Life. Thank you so much for sharing your time with...

08-03
33:39

S4E23 The Pathway from Devastation to Acceptance - One Dad's Journey After His Daughter's Alopecia Diagnosis

Thank you so much for listening to this episode of Alopecia Life. We are sitting outside on a perfect day in the Pacific Northwest at the second annual kids CAP camp out on Orcas Island. Today's guest is Brandon James.He is dad to Kennedi and AJ. Brandon's thoughts about Kennedi being viewed as different than other kids was at the top of his mind after hearing she had been diagnosed with alopecia. He's here to share the not-so-easy beginnings, and the journey to embracing Kennedi's alopecia a...

07-06
31:16

S4E22 Leadership & Alopecia - How the B.A.L.D. Method Can Make a Difference, with Joyel Crawford

Welcome to this episode of Alopecia Life. Today's guest is Joyel Crawford. Some of you may have already watched her recent Tedx Talk. Others may have purchased her book "Show Your Ask" - Using Your Voice to Advocate for Yourself and Your Career. It's very cool to see the many ways her work in leadership also relates to her alopecia diagnosis. Check out the show notes for all the awesome ways Joyel is impacting the career and leadership world. Thanks for joining us today for this fun con...

06-22
26:39

S4E21 Stories from Camp with Abbee, Angelique & Kennedi

Welcome to this episode of Alopecia Life. I'm super excited to have two guest hosts, Abbee and Angelique interviewing Kennedi for today's stories from camp. I wanted to have teenagers interview the younger kids who felt comfortable sharing about their alopecia experience to gain a different perspective from them as a group. It couldn't have gone better, especially for it being their first time. Last episode, you got to know Angelique a little bit better, and Abbee's episode will be released v...

06-08
20:39

S4E20 Teen Talk with Angelique Staggs

Welcome to this first episode of Alopecia Life - Teen Talk with our guest, Angelique Staggs. I am excited to have the perspective of teenagers on the podcast to share what living with alopecia looks and feels like for them. Angelique is one of the two guest hosts who interviewed children at CAP camp at the end of May, and I look forward to sharing those episodes with you very soon. Please welcome Angelique to Alopecia Life. Thank you for sharing your time with Angelique and me today. Fee...

05-25
32:18

S4E19 Alopecia Podcasts - What's New & Exciting

Welcome to this episode of Alopecia Life. Some of you have been here from the beginning, and others have just recently discovered this podcast. Right now, I'm excited to be at the tailend of the 4th season. When I started, there were no podcasts dedicated specifically to alopecia that had any true longevity. It was so important to open up conversations about alopecia so that all of you would feel connected to the guests and the topics that surround alopecia. Alopecia Life has always focused o...

05-04
03:20

S4E18 - Toxic - A Father's Crusade to Heal His Family & His Home, with Jamie Way

Our guest today is Jamie Way. Last year, I noticed Jamie posting quite a bit about his young daughter's alopecia and how they were doing a deep dive into her health. We actually interviewed last year, and the recording ended up not being usable. It took us another year to record, and with that a lot more information has surfaced that we hope will be helpful to those of you wishing to explore some potential triggers. Their journey has not been an easy one, and listening to the interview r...

04-20
57:57

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