Amplify
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Welcome to Amplify!
Season 1:
How patient groups can help drive change toward personalized care.
Stand-alone EHC episode:
Our journeys with rare bleeding disorders.
To ensure you don't miss out on future episodes, please click the subscribe button.
All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited.
See acast.com/privacy for privacy and opt-out information.
16 Episodes
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Todos los oradores invitados se reúnen para responder preguntas enviadas por los oyentes y la moderadora resume los mensajes clave de la serie de podcasts.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0045 See acast.com/privacy for privacy and opt-out information.
La Dra. Joyce Ching Mei Lam, consultora principal del Hospital de Mujeres y Niños de KK, Singapur, y Cesar Garrido, miembro de la junta de la Federación Mundial de Hemofilia (FMH) de Venezuela, comparten sus propias experiencias en el desarrollo de los Principios de Cuidado de la Hemofilia de Asia y el Pacífico y la Declaración de la Ciudad de Panamá sobre Atención Integrada para la calidad de vida de las personas con hemofilia y otros trastornos hereditarios de la coagulación. También brindan consejos sobre cómo las guías regionales, como estas, pueden apalancar a las organizaciones de pacientes para promover el cambio.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0044 See acast.com/privacy for privacy and opt-out information.
Mark Skinner, presidente/director ejecutivo del Institute for Policy Advancement, Estados Unidos, y David Page, director nacional de políticas de salud de la Sociedad Canadiense de Hemofilia, Canadá, hablan sobre la importancia de la recopilación de datos y los resultados informados por los pacientes para enaltecer la voz del paciente en la toma de decisión en salud. Discuten un proyecto de recopilación de datos, llamado PROBE y destacan cómo los grupos de defensa pueden usar esta herramienta basada en la evidencia.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0043 See acast.com/privacy for privacy and opt-out information.
La doctora Tulika Seth, profesora de hematología en el Instituto de Ciencias Médicas de India y Mukesh Garodia, presidente de la Federación de Hemofilia de India, analizan cómo las asociaciones entre múltiples partes interesadas, están ayudando a difundir las políticas de salud en ese país, para mejorar la atención de la comunidad de trastornos hemorrágicos.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0042 See acast.com/privacy for privacy and opt-out information.
Clive Smith del Reino Unido y Ekawat Suwantaroj de Tailandia, dos pacientes con hemofilia A severa que presiden grupos de pacientes en sus países de origen, comparan sus propios recorridos hacia la atención personalizada. Un punto clave de la discusión es la importancia de los planes personalizados de atención y los equipos multidisciplinarios, para ayudar a los pacientes con hemofilia a alcanzar sus propios objetivos.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0039 See acast.com/privacy for privacy and opt-out information.
El Dr. Runhui Wu del Hospital de Niños de Beijing en Beijing, China, y el profesor Alfonso Iorio de la Universidad McMaster, Ontario, Canadá, hablan sobre el porqué y el cómo de la profilaxis individualizada, analizan las barreras para su implementación y el efecto que este plan de tratamiento puede tener sobre los resultados del paciente, incluyendo la discusión sobre la frecuencia de los sangrados y la salud articular.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0040 See acast.com/privacy for privacy and opt-out information.
El Dr. Nguyễn Thị Mai, experto en hemofilia de Vietnam, junto con Brian O'Mahony, director ejecutivo de la Sociedad Irlandesa de Hemofilia, analizan cómo se han implementado dos programas de desarrollo de capacidades de la Federación Mundial de Hemofilia (FMH) en Vietnam y el papel que cada uno de ellos ha tenido en la mejora de la atención a la comunidad de trastornos hemorrágicos.Toda la información es exacta a septiembre del 2020. Esta serie de podcasts fue iniciada, financiada y organizada por Takeda. Takeda pagó honorarios a algunos oradores por su participación. Copyright 2020 Takeda Pharmaceutical Company Limited. Todos los derechos reservados. Takeda y el logotipo de Takeda son marcas comerciales registradas de Takeda Pharmaceutical Company Limited.Diciembre de 2020 | C-ANPROM/INT/HG/0041 See acast.com/privacy for privacy and opt-out information.
All guest speakers reunite to answer follow-up questions submitted by the listeners and the key messages of the podcast series are summarized by the moderator. All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8327 See acast.com/privacy for privacy and opt-out information.
Dr. Joyce Ching Mei Lam, Senior Consultant at the KK Women’s and Children’s Hospital, Singapore, and Cesar Garrido, board member of the World Federation of Hemophilia (WFH) from Venezuela, share their own experiences in developing the Asia-Pacific Principles of Hemophilia Care and the Declaration of Panama City on Integrated Care for the Quality of Life of the People with Hemophilia and Other Inherited Bleeding Disorders. They also give advice on how regional guidance documents such as these can be leveraged by patient organizations to advocate for change.All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8326 See acast.com/privacy for privacy and opt-out information.
Mark Skinner, President/CEO of the Institute for Policy Advancement, USA, and David Page, National Director of Health Policy at the Canadian Hemophilia Society, Canada, talk about the importance of data collection and patient-reported outcomes for enhancing the patient voice in healthcare decision-making. They discuss one data collection project in particular, called PROBE, and highlight how it can be used as an evidence-based tool by advocacy groups. All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8325 See acast.com/privacy for privacy and opt-out information.
Dr. Tulika Seth, Professor of Hematology at the All India Institute of Medical Science, and Mukesh Garodia, President of the Hemophilia Federation India, discuss how multistakeholder partnerships are helping to inform health policies in India to improve care for the bleeding disorders community.All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8324 See acast.com/privacy for privacy and opt-out information.
Dr. Nguyễn Thị Mai, a hemophilia expert from Vietnam, together with Brian O'Mahony, the CEO of the Irish Haemophilia Society, discuss how two World Federation of Hemophilia (WFH) capacity-building programs have been implemented in Vietnam and the role that each of them has had in improving care for the bleeding disorders community.All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8265 See acast.com/privacy for privacy and opt-out information.
**This episode is only intended for listeners outside the United States** Dr. Runhui Wu from the Beijing Children’s Hospital in Beijing, China, and Professor Alfonso Iorio from McMaster University, Ontario, Canada, talk about the why and the how of individualized prophylaxis. Barriers to individualized prophylaxis and the effect that this type of treatment plan can have on patient outcomes such as bleeding frequency and joint health are also discussed. All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8262 See acast.com/privacy for privacy and opt-out information.
**This episode is only intended for listeners outside the United States** Clive Smith from the UK and Ekawat Suwantaroj from Thailand, two patients with severe hemophilia A who chair patient groups in their home countries, compare their own journeys to personalized care. A key point of discussion is the importance of personalized care plans and multidisciplinary teams in supporting patients with hemophilia to reach their own goals.All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8261 See acast.com/privacy for privacy and opt-out information.
Tina Carmillia, a Malaysian multimedia producer and journalist, interviews healthcare professionals, policy makers, and patient representatives from the bleeding disorders community regarding patient advocacy and personalized care.All information is accurate as of September 2020. This podcast series is initiated, funded, and organized by Takeda. Some speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 | C-ANPROM/INT//8238 See acast.com/privacy for privacy and opt-out information.
This podcast episode brings together three members of the rare bleeding disorders community, Baiba Ziemele, Donal McCann and Clive Smith, for a captivating and informative conversation about their personal experiences, quality of life, current gaps in diagnosis and care, and whether there are key learnings from the hemophilia community that can be applied to von Willebrand disease.All information is accurate as of September 2020. This stand-alone podcast episode is intended for listeners outside the US only. This podcast is initiated, organized, and funded by Takeda. All speakers were paid an honorarium by Takeda for their participation. Copyright 2020 Takeda Pharmaceutical Company Limited. All rights reserved. Takeda and the Takeda logo are registered trademarks of Takeda Pharmaceutical Company Limited. September 2020 / C-ANPROM/INT//8292 See acast.com/privacy for privacy and opt-out information.
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