BARE IT ALL

This week on BARE It All Coffee Talk, Stephanie sits down with the incredible Rachel, an adult survivor of Biliary Atresia, for a raw, heartfelt, and eye-opening conversation. What is it really like navigating adulthood with a rare pediatric liver disease? Rachel shares her journey, the challenges and triumphs, and what she wishes more people understood.🌟 Whether you're part of the BA community or just discovering it, this episode is a must-listen.PLUS: Don’t miss this one — a powerful and riveting update from Rachel drops next week. Trust us, you’ll want to be caught up.🎧 Grab your coffee and tune in now 🎧

🎧 Season Premiere – BARE It All Coffee Talk ☕Welcome to a brand-new season of BARE It All Coffee Talk! We're kicking things off with powerful conversations and exciting updates—we're now streaming on all major podcast platforms and on YouTube!In this emotional and eye-opening episode, we sit down with Brooks, an adult living with biliary atresia. Brooks shares his deeply personal journey, the medical challenges he's faced, and the mindset that helps him keep moving forward.Whether you’re navigating a rare condition yourself or just want to hear an incredible story of resilience and hope, this episode is a must-listen.🔔 Don’t forget to subscribe, rate, and share to help us spread awareness and inspire others.Topics Covered:Living with biliary atresia as an adultFacing chronic illness with courageFinding strength through community and conversation#BAREItAllCoffeeTalk #BiliaryAtresia #PatientStories #PodcastSeasonPremiere #ChronicIllnessAwareness #HealthJourney #Resilience

On this BARE It All Coffee Talk episode, Stephanie sits down with Sarah and Dan to share their journey with Biliary Atresia. They open up about their experience raising a child who’s had a Kasai procedure and offers insight into the emotional and physical challenges of navigating such a medical journey. Tune in to hear about their unique perspectives on this life-changing experience from mom and dad. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠. Let's amplify our voices and foster understanding together." Connect with us: • ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help. Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠ #BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk

On this episode of BARE It All Coffee Talk, host Stephanie is joined by Brandi to discuss their journey with Biliary Atresia. They candidly share their experiences, including the challenges and triumphs along the way. If you've faced complications or want to understand this condition better, this is an episode you won't want to miss! If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠. Let's amplify our voices and foster understanding together." Connect with us: • ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help. Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

On this episode of BARE It All Coffee Talk, host Stephanie is joined by President Jen for an insightful discussion about COTA (Children's Organ Transplant Association). They chat with COTA President Rick and two families who have benefited from COTA’s support. Please tune in to hear their personal medical journeys and discover how COTA has made a difference in their lives. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠contactus@bareinc.org⁠⁠⁠. Let's amplify our voices and foster understanding together." Connect with us: • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help. Music by ⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠ from ⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

Join us in this emotional episode of BARE It All, Coffee Talk, as we sit down with Aaron to hear his poignant journey with biliary atresia and transplant. Aaron bravely shares the challenges and triumphs of living with biliary atresia as an adult, offering a candid look into his life. The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families. ⁠Biliary Atresia - UCSF transplant surgeons⁠. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠contactus@bareinc.org⁠. Let's amplify our voices and foster understanding together." Music by ⁠Magnetic_Trailer⁠ from ⁠Pixabay⁠ Connect with us: • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠ to learn more about how they can help.

Join us in this episode of BARE It All, Coffee Talk, as we sit down with Jenna to delve into her son Alex’s journey with biliary atresia and transplant. Jenna bravely shares the challenges and complications Alex faced post-transplant, offering listeners a glimpse into their daily lives and resilience. The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families. Biliary Atresia - UCSF transplant surgeons. If you or someone you know has experience with biliary atresia and are willing to share your journey publicly to support our initiative, please reach out to us at contactus@bareinc.org. Let's amplify our voices and foster understanding together." Music by Magnetic_Trailer from Pixabay Connect with us: • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠ to learn more about how they can help.

Join Stephanie and Maria as they delve into the crucial topic of newborn screenings with special guests Anna Grantham and Aman Dhami-Judge. Their insightful conversation sets the stage for the upcoming BARE 2024 Symposium, where experts will further explore this vital aspect of infant health. To learn more about Hunter’s Hope and their mission, visit their website here or connect with them on Facebook. You can also tune in to their podcast, 'Light of Hope,' available here. Understanding Rare Diseases: Krabbe Disease: Krabbe disease is a rare, inherited metabolic disorder characterized by the accumulation of harmful lipids in various cells and tissues, ultimately leading to the destruction of brain cells. Learn more about it here. Biliary Atresia: Biliary atresia affects approximately one in 10,000 children, with a higher prevalence among males and Asian and African-American newborns. Contrary to popular belief, it is not an inherited disease. Find out more here. Share Your Story: If you or someone you know has experience with biliary atresia and would like to share your journey to support our initiative, please reach out to us at contactus@bareinc.org. Let's amplify voices and foster understanding together. Connect with us: • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠ • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠ Support for Life-Saving Transplants: If your child is in need of a life-saving liver transplant due to biliary atresia, reach out to The Children's Organ Transplant Association (COTA). They provide support to families, easing the financial burden of transplants at no cost. Call COTA today at 1-800-366-2682 or visit www.cota.org/getstarted for more information. Music Credits: Background music by Magnetic_Trailer from Pixabay.

Samantha shares Kendyl's inspiring Biliary Atresia story and how the disease impacted their lives.

Stephanie & Jen have a coffee talk discussion about the upcoming 2024 Bare Symposium which will be hosted at Stanford in Palo Alto, CA on May 10th and 11th.

In this episode, we will be discussing Caleb’s Biliary Atresia story. Connect with us: ⁠⁠Bare Inc.⁠⁠ ⁠⁠Instagram⁠⁠ ⁠⁠X - Twitter⁠⁠ ⁠⁠Facebook⁠⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠www.cota.org/getstarted⁠⁠⁠ to learn more about how they can help.

In this episode, we talk with Dr. Ahmad Anouti. Connect with us: ⁠Bare Inc.⁠ ⁠Instagram⁠ ⁠X - Twitter⁠ ⁠Facebook⁠ If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠www.cota.org/getstarted⁠⁠ to learn more about how they can help.

Jen and Jordan talk with Lorraine Stiehl, CEO of the American Liver Foundation. If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help. Resources from This Episode: Liver - American Liver Foundation Liver Function for Kids (liverfoundation.org) https://www.facebook.com/liverinfo https://twitter.com/liverUSA https://www.youtube.com/user/americanliver https://www.congress.gov/bill/118th-congress/senate-bill/1384/all-info https://www.bareinc.org/

Jen and Jordan discuss friendships before, during, and after their child's transplant.

Jen and Jordan discuss love and marriage and how going through a pediatric liver transplant affected both, with special guest Morgan Hill. If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew are looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.

BARE's Jen and Jordan discuss center rankings with Dr Saeed Mohammad and Riccardo Superina from the BARE Medical Advisory Committee

A discussion about mental health in the BA community with BARE's partner Liver Mommas! Music clips - I'm Fine by Ashe - All I Really Want by Alanis Morissette Book reference: The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk M.D. - https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748

Jordan and Jen talk with Jenny Tice about her journey with BA and transplant as an adult. 

Music by AudioCoffee from Pixabay Links mentioned in this episode: Website: transplantfamilies.org Twitter:   twitter.com/transplantfams Facebook:  facebook.com/transplantfamilies Instagram:  instagram.com/transplantfamilies YouTube:  youtube.com/user/TransplantFamilies LinkedIn:  linkedin.com/company/transplant-families Pinterest:  pinterest.com/transplantfams/

This episode talks about the resources available to Biliary Atresia families through COTA- Children's Organ Transplant Association and how they have helped many families go through the BA to transplant journey.